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For patients with GCA vasculitis
Dear fellow vascies, can I ask you to complete this very short survey?
I know that PMR causes fatigue as well, but please only do the survey if you are diagnosed with GCA.
The aim of this project is to explore and discover how individuals with vasculitis, manage with fatigue in everyday life
Dear fellow vascies, can I ask you to complete this very short survey?
I know that PMR causes fatigue as well, but please only do the survey if you are diagnosed with GCA.
The aim of this project is to explore and discover how individuals with vasculitis, manage with fatigue in everyday life
zoe69
in
PMRGCAuk
6 months ago
Dry mouth
Thank you all for the sugg for coping with dry mouth and throat. Lots to choose from. I will try the sugar free chewing gum and Boots throat spray. I also have dry eyes and use a gel prescribed from the GP. I will ask to be checked for diabeties. All your help is much appreciated.
Thank you all for the sugg for coping with dry mouth and throat. Lots to choose from. I will try the sugar free chewing gum and Boots throat spray. I also have dry eyes and use a gel prescribed from the GP. I will ask to be checked for diabeties. All your help is much appreciated.
veggiefan70
in
Fibromyalgia Action UK
6 months ago
B6 - advice
I’m confused about B6. is the advice with Co-Careldopa not to take, at all. Or to take after Co-Careldopa has been absorbed. my recent blood tests showed me deficient in B6. thanks
I’m confused about B6. is the advice with Co-Careldopa not to take, at all. Or to take after Co-Careldopa has been absorbed. my recent blood tests showed me deficient in B6. thanks
Nb11
in
Cure Parkinson's
6 months ago
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Angular Cheilitis?
Just wondering if anyone suffers from Angular Cheilitis with their RA keep getting it and mentioning to the GP but he just ignored it. I've had my B12 checked and it was ok. I've read sulfasalazine can cause it. I'm also on Benepali jab once a week. Ive also read it could be folate levels but I think
Just wondering if anyone suffers from Angular Cheilitis with their RA keep getting it and mentioning to the GP but he just ignored it. I've had my B12 checked and it was ok. I've read sulfasalazine can cause it. I'm also on Benepali jab once a week. Ive also read it could be folate levels but I think
Haz58
in
NRAS
2 months ago
Rainbows in the morning
Hello all, I have my next appointment with the consultant at the hospital on the 28th November. I have been on various eye drops, tablets since my iridotomy… 1st one in November 2022 and then an enlargement in March due the original holes sealing over. Since then my pressure has been on the high side
Hello all, I have my next appointment with the consultant at the hospital on the 28th November. I have been on various eye drops, tablets since my iridotomy… 1st one in November 2022 and then an enlargement in March due the original holes sealing over. Since then my pressure has been on the high side
KBIOW
in
Glaucoma UK
6 months ago
Low BP Meds With Doxazosin
Hi Everyone.Currently taking Perindoprol and Bisoprolol every morning for BP. Any thoughts on adding the 12mg Doxazosin to the above in the mornings as well?
Hi Everyone.Currently taking Perindoprol and Bisoprolol every morning for BP. Any thoughts on adding the 12mg Doxazosin to the above in the mornings as well?
Ilovemuesli
in
High Blood Pressure Support
6 months ago
Bloodshot eyes
I've accidentally got shampoo in my dry eyes and made them bloodshot I'm really fatigued today and yesterday
I've accidentally got shampoo in my dry eyes and made them bloodshot I'm really fatigued today and yesterday
Oldbloke1
in
PBC Foundation
6 months ago
Bad urgency with little result
Hi all, I have Proctitis and IBS.My IBS has severely flared up this week,I have not been for a poo for 5 days. ive been experiencing really bad urgency but only the size of my little finger watery poo comes out and causing pain in my bum. Im on Biscopyl and Pentasa suppositories for inflammation. Can
Hi all, I have Proctitis and IBS.My IBS has severely flared up this week,I have not been for a poo for 5 days. ive been experiencing really bad urgency but only the size of my little finger watery poo comes out and causing pain in my bum. Im on Biscopyl and Pentasa suppositories for inflammation. Can
AGB111
in
IBS Network
2 months ago
Berberine and Levothyroxine
Hi This is my first post. I was wondering if anyone could give me advice about taking berberine with levothyroxine. I am currently taking 100mcg of levo daily. About 2 years ago I was diagnosed with Type 2 diabetes which I try and control with a low carb diet. However my blood sugar seems to be rising
Hi This is my first post. I was wondering if anyone could give me advice about taking berberine with levothyroxine. I am currently taking 100mcg of levo daily. About 2 years ago I was diagnosed with Type 2 diabetes which I try and control with a low carb diet. However my blood sugar seems to be rising
treeflower1954
in
Thyroid UK
6 months ago
walking around for three hours
my urogynaecologist has put me on 10 mg amitriptyline every night. I started it yesterday. I was staggering around for three hours. My left leg and foot were jumping with rls. I am also on 900 mg of gabapenguin and 20 mg of fluoxetine. I believe the fluoxetine and amitriptyline are making my rls much
my urogynaecologist has put me on 10 mg amitriptyline every night. I started it yesterday. I was staggering around for three hours. My left leg and foot were jumping with rls. I am also on 900 mg of gabapenguin and 20 mg of fluoxetine. I believe the fluoxetine and amitriptyline are making my rls much
purple-flowers
in
Restless Legs Syndrome
6 months ago
Bolt's Failed Pickle Experiment (Lectins) :(
First off, for those who don't know me, I have NOT been diagnosed with PD
. I was diagnosed with REM Sleep Behavior Disorder back in April 21, which the experts say will lead to PD or something worse. When I was diagnosed I did have some other odd symptoms. Mild balance issues, Seborrheic dermatitis
First off, for those who don't know me, I have NOT been diagnosed with PD
. I was diagnosed with REM Sleep Behavior Disorder back in April 21, which the experts say will lead to PD or something worse. When I was diagnosed I did have some other odd symptoms. Mild balance issues, Seborrheic dermatitis
Bolt_Upright
in
Cure Parkinson's
6 months ago
Vertigo
Had anyone suffered vertigo since thyroid removal? Vestibular migraine? I'm bed bound and full of anxiety
Had anyone suffered vertigo since thyroid removal? Vestibular migraine? I'm bed bound and full of anxiety
Contra21
in
Thyroid UK
6 months ago
PALB2 genetic defect-Lynparza
I have PALB2 genetic defect. Just completed six cycles of Taxotere as part of triple therapy (chemo, Nubeqa and ADT) for about 20 Mets (PSMA scan) mostly skeletal (no organs). Only four Mets still lit up on PSMA scan after four cycles of chemo/Lupron/Nubeqa. Next PSMA scan in Jan. 2024. Oncologist recommends
I have PALB2 genetic defect. Just completed six cycles of Taxotere as part of triple therapy (chemo, Nubeqa and ADT) for about 20 Mets (PSMA scan) mostly skeletal (no organs). Only four Mets still lit up on PSMA scan after four cycles of chemo/Lupron/Nubeqa. Next PSMA scan in Jan. 2024. Oncologist recommends
Azores1
in
Advanced Prostate Cancer
6 months ago
shift work
Hi all, so glad I found this group.Diagnosed 10 years ago and have always worked night shifts, I’m now being told I must work 12 hour days (7-7.30)as well even though occupational health advise nights only, stiffness and pain in the mornings make it impossible to be anywhere for 7am in the morning, nevermind
Hi all, so glad I found this group.Diagnosed 10 years ago and have always worked night shifts, I’m now being told I must work 12 hour days (7-7.30)as well even though occupational health advise nights only, stiffness and pain in the mornings make it impossible to be anywhere for 7am in the morning, nevermind
Nitenurse63
in
NRAS
2 months ago
jaundice
Just a quick question. Is Jaundice always present in worsening of Liver/cholestatic problems?
Just a quick question. Is Jaundice always present in worsening of Liver/cholestatic problems?
MrMidnight2021
in
British Liver Trust
6 months ago
Palliative care, does it still exist?
I saw a consultant , for the first time since well before lockdown, on the 14th September. I'd never met him before but he was really great. He'd obviously read my notes as he asked about all my conditions, osteoporosis, swollen legs etc. He said my lung condition is now too far gone to put me through
I saw a consultant , for the first time since well before lockdown, on the 14th September. I'd never met him before but he was really great. He'd obviously read my notes as he asked about all my conditions, osteoporosis, swollen legs etc. He said my lung condition is now too far gone to put me through
wheezyof
in
Lung Conditions Community Forum
6 months ago
Amlodipine
Hello everyone, I realise this may not be relevant on this site, but I’ve been struggling with palpitations and anxiety for a few months. I had put this down (see previous posts) to the adrenals not wanting to play ball after their nice long holiday, due to Pred, but it suddenly dawned on me that this
Hello everyone, I realise this may not be relevant on this site, but I’ve been struggling with palpitations and anxiety for a few months. I had put this down (see previous posts) to the adrenals not wanting to play ball after their nice long holiday, due to Pred, but it suddenly dawned on me that this
Mrsd12f
in
PMRGCAuk
6 months ago
Rectal prolapse - Constipation. Laxido
Hello. I have a rectal prolapse - like a tomato which comes outside my body. I get constipated and been given laxido. It was working well, but I am now getting liquid which bypasses my prolapse. I took the last one six days ago. I have soft motions and now this liquid. I also have a leaking bladder so
Hello. I have a rectal prolapse - like a tomato which comes outside my body. I get constipated and been given laxido. It was working well, but I am now getting liquid which bypasses my prolapse. I took the last one six days ago. I have soft motions and now this liquid. I also have a leaking bladder so
briarhillcat
in
IBS Network
2 months ago
Simvastatin v Atorvastatin
Just had a conversation with my Surgery employed Pharmacist. she asked me if I would object to switching from Simvastatin to Atorvastatin as the Simvastatin was rather an old drug. I was put on it around 2007. I told her to go ahead ... no problems. The following quote is what I found during an ultra
Just had a conversation with my Surgery employed Pharmacist. she asked me if I would object to switching from Simvastatin to Atorvastatin as the Simvastatin was rather an old drug. I was put on it around 2007. I told her to go ahead ... no problems. The following quote is what I found during an ultra
BenHall1
in
Atrial Fibrillation Support
6 months ago
cochlear implants
Hello , I have been away from the tInnitus group but thought I would just put a message out there . I have had really bad tinnitus for 7 years now as a result of a grommet being put in my ear. I have had 8 operations on my ear …a grommet put in and out twice , a stapadectomy ( bone removed) and I am
Hello , I have been away from the tInnitus group but thought I would just put a message out there . I have had really bad tinnitus for 7 years now as a result of a grommet being put in my ear. I have had 8 operations on my ear …a grommet put in and out twice , a stapadectomy ( bone removed) and I am
1Dar
in
Tinnitus UK
6 months ago
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