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Pelizaeus–Merzbacher disease
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Metastasized to Bones
I have been seeing post saying poeple being diagnosed with metastasized PC. I was diagnosed with PC metastasized to my bones, after being under urologist care for 18 months I am wondering if poeple who get initially diagnosed with metastasized PC, whether it is because they were not under medical care
I have been seeing post saying poeple being diagnosed with metastasized PC. I was diagnosed with PC metastasized to my bones, after being under urologist care for 18 months I am wondering if poeple who get initially diagnosed with metastasized PC, whether it is because they were not under medical care
hopefull99
in
Advanced Prostate Cancer
7 months ago
PD sucks
PD suspected by GP in November 2022. Confirmed by neurologist in January 2023. Tried different meds - now on rotigotine patches plus after research, I now take mucuna morning and afternoon. Supposed to provide 240mg L-Dopa each day. It helps with constipation. What bothers me most is poor
PD suspected by GP in November 2022. Confirmed by neurologist in January 2023. Tried different meds - now on rotigotine patches plus after research, I now take mucuna morning and afternoon. Supposed to provide 240mg L-Dopa each day. It helps with constipation. What bothers me most is poor
reefeye
in
Cure Parkinson's
9 months ago
Stating and underactive thyroid
Hi I suffer with underactive thyroid and fibromalarga reciently I got put on stating for high colesteral after 3 day I stopped them my muscles felt like I'd been hit buy a bus i
Hi I suffer with underactive thyroid and fibromalarga reciently I got put on stating for high colesteral after 3 day I stopped them my muscles felt like I'd been hit buy a bus i
shazzafloyd
in
Thyroid UK
7 months ago
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I'm loosing the will to carry on!!!
I am really unwell right now an loosing the will to carry on. Know I should seek some medical help but who do I go to for help? Honestly, over the past 18 months I have had to fight to get the help I needed via the NHS. What a battle that was. Last week, had severe palpitations lasting 6 hours which
I am really unwell right now an loosing the will to carry on. Know I should seek some medical help but who do I go to for help? Honestly, over the past 18 months I have had to fight to get the help I needed via the NHS. What a battle that was. Last week, had severe palpitations lasting 6 hours which
DizzyD
in
Atrial Fibrillation Support
6 months ago
Liver and Digestion
How has your liver disease affected your digestive system? My digestion has been unpredictable for years, sometimes constipation and sometimes diarrhea (sorry TMI). Dr always said it was IBS since nothing was seen on colonoscopies etc. I’m wondering if my digestive issues have been from my liver all
How has your liver disease affected your digestive system? My digestion has been unpredictable for years, sometimes constipation and sometimes diarrhea (sorry TMI). Dr always said it was IBS since nothing was seen on colonoscopies etc. I’m wondering if my digestive issues have been from my liver all
FlippinOut
in
British Liver Trust
9 months ago
Can anyone Assist?
A couple of weeks ago, I partially read a lengthy and extremely interesting post explaining many aspects of PCa..., also the link between PSA and PCa and many other facts. I flagged the post to read later but for some reason the post has been deleted. Can anyone point me to this post as from what
A couple of weeks ago, I partially read a lengthy and extremely interesting post explaining many aspects of PCa..., also the link between PSA and PCa and many other facts. I flagged the post to read later but for some reason the post has been deleted. Can anyone point me to this post as from what
StuartS
in
Advanced Prostate Cancer
9 months ago
Recompensated Liver. Safe to travel.
I had my telephone consultation yesterday with my liver nurse and had some reassuring news. I asked her if I was safe to travel abroad and she said that my liver had recompensated and was functioning normal and that my bloods and scans are normal range and they have no features of concern. It will be
I had my telephone consultation yesterday with my liver nurse and had some reassuring news. I asked her if I was safe to travel abroad and she said that my liver had recompensated and was functioning normal and that my bloods and scans are normal range and they have no features of concern. It will be
Nip1
in
British Liver Trust
9 months ago
being redundant
I have an amazing ability to pick relevant podcasts while driving. Just had my blood work done in preparation of starting Pluvicto and not being able to choose wisely while driving I picked this podcast which i have heard before and have even advocated on this forum before. Dr Chetty is so brilliant
I have an amazing ability to pick relevant podcasts while driving. Just had my blood work done in preparation of starting Pluvicto and not being able to choose wisely while driving I picked this podcast which i have heard before and have even advocated on this forum before. Dr Chetty is so brilliant
spencoid2
in
Advanced Prostate Cancer
6 months ago
PMR Heavy Legs / Lead Legs / Low Energy
Hello, I haven't posted in a long time. I've read many articles. I didn't know what DSNS was until I went to the FAQ's and then tapering plans page. Both PMRpro and DorsetLady, and others have tapering plans (thank you PMRpro & DorsetLady). I have bounced around 15 to 5 MG for the past year. I'm currently
Hello, I haven't posted in a long time. I've read many articles. I didn't know what DSNS was until I went to the FAQ's and then tapering plans page. Both PMRpro and DorsetLady, and others have tapering plans (thank you PMRpro & DorsetLady). I have bounced around 15 to 5 MG for the past year. I'm currently
Me_2
in
PMRGCAuk
9 months ago
Update on Dipyridamole
Talked to my Doctor and he felt that taking Dipyridamole as needed was OK. In two months I have had three bad nights. To me a bad night is going to bed and getting back up in 10 minutes, when ya know ya know. So that is the good news. I am also going for a blood test next week, that should be
Talked to my Doctor and he felt that taking Dipyridamole as needed was OK. In two months I have had three bad nights. To me a bad night is going to bed and getting back up in 10 minutes, when ya know ya know. So that is the good news. I am also going for a blood test next week, that should be
WideBody
in
Restless Legs Syndrome
9 months ago
How high must the PSA levels be before cancer can be seen in a CT scan?
Following the end of my treatment (radiation, lupron, Zytiga, prednisone) with curative intent back in May, my PSA has risen from undetectable to 0.09. As discussed on another thread this is not alarming at this stage since I still have a prostate as I never had surgery to remove it. However I am
Following the end of my treatment (radiation, lupron, Zytiga, prednisone) with curative intent back in May, my PSA has risen from undetectable to 0.09. As discussed on another thread this is not alarming at this stage since I still have a prostate as I never had surgery to remove it. However I am
Mascouche
in
Advanced Prostate Cancer
9 months ago
Creatinine and LDH
I have hashimoto's and I have been seeing a functional medicine doctor because my endocrinologist was not helping. He recently ran a bunch of labs. Both my creatinine and LDH were lab low. Does anyone know what that would mean and if is connected with my thyroid in any way?
I have hashimoto's and I have been seeing a functional medicine doctor because my endocrinologist was not helping. He recently ran a bunch of labs. Both my creatinine and LDH were lab low. Does anyone know what that would mean and if is connected with my thyroid in any way?
CraftyGamer19
in
Thyroid UK
9 months ago
flecainide question
Thank you everyone for the goodwill and empathy of this community. I’ve had two ablations (cryoablation, and RF). After a year living symptom free, AF episodes have recurred. However, following , two reversions to NSR via Flecainide and Bisoprolol as a ‘pill in the pocket’ intervention, it’s not
Thank you everyone for the goodwill and empathy of this community. I’ve had two ablations (cryoablation, and RF). After a year living symptom free, AF episodes have recurred. However, following , two reversions to NSR via Flecainide and Bisoprolol as a ‘pill in the pocket’ intervention, it’s not
Waverto
in
AF Association
7 months ago
Limbo period after BCR post RP and SRT and prior to PSA enough for PSMA PET?
Quick background: RP 2/02, Meyers' PSA suppression until 2016 when PSA jumped from 17 to 28 in a month, 6 mos. adjuvant ADT3 before, during, after SRT, undetectable PSA until 5/30/23 at .1; .14 6/6; .12 7/11; .17 9/5. I have talked to a uro friend and seen my rad-onc and the plan seems to be to wait
Quick background: RP 2/02, Meyers' PSA suppression until 2016 when PSA jumped from 17 to 28 in a month, 6 mos. adjuvant ADT3 before, during, after SRT, undetectable PSA until 5/30/23 at .1; .14 6/6; .12 7/11; .17 9/5. I have talked to a uro friend and seen my rad-onc and the plan seems to be to wait
bldn10
in
Advanced Prostate Cancer
9 months ago
Advice please on paroxysmal afib
Hi all, I was diagnosed with lone AF in 2020. I think most of you are familiar with my story.My episodes (very symptomatic) were about every 4 months lasting up to 36 hours before reverting back to NSR. I have started to have them more frequently so went for an ablation which was scheduled for this week
Hi all, I was diagnosed with lone AF in 2020. I think most of you are familiar with my story.My episodes (very symptomatic) were about every 4 months lasting up to 36 hours before reverting back to NSR. I have started to have them more frequently so went for an ablation which was scheduled for this week
Karendeena
in
AF Association
7 months ago
Palpitations worse after ablation
Good evening everyone, I’m really struggling after my catheter ablation 10 days ago. The palpitations and ectopics I’m experiencing are awful. So different to the palpitations I was having before my ablation. They are very erratic. I have Dilated Cardiomyopathy and AVNRT. I know it’s early days
Good evening everyone, I’m really struggling after my catheter ablation 10 days ago. The palpitations and ectopics I’m experiencing are awful. So different to the palpitations I was having before my ablation. They are very erratic. I have Dilated Cardiomyopathy and AVNRT. I know it’s early days
Carolx
in
AF Association
7 months ago
Elevated Cholesterol
Hello, Just had my cholesterol results back and they are quite elevated. Just wondering whether anyone else has elevated Cholesterol and just taking Aspirin watch and wait? Fortunately my Triglycerides are good. I tried Atorvastatin in 2018 but had to stop after 6m due to severe muscle aches. No
Hello, Just had my cholesterol results back and they are quite elevated. Just wondering whether anyone else has elevated Cholesterol and just taking Aspirin watch and wait? Fortunately my Triglycerides are good. I tried Atorvastatin in 2018 but had to stop after 6m due to severe muscle aches. No
Carol0925
in
MPN Voice
7 months ago
Liver Transplant - Lest we forget
When a person embarks on a liver journey, there are many people involved in their treatment over possibly many years. There are a multitude of medical professionals who become involved. These may range from the gastroenterologist who in turn refers their patient to a hepatologist. All the imagery people
When a person embarks on a liver journey, there are many people involved in their treatment over possibly many years. There are a multitude of medical professionals who become involved. These may range from the gastroenterologist who in turn refers their patient to a hepatologist. All the imagery people
Richard-Allen
in
British Liver Trust
9 months ago
cystitisy like feelings
Hello , I wondered whether anyone has experienced feelings in the bladder and on urination as if they had cystitis , but received a normal urine test ? I have been having this feeling for about a week now , urine sample given at GP’s was normal . I am currently having Avastin 3 weekly and have been
Hello , I wondered whether anyone has experienced feelings in the bladder and on urination as if they had cystitis , but received a normal urine test ? I have been having this feeling for about a week now , urine sample given at GP’s was normal . I am currently having Avastin 3 weekly and have been
Norelo8
in
My Ovacome
9 months ago
Palpitations
Hi all. Just had a horrible weekend , fast irregular heart rate, lasted over 1 hour . Of course it had stopped by the time I was monitored, so they didn't really have any record . Spent 2 nights in EAU wired up , lots of ecgs bloods etc. They reassured me it wasn't a heart attack . The flutters continued
Hi all. Just had a horrible weekend , fast irregular heart rate, lasted over 1 hour . Of course it had stopped by the time I was monitored, so they didn't really have any record . Spent 2 nights in EAU wired up , lots of ecgs bloods etc. They reassured me it wasn't a heart attack . The flutters continued
Potatoheat
in
LUPUS UK
7 months ago
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