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Experiences with
Peroxisomal acyl-CoA oxidase deficiency
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Treatment for fibro, MCAS, hypermobility syndrom (after catching covid) and long term covid sufferers
Good afternoon to all. I wanted to go straight to the findings I have done, diagnostic tests with top consultants in London. I was diagnosed with hypermobility syndrome and I had a horrible reaction to a covid infection last xmas which caused me long covid: fatigue, pain in bones, muscles and joints,
Good afternoon to all. I wanted to go straight to the findings I have done, diagnostic tests with top consultants in London. I was diagnosed with hypermobility syndrome and I had a horrible reaction to a covid infection last xmas which caused me long covid: fatigue, pain in bones, muscles and joints,
Divinesoul
in
Fibromyalgia Action UK
1 month ago
Goats milk kefir
Hi, Does anyone drink Chuckling Goat kefir? I have had some on and off over the last few weeks, but not consistently so not sure if it helps. It is a very strong kefir that is full of B12. I am not sure yet if I have pernicious anaemia, or whether it is a gut dysbiosis problem as I do not appear to be
Hi, Does anyone drink Chuckling Goat kefir? I have had some on and off over the last few weeks, but not consistently so not sure if it helps. It is a very strong kefir that is full of B12. I am not sure yet if I have pernicious anaemia, or whether it is a gut dysbiosis problem as I do not appear to be
Chickens44
in
Pernicious Anaemia Society
2 months ago
Does anybody get severe cramps; legs,pectoral and feet?
I have been on Ibrance for nearly 6 years. I feel I am doing well overall but I get very painful muscle cramps. I have experimented with Magnesium Oxide, Glycinate/Hylands Leg Cramps/Curcumin/Tonic water/Calcium and Potasium. The only thing that helps is drinking magnesium citrate power in water during
I have been on Ibrance for nearly 6 years. I feel I am doing well overall but I get very painful muscle cramps. I have experimented with Magnesium Oxide, Glycinate/Hylands Leg Cramps/Curcumin/Tonic water/Calcium and Potasium. The only thing that helps is drinking magnesium citrate power in water during
1horse
in
SHARE Metastatic Breast Cancer
27 days ago
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Magnesium Oxide
Looking to take Magnesium Oxide but struggling to find any tablets that aren't giant size. Does anyone know any brand that are smallish?
Looking to take Magnesium Oxide but struggling to find any tablets that aren't giant size. Does anyone know any brand that are smallish?
dinahdough
in
Thyroid UK
1 month ago
Best magnesium dosage
I have been taking Life Extension extended release magnesium (as ZumXR magnesium oxide, magnesium citrate) 500 mg (2 capsules of 250 mg each). I understand from Daphne’s Facebook group that Mg Oxide is not recommended. I intend to switch to Mg-1-threonate. Does anyone know what dosage of Mg-1-threonate
I have been taking Life Extension extended release magnesium (as ZumXR magnesium oxide, magnesium citrate) 500 mg (2 capsules of 250 mg each). I understand from Daphne’s Facebook group that Mg Oxide is not recommended. I intend to switch to Mg-1-threonate. Does anyone know what dosage of Mg-1-threonate
Meramt
in
Cure Parkinson's
3 months ago
Magnesium CAUSING muscle cramps
Forgive the capitals. I have found the sweet spot for magnesium supplementation for constipation and its about 600mg split between 2 doses of 1/4 ts oxide but its also unfortunately causing me muscle cramps and dry eyes to the point I can't wear contact lenses during supplementation. I have tried many
Forgive the capitals. I have found the sweet spot for magnesium supplementation for constipation and its about 600mg split between 2 doses of 1/4 ts oxide but its also unfortunately causing me muscle cramps and dry eyes to the point I can't wear contact lenses during supplementation. I have tried many
SteveT3
in
Thyroid UK
4 months ago
supplements
I am on various medication and unsure when the best time to take each are, any ideas? Levothyroxine B12 injections Starting iron heme tablets shortly Vitamin d Folate
I am on various medication and unsure when the best time to take each are, any ideas? Levothyroxine B12 injections Starting iron heme tablets shortly Vitamin d Folate
Lilymayjean
in
Thyroid UK
5 days ago
Beta blockers
I'm 68, female with NASH/ Cirrhosis which is compensated. I have recently been prescribed 1.25 mg of Bisoprolol Fumarate (beta blocker) but I'm so anxious about taking it as my GP seemed unsure about any effect on my liver. I was wondering if any members take beta blockers with no ill effects? I'm also
I'm 68, female with NASH/ Cirrhosis which is compensated. I have recently been prescribed 1.25 mg of Bisoprolol Fumarate (beta blocker) but I'm so anxious about taking it as my GP seemed unsure about any effect on my liver. I was wondering if any members take beta blockers with no ill effects? I'm also
Robert1220
in
British Liver Trust
11 days ago
Iron infusion flopped
Iron infusion flopped After my second iron infusion my serum ferritin catapulted from 55 to 588! Unfortunately, it did not stop the “bleed through”. Horizant, which is supposed to last 24 hours only controls my RLS for about 16 to 18 hours and then I get symptom bleed through. I was hoping that at
Iron infusion flopped After my second iron infusion my serum ferritin catapulted from 55 to 588! Unfortunately, it did not stop the “bleed through”. Horizant, which is supposed to last 24 hours only controls my RLS for about 16 to 18 hours and then I get symptom bleed through. I was hoping that at
tagaxel
in
Restless Legs Syndrome
15 days ago
Heme vs Non-Heme Iron Supplements
Since being diagnosed with low ferritin three months ago, I've been on ferrous sulfate tablets (1 - 65mg along with 500 mg vitamin C twice a day with meals). It's been working fine (went from 11 to 45 in a month) without any side effects. However, early on, I purchased a bottle of Three Arrows Heme after
Since being diagnosed with low ferritin three months ago, I've been on ferrous sulfate tablets (1 - 65mg along with 500 mg vitamin C twice a day with meals). It's been working fine (went from 11 to 45 in a month) without any side effects. However, early on, I purchased a bottle of Three Arrows Heme after
ReallyWondering
in
Thyroid UK
16 days ago
CRP raised. Does this affect ferritin result in iron panel?
Hello all, yesterday I had lots of bloods taken.Today, I have one result back, the Serum C Reactive Protein Level, results as follows 11mg/L 0-5mg/L abnormal When my recent iron was taken it was on the lowest number of normal. Serum Transferrin was normal. Does the abnormal CRP result affect
Hello all, yesterday I had lots of bloods taken.Today, I have one result back, the Serum C Reactive Protein Level, results as follows 11mg/L 0-5mg/L abnormal When my recent iron was taken it was on the lowest number of normal. Serum Transferrin was normal. Does the abnormal CRP result affect
DandyButch
in
Thyroid UK
17 days ago
Iron blood test results are back, please could you take a look for me?
In a previous post I gave my Ferritin result from a blood test in March (this was 36.90) and I was recommended to check my other iron levels before taking iron supplements . I now have these results back and would be really grateful if you could let me know your thoughts please : Medichecks BLOOD TEST
In a previous post I gave my Ferritin result from a blood test in March (this was 36.90) and I was recommended to check my other iron levels before taking iron supplements . I now have these results back and would be really grateful if you could let me know your thoughts please : Medichecks BLOOD TEST
Alternatively
in
Thyroid UK
17 days ago
Iron Levels
I am a 74-year-old woman living in New Zealand. I was on Ropinirole for restless legs for approximately 3 years. Augmentation set in and I saw his forum went to my doctor who has changed my medication to Pregabalin. Currently on 50mg per day as I weaned off Ropinirole (completely weaned off for 3 nights
I am a 74-year-old woman living in New Zealand. I was on Ropinirole for restless legs for approximately 3 years. Augmentation set in and I saw his forum went to my doctor who has changed my medication to Pregabalin. Currently on 50mg per day as I weaned off Ropinirole (completely weaned off for 3 nights
Brufax
in
Restless Legs Syndrome
22 days ago
b12 keeps dropping ferritin
Hi Friends, Has anyone had success raising and maintaining ferritin after it dropped from b12 injections? I first caught the iron issue in October, after shots all last summer. I tried many supplements until landing on the least bad offender to my stomach. I got my ferritin to 33, but it dropped
Hi Friends, Has anyone had success raising and maintaining ferritin after it dropped from b12 injections? I first caught the iron issue in October, after shots all last summer. I tried many supplements until landing on the least bad offender to my stomach. I got my ferritin to 33, but it dropped
MuppDog
in
Pernicious Anaemia Society
22 days ago
Stopping iron supplement
Hi all hope everyone is well. I am going to have a iron blood test. How many days before the test do i stop my iron supplement?
Hi all hope everyone is well. I am going to have a iron blood test. How many days before the test do i stop my iron supplement?
giggy63
in
Thyroid UK
22 days ago
How reliably does NHS retest Blood iron levels after IV Iron?
my new NHS gastroenterologist ordered my iron infusion when my GP alerted her to what they are calling complex iron deficiency blood test results, some longstanding. I was given Ferinject on April 11th. The infusion appointment letter says: the physician who is looking after you may follow up with
my new NHS gastroenterologist ordered my iron infusion when my GP alerted her to what they are calling complex iron deficiency blood test results, some longstanding. I was given Ferinject on April 11th. The infusion appointment letter says: the physician who is looking after you may follow up with
Barnclown
in
Restless Legs Syndrome
26 days ago
So many supplements!
I take so many supplements now that sometimes i feel like i'm going to rattle! 😂 I keep adding more and more so i wanted to check that i'm not messing up with timings and supplements taken together. The timings of the ones i take during the day are because of my breaks at work, so i tend to try and
I take so many supplements now that sometimes i feel like i'm going to rattle! 😂 I keep adding more and more so i wanted to check that i'm not messing up with timings and supplements taken together. The timings of the ones i take during the day are because of my breaks at work, so i tend to try and
catpurple7
in
Thyroid UK
26 days ago
Vitamin B12—Multifaceted In Vivo Functions and In Vitro Applications
Another interesting paper (already posted on PAS forum!) Parts are very easy to read - but not all. [i]Nutrients. 2023 Jun; 15(12): 2734.[/i] [i]Published online 2023 Jun 13. doi: 10.3390/nu15122734[/i] [i]PMCID: PMC10305463[/i] [i]PMID: 37375638[/i] [i]
Vitamin B12—Multifaceted In Vivo Functions
Another interesting paper (already posted on PAS forum!) Parts are very easy to read - but not all. [i]Nutrients. 2023 Jun; 15(12): 2734.[/i] [i]Published online 2023 Jun 13. doi: 10.3390/nu15122734[/i] [i]PMCID: PMC10305463[/i] [i]PMID: 37375638[/i] [i]
Vitamin B12—Multifaceted In Vivo Functions
helvella
Thyroid UK
in
Thyroid UK
30 days ago
Trazodone
Hi , after trying very hard to navigate depression without drugs I have now just started Trazodone . Taking Gabapentin successfully, only mild RL . Had every dopamine drug for many years and now completely free of them for at least 6 months . My question is although Trazodone is deemed not to affect
Hi , after trying very hard to navigate depression without drugs I have now just started Trazodone . Taking Gabapentin successfully, only mild RL . Had every dopamine drug for many years and now completely free of them for at least 6 months . My question is although Trazodone is deemed not to affect
Rubynessie
in
Restless Legs Syndrome
1 month ago
Low iron, supplementing with 3 Arrows
Hi everyone, I posted about a week ago after having iron studies done through the NHS, it came back that I wasn’t iron deficient enough to be treated by a doctor, but my levels were definitely low enough to start treatment since I’m already experiencing symptoms and don’t want to get worse….. Latest
Hi everyone, I posted about a week ago after having iron studies done through the NHS, it came back that I wasn’t iron deficient enough to be treated by a doctor, but my levels were definitely low enough to start treatment since I’m already experiencing symptoms and don’t want to get worse….. Latest
MarvelDC
in
Thyroid UK
1 month ago
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