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Hi everyone
Just come onto this forum, I am on week 7 and run 3 tomorrow. Really loving this C25K app, never thought of myself as being able to run before, but here I am at 56years old and 5 years post a liver transplant for an autoimmune disease “vaguely” enjoying running 🤣 Who knew it could be fun? Enjoying reading
Just come onto this forum, I am on week 7 and run 3 tomorrow. Really loving this C25K app, never thought of myself as being able to run before, but here I am at 56years old and 5 years post a liver transplant for an autoimmune disease “vaguely” enjoying running 🤣 Who knew it could be fun? Enjoying reading
busylady
Graduate
in
Couch to 5K
6 years ago
Hidden C Test Results
Well ladies, I apologise for my absence but life has just been so hectic at present and inbetween that I’ve just tried to forget about all fertility issues really which has been a blessing in so many ways! Looks like I’ve missed so many updates, so congrats to all ladies I know who have had BFP and good
Well ladies, I apologise for my absence but life has just been so hectic at present and inbetween that I’ve just tried to forget about all fertility issues really which has been a blessing in so many ways! Looks like I’ve missed so many updates, so congrats to all ladies I know who have had BFP and good
baby2016
in
Fertility Network UK
6 years ago
Para Aortic LN Surgery Update & Question
Thought it was time I should give update on my surgery since I had great support and advice from everyone on this site when I posted in May 2018 when I had first recurrence in para aortic lymph node. Turns out surgery was not possible laparoscopically - the tumour was in a pretty dangerous spot - right
Thought it was time I should give update on my surgery since I had great support and advice from everyone on this site when I posted in May 2018 when I had first recurrence in para aortic lymph node. Turns out surgery was not possible laparoscopically - the tumour was in a pretty dangerous spot - right
ruthg55
in
My Ovacome
6 years ago
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Seeking liver transplant recipients or compensated liver patients in the Houston area to help with a research study
Most of you know that we are sponsoring a clinical trial to study screening for liver disease using Fibroscan before symptoms develop. The pilot study is planned to start in Houston October 1st. I'm looking for transplant patients or compensated cirrhosis patients who would like to help with the Houston
Most of you know that we are sponsoring a clinical trial to study screening for liver disease using Fibroscan before symptoms develop. The pilot study is planned to start in Houston October 1st. I'm looking for transplant patients or compensated cirrhosis patients who would like to help with the Houston
nash2
Partner
in
Living with Fatty Liver and NASH
6 years ago
National organ donation week
Well it's national organ donation week and I have had the opportunity to be a recipient of a single lung transplant in November 2016. I'm doing great!! And all because a very kind family agreed for their loved one to donate their organs. I'm eternally grateful for the second chance at life with my daughter
Well it's national organ donation week and I have had the opportunity to be a recipient of a single lung transplant in November 2016. I'm doing great!! And all because a very kind family agreed for their loved one to donate their organs. I'm eternally grateful for the second chance at life with my daughter
Hidden
in
Lung Conditions Community Forum
6 years ago
Hi Guys
Sorry for not being in touch but I have been going through a hard time with my RA all the way through my Double Lung Transplant. my Consultant is going to recommend a treatment to my transplant team it's called Rubitax or something similar if anyone has heard of this please send the correct spelling
Sorry for not being in touch but I have been going through a hard time with my RA all the way through my Double Lung Transplant. my Consultant is going to recommend a treatment to my transplant team it's called Rubitax or something similar if anyone has heard of this please send the correct spelling
mattcass
in
NRAS
6 years ago
Sleep and depression problems
Has anyone had side effects of sleep and depression from kidney transplant? Still working on depression/sleep, trying various prescription drugs the process takes a long time...
Has anyone had side effects of sleep and depression from kidney transplant? Still working on depression/sleep, trying various prescription drugs the process takes a long time...
HughL
in
Kidney Transplant
6 years ago
QE Hospital Birmingham - Liver Transplant update.
I was one of the 5000+ people to be fortunate enough to have received a liver transplant thanks to a most wonderful, totally unselfish donor. And not forgetting a bunch of pretty amazing staff at the Queen Elizabeth Hospital, Birmingham. Having nothing better to do, I was trolling "YouTube" just now
I was one of the 5000+ people to be fortunate enough to have received a liver transplant thanks to a most wonderful, totally unselfish donor. And not forgetting a bunch of pretty amazing staff at the Queen Elizabeth Hospital, Birmingham. Having nothing better to do, I was trolling "YouTube" just now
Hidden
in
British Liver Trust
6 years ago
TB meningitis Post renal transplant patient
I am from Nepal and My mom is in ICU in India. She has been diagnosed with Tb meningitis. It’s been 2 weeks tb medication has started and last monday she got Little better but then same again, hasn’t improved. She had fever, headache and vomiting on and off for almost 2 months. When mom was brought to
I am from Nepal and My mom is in ICU in India. She has been diagnosed with Tb meningitis. It’s been 2 weeks tb medication has started and last monday she got Little better but then same again, hasn’t improved. She had fever, headache and vomiting on and off for almost 2 months. When mom was brought to
MyMomMyGod
in
Meningitis Now
6 years ago
Husband turned down for ESA again
Advice needed Husband has been turned down again for ESA while recovering from liver transplant which he had in May They say he doesn't have enough national insurance contributions due to him being out of work for 3 years prior to his transplant. Any advice of what we do next?
Advice needed Husband has been turned down again for ESA while recovering from liver transplant which he had in May They say he doesn't have enough national insurance contributions due to him being out of work for 3 years prior to his transplant. Any advice of what we do next?
Adelou
in
British Liver Trust
6 years ago
Hi I'm new to this.... Double lung and heart transplant. Have never ran in my life so very much new to this.
My ambition has always been to run. I asked for three things if I woke up from my surgery.. A bacon sandwich ( was not allowed salt before my o), a bottle of champagne ( not allowed to drink) and a pair of running shoes!!! Did my first run on Wednesday and today I know it!! Going to do my second later
My ambition has always been to run. I asked for three things if I woke up from my surgery.. A bacon sandwich ( was not allowed salt before my o), a bottle of champagne ( not allowed to drink) and a pair of running shoes!!! Did my first run on Wednesday and today I know it!! Going to do my second later
Chilipower2018
in
Couch to 5K
6 years ago
Lost a super best friend
Hi folks, It is very comforting to read your stories of how to cope with liver disease. My friend retired from teaching less than a year ago and discovered she has a genetic liver disease ( as do four of her sisters - one had received a transplant one year ago). I can't believe how fast she went. Her
Hi folks, It is very comforting to read your stories of how to cope with liver disease. My friend retired from teaching less than a year ago and discovered she has a genetic liver disease ( as do four of her sisters - one had received a transplant one year ago). I can't believe how fast she went. Her
smockler
in
British Liver Trust
6 years ago
Aggressive IGA neuropathy
Hi all, on April 13, 2018 my daughter was diagnosed with an aggressive form of IGA. I started the donor process and was was ruled out due to red blood cells and protein on my 24 hour urine collections; so I'm not a quick fix for her. 😢 I'm very interested in connecting with others with a similar
Hi all, on April 13, 2018 my daughter was diagnosed with an aggressive form of IGA. I started the donor process and was was ruled out due to red blood cells and protein on my 24 hour urine collections; so I'm not a quick fix for her. 😢 I'm very interested in connecting with others with a similar
Lbw62
in
Kidney Disease
6 years ago
Transplant Questions
New to this site. I have heard there is an average weight gain of 20 pounds after a kidney transplant. Is that true, and if so, do you ever lose it? Also, what are the common side effects of the medicines after transplant?
New to this site. I have heard there is an average weight gain of 20 pounds after a kidney transplant. Is that true, and if so, do you ever lose it? Also, what are the common side effects of the medicines after transplant?
Hdslimand62
in
Kidney Transplant
6 years ago
kasai procedure
Hi All, My 6 weeks daughter has done kasai procedure due to biliary atresia. Ultimately she has to go for liver transplant (sooner or later). Is there any place in world where lever can donate for small kids.
Hi All, My 6 weeks daughter has done kasai procedure due to biliary atresia. Ultimately she has to go for liver transplant (sooner or later). Is there any place in world where lever can donate for small kids.
kamranzaheer
in
Children's Liver Disease Foundation
6 years ago
Kidney transplant update
I am awaiting transplantation. I am not on the list yet but in the process. I have a gfr. Of 15.5 . I am lucky that I'm not on dialysis at the moment. I suffer from eplilpcy and I do weekly infusions called hizentra. I received my transplant from my mother 13 years ago June 2005. I was diagnosed with
I am awaiting transplantation. I am not on the list yet but in the process. I have a gfr. Of 15.5 . I am lucky that I'm not on dialysis at the moment. I suffer from eplilpcy and I do weekly infusions called hizentra. I received my transplant from my mother 13 years ago June 2005. I was diagnosed with
Kidney05love
in
Kidney Transplant
6 years ago
Kidney transplant update
I am awaiting transplantation. I am not on the list yet but in the process. I have a gfr. Of 15.5 . I am lucky that I'm not on dialysis at the moment. I suffer from eplilpcy and I do weekly infusions called hizentra. I received my transplant from my mother 13 years ago June 2005. I was diagnosed with
I am awaiting transplantation. I am not on the list yet but in the process. I have a gfr. Of 15.5 . I am lucky that I'm not on dialysis at the moment. I suffer from eplilpcy and I do weekly infusions called hizentra. I received my transplant from my mother 13 years ago June 2005. I was diagnosed with
Kidney05love
in
Kidney Transplant
6 years ago
Gum growth after kidney transplant
Hi, I had a kidney transplant over 2 years ago and recently my gums seem seem to be overtaking my teeth and are quite uncomfortable and bleeding. Is this down to taking prednisolone daily as a steroid?
Hi, I had a kidney transplant over 2 years ago and recently my gums seem seem to be overtaking my teeth and are quite uncomfortable and bleeding. Is this down to taking prednisolone daily as a steroid?
lsg99
in
Kidney Transplant Patient Support
6 years ago
Hi all
Hello. Just signed up because I’ve just found out my mum is going to need a liver transplant. Just looking for advice,support groups, general info on the issue, feel a bit in darkness with no knowledge of the situation. Many thanks.
Hello. Just signed up because I’ve just found out my mum is going to need a liver transplant. Just looking for advice,support groups, general info on the issue, feel a bit in darkness with no knowledge of the situation. Many thanks.
Naomi_1988
in
British Liver Trust
6 years ago
Worried been 17 years with my kidney transplant and my gfr 44
Hi everyone first off my name is Jennifer I'm 30 years old I receive my transplant at 13 years old from my dad been stable for a long time thank God but in this pass year I'm reach to stage 3 recently which for me a deal maybe some of u is not a big deal but I'm frightened that soon my kidney will give
Hi everyone first off my name is Jennifer I'm 30 years old I receive my transplant at 13 years old from my dad been stable for a long time thank God but in this pass year I'm reach to stage 3 recently which for me a deal maybe some of u is not a big deal but I'm frightened that soon my kidney will give
jennifer24
in
Kidney Transplant
6 years ago
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