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Ostomy belt
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Scan results for ovarian cancer stage 3
Hi again. Just had my scan done a d doctors says some shrinkage in tumour in ovary.the said tge could operate and i would have a stoma bag put in. Disease stable in diaphragm? The operation scares me i dont know what to do.after op i will have 2 more chemo Will they take all out ovaries womb tubes and
Hi again. Just had my scan done a d doctors says some shrinkage in tumour in ovary.the said tge could operate and i would have a stoma bag put in. Disease stable in diaphragm? The operation scares me i dont know what to do.after op i will have 2 more chemo Will they take all out ovaries womb tubes and
Anamcara63
in
My Ovacome
4 years ago
Clear cell cancer - surgery only?
Hi everyone. I am new here. Would be grateful to hear anyone who has had surgery only for clear cell ovarian cancer. I had surgery in March and was diagnosed stage 3B, but oncologist advised chemo not proven to be effective and with added issues with COVID I opted not to have chemo. Unfortunately recurred
Hi everyone. I am new here. Would be grateful to hear anyone who has had surgery only for clear cell ovarian cancer. I had surgery in March and was diagnosed stage 3B, but oncologist advised chemo not proven to be effective and with added issues with COVID I opted not to have chemo. Unfortunately recurred
Belladrum
in
SHARE Ovarian Cancer Support
4 years ago
IBS - really diverticulitis?
I used to have IBS - for around 13 years - then had perforated bowel and stoma fitted 6 months ish ago - this was sudden and life threatening -for those with these kinds of issues for years advice from me would be to get a ct scan to find out if you have diverticulitis - that's what must have caused
I used to have IBS - for around 13 years - then had perforated bowel and stoma fitted 6 months ish ago - this was sudden and life threatening -for those with these kinds of issues for years advice from me would be to get a ct scan to find out if you have diverticulitis - that's what must have caused
cristinita
in
IBS Network
4 years ago
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Virtual support events from Ovacome this week
Hello This is to let you know about the online events on our programme this week. Gentle Home Exercise Class with Cancer Exercise Specialist Lizzy Davis - Tuesday 18 August 2-2.45pm https://www.ovacome.org.uk/Event/gentle-home-exercise-class Stoma Group - Wednesday 19 August 11am-12pm https
Hello This is to let you know about the online events on our programme this week. Gentle Home Exercise Class with Cancer Exercise Specialist Lizzy Davis - Tuesday 18 August 2-2.45pm https://www.ovacome.org.uk/Event/gentle-home-exercise-class Stoma Group - Wednesday 19 August 11am-12pm https
OvacomeSupport
Administrator
in
My Ovacome
4 years ago
How to cope?
My symptoms began truly way back at 8 year old, my first period landed me in hospital. I suffered massive traumas, abuses at the hands of several pervert men, abuses from parents, bullied etc... how i made it this far is beyond me. Edit: These abuses were in childhood and are for context that i suffered
My symptoms began truly way back at 8 year old, my first period landed me in hospital. I suffered massive traumas, abuses at the hands of several pervert men, abuses from parents, bullied etc... how i made it this far is beyond me. Edit: These abuses were in childhood and are for context that i suffered
Hidden
in
Endometriosis UK
4 years ago
No stoma
Hi. First of all I hope you are all feeling well and positive. And to thank you all for the reassurance re the possible stoma. I had my debulking op on Tuesday pm and it all went well and no stoma after so much energy wasting in worrying about it!! Dr trying go get me out today if time allows and if
Hi. First of all I hope you are all feeling well and positive. And to thank you all for the reassurance re the possible stoma. I had my debulking op on Tuesday pm and it all went well and no stoma after so much energy wasting in worrying about it!! Dr trying go get me out today if time allows and if
LesleyGB
in
My Ovacome
4 years ago
Terrible letter, good result.!!!
Hi, for those of you who supported me with sound advice (thanks so much) l thought l would share with you the outcome of my abnormal routine bowel screening. l finally had a phone call to have a Colonoscopy but l did not want any invasive procedure if it wasn't needed so l asked for a CT of the bowel
Hi, for those of you who supported me with sound advice (thanks so much) l thought l would share with you the outcome of my abnormal routine bowel screening. l finally had a phone call to have a Colonoscopy but l did not want any invasive procedure if it wasn't needed so l asked for a CT of the bowel
kefalonia1
in
British Heart Foundation
4 years ago
Is laparoscopy worth it if I'm not in severe pain? (Severe endo)
2 years ago now I started getting mild pains and UTI symptoms. After multiple dipstick tests (that showed no UTI) I was referred to gynae, then an ultrasound (2 cysts and adhesions), then an MRI (severe endo all over the bowel, ovaries and bladder). I've been put on Triptorelin shots to prepare for the
2 years ago now I started getting mild pains and UTI symptoms. After multiple dipstick tests (that showed no UTI) I was referred to gynae, then an ultrasound (2 cysts and adhesions), then an MRI (severe endo all over the bowel, ovaries and bladder). I've been put on Triptorelin shots to prepare for the
slopp
in
Endometriosis UK
4 years ago
Here we go again!
I managed to get the first flight home from Portugal on 1st July. Since then I’ve been having all sorts of problems with my tummy. I have a stoma and it’s been unpredictable and painful. My CA125 has gone from 30 during chemo to 70 after chemo (prescribed Leterazole) and is now in the 100s. Obviously
I managed to get the first flight home from Portugal on 1st July. Since then I’ve been having all sorts of problems with my tummy. I have a stoma and it’s been unpredictable and painful. My CA125 has gone from 30 during chemo to 70 after chemo (prescribed Leterazole) and is now in the 100s. Obviously
Lockygill
in
My Ovacome
4 years ago
What products help you most with your PRD symptoms?
Hi, I volunteer for PRDA as a fundraiser, and I am keen to get businesses to donate to PRDA, especially those that supply products that people with Pelvic Radiation Disease find particularly useful. Please could you reply with any information about your medication, medical products (such as continence
Hi, I volunteer for PRDA as a fundraiser, and I am keen to get businesses to donate to PRDA, especially those that supply products that people with Pelvic Radiation Disease find particularly useful. Please could you reply with any information about your medication, medical products (such as continence
PurpleIris47
Community Pioneer
in
Pelvic Radiation Disease Association
4 years ago
Diet with a colostomy
Hi everybody I was interested to see if anybody had any idea of how to eat a controlled diet with a stoma. [Edited by moderator] Greens I’m unable to eat with my stoma but I’m thinking maybe I could make a smoothie of some sort to help? Does anybody have any other advice of what I may be able to eat
Hi everybody I was interested to see if anybody had any idea of how to eat a controlled diet with a stoma. [Edited by moderator] Greens I’m unable to eat with my stoma but I’m thinking maybe I could make a smoothie of some sort to help? Does anybody have any other advice of what I may be able to eat
Emma-Jane87
in
My Ovacome
4 years ago
Bowel blockage
Hello ladies, I'm so scared right now, my mum is having a reoccurance after 6 years in remission, she has been quite unwell since March, this last month her ca125 shot up to 600, she has been hardly able to eat, she has constant bowel problems which have finally reached to her being admitted to hospital
Hello ladies, I'm so scared right now, my mum is having a reoccurance after 6 years in remission, she has been quite unwell since March, this last month her ca125 shot up to 600, she has been hardly able to eat, she has constant bowel problems which have finally reached to her being admitted to hospital
Holdingontohope
in
My Ovacome
4 years ago
Possible Stoma - help!
Hi everyone! I hope you are all well and enjoying this amazing weather. I was diagnosed with stage IIIC ovarian cancer at the end of Feb and, after having three chemos, my CA125 is 22 and I am scheduled for an op in around two weeks. However, despite being told that my response to chemo is very good
Hi everyone! I hope you are all well and enjoying this amazing weather. I was diagnosed with stage IIIC ovarian cancer at the end of Feb and, after having three chemos, my CA125 is 22 and I am scheduled for an op in around two weeks. However, despite being told that my response to chemo is very good
LesleyGB
in
My Ovacome
4 years ago
Bag lady
Thank you for all you wonderful comments and support on my last post, they help so much. Unfortunately things have taken a turn for the worse, hubby took me to A & E Monday morning was in agony stomach pain. Turns out bowel obstruction which I thought it could have been. So major op yest and now have
Thank you for all you wonderful comments and support on my last post, they help so much. Unfortunately things have taken a turn for the worse, hubby took me to A & E Monday morning was in agony stomach pain. Turns out bowel obstruction which I thought it could have been. So major op yest and now have
Samjane
in
My Ovacome
4 years ago
Newbie bowel / lung cancer
Hi all I’m a newbie ,..I’m 51 years old and got diagnosed with stage 4 blwel / lung cancer ...I have 5 kids ,4 my youngest are all autistic and my husband passed away very suddenly 3 years ago so I’m all they have ( both sets of grandparents passed ) my fear is who’s going to take care of them when I
Hi all I’m a newbie ,..I’m 51 years old and got diagnosed with stage 4 blwel / lung cancer ...I have 5 kids ,4 my youngest are all autistic and my husband passed away very suddenly 3 years ago so I’m all they have ( both sets of grandparents passed ) my fear is who’s going to take care of them when I
Sannyboop
in
The Roy Castle Lung Cancer Foundation
4 years ago
Colostomy due to Ovarian Cancer
Has anyone had to get an ostomy because of a tumor? If so how long did you have it? Was it permanent or reversed? Are you done with treatment?
Has anyone had to get an ostomy because of a tumor? If so how long did you have it? Was it permanent or reversed? Are you done with treatment?
Apwulady
in
SHARE Ovarian Cancer Support
4 years ago
Reoccurance
Good evening ladies, I have not posted for years, why, firstly I joined this forum when my mum got diagnosed stage 3 C ovarian, 2 huge tumours and spots on the bowel, chemo etc, big op, I can't remember the exact details because it had become almost a distant memory for me, my mum has had 6 wonderful
Good evening ladies, I have not posted for years, why, firstly I joined this forum when my mum got diagnosed stage 3 C ovarian, 2 huge tumours and spots on the bowel, chemo etc, big op, I can't remember the exact details because it had become almost a distant memory for me, my mum has had 6 wonderful
Holdingontohope
in
My Ovacome
4 years ago
Heartbroken
My husband is scheduled for a Colostomy on 5-08-2020. He said he is scared, I am crying because my husband is not scared of anything. He went through Chemo and Radiation treatments at the same time in 2014. He been in remission for five years but his cancer left a terrible wound that won't heal. They
My husband is scheduled for a Colostomy on 5-08-2020. He said he is scared, I am crying because my husband is not scared of anything. He went through Chemo and Radiation treatments at the same time in 2014. He been in remission for five years but his cancer left a terrible wound that won't heal. They
Pollymae
in
Living with a Stoma
4 years ago
What should I do?
I have a stoma from what was thought to be a permanent tracheostomy which I decanulated after 7 years. Does this increase my chance for infection what can I do to prevent that
I have a stoma from what was thought to be a permanent tracheostomy which I decanulated after 7 years. Does this increase my chance for infection what can I do to prevent that
Dubbstix
in
ICUsteps
4 years ago
Advice and help please
Hi I was diagnosed 2 years ago with clear cell ovarian cancer and had 6 rounds of carbo taxol after a hysterectomy.I went to UCLH in london who discovered I did not have clear cell in March 2019 but germ cell yolk sac. I then needed more surgery and they found a new lesion that tested positive. Because
Hi I was diagnosed 2 years ago with clear cell ovarian cancer and had 6 rounds of carbo taxol after a hysterectomy.I went to UCLH in london who discovered I did not have clear cell in March 2019 but germ cell yolk sac. I then needed more surgery and they found a new lesion that tested positive. Because
NIKKibailie
in
My Ovacome
4 years ago
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