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Experiences with
Pelvic nerve damage
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Communities
32 public communities
Pelvic Pain Support Network
19,466 members
This community is run by the Pelvic Pain Support Network, a registered charity. The community forum exists to support those who wish to share and learn from others who have abdominal and/or pelvic pain and to provide peer support in managing the pain. It is moderated by trustees and members of the charity who are volunteers with personal experience of pelvic pain. Pelvic pain can be caused by many conditions affecting the pelvis such as adenomyosis, adhesions, endometriosis, painful periods, bladder pain, pelvic nerve damage, pudendal neuralgia, irritable bowel syndrome. One or more of these may be present or the person may not have a diagnosis. Pain that exists for 6 months or more, either intermittently or constant, is a condition in its own right. This community forum exists to support those who have had pain in the abdomen/pelvis for 6 months or longer with or without a diagnosis.
Pelvic Radiation Disease Association
630 members
The PRDA community is a peer support group where people can ask questions and share their experiences as well as supporting each other in living with Pelvic Radiation Disease (PRD). The group is run by the Pelvic Radiation Disease Association which is a UK based, patient-led charity set up to provide information and support to people who experience PRD following cancer treatment. PRD is a long-term side-effect (‘late effect’) affecting an estimated 100,000 people in the UK. We understand that people living with PRD can often have a complex set of symptoms which may affect their bowel, bladder, sexual and/or other functions for many years after radiotherapy. These symptoms sometimes only appearing several years or even decades after their radiotherapy treatment. PRD is defined as one or more ongoing symptoms of variable complexity that may affect people who have previously had radiotherapy to the pelvic region to treat their cancer. This includes pelvic radiotherapy for cancers of the colon, rectum, anus, prostate, testes, bladder, cervix and womb, but also total body radiotherapy and radiotherapy in the pelvic area for other primary and secondary cancers. Other words that are sometimes used to describe symptoms of PRD include: Radiation enteritis, Radiation proctitis, Radiation colitis, Radiation enteropathy, Radiation cystitis, Radiation cystopathy, Radiation-induced lumbar plexopathy and Pelvic insufficiency fractures.
Endometriosis New Zealand
1,285 members
Endometriosis New Zealand is New Zealand’s national endometriosis organisation and has affiliated Support Networks throughout the country. We represent the tens of thousands of girls and women with endometriosis in New Zealand and we work with those who treat the condition and researchers to find solutions. We provide unique and professional services and programs to reach individuals, communities, schools, workplaces and all stakeholders involved in improving health outcomes for those with endometriosis and persistent pelvic pain.
LSN
5,719 members
Welcome to the Lymphoedema Support Network community. The LSN is a registered charity run by people who live with lymphoedema. Lymphoedema is a build up of fluid resulting in swelling that develops as a result of an impaired lymphatic system. This may be because the lymphatic system has not developed properly or through damage or trauma. It can affect any part of the body but is most commonly seen in an arm or a leg. Although thought to be relatively uncommon, a recent study has estimated that at least 240,000 people in the UK may be affected. Although lymphoedema can't be cured, its main symptoms of swelling and the risk of infection in the affected area can, with treatment, be controlled and often significantly improved. The LSN offers a telephone information and support line, quarterly newletters, a wide range of fact sheets, a website, self management advice and much more.
Meningitis Now
6,783 members
Meningitis can strike in an instant, but the impact can last a lifetime. At Meningitis Now we offer support to anyone living in the UK who has been affected by this deadly disease. Our Health Unlocked forum is a place where you can share your meningitis experience, ask questions about the disease and find others who have been through a similar experience.
Brain health
1,262 members
This Brain Health community is a safe space for those affected by brain conditions to connect, share their experiences and offer support to others.
National Migraine Centre
9,151 members
Book a headache consultation now through the National Migraine Centre, the leading UK-wide migraine clinic. Appointments with specialist doctors & consultant neurologists: the migraine treatment charity. Visit our website to book now! www.NationalMigraineCentre.org.uk.
Migraine Support
3,508 members
We are a peer support community for people living with migraines. Here we share our experiences, ask questions and support each other!
Australian Pain Management Association
341 members
APMA is a health promotion charity providing advocacy, information and practical support for people living with persistent (chronic) pain and their families. APMA is the consumer health organisation for all Australians who live with persistent pain. APMA is your voice. APMA provides advice, assistance and advocacy, and works with governments, health clinicians and researchers to deliver evidence-based pain management services and ameliorate the personal and economic impact for people living with severe pain.
Epilepsy New Zealand
86 members
We support those throughout New Zealand living with epilepsy.
Epilepsy South Africa
736 members
We are the only national organisation in South Africa dedicated to improving the quality of life of persons with and affected by epilepsy. Our approach is firmly based on the United Nations Convention on the Rights of Persons with Disabilities (UN CRPD).
Epilepsy Australia
174 members
Epilepsy Australia is the national coalition of Australian Epilepsy Associations raising our voices as one to advance the cause of all Australians living with epilepsy. Actively delivering counseling, support and information to all who access our services, Epilepsy Australia is committed to raising awareness and understanding of the very real issues faced by those living with epilepsy. The unpredictable nature of seizures can force people to stay at home, fearful of a seizure occurring in public. Would you know what to do if you saw someone having a seizure? A goal of Epilepsy Australia is for every household in Australia to be seizure aware. Our challenge is to build on the success of our Seizure First Aid Awareness Campaign where more than 20,000 Seizure First Aid Kits were delivered to households Australia-wide.
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