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Pernicious anaemia
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How often to Self Inject
Hello all. I was just wondering what you all think about how often we should inject with Vit B12. I had been taking shots since about last Dec of 22, but even though it helped, didn't help much. So after finally being diagnosed with PA, I told my wife to inject me every day for 30 days to sort of give
Hello all. I was just wondering what you all think about how often we should inject with Vit B12. I had been taking shots since about last Dec of 22, but even though it helped, didn't help much. So after finally being diagnosed with PA, I told my wife to inject me every day for 30 days to sort of give
MrJustatip
in
Pernicious Anaemia Society
8 months ago
Hyperplasia
I have been diagnosed with mild diffuse atrophic gastritis and and prominent foveolar hyperplasia. Returned to GP and no further follow up. GP prescribed Gaviscon , symptoms settled but 11 months later are back. Does anyone know if it is necessary to have follow up gastroscopies. I have had PA
I have been diagnosed with mild diffuse atrophic gastritis and and prominent foveolar hyperplasia. Returned to GP and no further follow up. GP prescribed Gaviscon , symptoms settled but 11 months later are back. Does anyone know if it is necessary to have follow up gastroscopies. I have had PA
Helliborous
in
Pernicious Anaemia Society
8 months ago
Going To Self Inject -Questions
Hi, I’ve had 4 inputs over several months from GP’s and consultants with hope being built up then crashed. I am on 3 monthly jabs, as with so many others, is no where near enough. I’ve had the loading doses which returned me to normal functioning half way through 2nd week. Took bloods after last jab
Hi, I’ve had 4 inputs over several months from GP’s and consultants with hope being built up then crashed. I am on 3 monthly jabs, as with so many others, is no where near enough. I’ve had the loading doses which returned me to normal functioning half way through 2nd week. Took bloods after last jab
B12again
in
Pernicious Anaemia Society
8 months ago
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how gh b12
I have
pernicious
anaemia
and have injections every 3 months. my gp has told me to stop the injections for 6 months and re do the blood test. should I be worried ?
I have
pernicious
anaemia
and have injections every 3 months. my gp has told me to stop the injections for 6 months and re do the blood test. should I be worried ?
Londone16
in
Pernicious Anaemia Society
11 months ago
Why di feel tired a lot?
I've joined the group as recently been diagnosed with
pernicious
anaemia
. Would be really interested in hearing about others experiences with this. I'm having b12 jabs now, which I've been told will be for the rest of my life.
I've joined the group as recently been diagnosed with
pernicious
anaemia
. Would be really interested in hearing about others experiences with this. I'm having b12 jabs now, which I've been told will be for the rest of my life.
Kleptojake
in
Pernicious Anaemia Society
11 months ago
hashimotos and hypo/hyperparathyrodism
I also have a diagnosis of
pernicious
anaemia
which can also cause hypo/hyperparathyroidism. I do not believe a GP would have enough knowledge in this field to know what tests to request.
I also have a diagnosis of
pernicious
anaemia
which can also cause hypo/hyperparathyroidism. I do not believe a GP would have enough knowledge in this field to know what tests to request.
hippy66
in
Thyroid UK
3 months ago
How do I start on self injecting?
I have been on B12 injections for years, but since covid they don't last. I get mine every 8 weeks, but symptoms return after only one week now and get progressively worse, tremors, ataxia, severe pain in spine.... but GP refuses injections more frequently. How do I go about self injecting, where do
I have been on B12 injections for years, but since covid they don't last. I get mine every 8 weeks, but symptoms return after only one week now and get progressively worse, tremors, ataxia, severe pain in spine.... but GP refuses injections more frequently. How do I go about self injecting, where do
totallyFrustrated
in
Pernicious Anaemia Society
8 months ago
Vit B12 too high?!!
I understood you can't take too much B12 ... and my grandmother died of
pernicious
anaemia
hence my taking the B12 drops as I didn't feel well at all she also had thyroid problems like me. I would appreciate any comments on the 2000 reading. Thanks!!
I understood you can't take too much B12 ... and my grandmother died of
pernicious
anaemia
hence my taking the B12 drops as I didn't feel well at all she also had thyroid problems like me. I would appreciate any comments on the 2000 reading. Thanks!!
PolyannaYorkshire
in
Pernicious Anaemia Society
1 year ago
Chronic pain , degenerative spinal disease
Every 8 weeks I have a B12 injection for management of
Pernicious
Anaemia
diagnosed in 1985. However, the pains shooting into my toes and burning sensation around week 6, drives me crazy. The GP is nice but does not understand my predicament.
Every 8 weeks I have a B12 injection for management of
Pernicious
Anaemia
diagnosed in 1985. However, the pains shooting into my toes and burning sensation around week 6, drives me crazy. The GP is nice but does not understand my predicament.
HappyLass1e
in
Neuro Support
6 months ago
Advice and explanation pls
I should mention I have
pernicious
anaemia
so on b12 injections also had very low vit d, so also treating that last 2 months (under a private dr for b12 and vit d ) in case there is any relevance as PA and hashi's are autoimmune diseases
I should mention I have
pernicious
anaemia
so on b12 injections also had very low vit d, so also treating that last 2 months (under a private dr for b12 and vit d ) in case there is any relevance as PA and hashi's are autoimmune diseases
Charlie27612
in
Thyroid UK
8 months ago
A positive tale...so far
He diagnosed me with Autoimmune Negative
Pernicious
Anaemia
, and recommend I continue with twice weekly subcutaneous injections, which he taught me to self administer. I gave my GP a copy of the consultant's letter along with a note to say I was going to self inject. Out and proud!
He diagnosed me with Autoimmune Negative
Pernicious
Anaemia
, and recommend I continue with twice weekly subcutaneous injections, which he taught me to self administer. I gave my GP a copy of the consultant's letter along with a note to say I was going to self inject. Out and proud!
Myoldcat
in
Pernicious Anaemia Society
3 months ago
Word confusion
(Currently trying to get tested for
Pernicious
anaemia
but haven’t been diagnosed) Thanks 🙏
(Currently trying to get tested for
Pernicious
anaemia
but haven’t been diagnosed) Thanks 🙏
EllsBells591
in
Thyroid UK
8 months ago
Autoimmune gastritis
"For several years, most studies have focused on
pernicious
anaemia
only, generating confusion between the two entities. In AIG, the gastric proton pump, H+/K+ ATPase, is the major autoantigen recognized by autoreactive T cells.
"For several years, most studies have focused on
pernicious
anaemia
only, generating confusion between the two entities. In AIG, the gastric proton pump, H+/K+ ATPase, is the major autoantigen recognized by autoreactive T cells.
WiscGuy
in
Pernicious Anaemia Society
1 year ago
Can you help in reading these test results please?
Iron 7.9 - Range: 6.6 - 26 umol/L % IBC 18 - Range: 15 - 45 Total Iron Binding Capacity *44.2 - Range: 45 - 81 umol/L (The lab has put an asterisk at the side of result.) B12 - 738 ng/L - Range 197 - 771 Folate - 5.6 ug/L No range given Ferritin - 114 ug/L
Iron 7.9 - Range: 6.6 - 26 umol/L % IBC 18 - Range: 15 - 45 Total Iron Binding Capacity *44.2 - Range: 45 - 81 umol/L (The lab has put an asterisk at the side of result.) B12 - 738 ng/L - Range 197 - 771 Folate - 5.6 ug/L No range given Ferritin - 114 ug/L
Lavender-Blue
in
Thyroid UK
8 months ago
Tested my b12 level again after loading doses
Hello dear members. I tested my b12 level again to see how much raised it after 5 loading dose during loading dose period. I injected 5 dose of 1mg or 1000 microgram cyanocobalamin. At the first one my vitb12 level was 165(160-845pg/ml). I injected 5 dose of vitb12 shot during 56 days (July 07-september01
Hello dear members. I tested my b12 level again to see how much raised it after 5 loading dose during loading dose period. I injected 5 dose of 1mg or 1000 microgram cyanocobalamin. At the first one my vitb12 level was 165(160-845pg/ml). I injected 5 dose of vitb12 shot during 56 days (July 07-september01
Emiroskui
in
Pernicious Anaemia Society
8 months ago
Pernicious Anaemia
Hi Guys I have had B12 above reference range (NHS UK so probably a very outdate reference range system) GP told me it was high a year ago. Nobody had told me! I don't take any B12 supplements or multi vitamins ( I take Vit D and Vit c separately daily only) I also have "borderline" full blood count
Hi Guys I have had B12 above reference range (NHS UK so probably a very outdate reference range system) GP told me it was high a year ago. Nobody had told me! I don't take any B12 supplements or multi vitamins ( I take Vit D and Vit c separately daily only) I also have "borderline" full blood count
Kwizzbit
in
Pernicious Anaemia Society
1 year ago
UK person wanting injectable methylcobalamin
Hello everyone, I'm based in the UK and have
Pernicious
Anaemia
. I was able to buy methylcobalamin 1mg for self-injection online from Arnika Apotheke in Germany back in 2019/2020 and had it shipped to the UK.
Hello everyone, I'm based in the UK and have
Pernicious
Anaemia
. I was able to buy methylcobalamin 1mg for self-injection online from Arnika Apotheke in Germany back in 2019/2020 and had it shipped to the UK.
Seasidesunshine1979
in
Pernicious Anaemia Society
11 months ago
So nervous
Hi guys, coming to ask you guys a question but so afraid of a bad answer. You wouldn't believe how I've been shaking and feeling so nervous and worried and not sleeping about my stomach. I've been having this little pin like mild aches in my stomach and these test you have to get with PA drives me up
Hi guys, coming to ask you guys a question but so afraid of a bad answer. You wouldn't believe how I've been shaking and feeling so nervous and worried and not sleeping about my stomach. I've been having this little pin like mild aches in my stomach and these test you have to get with PA drives me up
25092
in
Pernicious Anaemia Society
9 months ago
Update
There was no mention of B12 supplement but I will ask about
pernicious
anaemia
next week. Please can I ask if I should start with a B12 supplement or B complex now or wait. Below is a link to my previous post and also my Medicheck results.
There was no mention of B12 supplement but I will ask about
pernicious
anaemia
next week. Please can I ask if I should start with a B12 supplement or B complex now or wait. Below is a link to my previous post and also my Medicheck results.
SpringerMom
in
Thyroid UK
7 months ago
symptoms with treated PA
Hello forum Autoimmune Metaplastic Atrophic Gastritis (AMAG) results in the loss of parietal cells which causes a loss of production of stomach acid and intrinsic factor (IF). The loss of IF results in low B12. My general query is; are there consequences and symptoms connected to a lack of stomach
Hello forum Autoimmune Metaplastic Atrophic Gastritis (AMAG) results in the loss of parietal cells which causes a loss of production of stomach acid and intrinsic factor (IF). The loss of IF results in low B12. My general query is; are there consequences and symptoms connected to a lack of stomach
Laundretta
in
Pernicious Anaemia Society
9 months ago
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