Search
Search
About
Log in
Join
Experiences with
Occupational therapy
Posts
Communities
16,972 public posts
Filter results
Dianogest and sore and painful tongue and throat
Hi Ladies, I started taking dianogest about 8 months ago. Most common side effects only lasted few weeks and went away however, since end of September I am experiencing throat pain which radiate to my ears as well. My GP referred me to ENT clinic and they said it was laryngitis which they said can be
Hi Ladies, I started taking dianogest about 8 months ago. Most common side effects only lasted few weeks and went away however, since end of September I am experiencing throat pain which radiate to my ears as well. My GP referred me to ENT clinic and they said it was laryngitis which they said can be
Ayesfreen
in
Endometriosis UK
6 months ago
hot flushes
I’ve struggled with these for about twenty years and they have diminished over time. However, since going on preds, just over five weeks ago, they have got worse. Nothing like when they were at their worst when I was younger, but boy do they wake me up, when my sleep is pretty poor anyway, since the
I’ve struggled with these for about twenty years and they have diminished over time. However, since going on preds, just over five weeks ago, they have got worse. Nothing like when they were at their worst when I was younger, but boy do they wake me up, when my sleep is pretty poor anyway, since the
Freshairfiend
in
PMRGCAuk
6 months ago
ADT and crying
Does anyone else that has been on ADT drugs for years have trouble with tears or crying for no real reason? I tear up anymore at just the thought of something sad. It’s a major pain in the ass, not to mention embarrassing because I am still employed. Wondering if there is a solution other than stopping
Does anyone else that has been on ADT drugs for years have trouble with tears or crying for no real reason? I tear up anymore at just the thought of something sad. It’s a major pain in the ass, not to mention embarrassing because I am still employed. Wondering if there is a solution other than stopping
joeguy
in
Advanced Prostate Cancer
6 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Still confused about PSA and Testosterone testing
I have been reading posts here for some time and there seems to be a split between those who only get PSA tests each time they go to their doctors and those that get both tests each time. I had a baseline testosterone test before Lupron and before radiation. I am now doing my 6 month follow up and
I have been reading posts here for some time and there seems to be a split between those who only get PSA tests each time they go to their doctors and those that get both tests each time. I had a baseline testosterone test before Lupron and before radiation. I am now doing my 6 month follow up and
Mgtd
in
Advanced Prostate Cancer
6 months ago
First DEXA shows osteopenia - hoping for some advice please
Hello everyone, this is my first post to Bone Health, but I have posted to other Healthunlocked forums recently as I’m trying to work through my various health issues. I’m in the UK and hoping to get some advice from those more experienced than me please. I paid privately for my first DEXA scan in April
Hello everyone, this is my first post to Bone Health, but I have posted to other Healthunlocked forums recently as I’m trying to work through my various health issues. I’m in the UK and hoping to get some advice from those more experienced than me please. I paid privately for my first DEXA scan in April
Bertiepuss
in
Bone Health and Osteoporosis UK
6 months ago
Platelets Dropping
Is this “normal” or any advice? Undergoing radiation since March, have 22 sessions done, 6 to go. Started Casodex in December to prepare to start Eligard in January. Radiation started in March. My platelets have been dropping. MO said could be due to Lupron and/or radiation. IMRT targets Gleason 9
Is this “normal” or any advice? Undergoing radiation since March, have 22 sessions done, 6 to go. Started Casodex in December to prepare to start Eligard in January. Radiation started in March. My platelets have been dropping. MO said could be due to Lupron and/or radiation. IMRT targets Gleason 9
Hope49823
in
Advanced Prostate Cancer
3 months ago
FDA approves niraparib and abiraterone acetate plus prednisone for BRCA-mutated metastatic castration-resistant prostate cancer - 08/11/2023
On August 11, 2023, the Food and Drug Administration approved the fixed dose combination of niraparib and abiraterone acetate (Akeega, Janssen Biotech, Inc.), with prednisone, for adult patients with deleterious or suspected deleterious BRCA-mutated castration-resistant prostate cancer (mCRPC), as determined
On August 11, 2023, the Food and Drug Administration approved the fixed dose combination of niraparib and abiraterone acetate (Akeega, Janssen Biotech, Inc.), with prednisone, for adult patients with deleterious or suspected deleterious BRCA-mutated castration-resistant prostate cancer (mCRPC), as determined
cujoe
in
Fight Prostate Cancer
10 months ago
Thanks and hope to all
No questions …just wanted to thank everyone for all your input and support …especially during the holidays. Had my Christmas radiation treatment yesterday and 7 of 15 linac dose today.. Brachytherapy prior with ADT for the last 7 months. Things seem to be going as smoothly as it sometimes does. Appreciate
No questions …just wanted to thank everyone for all your input and support …especially during the holidays. Had my Christmas radiation treatment yesterday and 7 of 15 linac dose today.. Brachytherapy prior with ADT for the last 7 months. Things seem to be going as smoothly as it sometimes does. Appreciate
Yokohama2023
in
Advanced Prostate Cancer
6 months ago
IMRT WITHOUT THE JELL
I'm scheduled for IMRT Radistion without the jell. Doc says the jell may push cancer microscopic cells away from the prostate. He said the cancer is about to protrude through the capsule and microsopic cancer cells could be out of the capsule and did not want to take a chance of putting the jell in and
I'm scheduled for IMRT Radistion without the jell. Doc says the jell may push cancer microscopic cells away from the prostate. He said the cancer is about to protrude through the capsule and microsopic cancer cells could be out of the capsule and did not want to take a chance of putting the jell in and
woppaginny
in
Advanced Prostate Cancer
3 months ago
cardioversion within 3 weeks of ablation?
Despite playing by the book and doing everything I could, I’ve been back in persistent AFib for 4 days since my ablation two and a half weeks ago. The arrhythmia team had me in for an ECT today and are arranging an appointment for a cardioversion possibly this Saturday. Just wondering if anyone else
Despite playing by the book and doing everything I could, I’ve been back in persistent AFib for 4 days since my ablation two and a half weeks ago. The arrhythmia team had me in for an ECT today and are arranging an appointment for a cardioversion possibly this Saturday. Just wondering if anyone else
Rainfern
in
AF Association
8 months ago
Is nmCRPC potentially curable?
I would appreciate any input on this. I searched the internet and found this article from Fred Saad: Treatment of nonmetastatic castration-resistant prostate cancer: focus on second-generation androgen receptor inhibitors https://www.nature.com/articles/s41391-020-00310-3 I couldn't find anything
I would appreciate any input on this. I searched the internet and found this article from Fred Saad: Treatment of nonmetastatic castration-resistant prostate cancer: focus on second-generation androgen receptor inhibitors https://www.nature.com/articles/s41391-020-00310-3 I couldn't find anything
Seasid
in
Advanced Prostate Cancer
6 months ago
CBC test anemia: high MCV, MCH, low RBC and leukocytes?
Writing for my partner, who is exhausted and down after 5 months ADT and 28x radiation. Returning home he went for CBC, and it came back high MCV MCH, low RBC and leukocytes. His primary w/0 knowledge of cancer tx says nothing. I'm not content with this, I hate to see my partner so tired and unenthused
Writing for my partner, who is exhausted and down after 5 months ADT and 28x radiation. Returning home he went for CBC, and it came back high MCV MCH, low RBC and leukocytes. His primary w/0 knowledge of cancer tx says nothing. I'm not content with this, I hate to see my partner so tired and unenthused
quietcorner
in
Advanced Prostate Cancer
6 months ago
Radiation?
just got my psa results after my first round of 4 months leuprolide and 3 months Zytiga and prednisone…..initially 18 now 0.04. Nurse told me that my MO would like to see me early to discuss more radiation( recent psma found areas of avidity only in prostate bed……initial tx was 48 grey imrt back in
just got my psa results after my first round of 4 months leuprolide and 3 months Zytiga and prednisone…..initially 18 now 0.04. Nurse told me that my MO would like to see me early to discuss more radiation( recent psma found areas of avidity only in prostate bed……initial tx was 48 grey imrt back in
Tommyj2
in
Advanced Prostate Cancer
5 months ago
PSA rise soon after surgery!
Writing regarding my dad. Worried and dont get any answers / just wait and see approach from medical team :( Dad 63 years old now, was diagnosed with prostate cancer october 2022. 2 small tumors 5x3 mm was shown on MR, no spread shown there. Biopsy showed gleason 3+4 ( 4 was 50%) Ralp surgery robotic
Writing regarding my dad. Worried and dont get any answers / just wait and see approach from medical team :( Dad 63 years old now, was diagnosed with prostate cancer october 2022. 2 small tumors 5x3 mm was shown on MR, no spread shown there. Biopsy showed gleason 3+4 ( 4 was 50%) Ralp surgery robotic
Daddysgirl83
in
Advanced Prostate Cancer
10 months ago
Psa rise soon after surgery, help!
Writing regarding my dad. Worried and dont get any answers / just wait and see approach from medical team :( Dad 63 years old now, was diagnosed with prostate cancer october 2022. 2 small tumors 5x3 mm was shown on MR, no spread shown there. Biopsy showed gleason 3+4 ( 4 was 40%). Ralp surgery robotic
Writing regarding my dad. Worried and dont get any answers / just wait and see approach from medical team :( Dad 63 years old now, was diagnosed with prostate cancer october 2022. 2 small tumors 5x3 mm was shown on MR, no spread shown there. Biopsy showed gleason 3+4 ( 4 was 40%). Ralp surgery robotic
Daddysgirl83
in
Fight Prostate Cancer
10 months ago
QoL Rest Ye Merry Gentlemen/women :-)
https://youtu.be/HGVNzgUxE-g?si=xy8PUcVuFg__Q7ym
JOY Alert
!! Tis the Season... I "borrowed" the above from the Web, printed them up as photos at Walgreens and mailed them to HU members to whom I mailed things before, hope they arrived. HMU if you want one 😁 or just copy the image Here are
https://youtu.be/HGVNzgUxE-g?si=xy8PUcVuFg__Q7ym
JOY Alert
!! Tis the Season... I "borrowed" the above from the Web, printed them up as photos at Walgreens and mailed them to HU members to whom I mailed things before, hope they arrived. HMU if you want one 😁 or just copy the image Here are
dockam
in
Advanced Prostate Cancer
6 months ago
happy holidays …. And a quick update
Just a quick note to wish all the warriors here a happy holidays with friends and family. As an update, I’m off all treatments and my psa remains <0.014. I remain grateful for the respite. My last degeralix injection and darolutamide was in May, and the SBRT to my ribs and neck about 2 years ago
Just a quick note to wish all the warriors here a happy holidays with friends and family. As an update, I’m off all treatments and my psa remains <0.014. I remain grateful for the respite. My last degeralix injection and darolutamide was in May, and the SBRT to my ribs and neck about 2 years ago
PGDuan
in
Advanced Prostate Cancer
6 months ago
Hypo book recommendations please UK
Hi, please can someone recommend a book to start to understand likely hypothyroidism? A UK publication please. I joined yesterday and am just trying to get my head around it all. I have lots of symptoms and my TSH is creeping up with TS4 and especially TS3 scratching the bottom of the normal range
Hi, please can someone recommend a book to start to understand likely hypothyroidism? A UK publication please. I joined yesterday and am just trying to get my head around it all. I have lots of symptoms and my TSH is creeping up with TS4 and especially TS3 scratching the bottom of the normal range
Fizzwhizz
in
Thyroid UK
6 months ago
Radiation PSA, Orgovyx, Bone density
Rouge clone radiation on 10/31/23 has PSA continuing to drop to 0.85. MO plans to monitor PSA before requesting PSMA scan (insurance) unless it is increasing. Considering switch from Eligard to Orgovyx if PSA looks good in early Feb since Orgovyx apparently has less severe SE and doesn't tie me to
Rouge clone radiation on 10/31/23 has PSA continuing to drop to 0.85. MO plans to monitor PSA before requesting PSMA scan (insurance) unless it is increasing. Considering switch from Eligard to Orgovyx if PSA looks good in early Feb since Orgovyx apparently has less severe SE and doesn't tie me to
alperk
in
Advanced Prostate Cancer
6 months ago
A question on 'high' dosage
So I'm currently on 150mcg of levo and 30mcg T3 and my latest results were still only 65% and 62% respectively. I've just started HRT so I may well continue to see improvements but I'm curious about my dosing. I'm 6'1" and roughly 65kg so I'm on the cusp of underweight. I know we need what we need
So I'm currently on 150mcg of levo and 30mcg T3 and my latest results were still only 65% and 62% respectively. I've just started HRT so I may well continue to see improvements but I'm curious about my dosing. I'm 6'1" and roughly 65kg so I'm on the cusp of underweight. I know we need what we need
WitchingHour2point0
in
Thyroid UK
6 months ago
1
...
58
59
60
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Advanced Prostate Cancer
4412 results
Thyroid UK
2405 results
Endometriosis UK
1878 results
View top 10 communities
Sort by
Most Relevant
Newest