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Pernicious anaemia
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Blood results
I have been suffering with low iron for a number of years and for the first time I have had Serum Iron Tests. Can anyone help me understand the resultsbefore my Hematologist phones me next week Serum Iron Level 18.1 umol/L Serum TIBC 84 umol/L Transferrin saturation index 22% Serum Transferrin Level
I have been suffering with low iron for a number of years and for the first time I have had Serum Iron Tests. Can anyone help me understand the resultsbefore my Hematologist phones me next week Serum Iron Level 18.1 umol/L Serum TIBC 84 umol/L Transferrin saturation index 22% Serum Transferrin Level
B52s
in
Pernicious Anaemia Society
2 years ago
Methotrexate in the US
Since our Supreme Court has removed Roe v Wade allowing abortion something has happened that most did not expect. Women of reproctive age are being denied their methotrexate that they've been taking for years as a treatment for things like RA because it is also a drug used in abortions. I know that most
Since our Supreme Court has removed Roe v Wade allowing abortion something has happened that most did not expect. Women of reproctive age are being denied their methotrexate that they've been taking for years as a treatment for things like RA because it is also a drug used in abortions. I know that most
Amkoffee
in
PMRGCAuk
2 years ago
Any tips on managing Autoimmune and Long Covid
I have 4 autoimmune diseases, Hashimotos, hyper parathyroid, coeliac disease and
pernicious
anaemia
and now Long Covid which appears to have put all the rest into over drive.
I have 4 autoimmune diseases, Hashimotos, hyper parathyroid, coeliac disease and
pernicious
anaemia
and now Long Covid which appears to have put all the rest into over drive.
Filicatlasy
in
Thyroid UK
2 years ago
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B12 Self Administration
Hi there, I self injected B12 for the first time ever today. I did a intramuscular injection into my thigh but I think I did it a bit too high up on my thigh. Is this likely to be an issue? Should I be worried? I'm overthinking I'm pretty sure, first injection and all that!
Hi there, I self injected B12 for the first time ever today. I did a intramuscular injection into my thigh but I think I did it a bit too high up on my thigh. Is this likely to be an issue? Should I be worried? I'm overthinking I'm pretty sure, first injection and all that!
hani0902
in
Pernicious Anaemia Society
2 years ago
Confused about seeds!
Can anyone please tell me if seeds are good or bad for under active thyroid? I’m so confused as I have been reading that they are really great for you and then the next article tells me that they are really bad for you? I have a cupboard full of chai, linseed, pumpkin, sunflower seeds etc! Help!
Can anyone please tell me if seeds are good or bad for under active thyroid? I’m so confused as I have been reading that they are really great for you and then the next article tells me that they are really bad for you? I have a cupboard full of chai, linseed, pumpkin, sunflower seeds etc! Help!
aliwt
in
Thyroid UK
2 years ago
Iron & thyroid results - not sure what to think!
HI All, Would like some comments on these results please: Thyroid panels with dates (TSH is always suppressed at < 0.01): 2022-02-02 (112.5mg NDT for 6 weeks) FT3 5.94 pmol/L (ref: 3.9 6.70 72.86% in range) FT4 14.50 pmol/L (ref: 11.1 22 31.19% in range)
HI All, Would like some comments on these results please: Thyroid panels with dates (TSH is always suppressed at < 0.01): 2022-02-02 (112.5mg NDT for 6 weeks) FT3 5.94 pmol/L (ref: 3.9 6.70 72.86% in range) FT4 14.50 pmol/L (ref: 11.1 22 31.19% in range)
Evej13
in
Thyroid UK
2 years ago
Who knows about ferritin/ iron tests? Confused here! Do I need to do something? Help please!
I get confused with ferritin and iron results, as I can't remember how they work together. Ferritin is low, but haemoglobin is ok? My GP marked everything 'normal'. I'd be grateful for some explanation and advice on what to do please! I have felt more tired. In fact absolutely exhausted a couple of
I get confused with ferritin and iron results, as I can't remember how they work together. Ferritin is low, but haemoglobin is ok? My GP marked everything 'normal'. I'd be grateful for some explanation and advice on what to do please! I have felt more tired. In fact absolutely exhausted a couple of
TaraJR
in
Thyroid UK
2 years ago
Why cyanocobalamin injection is more helpful than hydroxocobalamin?
I inject cyanocobalamin three times a week and two times hydroxocobalamin a week. I feel difference between then but I think day after cyanocobalamin I feel less symptoms than days with hydroxocobalamin. So why cyanocobalamin injection is nit considered preferably better choice. I tried many cyanocobalamin
I inject cyanocobalamin three times a week and two times hydroxocobalamin a week. I feel difference between then but I think day after cyanocobalamin I feel less symptoms than days with hydroxocobalamin. So why cyanocobalamin injection is nit considered preferably better choice. I tried many cyanocobalamin
Hamayeshguy
in
Pernicious Anaemia Society
2 years ago
Strange iron panel results (part 2!)
I posted several weeks ago about an anomaly in my 18 year old daughter's ferritin results and received some really helpful advice from @humanbean and others. Her ferritin level from a Medichecks blood test was 75, however when her GP tested it a few weeks later it was just 15.4 and her Haemoglobin was
I posted several weeks ago about an anomaly in my 18 year old daughter's ferritin results and received some really helpful advice from @humanbean and others. Her ferritin level from a Medichecks blood test was 75, however when her GP tested it a few weeks later it was just 15.4 and her Haemoglobin was
Cookerybookaddict86
in
Thyroid UK
2 years ago
Confused .com.
I really am, confused. Bloods from June last year they didn't really explain but Plasma magnesium 0.82 mmol/L Serum vitamin B12 354.0 ng/L Serum folate 2.7ug/L 9.9umol/L Serum iron level, 2.94g/L serum transferrin, 74.0 umol/L Se unsat iron binding capacity, 13.0% Saturation of iron. 5.0
I really am, confused. Bloods from June last year they didn't really explain but Plasma magnesium 0.82 mmol/L Serum vitamin B12 354.0 ng/L Serum folate 2.7ug/L 9.9umol/L Serum iron level, 2.94g/L serum transferrin, 74.0 umol/L Se unsat iron binding capacity, 13.0% Saturation of iron. 5.0
Polo22
in
Pernicious Anaemia Society
2 years ago
Bad to worse
Is there anyone here that has been under medicated , (hypo)and as a result suffered from other complications as a consequence?? My blood pressure is far too high , I am currently sat at home with a 24 hour monitor strapped to my arm. I had a liver scan on Tuesday i have NAFLD apparently . Tomorrow i
Is there anyone here that has been under medicated , (hypo)and as a result suffered from other complications as a consequence?? My blood pressure is far too high , I am currently sat at home with a 24 hour monitor strapped to my arm. I had a liver scan on Tuesday i have NAFLD apparently . Tomorrow i
kim1965
in
Thyroid UK
2 years ago
Rapid responses to daily subcutaneous B12 injections??
I was diagnosed with pernicious anemia and iron deficiency anemia 3 months ago. (I’ve had 2 iron infusions so those levels are better now.) The B12 injections are extraordinarily helpful. I’ve been getting them subcutaneously on a daily basis. (I can’t tell any difference between subcutaneous and intramuscular
I was diagnosed with pernicious anemia and iron deficiency anemia 3 months ago. (I’ve had 2 iron infusions so those levels are better now.) The B12 injections are extraordinarily helpful. I’ve been getting them subcutaneously on a daily basis. (I can’t tell any difference between subcutaneous and intramuscular
faithrenae
in
Pernicious Anaemia Society
2 years ago
Advice about indigestion remedies
Diagnosed 2 years ago with
pernicious
anaemia
so would like to know if I can take regular omprezole if I get the same problem. I have my b12 injections 3 monthly. Thank you.
Diagnosed 2 years ago with
pernicious
anaemia
so would like to know if I can take regular omprezole if I get the same problem. I have my b12 injections 3 monthly. Thank you.
Kangarooiom
in
Pernicious Anaemia Society
2 years ago
Functional vitB12 deficiency - anyone else?
I was diagnosed with a 'functional vitB12 deficiency' last year (I had high levels of MMA (methylmalonic acid) in my blood, but normal vitB12 levels in my blood as I had been taking max prescribed dose of cyanocobalamin) - which essentially means that although I have vitB12 in my blood, my body can't
I was diagnosed with a 'functional vitB12 deficiency' last year (I had high levels of MMA (methylmalonic acid) in my blood, but normal vitB12 levels in my blood as I had been taking max prescribed dose of cyanocobalamin) - which essentially means that although I have vitB12 in my blood, my body can't
Dilly_blue
in
Pernicious Anaemia Society
2 years ago
Iron advice for my sister
Though you guys might be the best to ask. What is the best iron supplement going? My sister needed 2 iron infusions before surgery and could only get one due to poor veins. She needs an iron supplement and I said I would get it for her. I want her to have the one that will be most beneficial to her..
Though you guys might be the best to ask. What is the best iron supplement going? My sister needed 2 iron infusions before surgery and could only get one due to poor veins. She needs an iron supplement and I said I would get it for her. I want her to have the one that will be most beneficial to her..
Peppermints
in
Pernicious Anaemia Society
2 years ago
Questions re B12 injections and long term use of prescribed folic acid
I have been fighting for years with GP's re my Hashimoto's and my
pernicious
anaemia
. I have been taking 5mg folic acid and have done for many years along with 3 monthly B12 injections. I continually ask for at least 2 monthly jabs but have always been told NO.
I have been fighting for years with GP's re my Hashimoto's and my
pernicious
anaemia
. I have been taking 5mg folic acid and have done for many years along with 3 monthly B12 injections. I continually ask for at least 2 monthly jabs but have always been told NO.
mill44
in
Pernicious Anaemia Society
2 years ago
Muscle pain
Hello, read an old post on here about thyroid and coccyx pain which I started with a few months ago ,anybody have thoughts on this please
Hello, read an old post on here about thyroid and coccyx pain which I started with a few months ago ,anybody have thoughts on this please
4youreyesonly
in
Thyroid UK
2 years ago
Prolia
Hi all. My rheumatologist is suggesting prolia injection for osteoporosis. Any info anyone please. I think I want to go down naturally route as the side effects sound awful along with steroids. I really don’t want to feel any worse. Any advice appreciated. Thanks
Hi all. My rheumatologist is suggesting prolia injection for osteoporosis. Any info anyone please. I think I want to go down naturally route as the side effects sound awful along with steroids. I really don’t want to feel any worse. Any advice appreciated. Thanks
Uglow
in
PMRGCAuk
2 years ago
Iron Infusion
After years of RLS, several years of struggling on ropinerole, and the last 2 years on Neupro patches & Topiramate. Yesterday I was given my first Iron Infusion as a treatment option for RLS. There’s been lots of research by a Dr Earley at Johns Hopkins into an iron deficiency in the brain of RLS sufferers
After years of RLS, several years of struggling on ropinerole, and the last 2 years on Neupro patches & Topiramate. Yesterday I was given my first Iron Infusion as a treatment option for RLS. There’s been lots of research by a Dr Earley at Johns Hopkins into an iron deficiency in the brain of RLS sufferers
nosleep1969
in
Restless Legs Syndrome
2 years ago
Results after 6 weeks of 25mcg of levo, think I need an increase, advice appreciated (Graves now Hashi's?)
Even symptoms I had attributed to my
pernicious
anaemia
improved and I stopped grinding my teeth! However, after about 2 weeks it's waning and hypo symptoms are creeping back and my neck is a bit puffy.
Even symptoms I had attributed to my
pernicious
anaemia
improved and I stopped grinding my teeth! However, after about 2 weeks it's waning and hypo symptoms are creeping back and my neck is a bit puffy.
Tuttare
in
Thyroid UK
2 years ago
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