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Husband turned down for ESA again
Advice needed Husband has been turned down again for ESA while recovering from liver transplant which he had in May They say he doesn't have enough national insurance contributions due to him being out of work for 3 years prior to his transplant. Any advice of what we do next?
Advice needed Husband has been turned down again for ESA while recovering from liver transplant which he had in May They say he doesn't have enough national insurance contributions due to him being out of work for 3 years prior to his transplant. Any advice of what we do next?
Adelou
in
British Liver Trust
6 years ago
Hi I'm new to this.... Double lung and heart transplant. Have never ran in my life so very much new to this.
My ambition has always been to run. I asked for three things if I woke up from my surgery.. A bacon sandwich ( was not allowed salt before my o), a bottle of champagne ( not allowed to drink) and a pair of running shoes!!! Did my first run on Wednesday and today I know it!! Going to do my second later
My ambition has always been to run. I asked for three things if I woke up from my surgery.. A bacon sandwich ( was not allowed salt before my o), a bottle of champagne ( not allowed to drink) and a pair of running shoes!!! Did my first run on Wednesday and today I know it!! Going to do my second later
Chilipower2018
in
Couch to 5K
6 years ago
Lost a super best friend
Hi folks, It is very comforting to read your stories of how to cope with liver disease. My friend retired from teaching less than a year ago and discovered she has a genetic liver disease ( as do four of her sisters - one had received a transplant one year ago). I can't believe how fast she went. Her
Hi folks, It is very comforting to read your stories of how to cope with liver disease. My friend retired from teaching less than a year ago and discovered she has a genetic liver disease ( as do four of her sisters - one had received a transplant one year ago). I can't believe how fast she went. Her
smockler
in
British Liver Trust
6 years ago
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Aggressive IGA neuropathy
Hi all, on April 13, 2018 my daughter was diagnosed with an aggressive form of IGA. I started the donor process and was was ruled out due to red blood cells and protein on my 24 hour urine collections; so I'm not a quick fix for her. 😢 I'm very interested in connecting with others with a similar
Hi all, on April 13, 2018 my daughter was diagnosed with an aggressive form of IGA. I started the donor process and was was ruled out due to red blood cells and protein on my 24 hour urine collections; so I'm not a quick fix for her. 😢 I'm very interested in connecting with others with a similar
Lbw62
in
Kidney Disease
6 years ago
Transplant Questions
New to this site. I have heard there is an average weight gain of 20 pounds after a kidney transplant. Is that true, and if so, do you ever lose it? Also, what are the common side effects of the medicines after transplant?
New to this site. I have heard there is an average weight gain of 20 pounds after a kidney transplant. Is that true, and if so, do you ever lose it? Also, what are the common side effects of the medicines after transplant?
Hdslimand62
in
Kidney Transplant
6 years ago
kasai procedure
Hi All, My 6 weeks daughter has done kasai procedure due to biliary atresia. Ultimately she has to go for liver transplant (sooner or later). Is there any place in world where lever can donate for small kids.
Hi All, My 6 weeks daughter has done kasai procedure due to biliary atresia. Ultimately she has to go for liver transplant (sooner or later). Is there any place in world where lever can donate for small kids.
kamranzaheer
in
Children's Liver Disease Foundation
6 years ago
Kidney transplant update
I am awaiting transplantation. I am not on the list yet but in the process. I have a gfr. Of 15.5 . I am lucky that I'm not on dialysis at the moment. I suffer from eplilpcy and I do weekly infusions called hizentra. I received my transplant from my mother 13 years ago June 2005. I was diagnosed with
I am awaiting transplantation. I am not on the list yet but in the process. I have a gfr. Of 15.5 . I am lucky that I'm not on dialysis at the moment. I suffer from eplilpcy and I do weekly infusions called hizentra. I received my transplant from my mother 13 years ago June 2005. I was diagnosed with
Kidney05love
in
Kidney Transplant
6 years ago
Kidney transplant update
I am awaiting transplantation. I am not on the list yet but in the process. I have a gfr. Of 15.5 . I am lucky that I'm not on dialysis at the moment. I suffer from eplilpcy and I do weekly infusions called hizentra. I received my transplant from my mother 13 years ago June 2005. I was diagnosed with
I am awaiting transplantation. I am not on the list yet but in the process. I have a gfr. Of 15.5 . I am lucky that I'm not on dialysis at the moment. I suffer from eplilpcy and I do weekly infusions called hizentra. I received my transplant from my mother 13 years ago June 2005. I was diagnosed with
Kidney05love
in
Kidney Transplant
6 years ago
Gum growth after kidney transplant
Hi, I had a kidney transplant over 2 years ago and recently my gums seem seem to be overtaking my teeth and are quite uncomfortable and bleeding. Is this down to taking prednisolone daily as a steroid?
Hi, I had a kidney transplant over 2 years ago and recently my gums seem seem to be overtaking my teeth and are quite uncomfortable and bleeding. Is this down to taking prednisolone daily as a steroid?
lsg99
in
Kidney Transplant Patient Support
6 years ago
Hi all
Hello. Just signed up because I’ve just found out my mum is going to need a liver transplant. Just looking for advice,support groups, general info on the issue, feel a bit in darkness with no knowledge of the situation. Many thanks.
Hello. Just signed up because I’ve just found out my mum is going to need a liver transplant. Just looking for advice,support groups, general info on the issue, feel a bit in darkness with no knowledge of the situation. Many thanks.
Naomi_1988
in
British Liver Trust
6 years ago
Worried been 17 years with my kidney transplant and my gfr 44
Hi everyone first off my name is Jennifer I'm 30 years old I receive my transplant at 13 years old from my dad been stable for a long time thank God but in this pass year I'm reach to stage 3 recently which for me a deal maybe some of u is not a big deal but I'm frightened that soon my kidney will give
Hi everyone first off my name is Jennifer I'm 30 years old I receive my transplant at 13 years old from my dad been stable for a long time thank God but in this pass year I'm reach to stage 3 recently which for me a deal maybe some of u is not a big deal but I'm frightened that soon my kidney will give
jennifer24
in
Kidney Transplant
6 years ago
How to talk about transplants...
Hi, I'm 24 and suffering from stage 5 kidney failure as a side effect of the autoimmune disease scleroderma. Transplantation has been brought up with me a few times over the past year and it's becoming a serious option for me. Because of my main health problem a kidney transplant is even more risky than
Hi, I'm 24 and suffering from stage 5 kidney failure as a side effect of the autoimmune disease scleroderma. Transplantation has been brought up with me a few times over the past year and it's becoming a serious option for me. Because of my main health problem a kidney transplant is even more risky than
Redoralive
in
Kidney Transplant
6 years ago
How to talk about transplants...
Hi, I'm 24 and suffering from stage 5 kidney failure as a side effect of the autoimmune disease scleroderma. Transplantation has been brought up with me a few times over the past year and it's becoming a serious option for me. Because of my main health problem a kidney transplant is even more risky than
Hi, I'm 24 and suffering from stage 5 kidney failure as a side effect of the autoimmune disease scleroderma. Transplantation has been brought up with me a few times over the past year and it's becoming a serious option for me. Because of my main health problem a kidney transplant is even more risky than
Redoralive
in
Kidney Transplant
6 years ago
NIVI Mask and Facial Sores
Hi there, for the last 2 weeks I have now at night got to go on a NIVI machine for around 7 hours. I have been put on this as my C02 is very high while i awaite a lung transplant. I am getting use to it now although in the morning when i take it off i am sometimes left with red chaffing around the
Hi there, for the last 2 weeks I have now at night got to go on a NIVI machine for around 7 hours. I have been put on this as my C02 is very high while i awaite a lung transplant. I am getting use to it now although in the morning when i take it off i am sometimes left with red chaffing around the
Joseph260268
in
Lung Conditions Community Forum
6 years ago
ESLD?
Hi all. I'm looking for some advice.. I'm quite unwell at the moment with pain right side, nausea, no appetite, memory loss etc. Feel very depressed.no energy. Horrible taste in mouth.I had fatty liver about 5 years ago but no other symptoms then. I'm really scared now as I feel I'm so poorly ( not
Hi all. I'm looking for some advice.. I'm quite unwell at the moment with pain right side, nausea, no appetite, memory loss etc. Feel very depressed.no energy. Horrible taste in mouth.I had fatty liver about 5 years ago but no other symptoms then. I'm really scared now as I feel I'm so poorly ( not
ktan49
in
Endometriosis UK
6 years ago
Transplant patient
Hello guys . I am a liver transplant patient for 20 year. I would like do find someone that is a transplant patient and be pregnant . I am almost 24 year old and with my boyfriend will like to have one kid in 2-3 years . So if someone know any information or have experience like that
Hello guys . I am a liver transplant patient for 20 year. I would like do find someone that is a transplant patient and be pregnant . I am almost 24 year old and with my boyfriend will like to have one kid in 2-3 years . So if someone know any information or have experience like that
rc_rafaela
in
British Liver Trust
6 years ago
Kidney Transplant 35 yrs Dec 2018
I’ve been taking Aza my whole transplant life. I currently have a 15cm cyst on my liver. Does anyone know what I may be facing at this stage of my journey? Any stories or advice anyone could share, words of encouragement if any would be delightful.
I’ve been taking Aza my whole transplant life. I currently have a 15cm cyst on my liver. Does anyone know what I may be facing at this stage of my journey? Any stories or advice anyone could share, words of encouragement if any would be delightful.
Andysue
in
British Liver Trust
6 years ago
Trouble adjusting.
After having a renal transplant 23 years ago my precious kidney has stopped working. I now find my self back on dialysis. I thought medical science would have made progress in 23 years. It still breaks down to you and that ungodly machine. Don't get me wrong I am happy to have this lifesaving option
After having a renal transplant 23 years ago my precious kidney has stopped working. I now find my self back on dialysis. I thought medical science would have made progress in 23 years. It still breaks down to you and that ungodly machine. Don't get me wrong I am happy to have this lifesaving option
Pinktulips24
in
Kidney Disease
6 years ago
My 41-y-o son with Primary Liver Cancer in Ontario, Canada
My son Stephen is about to have TACE treatment shortly. He is currently on the Liver Transplant List. He had a resection about 18 months ago but the cancer returned. Can you please share your story since we do not know what to expect. Thank you.
My son Stephen is about to have TACE treatment shortly. He is currently on the Liver Transplant List. He had a resection about 18 months ago but the cancer returned. Can you please share your story since we do not know what to expect. Thank you.
Evemarie
in
British Liver Trust
6 years ago
Questions about Protein and Supplements for weight training after transplant
Hi, I'm new on this site and had a general question for those who are athletic and have had a kidney
transplant
. I have had a very successful kidney and
pancreas
cadaver
transplant
for about 9 years now. I am becoming more active and spending more time in the gym.
Hi, I'm new on this site and had a general question for those who are athletic and have had a kidney
transplant
. I have had a very successful kidney and
pancreas
cadaver
transplant
for about 9 years now. I am becoming more active and spending more time in the gym.
ShutterGhost
in
Kidney Transplant
6 years ago
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