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CDC reconsidering guidelines for opiate use. This affects RLS sufferers.
RLS.org is asking us to send comments to the Center for Disease Control about our use of
opioids
to treat our symptoms, as the CDC is reconsidering guidelines for their appropriate use and how they can be prescribed. Please don’t think this is only for Americans. ( See below.)
RLS.org is asking us to send comments to the Center for Disease Control about our use of
opioids
to treat our symptoms, as the CDC is reconsidering guidelines for their appropriate use and how they can be prescribed. Please don’t think this is only for Americans. ( See below.)
WendyBea
in
Restless Legs Syndrome
2 years ago
From RLS foundation; call to action for opioid prescribing guidelines (CDC)
The Centers for Disease Control and Prevention (CDC) is revising its 2016 Opioid Prescribing Guidelines, and this is an opportunity for the RLS community to raise our voices about the appropriate use of
opioids
in the management of severe cases of RLS.
The Centers for Disease Control and Prevention (CDC) is revising its 2016 Opioid Prescribing Guidelines, and this is an opportunity for the RLS community to raise our voices about the appropriate use of
opioids
in the management of severe cases of RLS.
Tanker1
in
Restless Legs Syndrome
2 years ago
Running & restless legs
So for me I would prefer to run every day, have a massage once or twice a week & sleep well instead of taking
opioids
which make me sick. I’m worried that I will damage my joints & that this intervention will stop working just like everything else. What are other people’s experiences?
So for me I would prefer to run every day, have a massage once or twice a week & sleep well instead of taking
opioids
which make me sick. I’m worried that I will damage my joints & that this intervention will stop working just like everything else. What are other people’s experiences?
Nightwalker6
in
Restless Legs Syndrome
2 years ago
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finding a doctor who prescribes opioid for RLS
I think this is a very legitimate concern because of the unwillingness of conventional doctors of prescribe any
opioids
in the USA. Any thought on that? If anyone also shares the same doctor as I do and is located in the USA.
I think this is a very legitimate concern because of the unwillingness of conventional doctors of prescribe any
opioids
in the USA. Any thought on that? If anyone also shares the same doctor as I do and is located in the USA.
halperinchen
in
Restless Legs Syndrome
2 years ago
Last one
Years ago women were given Valium and were fobbed off constantly blaming womens mental health. turning them into
opioids
dependent. Be honest and upfront with women. Everyone has the same story to tell. It’s sad but true.
Years ago women were given Valium and were fobbed off constantly blaming womens mental health. turning them into
opioids
dependent. Be honest and upfront with women. Everyone has the same story to tell. It’s sad but true.
Greenlady48
in
Endometriosis UK
2 years ago
Comments needed to Center for Disease Control
The Centers for Disease Control and Prevention (CDC) is revising its 2016 Opioid Prescribing Guidelines, and this is an opportunity for the RLS community to raise our voices about the appropriate use of
opioids
in the management of severe cases of RLS."
The Centers for Disease Control and Prevention (CDC) is revising its 2016 Opioid Prescribing Guidelines, and this is an opportunity for the RLS community to raise our voices about the appropriate use of
opioids
in the management of severe cases of RLS."
Dougg
in
Restless Legs Syndrome
2 years ago
Update: pleural effusion, ER, Completion of SBRT and thank you for previous heartwarming posts
However we are not sure if they are coming from radiation, the lungs, withdrawal from
opioids
after back surgery etc it’s all so overwhelming. Bob is scheduled for chemo on March 9. One day at a time. Keeping positive thoughts for Bob and all of you!
However we are not sure if they are coming from radiation, the lungs, withdrawal from
opioids
after back surgery etc it’s all so overwhelming. Bob is scheduled for chemo on March 9. One day at a time. Keeping positive thoughts for Bob and all of you!
Faith1111
in
Advanced Prostate Cancer
2 years ago
CBD and RLS
I have not tried marijuana or
opioids
(and don't plan to...) BUT NOW....my CBD supplier (Luvive) has developed a new CBD Sleep. I am using it (1 mL at bedtime) and it seems, seems to lessen onsets.
I have not tried marijuana or
opioids
(and don't plan to...) BUT NOW....my CBD supplier (Luvive) has developed a new CBD Sleep. I am using it (1 mL at bedtime) and it seems, seems to lessen onsets.
Crazilegs
in
Restless Legs Syndrome
2 years ago
[Fentanyl effects on glutamate and GABA release rates from anterior hypothalamus] and [Fentanyl inhibits GABAergic neurotransmission]
The results demonstrate that there is an opioid-glutamatergic transmission pathway, located in the hypothalamus and that
opioids
can activate NMDA receptors. https://pubmed.ncbi.nlm.nih.gov/30030987/ In this study, the effect of fentanyl on GABAergic neurotransmission to parasympathetic cardiac vagal
The results demonstrate that there is an opioid-glutamatergic transmission pathway, located in the hypothalamus and that
opioids
can activate NMDA receptors. https://pubmed.ncbi.nlm.nih.gov/30030987/ In this study, the effect of fentanyl on GABAergic neurotransmission to parasympathetic cardiac vagal
SilentEchoes
in
Cure Parkinson's
2 years ago
New approach to pain management
Many of us are only too aware of the negative side effects of steroids,
opioids
etc and for me, any approach that does not depend on such is worth investigating.
Many of us are only too aware of the negative side effects of steroids,
opioids
etc and for me, any approach that does not depend on such is worth investigating.
BiteyDelano
in
PMRGCAuk
2 years ago
Low dose opioids & side effects
Hi, I am new to this forum. I am in Australia. I have suffered from RLS for many years. I was on a DA for about 10 years, but eventually came up against Augmentation. Weaned off as I was on a high dose. Dreadful period. Anyway, have been tried on every trick in the book. Iron infusion, Gabapentin (did
Hi, I am new to this forum. I am in Australia. I have suffered from RLS for many years. I was on a DA for about 10 years, but eventually came up against Augmentation. Weaned off as I was on a high dose. Dreadful period. Anyway, have been tried on every trick in the book. Iron infusion, Gabapentin (did
Nightwalker6
in
Restless Legs Syndrome
2 years ago
Chronic pain university study
Opioids
are often used as medicines because they contain chemicals that relax the body and can relieve pain. Many people get prescribed opioid medication for chronic pain as the main treatment pathway for living with the pain.
Opioids
are often used as medicines because they contain chemicals that relax the body and can relieve pain. Many people get prescribed opioid medication for chronic pain as the main treatment pathway for living with the pain.
katherine1801
in
Pain Concern
2 years ago
My ongoing RLS battle
I told him that was out of the question because I couldn’t risk getting sick again from
opioids
. I just could not risk it!!! He offered no other solution. So, again I was on my own to figure it out.
I told him that was out of the question because I couldn’t risk getting sick again from
opioids
. I just could not risk it!!! He offered no other solution. So, again I was on my own to figure it out.
Birdland
in
Restless Legs Syndrome
2 years ago
Educating my Canadian Dr on opioids and RLS
I have suffered with RKS for about 10 years.I believe mine is caused by a dopamine deficiency.I live in Canada and I’m not sure my Dr woukd prescribe an opioid .. my guess is he wouldn’t.Is there any kind of literature or study that I can refer too to perhaps ask him to educate himself on RLS, as I can
I have suffered with RKS for about 10 years.I believe mine is caused by a dopamine deficiency.I live in Canada and I’m not sure my Dr woukd prescribe an opioid .. my guess is he wouldn’t.Is there any kind of literature or study that I can refer too to perhaps ask him to educate himself on RLS, as I can
Knittingasweater
in
Restless Legs Syndrome
2 years ago
Gabapentin and CKD
I don't want to take
opioids
for many reasons and because I have kidney disease, I only take Tylenol which is like taking air when going up against this level of pain. I know gabapentin helps a lot of people but is said to be really dangerous for CKD patients.
I don't want to take
opioids
for many reasons and because I have kidney disease, I only take Tylenol which is like taking air when going up against this level of pain. I know gabapentin helps a lot of people but is said to be really dangerous for CKD patients.
Decembersong
in
Kidney Disease
2 years ago
Tramadol and the covid booster.
Does anyone know how many days there should be, in between taking
opioids
and getting the vaccine? I'm keen to find out as I know that Tramadol can interfere with your immune system, although I'm not sure how much. Any help would be valued. x
Does anyone know how many days there should be, in between taking
opioids
and getting the vaccine? I'm keen to find out as I know that Tramadol can interfere with your immune system, although I'm not sure how much. Any help would be valued. x
Washington1
in
Endometriosis UK
2 years ago
University study
Opioids
are often used as medicines because they contain chemicals that relax the body and can relieve pain. Many people get prescribed opioid medication for chronic pain as the main treatment pathway for living with the pain.
Opioids
are often used as medicines because they contain chemicals that relax the body and can relieve pain. Many people get prescribed opioid medication for chronic pain as the main treatment pathway for living with the pain.
katherine1801
in
Pain Concern
2 years ago
From pramipexole and buprenorphine to what?
Comorbid conditions and medications I can remember I have tried are in my profile, (
opioids
are out for ongoing treatment). What should I aim for when I am off pramipexole and buprenorphine?
Comorbid conditions and medications I can remember I have tried are in my profile, (
opioids
are out for ongoing treatment). What should I aim for when I am off pramipexole and buprenorphine?
ChickenTwisty
in
Restless Legs Syndrome
2 years ago
Update - ADT with Zytiga Failure (Castration Resistant) after 6 Months (PSA 90.3); Firmagon still Working; PSMA PET Scan Ordered
The MO said he would order
opioids
for me if it became necessary; my call. 2 Naproxen 240mg tablets orally twice daily and (Lidoderm) Lidocaine 5% patches are taking care of the worst pain for now.
The MO said he would order
opioids
for me if it became necessary; my call. 2 Naproxen 240mg tablets orally twice daily and (Lidoderm) Lidocaine 5% patches are taking care of the worst pain for now.
diamondrn
in
Advanced Prostate Cancer
2 years ago
New guy with old RLS
Winkleman’s study of RLS patients on
opioids
for over a decade.) It’s nice to be among folks who understand the devastating effects of this disease. Praying for strength and guidance every day…
Winkleman’s study of RLS patients on
opioids
for over a decade.) It’s nice to be among folks who understand the devastating effects of this disease. Praying for strength and guidance every day…
OudisCool
in
Restless Legs Syndrome
2 years ago
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