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just checking in
Guys hope your all good not been on here much as not been great methotrexate lifted my liver count and so was stopped had to wait for funding for biologists which I’m now on but I haven’t had a great run as do an infection then catch something. Two steroid injections down and hoping all will be
Guys hope your all good not been on here much as not been great methotrexate lifted my liver count and so was stopped had to wait for funding for biologists which I’m now on but I haven’t had a great run as do an infection then catch something. Two steroid injections down and hoping all will be
Gottaloveastaffy
in
NRAS
1 year ago
More long Covid
Another article on long Covid. Nothing new, but still it's striking to see the similarities with B12 with neurological symptoms. Especially the problems with doctors. https://www.hcplive.com/view/no-one-left-behind-the-long-covid-crisis-2023
Another article on long Covid. Nothing new, but still it's striking to see the similarities with B12 with neurological symptoms. Especially the problems with doctors. https://www.hcplive.com/view/no-one-left-behind-the-long-covid-crisis-2023
WiscGuy
in
Pernicious Anaemia Society
1 year ago
GP failed to inform me of Chronic Hep C positive test result for 7 years?
I was diagnosed with Chronic Hep C in 2007 after my GP requested a blood test, as I was suffering with shortness of breath and severe anaemia symptoms. The results came back saying I had "chronic active hepatitis". Now, I would have thought that due to the severity and the fact it was a "Virus" that
I was diagnosed with Chronic Hep C in 2007 after my GP requested a blood test, as I was suffering with shortness of breath and severe anaemia symptoms. The results came back saying I had "chronic active hepatitis". Now, I would have thought that due to the severity and the fact it was a "Virus" that
tipovtong
in
British Liver Trust
1 year ago
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UTI & Kidney Infection - with endometriosis
Is anyone else experiencing a lot of recurring UTI/ Kidney infections with endometriosis? If so what supplements / dietary changes would you advise to help prevent them? I was diagnosed last June and have had two laparoscopies to treat severe endometriosis, ever since I’ve had these surgeries I have
Is anyone else experiencing a lot of recurring UTI/ Kidney infections with endometriosis? If so what supplements / dietary changes would you advise to help prevent them? I was diagnosed last June and have had two laparoscopies to treat severe endometriosis, ever since I’ve had these surgeries I have
Paininthebackside1
in
Endometriosis UK
1 year ago
Announcing the launch of the 2023 COVID-19 GRA Pediatric Survey
Please see below from the Patient Engagement Team at the GRA - please take a few moments to complete this important survey. You can find further information or ask questions through the website and email details below. Thank you. Dear Collaborators and Friends: The COVID-19 Global Rheumatology
Please see below from the Patient Engagement Team at the GRA - please take a few moments to complete this important survey. You can find further information or ask questions through the website and email details below. Thank you. Dear Collaborators and Friends: The COVID-19 Global Rheumatology
Alida_Bennett
LUPUS UK
in
LUPUS UK
1 year ago
oocyte activation
Evening all, hope you’re all well. We had our final planning consultation today for round 3, and we’ve decided to go ahead with oocyte activation following total fertilisation failure on our last icsi round. Has anyone got any success stories? Hopefully we’ll have more mature eggs/better quality
Evening all, hope you’re all well. We had our final planning consultation today for round 3, and we’ve decided to go ahead with oocyte activation following total fertilisation failure on our last icsi round. Has anyone got any success stories? Hopefully we’ll have more mature eggs/better quality
Elsidee11
in
Fertility Network UK
9 months ago
Was I wise
Currently on 3.5mg. Rheumatoid arthritis has shown itself in both hands and is very painful. GP said 'I could give you a steroid injection but I don't expect you want that'. I said not - the word 'steroid' frightened me as I am afraid it will be play havoc with the Pred. Was I right to reject his offer
Currently on 3.5mg. Rheumatoid arthritis has shown itself in both hands and is very painful. GP said 'I could give you a steroid injection but I don't expect you want that'. I said not - the word 'steroid' frightened me as I am afraid it will be play havoc with the Pred. Was I right to reject his offer
ChinaWuntoo
in
PMRGCAuk
1 year ago
Should I be worried? CT scan shows Splenomegaly since I got COVID.
OK, now I am scared! I had COVID-19 this past Dec.,I was in the hospital 5 days due to hypoxia. (post COVID) and a CT scan showed my Spleen is enlarged and
pressing on my left kidney
. My urine elimination has changed now and
I have to "push" it out by tightening my muscles
otherwise I
OK, now I am scared! I had COVID-19 this past Dec.,I was in the hospital 5 days due to hypoxia. (post COVID) and a CT scan showed my Spleen is enlarged and
pressing on my left kidney
. My urine elimination has changed now and
I have to "push" it out by tightening my muscles
otherwise I
RandyM
in
CLL Support
1 year ago
End of running
After completing 6 weeks of the program I had to permanently hang up my running shoes. I have a long standing issue with sacro-iliac pain which running has exacerbated. I am gutted because I love running but the pain and restricted mobility is debilitating so very reluctantly I am giving it up. I have
After completing 6 weeks of the program I had to permanently hang up my running shoes. I have a long standing issue with sacro-iliac pain which running has exacerbated. I am gutted because I love running but the pain and restricted mobility is debilitating so very reluctantly I am giving it up. I have
Dhiney
in
Couch to 5K
1 year ago
Bathroom problems after eating
I've had IBS- d now for a number of years.Its usually reasonably controlled. However for the past couple of weeks I'm finding I have a normal ish poo in the morning as soon as I wake. Then very soon after I eat lunch I have to rush to the loo with explosive diarrhoea. I have tried changing my breakfast
I've had IBS- d now for a number of years.Its usually reasonably controlled. However for the past couple of weeks I'm finding I have a normal ish poo in the morning as soon as I wake. Then very soon after I eat lunch I have to rush to the loo with explosive diarrhoea. I have tried changing my breakfast
cheche
in
IBS Network
2 years ago
covid thoughts
this has been a “messy” covid with me spluttering and coughing for the last two full days and nights. Gone through so many hankies but my oxygen is at 94% on waking and pulse at 72 so fundamentally not too bad. My pattern seems to be with covid that all my other niggles die down and I naively think
this has been a “messy” covid with me spluttering and coughing for the last two full days and nights. Gone through so many hankies but my oxygen is at 94% on waking and pulse at 72 so fundamentally not too bad. My pattern seems to be with covid that all my other niggles die down and I naively think
TheBoys
in
NRAS
1 year ago
Osteoarthritis in SI joints
Anyone found helpful treatment for OA in the SI joints? I exercise, stretch daily and have had steroid injections. Otc nasid's help a bit but I don't feel comfortable taking them daily.
Anyone found helpful treatment for OA in the SI joints? I exercise, stretch daily and have had steroid injections. Otc nasid's help a bit but I don't feel comfortable taking them daily.
Jeaniem130
in
Osteoarthritis Action
1 year ago
Research shows blood cancer patients generate strong T cell immunity after SARS-CoV-2 vaccination
Today, the Doherty Institute in Melbourne, Australia, released a statement about a research study that shows that
blood cancer patients highly benefit from COVID-19 vaccinations which boost their levels of T cells, irrespective of their B-cell numbers and antibody response
. It found that [i]"
Today, the Doherty Institute in Melbourne, Australia, released a statement about a research study that shows that
blood cancer patients highly benefit from COVID-19 vaccinations which boost their levels of T cells, irrespective of their B-cell numbers and antibody response
. It found that [i]"
CLLerinOz
Volunteer
in
CLL Support
1 year ago
Lung abscess
Good afternoon people Looking to see if anyone has encountered the same problem as me. Had a lower lobe lung abscess i spent 2 weeks in hospital on IV and 7 weeks on oral antibiotics feeling bad all the way through. Only seen the consultant once who said from a x-ray i believe it has gone. Paid for
Good afternoon people Looking to see if anyone has encountered the same problem as me. Had a lower lobe lung abscess i spent 2 weeks in hospital on IV and 7 weeks on oral antibiotics feeling bad all the way through. Only seen the consultant once who said from a x-ray i believe it has gone. Paid for
Sparkyq234
in
Lung Conditions Community Forum
1 year ago
Hot weather & getting nutrition right
Hi everyone hope you are doing well last July in the heatwave I became really ill & ended up in hospital. I had pneumonia but to me it felt very weird because I was very hot & the doctors said my heart rate is above 120 & I was given steroids & antibiotics. I was struggling to stay cool & also struggling
Hi everyone hope you are doing well last July in the heatwave I became really ill & ended up in hospital. I had pneumonia but to me it felt very weird because I was very hot & the doctors said my heart rate is above 120 & I was given steroids & antibiotics. I was struggling to stay cool & also struggling
Daffodil77
in
Lung Conditions Community Forum
1 year ago
aspergillosis
recently diagnosed with aspergillosis , a fungus, bacterial infection but have been struggling with pneumonia every few months for 2 years now. I would appreciate any information anyone has regarding this diagnosis, medications, treatments and outcomes.
recently diagnosed with aspergillosis , a fungus, bacterial infection but have been struggling with pneumonia every few months for 2 years now. I would appreciate any information anyone has regarding this diagnosis, medications, treatments and outcomes.
DonnaMc1968
in
Cure Parkinson's
1 year ago
5 weeks after foot surgery
Well 5 weeks ago I had surgery on both feet. A toe fusion on one foot & a an amputation of the toe end on the other foot. It’s not been easy but I’m getting there. The fusion was going to be a tendon release but continuing to a fusion if the release didn’t work. That’s ok it’s what we agreed but it
Well 5 weeks ago I had surgery on both feet. A toe fusion on one foot & a an amputation of the toe end on the other foot. It’s not been easy but I’m getting there. The fusion was going to be a tendon release but continuing to a fusion if the release didn’t work. That’s ok it’s what we agreed but it
Otto11
in
NRAS
1 year ago
Chicken Pox Exposure
I’m on 3.1 mg of Prednisolone for PMR. My son has just asked us to babysit our 18 month old granddaughter, who was vaccinated against Chicken Pox ( live vaccine) 4 days ago I’m not sure if I should babysit or not. Is there any risk involved in being close to a newly vaccinated baby and if so how
I’m on 3.1 mg of Prednisolone for PMR. My son has just asked us to babysit our 18 month old granddaughter, who was vaccinated against Chicken Pox ( live vaccine) 4 days ago I’m not sure if I should babysit or not. Is there any risk involved in being close to a newly vaccinated baby and if so how
Prahran
in
PMRGCAuk
1 year ago
Duloxetine
Hi all, I’ve been suffering with IBS-M for over 3 years now. As a result Anxiety has been exacerbated for around the same amount of time and led to mild agrophobia and severe GAD. I’ve been prescribed Duloxetine for the anxiety, and have also heard it can be beneficial for IBS suffers. However,
Hi all, I’ve been suffering with IBS-M for over 3 years now. As a result Anxiety has been exacerbated for around the same amount of time and led to mild agrophobia and severe GAD. I’ve been prescribed Duloxetine for the anxiety, and have also heard it can be beneficial for IBS suffers. However,
d0nutt
in
IBS Network
1 year ago
Valium RLS
Is anyone using Valium/diazepam or any other benzo to treat RLS? The Horizant that I’ve been using for the last year and a half isn’t working as well as it used to.
Is anyone using Valium/diazepam or any other benzo to treat RLS? The Horizant that I’ve been using for the last year and a half isn’t working as well as it used to.
tagaxel
in
Restless Legs Syndrome
1 year ago
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