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pT3b just diagnosed
on 9/18/2023 had prostatectomy. Resection margins clear but right seminal vesicles invasion identified along with lymphovascular and perineural invasion present. Any ideas on next step thanks Ed
on 9/18/2023 had prostatectomy. Resection margins clear but right seminal vesicles invasion identified along with lymphovascular and perineural invasion present. Any ideas on next step thanks Ed
bargerat
in
Advanced Prostate Cancer
8 months ago
HT weight gain
My husband will be starting hormone therapy <HT> prior to radiation treatment <RT>.The weight gain associated with HT is a concern. Any suggestions? Any medication available to assist with weight loss during HT? Inquisitive One
My husband will be starting hormone therapy <HT> prior to radiation treatment <RT>.The weight gain associated with HT is a concern. Any suggestions? Any medication available to assist with weight loss during HT? Inquisitive One
Inquisitive_one
in
Advanced Prostate Cancer
6 months ago
Update: post-radiation and New meds
Hello Friends and warriors! Dragonfly is updating the latestest treatment... Radiation to the sacrum and L5 (10 treatments) ended on Dec 4th but since then I've had a rollercoaster of side effects...mostly stiffness and muscle spasms that catch me unawares when I get up or sit down. I truly thought
Hello Friends and warriors! Dragonfly is updating the latestest treatment... Radiation to the sacrum and L5 (10 treatments) ended on Dec 4th but since then I've had a rollercoaster of side effects...mostly stiffness and muscle spasms that catch me unawares when I get up or sit down. I truly thought
Dragonfly2
in
SHARE Metastatic Breast Cancer
6 months ago
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Seeking advise
Hi all, I have been diagnosed with MBC HER2 negative (mets to bones and lymph nodes). I am awaiting a brain CT scan and also another lymph node biopsy. Can anyone advise if they have heard of the below treatments or have had these treatments ( Chemoembolization and Dendritic cell therapy LANEX-DC
Hi all, I have been diagnosed with MBC HER2 negative (mets to bones and lymph nodes). I am awaiting a brain CT scan and also another lymph node biopsy. Can anyone advise if they have heard of the below treatments or have had these treatments ( Chemoembolization and Dendritic cell therapy LANEX-DC
Amk31
in
SHARE Metastatic Breast Cancer
6 months ago
Now what?
My husband was DX April 2021 MPc, Stage IV, PSA 335, BRACA2. Lupron, Erleada, Provenge, Lynparza (still on), Zytiga/Pred (still on). PSA rose from 2.64 Feb 2023 to 44 Sept 2023. Biggest jumps on the last three months, 10 to 44. He is approved for 177lu, but there are a lot of unsuccessful stories
My husband was DX April 2021 MPc, Stage IV, PSA 335, BRACA2. Lupron, Erleada, Provenge, Lynparza (still on), Zytiga/Pred (still on). PSA rose from 2.64 Feb 2023 to 44 Sept 2023. Biggest jumps on the last three months, 10 to 44. He is approved for 177lu, but there are a lot of unsuccessful stories
Hidden
in
Advanced Prostate Cancer
8 months ago
long term disability LTD
has anyone had to go onto LTD from work and if so has it been beneficial or not? Reason I ask is that I went on Short Term in May which is approved for 6 months. At that time (November) for me I either have to be well enough to go back to work or go on LTD. I have been paying for LTD Insurance for about
has anyone had to go onto LTD from work and if so has it been beneficial or not? Reason I ask is that I went on Short Term in May which is approved for 6 months. At that time (November) for me I either have to be well enough to go back to work or go on LTD. I have been paying for LTD Insurance for about
PC-22
in
Advanced Prostate Cancer
8 months ago
Help Develop a Sexual Quality of Life Questionnaire for Men-Who-Have-Sex-with-Men with Prostate Cancer
Please consider being part of the COMPASS Study here: https://malecare.org/compass-study/ "Development and Validation of Sexual Quality of Life Questionnaire for Men-Who-Have-Sex-with-Men with Prostate Cancer" This study aims to develop a sexual function survey specific for men who have sex with men
Please consider being part of the COMPASS Study here: https://malecare.org/compass-study/ "Development and Validation of Sexual Quality of Life Questionnaire for Men-Who-Have-Sex-with-Men with Prostate Cancer" This study aims to develop a sexual function survey specific for men who have sex with men
Darryl
Partner
in
Prostate Cancer Network
8 months ago
Help Develop a Sexual Quality of Life Questionnaire for Men-Who-Have-Sex-with-Men with Prostate Cancer
Please consider being part of the COMPASS Study here: https://malecare.org/compass-study/ "Development and Validation of Sexual Quality of Life Questionnaire for Men-Who-Have-Sex-with-Men with Prostate Cancer" This study aims to develop a sexual function survey specific for men who have sex with men
Please consider being part of the COMPASS Study here: https://malecare.org/compass-study/ "Development and Validation of Sexual Quality of Life Questionnaire for Men-Who-Have-Sex-with-Men with Prostate Cancer" This study aims to develop a sexual function survey specific for men who have sex with men
Darryl
Partner
in
Advanced Prostate Cancer
8 months ago
Metabolic Syndrome [MetS] and PCa
A new study [1]: "
Association of metabolic syndrome {MetS} and its components with the risk of urologic cancers: a prospective cohort study
" reports that "[i]Compared to the non-MetS group, the risk of developing ... prostate [HR ... = 1.47 ...] cancer was significantly higher in the MetS
A new study [1]: "
Association of metabolic syndrome {MetS} and its components with the risk of urologic cancers: a prospective cohort study
" reports that "[i]Compared to the non-MetS group, the risk of developing ... prostate [HR ... = 1.47 ...] cancer was significantly higher in the MetS
pca2004
in
Fight Prostate Cancer
8 months ago
PSA still low but cancer progressing
I've been on ADT plus Xtandi for about a year (see my profile) and my PSA has steadily reduced and stayed low. However, my latest CT scan shows that the tumours on my bones and lymph nodes are increasing in size and there are now a few small lesions appearing in my liver for the first time. Not the news
I've been on ADT plus Xtandi for about a year (see my profile) and my PSA has steadily reduced and stayed low. However, my latest CT scan shows that the tumours on my bones and lymph nodes are increasing in size and there are now a few small lesions appearing in my liver for the first time. Not the news
Benkaymel
in
Advanced Prostate Cancer
8 months ago
Feeling Anxious
I have Metastatic Breast Cancer (MBC) I am feeling very anxious and lonely this holiday season. I live alone in Los Angeles. My family is all back East in New York. My fiancé died and 2 BFF's friends died. My "so called" friends are not there for me. I really need more support.
I have Metastatic Breast Cancer (MBC) I am feeling very anxious and lonely this holiday season. I live alone in Los Angeles. My family is all back East in New York. My fiancé died and 2 BFF's friends died. My "so called" friends are not there for me. I really need more support.
Meditator110
in
SHARE Breast Cancer Support
6 months ago
brain mets
My mom had a 13 mm brain met in July . She had the single beam one day radiation treatment and it continues to shrink. She started on evermolimus I know that’s misspelled . It didn’t work so she started xeloda. But only one cycle so not long enough to tell if it’s working . Today she a had a repeat
My mom had a 13 mm brain met in July . She had the single beam one day radiation treatment and it continues to shrink. She started on evermolimus I know that’s misspelled . It didn’t work so she started xeloda. But only one cycle so not long enough to tell if it’s working . Today she a had a repeat
Flower1513
in
SHARE Metastatic Breast Cancer
6 months ago
Am I candidate for AS?
66 year old, Dx January 2022 PSA peak 5.76 [u]Biopsy 3/15/22[/u] 3 of 14 cores PCa 1 of 4 cores, 4+3, 80% Gr 4, <5% of tissue, left posterior 2 of 2 cores, 3+4, 20% Gr 4, 20% of tissue, left mid Decipher .34, cut off for low aggression is .45 NanoKnife June 6, 2022 PSA nadir 1.21 [u]Biopsy 5/16
66 year old, Dx January 2022 PSA peak 5.76 [u]Biopsy 3/15/22[/u] 3 of 14 cores PCa 1 of 4 cores, 4+3, 80% Gr 4, <5% of tissue, left posterior 2 of 2 cores, 3+4, 20% Gr 4, 20% of tissue, left mid Decipher .34, cut off for low aggression is .45 NanoKnife June 6, 2022 PSA nadir 1.21 [u]Biopsy 5/16
Piano777
in
Prostate Cancer Network
8 months ago
a amazing news!!
Well today I was back in the Oncology Department after my last treatment 6 years ago. I had been having some concerning symptoms so contacted the Oncology Team. I had an amazing response and was seen promptly with blood tests and a full body CT scan being carried out within 2 weeks. Today I receveived
Well today I was back in the Oncology Department after my last treatment 6 years ago. I had been having some concerning symptoms so contacted the Oncology Team. I had an amazing response and was seen promptly with blood tests and a full body CT scan being carried out within 2 weeks. Today I receveived
Eriksendi
in
My Ovacome
6 months ago
Second opinion on Biopsy
I am scheduled for a second Biopsy and plan to get a second opinion. I read Dr. Epstein with John Hopkins is on indefinite leave. Should I just submit it to John Hopkins, or does anyone have any suggestions for a good place for a second opinion. Previously my biopsy was 7, 3+4, but recent MRI shows
I am scheduled for a second Biopsy and plan to get a second opinion. I read Dr. Epstein with John Hopkins is on indefinite leave. Should I just submit it to John Hopkins, or does anyone have any suggestions for a good place for a second opinion. Previously my biopsy was 7, 3+4, but recent MRI shows
carlsbadjack
in
Prostate Cancer Network
6 months ago
Body jerking/spasms
Since finishing radiotherapy in August for lung cancer, I have these uncontrollable body jerking throughout the night, arms, legs, head etc. Also, twice now, I've fallen to the floor jerking on and off for nearly 30 minutes. I'm conscious, can hear things, but cannot stop the body movements. Has anyone
Since finishing radiotherapy in August for lung cancer, I have these uncontrollable body jerking throughout the night, arms, legs, head etc. Also, twice now, I've fallen to the floor jerking on and off for nearly 30 minutes. I'm conscious, can hear things, but cannot stop the body movements. Has anyone
olwman
in
The Roy Castle Lung Cancer Foundation
6 months ago
Sufficient Investigation?
My brother is a bit of an ostrich, over his prostate problems. He ignored his poor urinary flow for years, and despite my repeated advice which he ignored, he subsequently had to be admitted to the emergency department due to significant obstruction. His GFR had fallen dangerously to 10. He was in
My brother is a bit of an ostrich, over his prostate problems. He ignored his poor urinary flow for years, and despite my repeated advice which he ignored, he subsequently had to be admitted to the emergency department due to significant obstruction. His GFR had fallen dangerously to 10. He was in
Nordman
in
Advanced Prostate Cancer
6 months ago
Abaris
Hello everyone, I'm still on the quest for wellness. I was wondering if anyone had tried Abaris which is a TRH . Quite new on the market I think. I'm piling the weight on as I can't treat my thyroid without reacting to the meds. I was looking further upstream at TRH. I live in the UK so probably wouldn't
Hello everyone, I'm still on the quest for wellness. I was wondering if anyone had tried Abaris which is a TRH . Quite new on the market I think. I'm piling the weight on as I can't treat my thyroid without reacting to the meds. I was looking further upstream at TRH. I live in the UK so probably wouldn't
Sooty101
in
Thyroid UK
8 months ago
Ebus failure
Hi everyone, well I had my Ebus done yesterday, but unfortunately the scope just wouldn't reach the mass, although I knew it was 50/50 chance I'm so upset and dissapointed. I feel my only option now is to re live the nightmare needle ct but my anxiety is sooo bad at the thoughts of it.We are two months
Hi everyone, well I had my Ebus done yesterday, but unfortunately the scope just wouldn't reach the mass, although I knew it was 50/50 chance I'm so upset and dissapointed. I feel my only option now is to re live the nightmare needle ct but my anxiety is sooo bad at the thoughts of it.We are two months
Mindini1964
in
The Roy Castle Lung Cancer Foundation
6 months ago
polycystic liver disease
I wanted to find out if anyone else had experienced severe Polycystic Liver Disease. I had resection 12 years ago which was successful but my cysts have grown back more aggressively. I have been advised by specialist that they cannot de-roof as would space simply be filled by other cysts, resection
I wanted to find out if anyone else had experienced severe Polycystic Liver Disease. I had resection 12 years ago which was successful but my cysts have grown back more aggressively. I have been advised by specialist that they cannot de-roof as would space simply be filled by other cysts, resection
Sing2011
in
British Liver Trust
6 months ago
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