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Shingrix vaccine for immunosuppressed people aged 50+
transplant
●those who are receiving or have received in the previous 3 months targeted therapy for autoimmune disease, such as JAK inhibitors or biologic immune modulators including ●B-cell targeted therapies (including rituximab but for which a 6 month period should be considered immunosuppressive)
transplant
●those who are receiving or have received in the previous 3 months targeted therapy for autoimmune disease, such as JAK inhibitors or biologic immune modulators including ●B-cell targeted therapies (including rituximab but for which a 6 month period should be considered immunosuppressive)
Sharitone
in
PMRGCAuk
6 months ago
Prednisone for treatment of AIG
I've just been started on Prednisone or Prednisolone, immunosuppressant steroids, for treatment of Autoimmune Gastritis/autoimmune PA. This has recently, within the last few years been shown to possibly heal AIG, although not entirely cure. It is also used to prevention immune system rejection of organ
I've just been started on Prednisone or Prednisolone, immunosuppressant steroids, for treatment of Autoimmune Gastritis/autoimmune PA. This has recently, within the last few years been shown to possibly heal AIG, although not entirely cure. It is also used to prevention immune system rejection of organ
Rexz
in
Pernicious Anaemia Society
2 months ago
Kidney patients waiting for a transplant deserve better
There has been a unanimous passage of the
Organ
Procurement
Transplant
Act in the U.S. Take a moment to say thank you to your lawmaker for prioritizing patients. #MyKidneyVoice https://bit.ly/3KBMdNr
There has been a unanimous passage of the
Organ
Procurement
Transplant
Act in the U.S. Take a moment to say thank you to your lawmaker for prioritizing patients. #MyKidneyVoice https://bit.ly/3KBMdNr
JackieJ_NKF
Partner
in
Kidney Transplant
8 months ago
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PIP assessment
Waiting for a multi
organ
transplant
. It has impacted all areas of my life so have been encouraged to request PIP but I’ve heard they decline lots of people. Thank you!!
Waiting for a multi
organ
transplant
. It has impacted all areas of my life so have been encouraged to request PIP but I’ve heard they decline lots of people. Thank you!!
GEMMA1991
in
British Liver Trust
1 year ago
Covid Self Tests, For Vulnerable Folk.
Dear all, The 'Availability' of Free Covid Tests is now 'Limited To Certain Groups', however Sold
Organ
Transplant
Patients ARE Included. If you do want to 'Order' some, then go to 'gov.uk', rather than 119- or the Normal Covid Site.
Dear all, The 'Availability' of Free Covid Tests is now 'Limited To Certain Groups', however Sold
Organ
Transplant
Patients ARE Included. If you do want to 'Order' some, then go to 'gov.uk', rather than 119- or the Normal Covid Site.
AndrewT
in
Kidney Transplant
1 year ago
Anti Covid treatments for the Immuno-compromised
Since last year, these patients – who primarily have blood cancers such as leukaemia, kidney disease or have had an
organ
transplant
– have been able to access five anti-Covid drugs which prevent them from falling seriously ill and ending up in hospital.
Since last year, these patients – who primarily have blood cancers such as leukaemia, kidney disease or have had an
organ
transplant
– have been able to access five anti-Covid drugs which prevent them from falling seriously ill and ending up in hospital.
RogerPinner
in
CLL Support
1 year ago
ICD insertion and went for Heart Transplant
Hi friends, I have insertion of ICD on 5th April, 2024 from City Hospital, Nottingham but I am enlisted in waiting list of heart transplant from Royal popwarth Hospital, Cambridge. Suddenly I received a call from my Hospital Co-ordinator at 2.00Am midnight on 24/04/2024 that are you ready to go
Hi friends, I have insertion of ICD on 5th April, 2024 from City Hospital, Nottingham but I am enlisted in waiting list of heart transplant from Royal popwarth Hospital, Cambridge. Suddenly I received a call from my Hospital Co-ordinator at 2.00Am midnight on 24/04/2024 that are you ready to go
MIS_G
in
British Heart Foundation
2 days ago
Looking for advice please
Hello folks. I've been on here for a couple weeks reading peoples comments/stories. but have not posted anything until now. Hope you all are doing ok. Im looking for a bit of advice if anyone can help please. Back in august last year i was diagnosed with Liver cirrhosis from drinking. for the
Hello folks. I've been on here for a couple weeks reading peoples comments/stories. but have not posted anything until now. Hope you all are doing ok. Im looking for a bit of advice if anyone can help please. Back in august last year i was diagnosed with Liver cirrhosis from drinking. for the
StokieB
in
British Liver Trust
4 days ago
information about liver transplants/liver cancer
https://l.facebook.com/l.php?u=AT1q4nZnRGFEk9DREjCfOr32vqyD8L1g6K0RcC_EDbD4oCwtB3eulAZZduYdqnytaPjLXB9ZdFhw53LtO0m0MZWIG09DGKjSAU58KK3Gx6FqL1ztOVQvumdzQlbjfVPHGO8tFD2m0oK5VyAVEzzJoUzd2pJDkD8m4nCGQIsZDX8eZvxWwFuOeOlBzlzmIDXByapbNibWWnHsiBDPCpdlit3QCvc3HXSgyaugkx8LKnX9JUKbsPscdDYOai6FkVHhe7jUsezWDdM0phZl2Gas6b6w_e9YfCqvk9s_pVzncIu2r7Dt7s1gfemxBPiIXaHYEiuPp0OwY
https://l.facebook.com/l.php?u=AT1q4nZnRGFEk9DREjCfOr32vqyD8L1g6K0RcC_EDbD4oCwtB3eulAZZduYdqnytaPjLXB9ZdFhw53LtO0m0MZWIG09DGKjSAU58KK3Gx6FqL1ztOVQvumdzQlbjfVPHGO8tFD2m0oK5VyAVEzzJoUzd2pJDkD8m4nCGQIsZDX8eZvxWwFuOeOlBzlzmIDXByapbNibWWnHsiBDPCpdlit3QCvc3HXSgyaugkx8LKnX9JUKbsPscdDYOai6FkVHhe7jUsezWDdM0phZl2Gas6b6w_e9YfCqvk9s_pVzncIu2r7Dt7s1gfemxBPiIXaHYEiuPp0OwY
DonnaBoll
Administrator
in
PBC Foundation
7 days ago
Chronic Liver Disease Post Transplant
Hi, I had a liver transplant in October 2017 and apart from a little set back right at the beginning, meaning I was in Addenbrookes for 5 weeks, I have been really well. I haven’t even had Covid! However a couple of months ago, I had a CT scan which showed that I have chronic liver disease. To say
Hi, I had a liver transplant in October 2017 and apart from a little set back right at the beginning, meaning I was in Addenbrookes for 5 weeks, I have been really well. I haven’t even had Covid! However a couple of months ago, I had a CT scan which showed that I have chronic liver disease. To say
Dawnejoy
in
British Liver Trust
10 days ago
interesting encounter
my spouse was at Costco recently and after shopping ate at the food court. Shared a table with another couple. They got to talking. Turns out the man had PBC! He had a liver transplant 23 years ago. Been doing Ok. They gave my spouse their phone numbers since I wasn’t there. Nice thing is he goes
my spouse was at Costco recently and after shopping ate at the food court. Shared a table with another couple. They got to talking. Turns out the man had PBC! He had a liver transplant 23 years ago. Been doing Ok. They gave my spouse their phone numbers since I wasn’t there. Nice thing is he goes
CeeCee101
in
PBC Foundation
13 days ago
Aspergillus post lung transplant.
Hi all, Haven’t been in touch for a while now but mercifully still here. Lungaversary last month which I can only describe as a stormy recovery. Trichosporon infection In clamshell wound delayed discharge by 4 weeks. 1 month in ICU with terrifying hallucinations which still haunt me today. Sternum
Hi all, Haven’t been in touch for a while now but mercifully still here. Lungaversary last month which I can only describe as a stormy recovery. Trichosporon infection In clamshell wound delayed discharge by 4 weeks. 1 month in ICU with terrifying hallucinations which still haunt me today. Sternum
Mrbojangles
in
Lung Conditions Community Forum
16 days ago
Sturnum pain
Hi I'm new to this site my name is James was wondering if any one can help with a question ,I had a really traumatic time 2 years ago when I underwent Ablasion surgery followed by bivad surgery and then heart transplant, For the last 2 years my sternum has been so painful and continues to be so, I have
Hi I'm new to this site my name is James was wondering if any one can help with a question ,I had a really traumatic time 2 years ago when I underwent Ablasion surgery followed by bivad surgery and then heart transplant, For the last 2 years my sternum has been so painful and continues to be so, I have
REDWINE123
in
British Heart Foundation
22 days ago
Corrie15
Had liver transplant 8yrs ago, taking 1.5mg of adoport and mofetil am & pm but the doctors want me to put me on Envarus but don't know why, but they have said that my kidneys are not has good has they should. Any replies would be great.
Had liver transplant 8yrs ago, taking 1.5mg of adoport and mofetil am & pm but the doctors want me to put me on Envarus but don't know why, but they have said that my kidneys are not has good has they should. Any replies would be great.
Ttck1825
in
British Liver Trust
22 days ago
Following liver transplant, having kidney problems- any advice
I am now 66y old, and had a liver transplant in Sept 2022. First I was recovering well, then picked up CMV (cyto megalo virus(!)). Developing kidney problems, currently 21% kidney function, and creatinine of 230. Can anyone offer any thoughts, advice etc? Grateful for your input.
I am now 66y old, and had a liver transplant in Sept 2022. First I was recovering well, then picked up CMV (cyto megalo virus(!)). Developing kidney problems, currently 21% kidney function, and creatinine of 230. Can anyone offer any thoughts, advice etc? Grateful for your input.
taar
in
Kidney Transplant
22 days ago
Questions about Liver Transplantation
Hello everyone, The Blue Faery team is currently planning our next workshop, where we will discuss liver transplantation. Please feel free to submit your questions in the comments, and we will be sure to include them in our workshop! We will be posting more details about the upcoming workshop next
Hello everyone, The Blue Faery team is currently planning our next workshop, where we will discuss liver transplantation. Please feel free to submit your questions in the comments, and we will be sure to include them in our workshop! We will be posting more details about the upcoming workshop next
AllysonBlueFaery
Community Ambassador
in
Blue Faery Liver Cancer
23 days ago
Ttck1825
I had a liver transplant in 2016 now last few years health isn't going great, and Dr wants to change my adoport to envarus, but my story is long. But just for now does envarus stop bad headaches, cause weight gain. Plus suffer low sodium levels and type 3c diabetic. That's me for now
I had a liver transplant in 2016 now last few years health isn't going great, and Dr wants to change my adoport to envarus, but my story is long. But just for now does envarus stop bad headaches, cause weight gain. Plus suffer low sodium levels and type 3c diabetic. That's me for now
Ttck1825
in
British Liver Trust
25 days ago
First Time With Aspergillosis
I had a liver transplant at age 17 due to a severe genetic mitochondrial liver disease. I've had a lot of complications since the. MRSA bacteremia, C.Diff, sepsis x4, Multiple GI bleeds, Lung disease Including COPD, chronic atelectasis, and now aspergillus. I also have a lot of other organ issues due
I had a liver transplant at age 17 due to a severe genetic mitochondrial liver disease. I've had a lot of complications since the. MRSA bacteremia, C.Diff, sepsis x4, Multiple GI bleeds, Lung disease Including COPD, chronic atelectasis, and now aspergillus. I also have a lot of other organ issues due
Diffuse_Confuse
in
Aspergillosis and Rare Fungal Infection Support
28 days ago
Going back to work
I’m 6 weeks post kidney transplant. I’ve been given 8 weeks to return to work from my doctor. I was surprised at the limited time I had. I never really talked about going back till 12 weeks through my FMLA, but he thinks 8 weeks is enough. I work in a clinic with over 30 people and I’m concerned with
I’m 6 weeks post kidney transplant. I’ve been given 8 weeks to return to work from my doctor. I was surprised at the limited time I had. I never really talked about going back till 12 weeks through my FMLA, but he thinks 8 weeks is enough. I work in a clinic with over 30 people and I’m concerned with
Wondr1
in
Kidney Transplant
28 days ago
Help. Icu
Hi all I'm new here but I'm also lost and don't know what to do. My mom currently needs a liver transplant but she has pneumonia and they had her sedated now she's awake but won't listen to orders.
Hi all I'm new here but I'm also lost and don't know what to do. My mom currently needs a liver transplant but she has pneumonia and they had her sedated now she's awake but won't listen to orders.
Joccelyn
in
ICUsteps
29 days ago
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