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Experiences with
Olaparib
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Leukemia as a side effect of Olaparib
After 3 months I'll have a bone marrow biopsy to see if going off
olaparib
is really what caused it. I'm crushed. I may be approaching that tiny category of patient who gets AML as a side effect of my "life saving"
olaparib
. Is anyone else here with me? Or heard of anyone else who is?
After 3 months I'll have a bone marrow biopsy to see if going off
olaparib
is really what caused it. I'm crushed. I may be approaching that tiny category of patient who gets AML as a side effect of my "life saving"
olaparib
. Is anyone else here with me? Or heard of anyone else who is?
FlowerRose
in
My Ovacome
9 months ago
Constipation from PARPS
Can you tell me your experience about being on
Olaparib
. Seems more people have diarhea than constipation. I am in Canada and I am followed by a nurse who takes care of the patients on PARPS. I haven't had the chance to speak with her because of the holidays.
Can you tell me your experience about being on
Olaparib
. Seems more people have diarhea than constipation. I am in Canada and I am followed by a nurse who takes care of the patients on PARPS. I haven't had the chance to speak with her because of the holidays.
Chanterelle
in
My Ovacome
5 months ago
Good news
After a debulking surgery, pleural infusion drainage, and chemo, she started taking
Olaparib
and the disease has been stable since. I just wanted to share the good news with you, as she had a PET scan this month, 4 years from the diagnosis, and it showed stable disease!!!
After a debulking surgery, pleural infusion drainage, and chemo, she started taking
Olaparib
and the disease has been stable since. I just wanted to share the good news with you, as she had a PET scan this month, 4 years from the diagnosis, and it showed stable disease!!!
Uniquem
in
My Ovacome
5 months ago
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Recap and update
I have consented to Avastin and
Olaparib
. Onc said I could ask for second opinion from Christina Fitapalou but she said surgery would be radical with no guarantees she will get it all.
I have consented to Avastin and
Olaparib
. Onc said I could ask for second opinion from Christina Fitapalou but she said surgery would be radical with no guarantees she will get it all.
Beaver54
in
My Ovacome
8 months ago
Ovarian cancer recurrence
I had an ultra radical debulking surgery in August that year, followed by 6 rounds of carbo/taxol and maintenance via
olaparib
. I had a CT scan back in August which highlighted a mass on the wall of my stomach.
I had an ultra radical debulking surgery in August that year, followed by 6 rounds of carbo/taxol and maintenance via
olaparib
. I had a CT scan back in August which highlighted a mass on the wall of my stomach.
Guitarplayinghobbit
in
My Ovacome
5 months ago
Dad with Stage 4 PCa - Need some words of wisdom...again please!
A liquid biopsy was carried out last week, waiting on results for BRCA2 (to see if he qualifies for
olaparib
(Lynparza®).
A liquid biopsy was carried out last week, waiting on results for BRCA2 (to see if he qualifies for
olaparib
(Lynparza®).
kikinini
in
Advanced Prostate Cancer
6 months ago
Finishing Olaparib
Anyone else in the UK staying on
Olaparib
after 2 yrs who are NED? Any advice on getting more regular checks? Thanks
Anyone else in the UK staying on
Olaparib
after 2 yrs who are NED? Any advice on getting more regular checks? Thanks
suzannebirch
in
My Ovacome
9 months ago
Hello, do you find the cost of olaparib very high?
I have been prescribed
olaparib
and my insurance covers it, but my cost is extremely high. I am trying for assistance.
I have been prescribed
olaparib
and my insurance covers it, but my cost is extremely high. I am trying for assistance.
Jacquiemoo
in
My Ovacome
9 months ago
Recurrence :(
I then went on to
Olaparib
, initially with avastin, and have done about 1 year 10 months of that, but my last 2 blood tests showed my CA125 was rising and a scan showed that I have a recurrence in my stomach lining and (I think) something in my liver.
I then went on to
Olaparib
, initially with avastin, and have done about 1 year 10 months of that, but my last 2 blood tests showed my CA125 was rising and a scan showed that I have a recurrence in my stomach lining and (I think) something in my liver.
Kjpip
in
My Ovacome
1 month ago
Olaparib tum
Hi fellow
Olaparib
users . I’ve been on
Olaparib
for 3 .5 years now . Recently developing bouts of gut discomfort and diarrhoea. Have to say up until now on the drug , it’s always been rather the opposite . On the literature it says diarrhoea is a common side effect .
Hi fellow
Olaparib
users . I’ve been on
Olaparib
for 3 .5 years now . Recently developing bouts of gut discomfort and diarrhoea. Have to say up until now on the drug , it’s always been rather the opposite . On the literature it says diarrhoea is a common side effect .
Rankij11
in
My Ovacome
10 months ago
Olaparib side effects - cough and breathlessness
I've been taking
Olaparib
since May this year and have had a constant cough and breathlessness. It's getting me down a bit and I was wondering if anyone else has had this side effect and how long it lasted x
I've been taking
Olaparib
since May this year and have had a constant cough and breathlessness. It's getting me down a bit and I was wondering if anyone else has had this side effect and how long it lasted x
Demelzatheseagull
in
My Ovacome
9 months ago
Next steps after cabazitaxel
They have identified me as a candidate for
Olaparib
, based on genetic tests. I'd welcome thoughts on that, and generally on where we might go when the chemo ends, or before it ends. I should add that I'm also on Zoladex injections every three months and have been for several years. Thanks again.
They have identified me as a candidate for
Olaparib
, based on genetic tests. I'd welcome thoughts on that, and generally on where we might go when the chemo ends, or before it ends. I should add that I'm also on Zoladex injections every three months and have been for several years. Thanks again.
Arcticfox44
in
Advanced Prostate Cancer
7 months ago
Mother Diagnosed with Stage 4 OC, recurrence, now liver traces
What about Elahere or
Olaparib
? Can CBD or RSO oil stable the situation? Please help looking for advice/guidance.
What about Elahere or
Olaparib
? Can CBD or RSO oil stable the situation? Please help looking for advice/guidance.
akhilsalwan
in
My Ovacome
3 months ago
Mother Diagnosed with Stage 4 OC - Recurrence, now Liver traces
What about Elahere or
Olaparib
? Can CBD or RSO oil stable the situation? Please help looking for advice/guidance.
What about Elahere or
Olaparib
? Can CBD or RSO oil stable the situation? Please help looking for advice/guidance.
akhilsalwan
in
OvaCare
3 months ago
Questions for those currently on or have tried Olaparib or Rucaparib PARP inhibitors. Recently published study on Rucaparib.
Looking at the NCCN guidelines, which my husband's MO refers to often, they suggest
Olaparib
(Lynparrza) before chemo and Rucaparib (Rubraca) after chemo. They also list two other newer drugs.
Looking at the NCCN guidelines, which my husband's MO refers to often, they suggest
Olaparib
(Lynparrza) before chemo and Rucaparib (Rubraca) after chemo. They also list two other newer drugs.
mrssnappy
in
Advanced Prostate Cancer
4 months ago
Caelyx side effects and duration of treatment plus follow up with target therapy or immunotherapy.
I would like to go again to
olaparib
/ avastin because clearly slows down the progression of disease.
I would like to go again to
olaparib
/ avastin because clearly slows down the progression of disease.
Pumpkininja
in
My Ovacome
6 months ago
Olaparib side effects
I'm about to start
Olaparib
. I expect side effects, but when will they kick in? Immediately or after a few days or weeks? I know everyone is different but I'm keen to hear of your experiences!
I'm about to start
Olaparib
. I expect side effects, but when will they kick in? Immediately or after a few days or weeks? I know everyone is different but I'm keen to hear of your experiences!
PippaRory
in
My Ovacome
9 months ago
Run out of big pants
Read about
Olaparib
being given to HRD positive cancer but I know nothing about this and other than the Brac test never been mentioned, could they test for this so far down the line ? Not ready to give up yet but feel all the doors are closing on me.
Read about
Olaparib
being given to HRD positive cancer but I know nothing about this and other than the Brac test never been mentioned, could they test for this so far down the line ? Not ready to give up yet but feel all the doors are closing on me.
BigBern23
in
My Ovacome
5 months ago
Checkpoint inhibitor after PARPi - anybody?
I have been on
Olaparib
for 2 years, but PSA is rising. We know PARPi upregulates PD-L1 - thus priming the cells? Has anybody tried Pembro after
Olaparib
?
I have been on
Olaparib
for 2 years, but PSA is rising. We know PARPi upregulates PD-L1 - thus priming the cells? Has anybody tried Pembro after
Olaparib
?
Hidden
in
Fight Prostate Cancer
11 months ago
cystitisy like feelings
I am currently having Avastin 3 weekly and have been taking
Olaparib
for about 4 months . Any comments would be much appreciated Thank you Kx
I am currently having Avastin 3 weekly and have been taking
Olaparib
for about 4 months . Any comments would be much appreciated Thank you Kx
Norelo8
in
My Ovacome
9 months ago
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