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8 hour flight
I was diagnosed with ET with jak2 about 5 years ago, my platelets aren’t bad at all only 790 at last count, so am only on mini aspirin at present. Going on 8 hour flight soon, should I take any extra precautions? A colleague told me I should be taking fragmin as such a long flight! Does anyone have any
I was diagnosed with ET with jak2 about 5 years ago, my platelets aren’t bad at all only 790 at last count, so am only on mini aspirin at present. Going on 8 hour flight soon, should I take any extra precautions? A colleague told me I should be taking fragmin as such a long flight! Does anyone have any
Footballwidow66
in
MPN Voice
4 months ago
Dr. Bianco: video from Thyroid Foundation of Canada
from 9 months ago. Somehow it ended up in my youtube feed this morning. He makes the point that L-thyroxine doesn't always manage to result in good fT3 levels and patients need Liothyronine. https://www.youtube.com/watch?v=PGlYO_H4Gdc&t=2682s
from 9 months ago. Somehow it ended up in my youtube feed this morning. He makes the point that L-thyroxine doesn't always manage to result in good fT3 levels and patients need Liothyronine. https://www.youtube.com/watch?v=PGlYO_H4Gdc&t=2682s
gabkad
in
Thyroid UK
4 months ago
Running in circles
I will try and make this the short version. My husband has advanced prostate cancer 4+5=9 (Gleason 9). One year ago it metastasized to the T9. He had radiation to the spot. In the meantime, he has had severe pain in the neck area. after scans, they said it was from an injury. (he has never had an injury
I will try and make this the short version. My husband has advanced prostate cancer 4+5=9 (Gleason 9). One year ago it metastasized to the T9. He had radiation to the spot. In the meantime, he has had severe pain in the neck area. after scans, they said it was from an injury. (he has never had an injury
Granica4818
in
Advanced Prostate Cancer
7 months ago
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Chronic kidney disease
My recent GP-ordered blood tests have revealed chronic kidney disease. I have been told that an appointment will not be necessary. My creatine count is very high this time but B12 etc. are fine. Should I worry; everything online says this is serious.
My recent GP-ordered blood tests have revealed chronic kidney disease. I have been told that an appointment will not be necessary. My creatine count is very high this time but B12 etc. are fine. Should I worry; everything online says this is serious.
MaggieSylvie
in
MPN Voice
7 months ago
Severe Lung Scarring from Pneumonia
Hello, I have posted about my dad who is in his late 70s in ICU for severe pneumonia here before, but here is the current situation. At the moment, he is stable and he is close to weaning off sedation completely and starting ventilator weaning (trachy) soon. His ventilator setting is O2 35%, Saturation
Hello, I have posted about my dad who is in his late 70s in ICU for severe pneumonia here before, but here is the current situation. At the moment, he is stable and he is close to weaning off sedation completely and starting ventilator weaning (trachy) soon. His ventilator setting is O2 35%, Saturation
ForMyPapa
in
ICUsteps
7 months ago
24hr Holter
Hi, Recently started back on Bisoprolol for palpitations/PVCs after 7yrs off. I'm on low dose, 1.25mg but they've really calmed down what were pretty uncomfortable symptoms (3 A&E visits in one weekend!) Anyhow, have a holter monitor booked for next week and not sure whether to stop the Bisoprolol or
Hi, Recently started back on Bisoprolol for palpitations/PVCs after 7yrs off. I'm on low dose, 1.25mg but they've really calmed down what were pretty uncomfortable symptoms (3 A&E visits in one weekend!) Anyhow, have a holter monitor booked for next week and not sure whether to stop the Bisoprolol or
BillyBBalls
in
AF Association
4 months ago
Previous Heart attack/stent
2016 when my life changed. I look back now and see that my life in a wierd form changed for the better following my heart attack at the age of 55. Since having the stent placed I realised how restricted my body had been and the relief this procedure had given me. I attended rehabilitation classes for
2016 when my life changed. I look back now and see that my life in a wierd form changed for the better following my heart attack at the age of 55. Since having the stent placed I realised how restricted my body had been and the relief this procedure had given me. I attended rehabilitation classes for
Frazzelena
in
Sudden Cardiac Arrest & Heart Attack
4 months ago
serum lipids
Hello, I am waiting for my TSH, T4 + T3 results ordered by Endo but have received the serum lipid results today (test taken yesterday morning as per Thyroid UK’s protocol), which are as follows: 4.46 mmol/L Serum cholesterol 0.72 mmol/L Serum triglycerides 1.52 mmol/L Serum HDL cholesterol level
Hello, I am waiting for my TSH, T4 + T3 results ordered by Endo but have received the serum lipid results today (test taken yesterday morning as per Thyroid UK’s protocol), which are as follows: 4.46 mmol/L Serum cholesterol 0.72 mmol/L Serum triglycerides 1.52 mmol/L Serum HDL cholesterol level
Lottyplum
in
Thyroid UK
4 months ago
Reducing cholesterol
I’ve been told that because of the stricter diagnostic parameters the NHS now uses for assessing cholesterol levels in the blood, I have very slightly raised cholesterol. I’ve been told I can have statins, which I agreed to take, with much regret, because they are powerful drugs and I’m already taking
I’ve been told that because of the stricter diagnostic parameters the NHS now uses for assessing cholesterol levels in the blood, I have very slightly raised cholesterol. I’ve been told I can have statins, which I agreed to take, with much regret, because they are powerful drugs and I’m already taking
Tellingfibs
in
Atrial Fibrillation Support
4 months ago
Switching from Disopyramide to Bisoprolol - any advice?
Hi, I have been taking Disopyramide (Rhythmodan Retard 250mg) for AF, but have been unable to find any pharmacists with stock for a while now. So the Cardiac Nurse at my Doctor's Surgery has switched me to Bisoprolol. I am about to switch over from the last of my Disopyramide, and start with the Bisoprolol
Hi, I have been taking Disopyramide (Rhythmodan Retard 250mg) for AF, but have been unable to find any pharmacists with stock for a while now. So the Cardiac Nurse at my Doctor's Surgery has switched me to Bisoprolol. I am about to switch over from the last of my Disopyramide, and start with the Bisoprolol
DE-AF
in
AF Association
4 months ago
"First ever successful experimental stem cell therapy for Parkinson's Disease"
https://youtu.be/Cz_0T7A7xc4?si=X7X0UCasxigtSmPf "Oct 9, 2023 #parkinsonsdisease #stemcelltreatment #parkinson In this podcast, we discuss a new potential treatment for Parkinson's Disease has been developed by Bluerock Therapeutics that has completed and released results for the Phase 1 clinical
https://youtu.be/Cz_0T7A7xc4?si=X7X0UCasxigtSmPf "Oct 9, 2023 #parkinsonsdisease #stemcelltreatment #parkinson In this podcast, we discuss a new potential treatment for Parkinson's Disease has been developed by Bluerock Therapeutics that has completed and released results for the Phase 1 clinical
MBAnderson
in
Cure Parkinson's
7 months ago
New here
Hi everyone, I am new here. I have had rheumatoid arthritis for a long time but was diagnosed more recently with fibromyalgia as my consultant explained to me that a lot of my pain is not consistent with rheumatoid arthritis but is consistent with fibromyalgia as are other symptoms I have. The pain
Hi everyone, I am new here. I have had rheumatoid arthritis for a long time but was diagnosed more recently with fibromyalgia as my consultant explained to me that a lot of my pain is not consistent with rheumatoid arthritis but is consistent with fibromyalgia as are other symptoms I have. The pain
ma73jon
in
Fibromyalgia Action UK
9 months ago
Ureteral cytosis
Started Jevtana in August hoping for more moderate side effects and efficacy than I'd had with three prior rounds of Docetaxel. First Jevtana round was without carboplatin. Second Jevtana round had carboplatin included. Hematuria got a bit more severe and then two weeks into the three-week cycle, I
Started Jevtana in August hoping for more moderate side effects and efficacy than I'd had with three prior rounds of Docetaxel. First Jevtana round was without carboplatin. Second Jevtana round had carboplatin included. Hematuria got a bit more severe and then two weeks into the three-week cycle, I
CWT53
in
Advanced Prostate Cancer
7 months ago
Liver Disease
Hi there - I have just joined this group - my husband has cirrhosis of the liver - alcohol related - his recent visit to see his liver consultant was grim - basically if he continues to drink we have been told death is imminent - He still continues to drink :( but last week actually joined AA - until
Hi there - I have just joined this group - my husband has cirrhosis of the liver - alcohol related - his recent visit to see his liver consultant was grim - basically if he continues to drink we have been told death is imminent - He still continues to drink :( but last week actually joined AA - until
Uxori
in
British Liver Trust
7 months ago
Bisoprolol
The only problem I ve encountered is with the specific AF tablet dihydrochloride etc. I have never encountered a problem with 10mg Bisoprolol. I m on Entresto Digoxin spironolactone apixaban and a number of others.
The only problem I ve encountered is with the specific AF tablet dihydrochloride etc. I have never encountered a problem with 10mg Bisoprolol. I m on Entresto Digoxin spironolactone apixaban and a number of others.
NAC1
in
AF Association
4 months ago
Collapse then AF
Dad has mixed dementia and is 90 in May. He lives alone with my support. He has a history of collapse dating back to the 1990's but only three in all that time. He had a pacemaker in 2017 due to another collapse and found to have some heart block. A year later he had another and this is when we noticed
Dad has mixed dementia and is 90 in May. He lives alone with my support. He has a history of collapse dating back to the 1990's but only three in all that time. He had a pacemaker in 2017 due to another collapse and found to have some heart block. A year later he had another and this is when we noticed
ian16527
in
AF Association
4 months ago
Is it a choice? Pacemaker v Implanted defibrillator?
Hi, it's #chinkoflight here with an update. Things are moving on. I'm in coronary care, and the evidence for my fainting whilst running story has now shown an arrthymia at the time of the fall, effectively stopping my heart functioning, leading to the drop in blood pressure and the syncope event. It's
Hi, it's #chinkoflight here with an update. Things are moving on. I'm in coronary care, and the evidence for my fainting whilst running story has now shown an arrthymia at the time of the fall, effectively stopping my heart functioning, leading to the drop in blood pressure and the syncope event. It's
Chinkoflight
in
Atrial Fibrillation Support
4 months ago
Persistent AF
Hi everyone, I have been to see my cardiologist today. Had all the usual tests done he asked me how I was feeling I said I felt really well. He then told me I was no longer in Paroxysmal AF and I was in Persistent AF. How can they tell? I have got to have an echocardiogram done and a machine fitted
Hi everyone, I have been to see my cardiologist today. Had all the usual tests done he asked me how I was feeling I said I felt really well. He then told me I was no longer in Paroxysmal AF and I was in Persistent AF. How can they tell? I have got to have an echocardiogram done and a machine fitted
Gillybean123
in
AF Association
4 months ago
had 4 treatments of Pluvicto is not dropping PSA
My Husband has had 4 treatments of Pluvicto 6 weeks apart. The first treatment dropped my PSA by over 100 points; however, the 2nd, 3rd, and 4th PSA climbed rapidly. My question is, Should he continue the treatment if it is not working for him?? Thank you, Concerned wife.
My Husband has had 4 treatments of Pluvicto 6 weeks apart. The first treatment dropped my PSA by over 100 points; however, the 2nd, 3rd, and 4th PSA climbed rapidly. My question is, Should he continue the treatment if it is not working for him?? Thank you, Concerned wife.
Areyoukiddingme
in
Advanced Prostate Cancer
7 months ago
Great Medical Oncologist in Seattle?
Hi everyone - After a removed lymph node was found to have cancer in it after my prostatectomy, I’ve migrated myself over to this Advanced Prostate Cancer group. I keep joining these new clubs. I must be popular. Does anyone know of a great Medical Oncologist specializing in prostate cancer in the
Hi everyone - After a removed lymph node was found to have cancer in it after my prostatectomy, I’ve migrated myself over to this Advanced Prostate Cancer group. I keep joining these new clubs. I must be popular. Does anyone know of a great Medical Oncologist specializing in prostate cancer in the
MakeItRainbows
in
Advanced Prostate Cancer
7 months ago
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