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Peroxisomal acyl-CoA oxidase deficiency
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Pain relief
I am currently taking oramorph (4 x 5ml daily) i have tried other painkillers such as naproxen, codene, co-codamol etc but they don’t come close to touching my pain. I have been taking oramorph on and off for the last 5 years. I don’t want to continue taking it but i cannot manage my pain without it.
I am currently taking oramorph (4 x 5ml daily) i have tried other painkillers such as naproxen, codene, co-codamol etc but they don’t come close to touching my pain. I have been taking oramorph on and off for the last 5 years. I don’t want to continue taking it but i cannot manage my pain without it.
DAML8
in
Endometriosis UK
4 years ago
Blood test advice, specifically Iron
I am currently on 100mcg of thyroxine, but have been struggling over the last year with tiredness and dizziness, dry skin, hair loss. I did a private test last year (I will attach more pics in the comments), this identified low vit D and folate and also low ferritin. I took this to my GP who advised
I am currently on 100mcg of thyroxine, but have been struggling over the last year with tiredness and dizziness, dry skin, hair loss. I did a private test last year (I will attach more pics in the comments), this identified low vit D and folate and also low ferritin. I took this to my GP who advised
Ejsmith
in
Thyroid UK
4 years ago
Chest pain and neck and throut
Hi I have another problem trouth pain and neck every night I m never seen in my life like this one no coughing no fever no headaches just neck trouth chest pain I call my doctor he give me co codamol 30/500mg capsules is not helping
Hi I have another problem trouth pain and neck every night I m never seen in my life like this one no coughing no fever no headaches just neck trouth chest pain I call my doctor he give me co codamol 30/500mg capsules is not helping
Alios67
in
Pain Concern
4 years ago
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Pain relief medication for cronic lower back pain, and Sciatica.
Have been diagnosed with Churg Strauss Syndrome, but also suffer with cronic lower back pain and Sciatica. Currently taking the maximum Co-Codamol of 40 tablets a week to little effect for my back pain. Rang to speak to my GP today, but was told to ring back in a week, when he is back of his hols. Can
Have been diagnosed with Churg Strauss Syndrome, but also suffer with cronic lower back pain and Sciatica. Currently taking the maximum Co-Codamol of 40 tablets a week to little effect for my back pain. Rang to speak to my GP today, but was told to ring back in a week, when he is back of his hols. Can
Ruskie
in
Pain Concern
4 years ago
b12 injection query
ACTIVE B12 49.8 37.5 - 187.5 Recent bloods showed my iron stores good on the upper end of the scale. My folate was 10 in January and I have been supplementing since My Active B12 is just in range. If I inject B12 will it make my iron too high or does it not affect iron. I get shortness of breath
ACTIVE B12 49.8 37.5 - 187.5 Recent bloods showed my iron stores good on the upper end of the scale. My folate was 10 in January and I have been supplementing since My Active B12 is just in range. If I inject B12 will it make my iron too high or does it not affect iron. I get shortness of breath
ninja1
in
Pernicious Anaemia Society
4 years ago
!!!"Iron deficiency anemia/ B12 deficiency cause heart palpations/flutters?
Desperately seeking reassurance, advice etc. I've had on and off heart palpations and ectopic beats since I lost a lot of blood during child birth 7 years ago. That's when it all started. I've had all the checks but my heart is structurally fine. The doctor thinks because my iron is very low this
Desperately seeking reassurance, advice etc. I've had on and off heart palpations and ectopic beats since I lost a lot of blood during child birth 7 years ago. That's when it all started. I've had all the checks but my heart is structurally fine. The doctor thinks because my iron is very low this
Lilianxious
in
Pernicious Anaemia Society
4 years ago
What now
Have now been on Gabapentin 300mg x 3 times a day now for 4 weeks but no improvement whatsoever to my back pain, still cannot walk very far, painful at bedtime, what now??!! Back to the GP I suppose. I have had tramadol, pregabalin, co-codamol, injections and surgery non of which have helped a little
Have now been on Gabapentin 300mg x 3 times a day now for 4 weeks but no improvement whatsoever to my back pain, still cannot walk very far, painful at bedtime, what now??!! Back to the GP I suppose. I have had tramadol, pregabalin, co-codamol, injections and surgery non of which have helped a little
Spursboy
in
Pain Concern
4 years ago
Migraine
Hi guys I have had the worst migraine for two days now . Does anyone know what can be taken stronger than co codamol when on warfarin 🙏
Hi guys I have had the worst migraine for two days now . Does anyone know what can be taken stronger than co codamol when on warfarin 🙏
amy1808
in
Hughes Syndrome APS Forum
4 years ago
Parkinsons Disease and B12 deficiency
Hi All, Saw this link on a recent thread and thought I'd draw attention to it. https://parkinsonsnewstoday.com/2020/03/27/possible-link-between-vitamin-b12-and-dementia-in-parkinsons-disease/ I had both dementia symptoms and tremors when at my worst and suspect that sometimes people are misdiagnosed
Hi All, Saw this link on a recent thread and thought I'd draw attention to it. https://parkinsonsnewstoday.com/2020/03/27/possible-link-between-vitamin-b12-and-dementia-in-parkinsons-disease/ I had both dementia symptoms and tremors when at my worst and suspect that sometimes people are misdiagnosed
Sleepybunny
in
Pernicious Anaemia Society
4 years ago
Lupus/APS and cod liver oil
Hi, I'm 49, and have lupus with antiphospholipid syndrome. I'm currently on lifelong warfarin, statins, vit D, hydroxychloroquine and methotrexate injections. The inflammatory arthritis is very painful, would cod liver oil be safe to take with anticoagulants? I think the oil would help with the inflammation
Hi, I'm 49, and have lupus with antiphospholipid syndrome. I'm currently on lifelong warfarin, statins, vit D, hydroxychloroquine and methotrexate injections. The inflammatory arthritis is very painful, would cod liver oil be safe to take with anticoagulants? I think the oil would help with the inflammation
Gerardina
in
LUPUS UK
4 years ago
What helped my ferritin - hopefully helps someone :)
Hey there, I've decided to share some good news! I have tried everything to increase my ferritin, it was always a bit low in range. I have tested in September 2019 and it was 52 (13-150) which is about 28% of range. I was already happy with it because previously it had been even lower. I went for tests
Hey there, I've decided to share some good news! I have tried everything to increase my ferritin, it was always a bit low in range. I have tested in September 2019 and it was 52 (13-150) which is about 28% of range. I was already happy with it because previously it had been even lower. I went for tests
Hidden
in
Thyroid UK
4 years ago
Blood in urine?
Last night I started having blood in my urine, I took a sample in to the doctors (easier said than done) I’ve had a message to say there’s no sign of infection so they’ve sent it to the lab for further testing, which is quite worrying. Obviously at the moment there’s a bit of a back log in the lab, so
Last night I started having blood in my urine, I took a sample in to the doctors (easier said than done) I’ve had a message to say there’s no sign of infection so they’ve sent it to the lab for further testing, which is quite worrying. Obviously at the moment there’s a bit of a back log in the lab, so
lizzziep
in
MPN Voice
4 years ago
What do my new levels mean? Been taking levo for six weeks. Many thanks.
Good evening! Please can I have some advice on my levels? Have included previous blood levels below. Many thanks!!!!! FYI Have been taking Levo 50mcg since 4 feb 2020 Have had a ferritin deficiency for a long time and have been taking ferrous sulphate for seven months. 2x200 a day. Indeed my ferritin
Good evening! Please can I have some advice on my levels? Have included previous blood levels below. Many thanks!!!!! FYI Have been taking Levo 50mcg since 4 feb 2020 Have had a ferritin deficiency for a long time and have been taking ferrous sulphate for seven months. 2x200 a day. Indeed my ferritin
Flashgirl
in
Thyroid UK
4 years ago
New to all this
Woke one morning in terrible pain all over,could hardly move. Managed to contact one Dr who said Sciatica and gave high strength co-codamol. They did not work so spoke to another Dr who gave prednisodol 12 x 5m a day for 7 days. Overnight, pain almost gone. 7 days later another Dr reduces dose to 11
Woke one morning in terrible pain all over,could hardly move. Managed to contact one Dr who said Sciatica and gave high strength co-codamol. They did not work so spoke to another Dr who gave prednisodol 12 x 5m a day for 7 days. Overnight, pain almost gone. 7 days later another Dr reduces dose to 11
colinputman
in
Pain Concern
4 years ago
Period pain or something more ?
Hi, I’m new to this and wasn’t to sure what community to post on. I’m 18 years old, and have had painful periods for most of the time since I first started my period. I must say, the pain has improved over the years as I went from being in pain for the first 2-3 days of my period, to just being in pain
Hi, I’m new to this and wasn’t to sure what community to post on. I’m 18 years old, and have had painful periods for most of the time since I first started my period. I must say, the pain has improved over the years as I went from being in pain for the first 2-3 days of my period, to just being in pain
Lemolime
in
Women's Health
4 years ago
Pain relief
Hey girls, So I have just been put on some pain relief ( Naproxen and cocodimol from my gp as i cant get to see my consultant atm due to what's going on, the co codamol mask the pain but the naproxen makes me feel sick for hours, is anyone else on these and experiencing the same or any advice on how
Hey girls, So I have just been put on some pain relief ( Naproxen and cocodimol from my gp as i cant get to see my consultant atm due to what's going on, the co codamol mask the pain but the naproxen makes me feel sick for hours, is anyone else on these and experiencing the same or any advice on how
Missunsure
in
Endometriosis UK
4 years ago
Co-dydramol
Does anyone know if you can take co-dydramol if you have IBS I have been having severe headache and pain in the back of my head since last Thursday, my doctor prescribed co-dydramol but it’s making me feel sick and have been getting stomach cramps Does anyone have any advice as I don’t want to go
Does anyone know if you can take co-dydramol if you have IBS I have been having severe headache and pain in the back of my head since last Thursday, my doctor prescribed co-dydramol but it’s making me feel sick and have been getting stomach cramps Does anyone have any advice as I don’t want to go
Peac
in
Anxiety Support
4 years ago
Pain Killers Pain Management Opiates and Stimulants
I have used Co Codamol 30-500 for many years to control lower back pain. I find the side effects of opiates "tiredness" so disabling and the long term use means they are becoming ineffective. There are numerous other negative effects caused by Opiates. I have tried some of the Neuropathic I,e. Amitriptyline
I have used Co Codamol 30-500 for many years to control lower back pain. I find the side effects of opiates "tiredness" so disabling and the long term use means they are becoming ineffective. There are numerous other negative effects caused by Opiates. I have tried some of the Neuropathic I,e. Amitriptyline
Pachamama1
in
Pain Concern
4 years ago
Weaned off Pramipexole. Gabapentin?
Hi All. Have successfully weaned myself off Pramipexole. Had been taking Gabapentin alongside for some time. Wanted to come off all medication and wanted to feel “normal” again so I didn’t have the side effects of these meds the next day. After about 3 weeks of horrendous nights of not sleeping at all
Hi All. Have successfully weaned myself off Pramipexole. Had been taking Gabapentin alongside for some time. Wanted to come off all medication and wanted to feel “normal” again so I didn’t have the side effects of these meds the next day. After about 3 weeks of horrendous nights of not sleeping at all
Dreamofsleep
in
Restless Legs Syndrome
4 years ago
Pain
Morning everyone. I’ve woken up this morning and have really bad pain. The kind that makes you cry. I have been having flare ups since November and was last seen by my rheumy nurse in Feb and given a steroid injection which helped a little but was very short lived, the nurse was going to be speaking
Morning everyone. I’ve woken up this morning and have really bad pain. The kind that makes you cry. I have been having flare ups since November and was last seen by my rheumy nurse in Feb and given a steroid injection which helped a little but was very short lived, the nurse was going to be speaking
Summerrain14
in
NRAS
4 years ago
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