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Pernicious anaemia
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What will 2022 bring?
I wanted to be able to feel more positive for 2022 and wish people a happy new year. But after watching the news last night (never do this before bed!) I can feel the fear and anxiety building again after having my family safely at home for the past couple of weeks. Lack of availability on LFD and PCR
I wanted to be able to feel more positive for 2022 and wish people a happy new year. But after watching the news last night (never do this before bed!) I can feel the fear and anxiety building again after having my family safely at home for the past couple of weeks. Lack of availability on LFD and PCR
MWxxxx
in
MPN Voice
2 years ago
B12 now back to 'Normal'.
I had all the symptoms of B12 deficiency/
Pernicious
Anaemia
. My doctor prescribed Cyanocobalamin 1mg per day. After taking this for two months blood tests show that my B12 levels are now close to normal. The problem is that I still have all the same symptoms.
I had all the symptoms of B12 deficiency/
Pernicious
Anaemia
. My doctor prescribed Cyanocobalamin 1mg per day. After taking this for two months blood tests show that my B12 levels are now close to normal. The problem is that I still have all the same symptoms.
DogLover55
in
Pernicious Anaemia Society
3 years ago
Functional Neurological Disorder!
‘ Nonetheless having my ‘organic
pernicious
anaemia
’ diagnosis removed by a neurologist to be replaced with FND is alarming especially since I paid for that privilege by using a private consultant and worse the finding will be sent directly to my NHS GP without me being able to choosing not to pass it
‘ Nonetheless having my ‘organic
pernicious
anaemia
’ diagnosis removed by a neurologist to be replaced with FND is alarming especially since I paid for that privilege by using a private consultant and worse the finding will be sent directly to my NHS GP without me being able to choosing not to pass it
RoseFlowerDew
in
Pernicious Anaemia Society
3 years ago
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Blurry vision?
Hello there, has anyone with
pernicious
Anaemia
have really blurry vision sometimes? My vision seemed fine before PA.
Hello there, has anyone with
pernicious
Anaemia
have really blurry vision sometimes? My vision seemed fine before PA.
Hidden
in
Pernicious Anaemia Society
3 years ago
Iron question
Hi all. I was reading a recently cited Mayo Clinic paper, and it stated that "A common oral iron regimen [for RLS] is 325 mg of ferrous sulfate (65 mg elemental iron) ..." I've been taking two 25-mg capsules (every two days) of Ferrous Bisglycinate Chelate (the Ferrochel trademarked brand, marketed
Hi all. I was reading a recently cited Mayo Clinic paper, and it stated that "A common oral iron regimen [for RLS] is 325 mg of ferrous sulfate (65 mg elemental iron) ..." I've been taking two 25-mg capsules (every two days) of Ferrous Bisglycinate Chelate (the Ferrochel trademarked brand, marketed
Dougg
in
Restless Legs Syndrome
2 years ago
Understanding your blood test
Hi all, Happy New Year etc! I have finally managed to translate my blood test results and for anyone else out there who is also bemused, I am attaching a guide to help you understand the basics. Ranges are often slightly different, or expressed differently in different countries or even clinics but really
Hi all, Happy New Year etc! I have finally managed to translate my blood test results and for anyone else out there who is also bemused, I am attaching a guide to help you understand the basics. Ranges are often slightly different, or expressed differently in different countries or even clinics but really
Quercus53
in
MPN Voice
2 years ago
Gastritis
Gastritis query My Rheumy started me on Etoricixib and it gave me awful gastritis, so stopped the drug and it settled almost back to normal then one day I took a Neurofen and it set me back - awful taste in my mouth, can’t eat much - have been put on Famotidine but no help-I had HPylori a few years ago
Gastritis query My Rheumy started me on Etoricixib and it gave me awful gastritis, so stopped the drug and it settled almost back to normal then one day I took a Neurofen and it set me back - awful taste in my mouth, can’t eat much - have been put on Famotidine but no help-I had HPylori a few years ago
bakingD
in
PMRGCAuk
2 years ago
Menopause and Sickle Cell
I am experiencing menopause because, I haven't had a period in many months. But what I notice is that I'm experiencing sickle cell crisis more often. After reading a lot information, I discovered that since the hormones protecting me and now going down, I'm at risk of many things, including stroke, heart
I am experiencing menopause because, I haven't had a period in many months. But what I notice is that I'm experiencing sickle cell crisis more often. After reading a lot information, I discovered that since the hormones protecting me and now going down, I'm at risk of many things, including stroke, heart
Iyalode26
in
Sickle Cell Society
2 years ago
Vitamins
Can someone please list all the vitamins (including calcium, because I am a woman) that are helpful to take daily for RLS including the amount to take daily, strengths, and times of day to take them? I'm confused because I know you have to be careful not to take magnesium with other things, iron, vitamin
Can someone please list all the vitamins (including calcium, because I am a woman) that are helpful to take daily for RLS including the amount to take daily, strengths, and times of day to take them? I'm confused because I know you have to be careful not to take magnesium with other things, iron, vitamin
LanaCSR
in
Restless Legs Syndrome
2 years ago
Increased reticulocyte count - leukemia?
Increased reticulocyte count - ...And decreased ferritin situation. I have manager my PA well for many years now, but forgot to bring my krauterblut Iron on holiday for a week, and since then my ferritin has dropped to 44 while the reticulocytes has gone above range to 110. Now, as I have a breastcancer
Increased reticulocyte count - ...And decreased ferritin situation. I have manager my PA well for many years now, but forgot to bring my krauterblut Iron on holiday for a week, and since then my ferritin has dropped to 44 while the reticulocytes has gone above range to 110. Now, as I have a breastcancer
indywindy
in
Pernicious Anaemia Society
3 years ago
Thank you for your replies to my post about Plavix
I want to thank everyone for replying to my post about Plavix and PV. I have an appointment with my hematologist in late January and will have lots to talk about with him. I hope that I can have some positive blood test results. Wondering if anyone else is experienced fatigue when they started taking
I want to thank everyone for replying to my post about Plavix and PV. I have an appointment with my hematologist in late January and will have lots to talk about with him. I hope that I can have some positive blood test results. Wondering if anyone else is experienced fatigue when they started taking
Bluetoday1
in
MPN Voice
2 years ago
Given Pernicious Anaemia diagnosis today
Hi I have had a phone call today, telling me that I have this condition. I have to repeat the blood test tomorrow (for levels?) and start a course of 6 initial jabs over two weeks as soon as that is back. It does explain so much re the symptoms I have been having for a long time. In past years I have
Hi I have had a phone call today, telling me that I have this condition. I have to repeat the blood test tomorrow (for levels?) and start a course of 6 initial jabs over two weeks as soon as that is back. It does explain so much re the symptoms I have been having for a long time. In past years I have
emmjay77
in
Pernicious Anaemia Society
3 years ago
Fatigue
Hi I have been suffering from depression, mood disorder and chronic fatigue. I did blood tests lately but all is fine so Dr confirmed that its fibro. I sleep 8 to 9 hours but I wake up tired like I want to sleep again. This happens on a daily basis and is affecting my routine because I don't have the
Hi I have been suffering from depression, mood disorder and chronic fatigue. I did blood tests lately but all is fine so Dr confirmed that its fibro. I sleep 8 to 9 hours but I wake up tired like I want to sleep again. This happens on a daily basis and is affecting my routine because I don't have the
Annalisea
in
Fibromyalgia Action UK
3 years ago
Official: Hydroxocobalamin increases my nervousness/anxiety
I’ve been trialing Cyanocobalamin for the past month and experienced limited side effects but went for my NHS injection on Monday and subsequently the nervousness and tingling has heightened again 🤯 It’s official that Hydroxocobalamin has a negative effect on my nerves - anyone else suffering?
I’ve been trialing Cyanocobalamin for the past month and experienced limited side effects but went for my NHS injection on Monday and subsequently the nervousness and tingling has heightened again 🤯 It’s official that Hydroxocobalamin has a negative effect on my nerves - anyone else suffering?
User2020-1
in
Pernicious Anaemia Society
2 years ago
Buprenorphine annual review
Every year I am required to visit to drug and Alcohol clinic this is a legal requirement in Queensland in doing so this allows my GP to prescribed my buprenorphine. I was the first person on this new program. Restless legs was not a Disease that Dr Jeremy Hayllar was overly familiar with. Both my GP
Every year I am required to visit to drug and Alcohol clinic this is a legal requirement in Queensland in doing so this allows my GP to prescribed my buprenorphine. I was the first person on this new program. Restless legs was not a Disease that Dr Jeremy Hayllar was overly familiar with. Both my GP
Shumbah
in
Restless Legs Syndrome
2 years ago
Anemia and Different Blood Test Results Help
I have been taking iron for anemia for some time. My latest CBC had some different test results on it. I researched and they relate to different shapes of red blood cells. I just wonder if they mean anything as relating to the anemia. Here are the findings - Anisocytosis1+ Polychromasia1+ Hypochromia1
I have been taking iron for anemia for some time. My latest CBC had some different test results on it. I researched and they relate to different shapes of red blood cells. I just wonder if they mean anything as relating to the anemia. Here are the findings - Anisocytosis1+ Polychromasia1+ Hypochromia1
Pumpkin2009
in
LUPUS UK
2 years ago
Fortification of flour is a public health policy known to reduce neural tube defects in babies
[/i] https://www.theguardian.com/society/2021/sep/19/folic-acid-to-be-added-to-non-wholemeal-flour-under-new-uk-rules Adding link to BBC (accessible in the UK but likely not elsewhere) as the story there does mention B12: https://www.bbc.co.uk/news/health-58615838 Also posted to
Pernicious
Anaemia
[/i] https://www.theguardian.com/society/2021/sep/19/folic-acid-to-be-added-to-non-wholemeal-flour-under-new-uk-rules Adding link to BBC (accessible in the UK but likely not elsewhere) as the story there does mention B12: https://www.bbc.co.uk/news/health-58615838 Also posted to
Pernicious
Anaemia
helvella
Thyroid UK
in
Thyroid UK
3 years ago
Which blood tests to take?
I’m due to see my doctor again in a couple of weeks, and whilst I’m due to do a full thyroid panel, I’m conscious that various advice on here has also advised to test a broader range of things. Off the top of my head, that should include: Ferritin Folate Vitamin D Vitamin B12 I’m currently ting selenium
I’m due to see my doctor again in a couple of weeks, and whilst I’m due to do a full thyroid panel, I’m conscious that various advice on here has also advised to test a broader range of things. Off the top of my head, that should include: Ferritin Folate Vitamin D Vitamin B12 I’m currently ting selenium
JonnyA
in
Thyroid UK
3 years ago
Why muscles soon after taking B12 timed release or taking iron pills show improvement?
I had severe muscle pain and extreme muscle weakness but by taking B12 timed release and iron almost they improved, but as soon as I carry an object or do anything put sine pressure in my muscles those symptoms return back back after taking iron pills and B12 timed release they get improved. I think
I had severe muscle pain and extreme muscle weakness but by taking B12 timed release and iron almost they improved, but as soon as I carry an object or do anything put sine pressure in my muscles those symptoms return back back after taking iron pills and B12 timed release they get improved. I think
Hamayeshguy
in
Pernicious Anaemia Society
2 years ago
Where to get private testing done
Hi I just wondered is anyone can tell me where I could get more in depth testing done for B12 deficiency and
pernicious
anaemia
as my GP only orders the standard serum B12 test and intrinsic factor test Thank you in advance 😊
Hi I just wondered is anyone can tell me where I could get more in depth testing done for B12 deficiency and
pernicious
anaemia
as my GP only orders the standard serum B12 test and intrinsic factor test Thank you in advance 😊
BEE2019
in
Pernicious Anaemia Society
3 years ago
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