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Will we be seeing you at this year's Arrhythmia Alliance Patients Day?
Will we be seeing you at this year's Arrhythmia Alliance Patients Day? Did you know that we offer an early bird discount available until 02 June? At #PatientsDay2023, you can expect a jam-packed agenda, with a wide range of topics such as SVT, ICDs, Pacemakers, Defibrillators, lifestyle changes and more
Will we be seeing you at this year's Arrhythmia Alliance Patients Day? Did you know that we offer an early bird discount available until 02 June? At #PatientsDay2023, you can expect a jam-packed agenda, with a wide range of topics such as SVT, ICDs, Pacemakers, Defibrillators, lifestyle changes and more
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Arrhythmia Alliance SVT
1 year ago
Will we be seeing you at this year's Arrhythmia Alliance Patients Day?
Will we be seeing you at this year's Arrhythmia Alliance Patients Day? Did you know that we offer an early bird discount available until 02 June? At #PatientsDay2023, you can expect a jam-packed agenda, with a wide range of topics such as SVT, ICDs, Pacemakers, Defibrillators, lifestyle changes and more
Will we be seeing you at this year's Arrhythmia Alliance Patients Day? Did you know that we offer an early bird discount available until 02 June? At #PatientsDay2023, you can expect a jam-packed agenda, with a wide range of topics such as SVT, ICDs, Pacemakers, Defibrillators, lifestyle changes and more
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Arrhythmia Alliance Heart Failure
1 year ago
Will we be seeing you at this year's Arrhythmia Alliance Patients Day?
Will we be seeing you at this year's Arrhythmia Alliance Patients Day? Did you know that we offer an early bird discount available until 02 June? At #PatientsDay2023, you can expect a jam-packed agenda, with a wide range of topics such as SVT, ICDs, Pacemakers, Defibrillators, lifestyle changes and more
Will we be seeing you at this year's Arrhythmia Alliance Patients Day? Did you know that we offer an early bird discount available until 02 June? At #PatientsDay2023, you can expect a jam-packed agenda, with a wide range of topics such as SVT, ICDs, Pacemakers, Defibrillators, lifestyle changes and more
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Arrhythmia Alliance
1 year ago
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WHEN YOUR CLINICAL TRIAL FAILS, WHAT DO YOU DO NEXT ?
Except for a monthly neulasta injection, my Nurex 2127 trial had been going pretty well. My blood counts were good, 13ish HGB 1,80 ALC 150 Plat ANC was always low. My Dr. thought it would be idea to do an 18 month " lets see where we are BMB", no problem. I hadn't had one in about 20 months
Except for a monthly neulasta injection, my Nurex 2127 trial had been going pretty well. My blood counts were good, 13ish HGB 1,80 ALC 150 Plat ANC was always low. My Dr. thought it would be idea to do an 18 month " lets see where we are BMB", no problem. I hadn't had one in about 20 months
steve5441
in
CLL Support
8 months ago
Walking in rhythm
Hello, long time lurker on here and thank you to all the regular posters who keep us lurkers so well informed. Sorry in advance for the long post :) My afib story started in Feb 19 and like all new Afibbers I was scared and ignorant of the condition. I am very lucky to have no symptoms and don't
Hello, long time lurker on here and thank you to all the regular posters who keep us lurkers so well informed. Sorry in advance for the long post :) My afib story started in Feb 19 and like all new Afibbers I was scared and ignorant of the condition. I am very lucky to have no symptoms and don't
diminished7th
in
Atrial Fibrillation Support
1 year ago
Anyone know any thing about clinical trial BMF-219 a covalent,mein inhibitor
I have been in Loxo clinical trial at MSK for 40 mo and have begun to slowly progress. I have been exploring options for next treatment plan.Have been seen at NIH and offered their clinical Nurix trial (degrader) . At vs with my local hematologist (Va Cancer Sp) she referred me to their research dept
I have been in Loxo clinical trial at MSK for 40 mo and have begun to slowly progress. I have been exploring options for next treatment plan.Have been seen at NIH and offered their clinical Nurix trial (degrader) . At vs with my local hematologist (Va Cancer Sp) she referred me to their research dept
Osprey69
in
CLL Support
8 months ago
Spotlight on Chronic Lymphocytic Leukemia (CLL) May 24, 2023 Nicole Lamanna, MD- replay, slides and transcript
Spotlight on Chronic Lymphocytic Leukemia (CLL) May 24, 2023 Nicole Lamanna, MD https://www.lls.org/patient-education-webcasts/spotlight-chronic-lymphocytic-leukemia-cll https://youtu.be/6KziJk3zQ_I Topics Covered: Emerging therapies and clinical trials for CLL Managing side effects Strategies
Spotlight on Chronic Lymphocytic Leukemia (CLL) May 24, 2023 Nicole Lamanna, MD https://www.lls.org/patient-education-webcasts/spotlight-chronic-lymphocytic-leukemia-cll https://youtu.be/6KziJk3zQ_I Topics Covered: Emerging therapies and clinical trials for CLL Managing side effects Strategies
lankisterguy
Volunteer
in
CLL Support
8 months ago
LET'S TALK CLL- Patients & Doctors Discuss the Latest Live! SATURDAY, OCTOBER 14, 2023 Virtual program starts at 10am CDT 11am EDT
LIVE & IN-PERSON EVENT- LET'S TALK CLL Patients & Doctors Discuss the Latest Live! DATE: SATURDAY, OCTOBER 14, 2023 LOCATION: MD ANDERSON CANCER CENTER Virtual program begins at 10am (CT). Register here: https://us06web.zoom.us/webinar/register/5216926341361/WN_8BHNtMXZR9Gjf211Nh_lhA - We're
LIVE & IN-PERSON EVENT- LET'S TALK CLL Patients & Doctors Discuss the Latest Live! DATE: SATURDAY, OCTOBER 14, 2023 LOCATION: MD ANDERSON CANCER CENTER Virtual program begins at 10am (CT). Register here: https://us06web.zoom.us/webinar/register/5216926341361/WN_8BHNtMXZR9Gjf211Nh_lhA - We're
lankisterguy
Volunteer
in
CLL Support
8 months ago
Amiodarone
I had 3 ablations at MUSC to address PVC’s and ARVC, got an ICD after that, then developed AFib followed by an atrial ablation and finally a cardioversion to fix atrial flutter a month after the shocker. I’ve felt fine through all of this - asymptomatic all along. I’m 70 and was a runner for 22 years
I had 3 ablations at MUSC to address PVC’s and ARVC, got an ICD after that, then developed AFib followed by an atrial ablation and finally a cardioversion to fix atrial flutter a month after the shocker. I’ve felt fine through all of this - asymptomatic all along. I’m 70 and was a runner for 22 years
AblatedCyclist
in
AF Association
1 year ago
current state of Immuno therapy , how we got here and where we are going - Peter Attia
https://peterattiamd.com/keithflaherty2/?utm_source=podcast-email&utm_medium=email&utm_campaign=230821-pod-keithflaherty2&utm_content=230821-pod-keithflaherty2-email-nonsubs&mc_cid=a76876ebc7&mc_eid=ee5f4da697 Some great info about cancer at the cell level Current state of treatments for metastatic
https://peterattiamd.com/keithflaherty2/?utm_source=podcast-email&utm_medium=email&utm_campaign=230821-pod-keithflaherty2&utm_content=230821-pod-keithflaherty2-email-nonsubs&mc_cid=a76876ebc7&mc_eid=ee5f4da697 Some great info about cancer at the cell level Current state of treatments for metastatic
Scout4answers
in
Advanced Prostate Cancer
10 months ago
Cancer at the cell level Peter Attia
https://peterattiamd.com/keithflaherty2/?utm_source=podcast-email&utm_medium=email&utm_campaign=230821-pod-keithflaherty2&utm_content=230821-pod-keithflaherty2-email-nonsubs&mc_cid=a76876ebc7&mc_eid=ee5f4da697 Some great info about how we got here and where we are going Current state of treatments
https://peterattiamd.com/keithflaherty2/?utm_source=podcast-email&utm_medium=email&utm_campaign=230821-pod-keithflaherty2&utm_content=230821-pod-keithflaherty2-email-nonsubs&mc_cid=a76876ebc7&mc_eid=ee5f4da697 Some great info about how we got here and where we are going Current state of treatments
Scout4answers
in
Fight Prostate Cancer
10 months ago
COVID-19 immune cell vaccine eases SLE symptoms in girl: Report
Therapy helped 13-year-old by increasing immune tolerance, researchers say
A personalized vaccine kit designed to prevent COVID-19 infection eased systemic lupus erythematosus (SLE) manifestations in an adolescent girl in Indonesia whose symptoms had not been well-controlled with immunosuppressive
Therapy helped 13-year-old by increasing immune tolerance, researchers say
A personalized vaccine kit designed to prevent COVID-19 infection eased systemic lupus erythematosus (SLE) manifestations in an adolescent girl in Indonesia whose symptoms had not been well-controlled with immunosuppressive
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
9 months ago
DOACs
I have just read a 'Healthline' publication dated January 2023 about the long term effects of blood thinners and anticoagulants. I am a bit concerned with the content of this article and would like members of our group opinions. The article stated that there was no reversal agent for Riveroxaban and
I have just read a 'Healthline' publication dated January 2023 about the long term effects of blood thinners and anticoagulants. I am a bit concerned with the content of this article and would like members of our group opinions. The article stated that there was no reversal agent for Riveroxaban and
Karendeena
in
AF Association
1 year ago
clinical trial
hi all, I have been asked to take part in a trial for new medication with Pantharaclinic by my doctors. I was told this could stop my af permanently. I have a fast heart rate of around 200 to 240. I am going to take part in it, will let you know how it goes.
hi all, I have been asked to take part in a trial for new medication with Pantharaclinic by my doctors. I was told this could stop my af permanently. I have a fast heart rate of around 200 to 240. I am going to take part in it, will let you know how it goes.
Byke
in
AF Association
9 months ago
Stroke Prevention Day
The Stroke Association are highlighting the link between AF and the possibility of a stroke. I can echo that, as I was cardio fit with none of the other risks from weight, smoking, drinking, but I had AF and I was not prescribed an anticoagulant. On 6 July 2016 I had a stroke. The following words
The Stroke Association are highlighting the link between AF and the possibility of a stroke. I can echo that, as I was cardio fit with none of the other risks from weight, smoking, drinking, but I had AF and I was not prescribed an anticoagulant. On 6 July 2016 I had a stroke. The following words
john-boy-92
in
Atrial Fibrillation Support
1 year ago
why a stress test?
Been a while cause all has been “quiet.” I have been taking Flecainide 50 twice a day, Eliquis 5 twice a day, metoprolol 15 in am and 12.5 in evening. It’s been a year. Occasional blip but nothing to talk about really. I’m 66, female, and exercise aerobically 4-5 times a week. Sleep and eat well, work
Been a while cause all has been “quiet.” I have been taking Flecainide 50 twice a day, Eliquis 5 twice a day, metoprolol 15 in am and 12.5 in evening. It’s been a year. Occasional blip but nothing to talk about really. I’m 66, female, and exercise aerobically 4-5 times a week. Sleep and eat well, work
Cos56
in
AF Association
1 year ago
There is still HOPE
It has been a long time since I posted. First, I want say that I am an 11 year survivor having been diagnosed with Stage 3c ovarian cancer. I’ve had multiple recurrences and I am currently dealing with my seventh. I remember frantically looking for survival stories just to see how much time I had after
It has been a long time since I posted. First, I want say that I am an 11 year survivor having been diagnosed with Stage 3c ovarian cancer. I’ve had multiple recurrences and I am currently dealing with my seventh. I remember frantically looking for survival stories just to see how much time I had after
yo207
in
My Ovacome
9 months ago
Partial thyroidectomy
Hi all, I had a partial thyroidectomy in 2021 for papillary thyroid cancer follicular variant. Had surveillance scan September last year, all good. Had another scan this week, there is a 1cm growth on the left side which I had removed, also increased vascularity . I have multinodular goiter and thyroditis
Hi all, I had a partial thyroidectomy in 2021 for papillary thyroid cancer follicular variant. Had surveillance scan September last year, all good. Had another scan this week, there is a 1cm growth on the left side which I had removed, also increased vascularity . I have multinodular goiter and thyroditis
MyJourney200
in
Thyroid UK
9 months ago
MRD testing not offered
I'm about mid way through the O+V journey. I asked my hemo/oncologist about MRD testing when its over and he replied (as I've since ready many times) that MRD in itself is not an indication of my future or if/when I'll need to go back on an active treatment; they will rely primarily on my CBC and any
I'm about mid way through the O+V journey. I asked my hemo/oncologist about MRD testing when its over and he replied (as I've since ready many times) that MRD in itself is not an indication of my future or if/when I'll need to go back on an active treatment; they will rely primarily on my CBC and any
xpetes
in
CLL Support
9 months ago
Feeling very hopeless at this point.
My husband was diagnosed in 2011 at age 52, gleason 8, 11 of 12 cores positive. We went for many many 2nd opinions, surgery or radiation? finally chose radiation as all doctors said it had spread already and would need radiation anyway after surgery. Treated with Snuffy Myers in Virginia until his
My husband was diagnosed in 2011 at age 52, gleason 8, 11 of 12 cores positive. We went for many many 2nd opinions, surgery or radiation? finally chose radiation as all doctors said it had spread already and would need radiation anyway after surgery. Treated with Snuffy Myers in Virginia until his
Judymin
in
Advanced Prostate Cancer
9 months ago
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