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Experiences with
Pelvic nerve damage
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shoulder pain PMR or costocondritis?
I recently ranted about having to jump the queue to get a suprascapular nerve block (avoiding a 12 month waiting list ) rather than reverse shoulder surgery which is a massive procedure in comparison . I’m scheduled to go on Monday costing £5k so far which is annoying in itself but Crohn’s and reflux
I recently ranted about having to jump the queue to get a suprascapular nerve block (avoiding a 12 month waiting list ) rather than reverse shoulder surgery which is a massive procedure in comparison . I’m scheduled to go on Monday costing £5k so far which is annoying in itself but Crohn’s and reflux
AnniesRyder5
in
PMRGCAuk
1 year ago
Chronic ED and Hard Flaccid Please Help
Many theories are there point to
pelvic
floor dysfunction,
nerve
damage
(pudendal nerve), stressed Penile suspensory Ligament etc. I will be seeing a new urologist quite soon. Anyone have a Clue as to what is causing this and anyone got treated successfully. I’m at a lost what to do.
Many theories are there point to
pelvic
floor dysfunction,
nerve
damage
(pudendal nerve), stressed Penile suspensory Ligament etc. I will be seeing a new urologist quite soon. Anyone have a Clue as to what is causing this and anyone got treated successfully. I’m at a lost what to do.
FalloutPro66
in
Men's Health Forum (Penis Health)
1 year ago
Costochronditis and Fibromyalgia
Does anyone suffer from the above? I had a stroke in Nov 2020 and despite some complications from this, recovery has been slow. In 2021 I started experencing severe and sharp chest pain and pain under my breast and radiating through to my shoulder blades. Having attended A&E on advice of the NHS doctor's
Does anyone suffer from the above? I had a stroke in Nov 2020 and despite some complications from this, recovery has been slow. In 2021 I started experencing severe and sharp chest pain and pain under my breast and radiating through to my shoulder blades. Having attended A&E on advice of the NHS doctor's
Hidden
in
Fibromyalgia Action UK
1 year ago
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Update #5: Back to front
Hi all, Continuing on from my adrenals results… https://healthunlocked.com/thyroiduk/posts/149321002/update-4-adrenal-results I have spent some time researching and experimenting with adrenal support. This is what I understand. If I am off about any of this please do feel free to correct or challenge
Hi all, Continuing on from my adrenals results… https://healthunlocked.com/thyroiduk/posts/149321002/update-4-adrenal-results I have spent some time researching and experimenting with adrenal support. This is what I understand. If I am off about any of this please do feel free to correct or challenge
Hidden
in
Thyroid UK
1 year ago
shingles
been to Aand E I’ve now got shingles in my hair and face 😱think someone dosent like me🥲
been to Aand E I’ve now got shingles in my hair and face 😱think someone dosent like me🥲
Shaza123
in
PMRGCAuk
1 year ago
Newbie 😊
Hi there I'm so happy to have come across this site I'm 52 with 2 young ish kids 10 and 8 , 1 of whom is severely autistic, non verbal doubly incontinent but an absolute blessing. Sometimes I feel so alone with this illness its nice to share other people's experiences, I also have severe copd so oxygen
Hi there I'm so happy to have come across this site I'm 52 with 2 young ish kids 10 and 8 , 1 of whom is severely autistic, non verbal doubly incontinent but an absolute blessing. Sometimes I feel so alone with this illness its nice to share other people's experiences, I also have severe copd so oxygen
Netty71
in
Fibromyalgia Action UK
1 year ago
private health!
As with fellow PMR sufferers shoulder pain has been a common factor I started shoulder repair about 20 years ago with steroid injections and rotator cuff repairs. All of which gave temporary relief. In 2015 a surgeon put me forward for shoulder replacement but as pain was not the major factor I put
As with fellow PMR sufferers shoulder pain has been a common factor I started shoulder repair about 20 years ago with steroid injections and rotator cuff repairs. All of which gave temporary relief. In 2015 a surgeon put me forward for shoulder replacement but as pain was not the major factor I put
AnniesRyder5
in
PMRGCAuk
1 year ago
non live shingles vaccine
I will be having my shingles vaccine soon (70 in May) - should I ask for non live vaccine - Shingrax? I take 6 mg of prednisolone a day - GP says live vaccine ok if on less than 7.5 mg but check with nurse - should I go private if GP won’t let offer non live vaccine?
I will be having my shingles vaccine soon (70 in May) - should I ask for non live vaccine - Shingrax? I take 6 mg of prednisolone a day - GP says live vaccine ok if on less than 7.5 mg but check with nurse - should I go private if GP won’t let offer non live vaccine?
Daffodilia
in
PMRGCAuk
1 year ago
Vagus Nerve Stimulation
Has anyone tried Vagus Nerve stimulation for their Parkinson's? If so what were the results and what was used to stimulate it, etc.?
Has anyone tried Vagus Nerve stimulation for their Parkinson's? If so what were the results and what was used to stimulate it, etc.?
Trailing
in
Restless Legs Syndrome
1 year ago
Making plans to go forward?
Hi folks, this is my first post. I'm a year into my brain injury caused by encephalitis. This is the second injury, the first was 5 years ago and I recovered fairly quickly and fully. This second was a surprise to everyone, but apparently I probably have a rare disease that makes recurrent encephalitis
Hi folks, this is my first post. I'm a year into my brain injury caused by encephalitis. This is the second injury, the first was 5 years ago and I recovered fairly quickly and fully. This second was a surprise to everyone, but apparently I probably have a rare disease that makes recurrent encephalitis
PurpleOverlord
in
Headway
1 year ago
My Heamatologist said I most likely have ET and mutation tests showed I have JAK2
Hi to you all and thank you for this forum as I’m learning so much from the chats 🌸 I was involved in a sleep study last year which was trialling larger doses of Lactobacillus to see if it helped the sleep hormones in the gut. Maybe I had the placebo 🤷♀️ as I didn’t find any difference. I received
Hi to you all and thank you for this forum as I’m learning so much from the chats 🌸 I was involved in a sleep study last year which was trialling larger doses of Lactobacillus to see if it helped the sleep hormones in the gut. Maybe I had the placebo 🤷♀️ as I didn’t find any difference. I received
Pachena
in
MPN Voice
1 year ago
Vagal Nerve Stimulation (tVNS) Research Summary
Some definitions for clarity. Neuromodulation, stimulating nerves (usually with electricity) to change (hopefully improve) or control their function. Deep Brain Stimulation (DBS) is a form of neuromodulation. Neuromodulation can be invasive, requiring surgery (like DBS) or noninvasive which provides
Some definitions for clarity. Neuromodulation, stimulating nerves (usually with electricity) to change (hopefully improve) or control their function. Deep Brain Stimulation (DBS) is a form of neuromodulation. Neuromodulation can be invasive, requiring surgery (like DBS) or noninvasive which provides
House2
in
Cure Parkinson's
1 year ago
pmr and now shingles
hi- I’m on day 6 of aciclovir for shingles. I cannot believe how bad I feel. The electric shock like pains up the side of my head 😱. And the general aches. Any advice? I’m down to 4 mg pred and was doing ok after the initial fatigue when I dropped down . Should I stay in bed? I really can’t believe
hi- I’m on day 6 of aciclovir for shingles. I cannot believe how bad I feel. The electric shock like pains up the side of my head 😱. And the general aches. Any advice? I’m down to 4 mg pred and was doing ok after the initial fatigue when I dropped down . Should I stay in bed? I really can’t believe
Fiddlemum
in
PMRGCAuk
1 year ago
Shingles after GCA
I was dx with GCA in March/19, tapered off pred in Dec/20. July21 dx with vitiligo, yer another autoimmune. Dec/22 dx with shingles, which affected my left eye. Now I am pretty much over the shingles, but having terrible headaches esp overnight. Blood pressure which has always been low (100/60
I was dx with GCA in March/19, tapered off pred in Dec/20. July21 dx with vitiligo, yer another autoimmune. Dec/22 dx with shingles, which affected my left eye. Now I am pretty much over the shingles, but having terrible headaches esp overnight. Blood pressure which has always been low (100/60
pugrescue
in
PMRGCAuk
1 year ago
Runners brain
Anyone else find themselves composing a post to put on here while they're running? Something that seems hilarious/fascinating/insightful while you're thinking of it, but later on (like those brilliant ideas you have at 3am) turns out to be drivel? No? Just me then. Anyway, I did my 28 minutes tonight
Anyone else find themselves composing a post to put on here while they're running? Something that seems hilarious/fascinating/insightful while you're thinking of it, but later on (like those brilliant ideas you have at 3am) turns out to be drivel? No? Just me then. Anyway, I did my 28 minutes tonight
NettieNoo
Graduate
in
Couch to 5K
1 year ago
Suspect if my feelings are the symptoms of STIs.
I had unprotected sex with a stranger 10 tens ago. Now I feel burning sensation on my penis and anal after pooing and peeing. Is this feeling related to my sexual behaviors? Is it still too early to go and get tested of STD(I)?
I had unprotected sex with a stranger 10 tens ago. Now I feel burning sensation on my penis and anal after pooing and peeing. Is this feeling related to my sexual behaviors? Is it still too early to go and get tested of STD(I)?
Ivansoe
in
BASHH
1 year ago
mirabegnon
I have asked for advice on this forum before but my bladder problems are causing distress. Because I cannot take Solifenacin though it worked well as far as the constant need to pee. It caused me terrible constipation which even with laxitives was difficult. Now my urethra is sore and some pain.
I have asked for advice on this forum before but my bladder problems are causing distress. Because I cannot take Solifenacin though it worked well as far as the constant need to pee. It caused me terrible constipation which even with laxitives was difficult. Now my urethra is sore and some pain.
Alloagirl
in
Pelvic Pain Support Network
1 year ago
Off meds because of Shingles, but maybe answers to other concerns…..
So about 18 months ago I started feeling nauseous occasionally. Moved taking my mtx tablets to the evening, and upped folic acid from 1 a week to 3, then 5. Not making much difference so moved to mtx injections. Still feeling nauseous but RA team reluctant to pin on Mtx as nauseous is generally after
So about 18 months ago I started feeling nauseous occasionally. Moved taking my mtx tablets to the evening, and upped folic acid from 1 a week to 3, then 5. Not making much difference so moved to mtx injections. Still feeling nauseous but RA team reluctant to pin on Mtx as nauseous is generally after
Hollyhock123
in
NRAS
1 year ago
Tens machine
does anyone have any relief from pain with a tens machine. I’m in severe pain as soon as I stand or walk, my fractures from osteoporosis are old, or I thought the pain went when they healed?
does anyone have any relief from pain with a tens machine. I’m in severe pain as soon as I stand or walk, my fractures from osteoporosis are old, or I thought the pain went when they healed?
angie26
in
Bone Health and Osteoporosis UK
1 year ago
Lyrica v Cymbalta
Hello everyone! I have been suffering with PN for about a year and have tried physical therapy and nerve blocks with little success. I have been hesitant about going on the meds suggested (Lyrica or Cymbalta) because of all of the side effects but think it may be time. Just wondering what other’s
Hello everyone! I have been suffering with PN for about a year and have tried physical therapy and nerve blocks with little success. I have been hesitant about going on the meds suggested (Lyrica or Cymbalta) because of all of the side effects but think it may be time. Just wondering what other’s
Mshrink
in
Pelvic Pain Support Network
2 years ago
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