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First Stem Cell Transplant Appointment done
Thanks to everyone who replied to my first post on this. My husband and I stayed over in Southampton and we got home today. To my great relief, the consultant was extremely approachable and excellent at explaining things. I didn't ask all of my questions as these initial discussions are being done over
Thanks to everyone who replied to my first post on this. My husband and I stayed over in Southampton and we got home today. To my great relief, the consultant was extremely approachable and excellent at explaining things. I didn't ask all of my questions as these initial discussions are being done over
Otterfield
in
MPN Voice
3 years ago
Study shows low or undetectable immune response to double COVID-19 vaccination in patients with impaired immune systems
The first data from the ongoing OCTAVE (Observational Cohort Trial-T-cells Antibodies and Vaccine Efficacy in SARS-CoV-2) study show that a significant proportion of clinically at-risk patients with certain immunocompromised or immunosuppressed conditions mount a low or undetectable immune response after
The first data from the ongoing OCTAVE (Observational Cohort Trial-T-cells Antibodies and Vaccine Efficacy in SARS-CoV-2) study show that a significant proportion of clinically at-risk patients with certain immunocompromised or immunosuppressed conditions mount a low or undetectable immune response after
2greys
in
Lung Conditions Community Forum
3 years ago
Fed up and don't know we're to turn
Hello everyone! I have not been on here for such a very long time, I was diagnosed with NAFLD in November 2017, it quickly progressed to cirrhosis within a year, My consultant did not openly tell me I just thought I had a fatty liver with slight scarring and diet change ect was the way forward I later
Hello everyone! I have not been on here for such a very long time, I was diagnosed with NAFLD in November 2017, it quickly progressed to cirrhosis within a year, My consultant did not openly tell me I just thought I had a fatty liver with slight scarring and diet change ect was the way forward I later
Brightstar15
in
British Liver Trust
3 years ago
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First Appointment re Stem Cell Transplant
This week I have my first appointment with a stem cell transplant specialist. I haven't made up my mind yet and I'm seeing this as a fact finding appointment. I've made a list of questions to ask: What exactly does it involve, step by step? What can go wrong? And if something goes wrong, what is the
This week I have my first appointment with a stem cell transplant specialist. I haven't made up my mind yet and I'm seeing this as a fact finding appointment. I've made a list of questions to ask: What exactly does it involve, step by step? What can go wrong? And if something goes wrong, what is the
Otterfield
in
MPN Voice
3 years ago
Neck Rigidity relief??
Hi All, I’m hoping someone might me able to help. My dad was diagnosed with PSP in March this year, he has lots of other health issues (diabetes, kidney transplant, neuropathy, heart issues) He’s suffered for a long time and we think his other health issues have masked the PSP He’s suffering really
Hi All, I’m hoping someone might me able to help. My dad was diagnosed with PSP in March this year, he has lots of other health issues (diabetes, kidney transplant, neuropathy, heart issues) He’s suffered for a long time and we think his other health issues have masked the PSP He’s suffering really
HipsterChick
in
PSP Association
3 years ago
My PBC Journey
GI watched enzymes for 5 years 2015-2020. No symptoms except GI sent me to Ohio State in Dec of 2019 to make sure she wasn’t missing anything . Ordered MRI of liver—-best test to slice and dice liver. Found two spots of cancer on top ridge of liver and did a Microwave ablation to kill it. Successful
GI watched enzymes for 5 years 2015-2020. No symptoms except GI sent me to Ohio State in Dec of 2019 to make sure she wasn’t missing anything . Ordered MRI of liver—-best test to slice and dice liver. Found two spots of cancer on top ridge of liver and did a Microwave ablation to kill it. Successful
Miamomma
in
PBC Foundation
3 years ago
How are you living life with spouses both Vaccinated against Covid but one has a kidney transplant and one is healthy?
I cannot find direct information on this question where I am healthy and vaccinated against Covid19 and my spouse is vaccinated and has a kidney transplant but cannot make antibodies due to being on Cellcept antirejection med mainly. Do I live my life "normal" and he is living restricted like before
I cannot find direct information on this question where I am healthy and vaccinated against Covid19 and my spouse is vaccinated and has a kidney transplant but cannot make antibodies due to being on Cellcept antirejection med mainly. Do I live my life "normal" and he is living restricted like before
Gardner-NY
in
Kidney Transplant
3 years ago
Exciting News!
I got a call from the transplant center I wiling with. An altruistic donor had stepped forward, and I am a match! If things go as planned, I will receive a kidney transplant on July 13th Still a bit overwhelmed by the news.
I got a call from the transplant center I wiling with. An altruistic donor had stepped forward, and I am a match! If things go as planned, I will receive a kidney transplant on July 13th Still a bit overwhelmed by the news.
ILMA54
in
Kidney Transplant
3 years ago
3rd dose vaccine
Just came across an interesting article stating the benefits of a 3rd vaccine shot given to organ transplant recipients . https://www.acpjournals.org/doi/10.7326/L21-0282 In my limited understanding of the conclusions, it seemed to have resulted in a significant increase in antibody titers. Does anyone
Just came across an interesting article stating the benefits of a 3rd vaccine shot given to organ transplant recipients . https://www.acpjournals.org/doi/10.7326/L21-0282 In my limited understanding of the conclusions, it seemed to have resulted in a significant increase in antibody titers. Does anyone
Monetfan2017
in
CLL Support
3 years ago
Liver transplant
Hi my dad is 67 and a diabetic he was diagnosed with liver disease in April of this year and is in the process of scan after scan. He has passed the heart and lung/ fitness tests. The consultant suspects cancer in the liver bile duct but spy glass test broke on the last try so inconclusive. They have
Hi my dad is 67 and a diabetic he was diagnosed with liver disease in April of this year and is in the process of scan after scan. He has passed the heart and lung/ fitness tests. The consultant suspects cancer in the liver bile duct but spy glass test broke on the last try so inconclusive. They have
Audi123
in
British Liver Trust
3 years ago
A third dose of COVID-19 vaccine increased antibody levels in organ transplant recipients
The antibody response after 2 doses of an mRNA vaccine against SARS-CoV-2 is excellent in the general population, but the response is different in recipients of solid organ transplants. For example, we have found markedly attenuated antibody responses in transplant recipients after 2 doses of an mRNA
The antibody response after 2 doses of an mRNA vaccine against SARS-CoV-2 is excellent in the general population, but the response is different in recipients of solid organ transplants. For example, we have found markedly attenuated antibody responses in transplant recipients after 2 doses of an mRNA
2greys
in
Lung Conditions Community Forum
3 years ago
Nanoparticle therapy shows promise at preventing fatal newborn lung disease
The disease is so rare and complex that its acronym is hard to pronounce. But for infants unlucky enough to be born with this lung disease, the outcome is usually fatal. The disease is called alveolar capillary dysplasia with misalignment of the pulmonary veins (ACDMPV). Research indicates the disease
The disease is so rare and complex that its acronym is hard to pronounce. But for infants unlucky enough to be born with this lung disease, the outcome is usually fatal. The disease is called alveolar capillary dysplasia with misalignment of the pulmonary veins (ACDMPV). Research indicates the disease
2greys
in
Lung Conditions Community Forum
3 years ago
Three and a half years with Mantle cell lymphoma
I got diagnosed with Mantle Cell Lymphoma in March 2018 when I was 61. As it had already spread from my lymph nodes to multiple organs I was immediately admitted to hospital and began six rounds of Nordic protocol chemotherapy, followed by a stem cell bone marrow transplant. After my transplant I had
I got diagnosed with Mantle Cell Lymphoma in March 2018 when I was 61. As it had already spread from my lymph nodes to multiple organs I was immediately admitted to hospital and began six rounds of Nordic protocol chemotherapy, followed by a stem cell bone marrow transplant. After my transplant I had
GT97
in
CLL Support
3 years ago
More on Covid vaccines and the inmunocompromised.
Just saw this in the news and felt it was worth sharing. Lots of peopleScientists seek Covid protection boost for people with weakened immunity AFP, Jul 06, 2021, How effective are Covid vaccines if your immune system is compromised by HIV, cancer or a recent organ transplant? Faced with very little
Just saw this in the news and felt it was worth sharing. Lots of peopleScientists seek Covid protection boost for people with weakened immunity AFP, Jul 06, 2021, How effective are Covid vaccines if your immune system is compromised by HIV, cancer or a recent organ transplant? Faced with very little
Iupiter
in
CLL Support
3 years ago
Online support group with meetings for kids with kidney transplant?
Hi, My best friend's daughter had a kidney transplant about a year ago and sometimes she really struggles living with all the hard things that they still face. Does anyone attend (or be interested in creating) some kind of virtual meeting for parents with similar situations? She is a mom of two young
Hi, My best friend's daughter had a kidney transplant about a year ago and sometimes she really struggles living with all the hard things that they still face. Does anyone attend (or be interested in creating) some kind of virtual meeting for parents with similar situations? She is a mom of two young
jsalute
in
Parents of Children with Kidney Disease
3 years ago
kiddny transplant patient
Hello guys , I had a kidney transplant for 8 months and now I have a lot of hair loss. if someone experienc with this issue how to stop hair fall ?
Hello guys , I had a kidney transplant for 8 months and now I have a lot of hair loss. if someone experienc with this issue how to stop hair fall ?
omid13
in
Kidney Transplant
3 years ago
Impending surgery concerns
Impending knee replacement and worried about impact anesthesia and post surgery pain killers could have on already level 3 liver disease. Has anyone undergone orthopedic surgery and how did it go? What I don’t want to happen is to get a new knee and then need liver transplant because of meds.
Impending knee replacement and worried about impact anesthesia and post surgery pain killers could have on already level 3 liver disease. Has anyone undergone orthopedic surgery and how did it go? What I don’t want to happen is to get a new knee and then need liver transplant because of meds.
Rosebud1027
in
Living with Fatty Liver and NASH
3 years ago
Online support group meetings for parents of children with kidney transplants?
Hi, My name is Jessica and my best friend has a 4 year old daughter with kidney disease and she just got a transplant a little over a year ago. My friend really struggles to cope with the pain of seeing all that her daughter goes through and the things she has to miss out on because of her health. Can
Hi, My name is Jessica and my best friend has a 4 year old daughter with kidney disease and she just got a transplant a little over a year ago. My friend really struggles to cope with the pain of seeing all that her daughter goes through and the things she has to miss out on because of her health. Can
jsalute
in
Kidney Transplant
3 years ago
Liver transplant
Hi everyone. I had a phone call early morning today for liver transplant, I’m going now but so worried and terrified.
Hi everyone. I had a phone call early morning today for liver transplant, I’m going now but so worried and terrified.
Rose2000
in
British Liver Trust
3 years ago
Liver Transplant assessment? any experience.. Fluid in pleural cavity ? Blood clot ?
Hello everyone, so my dad is in the middle of Liver Transplant assessment. So confusing. A social worker asked me if i was willing to stay with my dad to help recovery and I said yes, I will rent an apartment by the hospital and stay with him for the first month or so of recovery and then hire home
Hello everyone, so my dad is in the middle of Liver Transplant assessment. So confusing. A social worker asked me if i was willing to stay with my dad to help recovery and I said yes, I will rent an apartment by the hospital and stay with him for the first month or so of recovery and then hire home
alcoholicFATHERsad
in
British Liver Trust
3 years ago
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