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New therapies
Dr. Robert Hauser has recently penned an outstanding paper reviewing all the new therapies in the Parkinson's disease pipeline. Dr. Hauser is professor at the NPF Center of Excellence at the University of South Florida in Tampa. Here is the link to the article which is free access through
Dr. Robert Hauser has recently penned an outstanding paper reviewing all the new therapies in the Parkinson's disease pipeline. Dr. Hauser is professor at the NPF Center of Excellence at the University of South Florida in Tampa. Here is the link to the article which is free access through
Hidden
in
Cure Parkinson's
12 years ago
some benefits(?) of having Parkinsons
This morning I thought of a few "benefits". Feel free to add on if you think of any. I do not need an electric toothbrush I do not need to worry about sobriety tests – I can’t walk a straight line anyway I won’t accidently volunteer for something I don’t want to do as I am already shaking my
This morning I thought of a few "benefits". Feel free to add on if you think of any. I do not need an electric toothbrush I do not need to worry about sobriety tests – I can’t walk a straight line anyway I won’t accidently volunteer for something I don’t want to do as I am already shaking my
rch21
in
Cure Parkinson's
12 years ago
Drugs not toxic
Important News for the Parkinson’s Disease Community: More Evidence that Sinemet and Madopar are Not Toxic and do Not Accelerate Disease Progression You can find out more about NPF's National Medical Director, Dr. Michael S. Okun, by also visiting the NPF Center of Excellence, University of Florida
Important News for the Parkinson’s Disease Community: More Evidence that Sinemet and Madopar are Not Toxic and do Not Accelerate Disease Progression You can find out more about NPF's National Medical Director, Dr. Michael S. Okun, by also visiting the NPF Center of Excellence, University of Florida
Hidden
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Cure Parkinson's
12 years ago
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Parkinson's: progressing the cure in haste but with patients
When I was diagnosed with Parkinson’s, I was relieved to be told that it was not terminal and that it was possible a cure could be identified before too long. Fifteen years later, there has been no real marked improvement in the treatment of the condition let alone a cure. Parkinson’s may not be a “killer
When I was diagnosed with Parkinson’s, I was relieved to be told that it was not terminal and that it was possible a cure could be identified before too long. Fifteen years later, there has been no real marked improvement in the treatment of the condition let alone a cure. Parkinson’s may not be a “killer
CPT_Tom
in
Cure Parkinson's
13 years ago
Parkinsons awareness bracelet
I saw a post on face book for a "Parkinsons awareness bracelet. The bracelet had the words ,"Be Brave" on it. Something about this seemed unsettling to me. I think that the "Cure" for Cancer is marketed everywhere and so it should be..But why would you want to support Parkinsons research by telling people
I saw a post on face book for a "Parkinsons awareness bracelet. The bracelet had the words ,"Be Brave" on it. Something about this seemed unsettling to me. I think that the "Cure" for Cancer is marketed everywhere and so it should be..But why would you want to support Parkinsons research by telling people
Kat00
in
Cure Parkinson's
12 years ago
I have parkinsonism....I fall alot...speak low...and write real small anyone out there like me?
BILLYRAY
in
Cure Parkinson's
12 years ago
PARKINSON’S MOVEMENT: A movement for change
PARKINSON’S MOVEMENT (www.parkinsonsmovement.com) and its community website (www.parkinsonsmovement.healthunlocked.com) is a new concept within the Parkinson’s community, based around the most important resource available — ourselves! Nobody understands Parkinson’s better than us, the patients.
PARKINSON’S MOVEMENT (www.parkinsonsmovement.com) and its community website (www.parkinsonsmovement.healthunlocked.com) is a new concept within the Parkinson’s community, based around the most important resource available — ourselves! Nobody understands Parkinson’s better than us, the patients.
JonStamford
in
Cure Parkinson's
13 years ago
As easy as riding a bike
One of the most striking aspects of Parkinson's disease is the capacity for cerebral compensation. By that I mean that alternative pathways and strategies are found to ensure that function is preserved. We already know for instance that between 80 and 90% of all striatal dopamine must be lost before
One of the most striking aspects of Parkinson's disease is the capacity for cerebral compensation. By that I mean that alternative pathways and strategies are found to ensure that function is preserved. We already know for instance that between 80 and 90% of all striatal dopamine must be lost before
JonStamford
in
Cure Parkinson's
13 years ago
I have to fight the Beast
I was 33 yrs when I was diagnosis with the Beast . In 2007 I was laid off for 2 yrs I was looking for work and for 2yrs my parkinsons got worse my doctor suggested that I go on SS disability . I was up to 2 pills of L- Dopa every 2hours and not lasting as long . That's when I decided to look in clinical
I was 33 yrs when I was diagnosis with the Beast . In 2007 I was laid off for 2 yrs I was looking for work and for 2yrs my parkinsons got worse my doctor suggested that I go on SS disability . I was up to 2 pills of L- Dopa every 2hours and not lasting as long . That's when I decided to look in clinical
Hidden
in
Cure Parkinson's
13 years ago
Has anyone else had this problem?
This is absolutely not psychogenic and 2. you have a form of Parkinson's disease or a form of
parkinsonism
. We just don't know which one yet." He increased my medicine but didn't put anything in the notes, that I could see anyway.
This is absolutely not psychogenic and 2. you have a form of Parkinson's disease or a form of
parkinsonism
. We just don't know which one yet." He increased my medicine but didn't put anything in the notes, that I could see anyway.
LauraDunn
in
Cure Parkinson's
13 years ago
Parkinson's and Quality of Life - a patient's perspective
Quality of life (QoL) for the individual with Parkinson’s disease relies heavily on the effectiveness of communication between patient and healthcare providers. It is only through a successful interaction between clinical expertise and patient experience together with lifestyle choice that the most appropriate
Quality of life (QoL) for the individual with Parkinson’s disease relies heavily on the effectiveness of communication between patient and healthcare providers. It is only through a successful interaction between clinical expertise and patient experience together with lifestyle choice that the most appropriate
CPT_Tom
in
Cure Parkinson's
13 years ago
Some need more help now...
To whom this may concern: I am writing this letter to send to the Parkinson’s Disease Foundations and other groups. Frankly, I am upset with all the Parkinson’s cruises and parties and other “fun” activities that are advertised. Granted, Parkinson’s foundations need fund raisers to raise cash to
To whom this may concern: I am writing this letter to send to the Parkinson’s Disease Foundations and other groups. Frankly, I am upset with all the Parkinson’s cruises and parties and other “fun” activities that are advertised. Granted, Parkinson’s foundations need fund raisers to raise cash to
1shakennotstirred
in
Cure Parkinson's
13 years ago
Fox Trial Finder - sign up for a webinar
Recruitment into Clinical Trials is one of the largest challenges in developing new therapies and, ultimately, a cure for Parkinson’s disease. Yet, over 80% of clinical trials fail to recruit enough participants. You have the ability to play a pivotal role in overcoming one of the largest challenges
Recruitment into Clinical Trials is one of the largest challenges in developing new therapies and, ultimately, a cure for Parkinson’s disease. Yet, over 80% of clinical trials fail to recruit enough participants. You have the ability to play a pivotal role in overcoming one of the largest challenges
CPT_Helen
Administrator
in
Cure Parkinson's
12 years ago
Is there a logical way to choose medication(s) other than trial and error?
I was diagnosed in October,2010. Since my Neurologist indicated that current meds treat symptoms,but do not slow progression of the disease, I opted, initially, to go without. After 4 months we tried C-dopa/L-dopa but found the resultant nausea outweighed any gain. Tried Pramipexole = alergic reaction
I was diagnosed in October,2010. Since my Neurologist indicated that current meds treat symptoms,but do not slow progression of the disease, I opted, initially, to go without. After 4 months we tried C-dopa/L-dopa but found the resultant nausea outweighed any gain. Tried Pramipexole = alergic reaction
ronn
in
Cure Parkinson's
12 years ago
My journey through PSP
Beginning in 2007 I was diagnosed as having Atypical
Parkinsonism
. At that time I fell backwards a few times. Then I was diagnosed in 2008 as having Progressive Supranuclear Palsy (PSP). I continued to fall backwards and realized I would have to protect my head and other parts of my body.
Beginning in 2007 I was diagnosed as having Atypical
Parkinsonism
. At that time I fell backwards a few times. Then I was diagnosed in 2008 as having Progressive Supranuclear Palsy (PSP). I continued to fall backwards and realized I would have to protect my head and other parts of my body.
IsraelZehavi
in
PSP Association
13 years ago
Help with rigidity and severe stiffness problems. Any advice?
My husband was diagnosed with PSP very early in 2008.At the moment we are having severe problems with upper body rigidity. Head and neck are very extended most of the time and getting him seated is like trying to sit a plank of wood.We are trying to alter some medication to see if that will help. Does
My husband was diagnosed with PSP very early in 2008.At the moment we are having severe problems with upper body rigidity. Head and neck are very extended most of the time and getting him seated is like trying to sit a plank of wood.We are trying to alter some medication to see if that will help. Does
HGE2844
in
PSP Association
13 years ago
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