Search
Search
About
Log in
Join
Experiences with
Peroxisomal acyl-CoA oxidase deficiency
Posts
Communities
3,118 public posts
Filter results
how to get IV iron infusion
i have had RLS for 30 years. Been on dopamine for 6 years. Shocked to read about how iron can help. Has anyone been able to get IV iron infusion? Who from? How best to go about it?? thanks!!!
i have had RLS for 30 years. Been on dopamine for 6 years. Shocked to read about how iron can help. Has anyone been able to get IV iron infusion? Who from? How best to go about it?? thanks!!!
Jukebox55
in
Restless Legs Syndrome
2 years ago
IMPORTANT: Nicotinamide riboside (or NAD+ or Tru Niagen) may be involved in neoplastic and metastatic processes
Some of us were taking nicotinamide riboside for RLS. A few days ago a paper was published with data suggesting it could be involved neoplastic and metastatic processes. Hence, please take this in consideration if you were taking nicotinamide riboside. Here is the reference: A bioluminescent-based
Some of us were taking nicotinamide riboside for RLS. A few days ago a paper was published with data suggesting it could be involved neoplastic and metastatic processes. Hence, please take this in consideration if you were taking nicotinamide riboside. Here is the reference: A bioluminescent-based
enjoy2013
in
Restless Legs Syndrome
2 years ago
IFAB testing guidelines per Mayo clinic laboratory website
I found this IFAB test guideline. I found a few things pretty interesting. This particular lab which is the lab that did my IFAB test says that you should be fasting for 8 hours before you take this test and you should not have had any B12 injections within 2 weeks prior to the test. Another interesting
I found this IFAB test guideline. I found a few things pretty interesting. This particular lab which is the lab that did my IFAB test says that you should be fasting for 8 hours before you take this test and you should not have had any B12 injections within 2 weeks prior to the test. Another interesting
EllaNore
in
Pernicious Anaemia Society
2 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Seemingly a sudden drop in ferritin but is it really?
15/08/22 Ferritin 236ug/L (13 - 150) Quite a bit over range, so I’m puzzled that a mere 12 weeks later - 16/11/22 - according to the new reference range it has suffered a significant drop to 39% through Yes, I immediately stopped iron supplementation but I continued with acerola to aid with food
15/08/22 Ferritin 236ug/L (13 - 150) Quite a bit over range, so I’m puzzled that a mere 12 weeks later - 16/11/22 - according to the new reference range it has suffered a significant drop to 39% through Yes, I immediately stopped iron supplementation but I continued with acerola to aid with food
Noelnoel
in
Thyroid UK
2 years ago
Advice on tablets if liquid thyroxine is still unavailable.
Hi all Having seen my GP today to discuss the lack of liquid thyroxine, she tells me that they cannot just discontinue providing it on the NHS as there are several patients that can't take thyroxine in any other form. It seems it is all cost related and pharmacies don't want to order it and be out
Hi all Having seen my GP today to discuss the lack of liquid thyroxine, she tells me that they cannot just discontinue providing it on the NHS as there are several patients that can't take thyroxine in any other form. It seems it is all cost related and pharmacies don't want to order it and be out
Tintin0202
in
Thyroid UK
2 years ago
Iron Infusions
An interesting article on iron infusions and when they should be considered for the general population.It mentions that inflammation can stop iron absorption. It also confirms that newer iv iron formulations are much safer with very low risk of adverse side effects. Most GPs will say iron infusions are
An interesting article on iron infusions and when they should be considered for the general population.It mentions that inflammation can stop iron absorption. It also confirms that newer iv iron formulations are much safer with very low risk of adverse side effects. Most GPs will say iron infusions are
Joolsg
in
Restless Legs Syndrome
2 years ago
results
follow on from my post yesterday finally have full test results. There also full blood count results but I guess they’re not relevant Test results 9 nov 22 Thyroid ft4 13.1 (12-22) TSH 2.49 (0.27-4.20) Ferritin 9.1 (13-150) Transferrin 3.49 (2.0-3.6) Iron 12.6 (10-30) Saturation % 14.4 (<55)
follow on from my post yesterday finally have full test results. There also full blood count results but I guess they’re not relevant Test results 9 nov 22 Thyroid ft4 13.1 (12-22) TSH 2.49 (0.27-4.20) Ferritin 9.1 (13-150) Transferrin 3.49 (2.0-3.6) Iron 12.6 (10-30) Saturation % 14.4 (<55)
jeffbird
in
Thyroid UK
2 years ago
Blood Test Results - Unusual Symptoms
Hi there I'm a 56 year old woman and have been treated for an under active thyroid for a decade or so. Currently taking 150 mcg Levothyroxine sodium per day. Around 8 weeks ago I started to experience some unusual symptoms; intense anxiety, fatigue, calf muscle twitches (and random twitching elsewhere
Hi there I'm a 56 year old woman and have been treated for an under active thyroid for a decade or so. Currently taking 150 mcg Levothyroxine sodium per day. Around 8 weeks ago I started to experience some unusual symptoms; intense anxiety, fatigue, calf muscle twitches (and random twitching elsewhere
DonEstello
in
Thyroid UK
2 years ago
Worried that my 17 year old daughter has colon cancer
I sadly lost my brother to bowl cancer in 2012. After months of being told that he had gastroenteritis or tummy bug. He was then made to feel that he was being a pest, so stopped speaking help. My brother was 40 when he died and only lived for 6 months after they found the stage 4 tumour. They never
I sadly lost my brother to bowl cancer in 2012. After months of being told that he had gastroenteritis or tummy bug. He was then made to feel that he was being a pest, so stopped speaking help. My brother was 40 when he died and only lived for 6 months after they found the stage 4 tumour. They never
Rhona78
in
Colon Cancer Connected
1 year ago
IFA negative, Low Active B12 - advice please.
Hi - a brief update and request for advice on B12. I have autoimmune hypothyroidism. Following a disappointing Endo appointment I wrote a detailed email to request an appointment with the Consultant as I felt I hadn’t had the chance to discuss my concerns properly with her junior. This was granted
Hi - a brief update and request for advice on B12. I have autoimmune hypothyroidism. Following a disappointing Endo appointment I wrote a detailed email to request an appointment with the Consultant as I felt I hadn’t had the chance to discuss my concerns properly with her junior. This was granted
GW1000
in
Pernicious Anaemia Society
2 years ago
Anemia
dealing with iron deficiency anemia of chronic diseases and suspect a B12 deficiency too but I almost think my immune system has attacked something else, to the point that I have a whole nother level of Anemia’s … It’s been 6 weeks since I had my last iron infusion and I’m starting to feel really weak
dealing with iron deficiency anemia of chronic diseases and suspect a B12 deficiency too but I almost think my immune system has attacked something else, to the point that I have a whole nother level of Anemia’s … It’s been 6 weeks since I had my last iron infusion and I’m starting to feel really weak
SouthernBell50
in
Pernicious Anaemia Society
2 years ago
Co Enzyme Q10
Hoes it going fellow heart obsessed lot, do any of you guys take this and how much? I’ve tried magnesium and with the beta blockers it seems to slow my heart way too much. Pvcs are frequent but not as bad as they were. They’re there all the time so looking for a natural help. Cod liver oil is good for
Hoes it going fellow heart obsessed lot, do any of you guys take this and how much? I’ve tried magnesium and with the beta blockers it seems to slow my heart way too much. Pvcs are frequent but not as bad as they were. They’re there all the time so looking for a natural help. Cod liver oil is good for
Achant1
in
AF Association
1 year ago
”CONFUSED” UPDATE
Well, I increased my Pred to 9 mg for 5 days but didn’t go straight back to my previous dose (4.5mg) but went to 6mg. So far the flu-type symptoms have gone but I still have a low-grade headache, plus pain in both shoulders and in the neck. I have tried taking paracetamol but this only has minimal
Well, I increased my Pred to 9 mg for 5 days but didn’t go straight back to my previous dose (4.5mg) but went to 6mg. So far the flu-type symptoms have gone but I still have a low-grade headache, plus pain in both shoulders and in the neck. I have tried taking paracetamol but this only has minimal
Janann25
in
PMRGCAuk
1 year ago
Iron Info Heme vs Non Heme
So, Heme iron is from animal sources and is apparently better absorbed than non Heme iron (from plant sources). The two different iron types are absorbed by different pathways. But, there are real risks in supplementing with Heme iron - Coronary Artery disease and Cancer incidence increases. I would
So, Heme iron is from animal sources and is apparently better absorbed than non Heme iron (from plant sources). The two different iron types are absorbed by different pathways. But, there are real risks in supplementing with Heme iron - Coronary Artery disease and Cancer incidence increases. I would
DicCarlson
in
Restless Legs Syndrome
2 years ago
Advice on blood results based on increase.
Hello I increased my thyroid medication as I have been struggling, I’ve been freezing cold, suffering from anxiety and weight gain. Back in June 2022 I started on HRT as I was having peri menopausal symptoms, and started on one pump of Oestrogel , and 200mcg nightly of Progesterone 14 days on, 14
Hello I increased my thyroid medication as I have been struggling, I’ve been freezing cold, suffering from anxiety and weight gain. Back in June 2022 I started on HRT as I was having peri menopausal symptoms, and started on one pump of Oestrogel , and 200mcg nightly of Progesterone 14 days on, 14
Peanut31
in
Thyroid UK
1 year ago
Steroids and Ibuprofen
I am currently on 7mg pred for PMR. I am also suffering from a trapped nerve in my back which I have had for six weeks now which has been VERY painful. My doctor has said under no circumstances to take any medication containing ibuprofen because of my steroids. Paracetomol does nothing to relieve
I am currently on 7mg pred for PMR. I am also suffering from a trapped nerve in my back which I have had for six weeks now which has been VERY painful. My doctor has said under no circumstances to take any medication containing ibuprofen because of my steroids. Paracetomol does nothing to relieve
Washingup
in
PMRGCAuk
1 year ago
Struggling to get comfortable when sleeping
Hello all, my wife is exhausted and 1) She's scared to sleep in case she doesn't wake up and 2) The pain in her neck and shoulders from lying down. Now we've got a V-shaped pillow which she puts (normal) pillows on top of the V-shaped pillow but TBH this isn't working. Is she doing right or wrong? I've
Hello all, my wife is exhausted and 1) She's scared to sleep in case she doesn't wake up and 2) The pain in her neck and shoulders from lying down. Now we've got a V-shaped pillow which she puts (normal) pillows on top of the V-shaped pillow but TBH this isn't working. Is she doing right or wrong? I've
Derek1uk
in
PSP Association
1 year ago
blood test results
Here are my blood test results. No Levo in 24 hours prior to doing blood test. No vitamins, for 2 days. Usually take multivitamin and multi mineral, evening primrose, cod liver oil. Test done 7am
Here are my blood test results. No Levo in 24 hours prior to doing blood test. No vitamins, for 2 days. Usually take multivitamin and multi mineral, evening primrose, cod liver oil. Test done 7am
Gbunny
in
Thyroid UK
1 year ago
Iron tabs with AF meds
Need some advice I have been prescribed iron tabs for anaemia - HB 80 I know they can upset the stomach & need to be taken when stomach empty. My AF meds are Flecainide Bisoprolol Apixiban & Simvastatin also take Cod liver oil Magnesium & Vit B12. Any advice on when to take Iron as don’t want to
Need some advice I have been prescribed iron tabs for anaemia - HB 80 I know they can upset the stomach & need to be taken when stomach empty. My AF meds are Flecainide Bisoprolol Apixiban & Simvastatin also take Cod liver oil Magnesium & Vit B12. Any advice on when to take Iron as don’t want to
Koladog
in
Atrial Fibrillation Support
1 year ago
Adjusting to new thyroxine dosage
Please could someone help as have recently had my dosage of thyroxine increased after blood tests indicated that it needed to be done. I also managed to have my brand changed back to Goldshield recently. Have been feeling like hell for some time so eventually my GP agreed to have bloods done, thus
Please could someone help as have recently had my dosage of thyroxine increased after blood tests indicated that it needed to be done. I also managed to have my brand changed back to Goldshield recently. Have been feeling like hell for some time so eventually my GP agreed to have bloods done, thus
JennyWrenn4
in
Thyroid UK
2 years ago
1
...
19
20
21
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Thyroid UK
793 results
Pernicious Anaemia Society
309 results
Endometriosis UK
271 results
View top 10 communities
Sort by
Most Relevant
Newest