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When To End An ADT Holiday
Just had a lengthy conversation with my MD Anderson MO who agrees with my Houston Methodist MO, i.e., it’s probably better, after an ADT holiday, to allow PSA to reach 0.5 so a PSMA scan can be used to identify any metastices, then zap the met(s), then go back on ADT to put the cancer back into remission
Just had a lengthy conversation with my MD Anderson MO who agrees with my Houston Methodist MO, i.e., it’s probably better, after an ADT holiday, to allow PSA to reach 0.5 so a PSMA scan can be used to identify any metastices, then zap the met(s), then go back on ADT to put the cancer back into remission
6357axbz
in
Advanced Prostate Cancer
6 months ago
simple ovarian cyst and cystic echotecture of the endometrium
hi had a ultrasound on my abdomen in November 22 as had a a lot of pain in belly and low pelvic area, also blood wiped from bowel end, also had bloating & urgency to run and pee and a lot of pelvic pain spreading all over my belly, just got constant water bottle on it to help ease the pain, but still
hi had a ultrasound on my abdomen in November 22 as had a a lot of pain in belly and low pelvic area, also blood wiped from bowel end, also had bloating & urgency to run and pee and a lot of pelvic pain spreading all over my belly, just got constant water bottle on it to help ease the pain, but still
Nat107
in
My Ovacome
9 months ago
Extra heart beats - should I pursue this?
HiI have on going palpitations. They are partly what drove me to gp in 2019 when I was diagnosed. They are better than they were. I take 100/15. I have found They are less when I take my t3 all in one go. I am about to start trial of hrt. (I have a second post). The doctor sent me for an ECG. This
HiI have on going palpitations. They are partly what drove me to gp in 2019 when I was diagnosed. They are better than they were. I take 100/15. I have found They are less when I take my t3 all in one go. I am about to start trial of hrt. (I have a second post). The doctor sent me for an ECG. This
BiscuitBaby
in
Thyroid UK
6 months ago
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HRT - does it take effect quickly?
Hi For those of you on hrt do you feel the difference quickly or is it slow like levo? I am just about to start a trial of oestrogen patches and progesterone tablets. I still have regular periods but have on going fatigue and muscle aches, palpitations etc. Gp thinks it's because I'm perimenopausal.
Hi For those of you on hrt do you feel the difference quickly or is it slow like levo? I am just about to start a trial of oestrogen patches and progesterone tablets. I still have regular periods but have on going fatigue and muscle aches, palpitations etc. Gp thinks it's because I'm perimenopausal.
BiscuitBaby
in
Thyroid UK
6 months ago
Financial Assessment what to charge for rent?
I have to do a self assessment for my son who lives at home with us, he is 27 He gets PIP and this is what we use for food, bills ect On the form it asks about contribution to rent, we have no mortgage but should we be charging him a deb and board? if so what should i put down as a fair amount?
I have to do a self assessment for my son who lives at home with us, he is 27 He gets PIP and this is what we use for food, bills ect On the form it asks about contribution to rent, we have no mortgage but should we be charging him a deb and board? if so what should i put down as a fair amount?
sammyg50
in
Mencap
9 months ago
Stopped taking NDT thyroid
Hello, could you share your experiences if you tried stopping thyroid hormone replacement? I was on NDT for years, developed hyperthyroid symptoms +very low TSH (normal ft3 and ft4), had heart arrythmia and high blood pressure, lost a lot of hair. Taking NDT didn't help with my weight problems or other
Hello, could you share your experiences if you tried stopping thyroid hormone replacement? I was on NDT for years, developed hyperthyroid symptoms +very low TSH (normal ft3 and ft4), had heart arrythmia and high blood pressure, lost a lot of hair. Taking NDT didn't help with my weight problems or other
Monika4
in
Thyroid UK
6 months ago
TRT Causing Breast Enlargement
Has anyone on this site experienced breast enlargement while on TRT? Just curious as to how common this is. Am considering it because two years after ADT. (18 months Lupron and Bicalutamide) my T level is 66, PSA .28.
Has anyone on this site experienced breast enlargement while on TRT? Just curious as to how common this is. Am considering it because two years after ADT. (18 months Lupron and Bicalutamide) my T level is 66, PSA .28.
Jack54
in
Advanced Prostate Cancer
6 months ago
coming off prostap
hi i had a Prostap injection 7 weeks ago for a pre op (which I didn’t have) I really did t get on well with it. Very very depressed mood and terrible anxiety, insomnia and crushing headaches. Also lost my appetite. I’ve never felt so poorly before :-( it was scary. Especially the mental health side
hi i had a Prostap injection 7 weeks ago for a pre op (which I didn’t have) I really did t get on well with it. Very very depressed mood and terrible anxiety, insomnia and crushing headaches. Also lost my appetite. I’ve never felt so poorly before :-( it was scary. Especially the mental health side
Lothead01
in
Endometriosis UK
7 months ago
Where to get Orgovyx?
Starting SBRT , likely next week with ADT starting at the time. I got my doc to prescribe Orgovyx rather than Lupron. On Medicare with Part D. Turns out Walgreens and Walmart cannot get Orgovyx. CVS said they could route it through a specialty pharmacy but could take 4 weeks. How have those of you taking
Starting SBRT , likely next week with ADT starting at the time. I got my doc to prescribe Orgovyx rather than Lupron. On Medicare with Part D. Turns out Walgreens and Walmart cannot get Orgovyx. CVS said they could route it through a specialty pharmacy but could take 4 weeks. How have those of you taking
ToolBeltZia
in
Prostate Cancer Network
7 months ago
Life Changing
Hi, this is my first time posting although I have been reading everyone's posts for weeks. Somehow it feels more real now I am writing about it! My husband was diagnosed with Alzheimer's in Dec 2021 at the age of 60. Over the last year other symptom's started to present, slow blinking, choking when
Hi, this is my first time posting although I have been reading everyone's posts for weeks. Somehow it feels more real now I am writing about it! My husband was diagnosed with Alzheimer's in Dec 2021 at the age of 60. Over the last year other symptom's started to present, slow blinking, choking when
Old_Hall
in
PSP Association
11 months ago
Let's change the way we're treated by adding metabolic therapy to SOC
Some good recent videos on a subject Dr. Thomas Seyfried: https://youtu.be/u2s6z37YIzM?si=UXIhw6X4T0nPwAyV PCa specific discussion on the same: https://youtu.be/RbrX_ZrYxJg?si=wTRoC7-f2N6RDTY0 I must add: I've been on low-carb diet (Atkins) since 1999 and recently (August of this year) started
Some good recent videos on a subject Dr. Thomas Seyfried: https://youtu.be/u2s6z37YIzM?si=UXIhw6X4T0nPwAyV PCa specific discussion on the same: https://youtu.be/RbrX_ZrYxJg?si=wTRoC7-f2N6RDTY0 I must add: I've been on low-carb diet (Atkins) since 1999 and recently (August of this year) started
TryGuyCP
in
Advanced Prostate Cancer
7 months ago
help with Perimenopause anxiety/ depression
Hi has anyone found relief with their anxiety and depression using HRT. I’m feeling so desperate with many symptoms but these two are taking me over and a black cloud is following me everywhere. I’m on sertraline 100mg daily been on it a long time upping and downing the dosage. I was on 200mg last year
Hi has anyone found relief with their anxiety and depression using HRT. I’m feeling so desperate with many symptoms but these two are taking me over and a black cloud is following me everywhere. I’m on sertraline 100mg daily been on it a long time upping and downing the dosage. I was on 200mg last year
Junkjournal1
in
Menopause and Perimenopause Support
7 months ago
1, 3 or 6 month ADT?
Originally, after a prostatectomy and 40 radiation treatments, I had a one month shot of Lupron followed by a six month shot of Lupron. My PSA went to undetectable. Seven years later my PSA crept up to seven and I was put on a monthly shot of Firmagon for life. My PSA is again undetectable and all scans
Originally, after a prostatectomy and 40 radiation treatments, I had a one month shot of Lupron followed by a six month shot of Lupron. My PSA went to undetectable. Seven years later my PSA crept up to seven and I was put on a monthly shot of Firmagon for life. My PSA is again undetectable and all scans
epfj3333
in
Advanced Prostate Cancer
7 months ago
Doggit - has anyone had huge problem with bloating when on HRT? Have been on bio identical and recently changed to Body identical.
has anyone had problems with bloating when taking HRT? Was on bio identical
has anyone had problems with bloating when taking HRT? Was on bio identical
doggit
in
LUPUS UK
7 months ago
Birth control pill for hot flashes and feeling hot all the time?
Has anyone ever used the birth control pill instead of HRT to get rid of hot flashes and feeling hot all the time? Did it work? My body is not producing any estrogen due to being anorexic and so I was given the HRT estrogen patch(0.075mg)to take away the symptoms of feeling hot and hot flashes and it's
Has anyone ever used the birth control pill instead of HRT to get rid of hot flashes and feeling hot all the time? Did it work? My body is not producing any estrogen due to being anorexic and so I was given the HRT estrogen patch(0.075mg)to take away the symptoms of feeling hot and hot flashes and it's
Hidden
in
Women's Health
7 months ago
Birth control pill for hot flashes?
Has anyone here ever taken the Birth control pill to get rid of hot flashes and did it work? I have NO estrogen in my body due to being anorexic. So I am taking HRT estrogen patch(0.075mg) right now and it's not working 2and a half weeks in so I am wondering if maybe the birth control pill would work
Has anyone here ever taken the Birth control pill to get rid of hot flashes and did it work? I have NO estrogen in my body due to being anorexic. So I am taking HRT estrogen patch(0.075mg) right now and it's not working 2and a half weeks in so I am wondering if maybe the birth control pill would work
Hidden
in
Menopause and Perimenopause Support
7 months ago
Big decsions regarding SRT/ADT due to BCR post RP
My husband was had a robotic radical prostatectomy 1/2019 with no major complications or side effects. Gleason 4+3, negative margins and no positive lymph nodes. There was cribiform invasion of a nerve but all margins of the prostate and 0/13 LN were negative after surgery. His post surgical PSA was
My husband was had a robotic radical prostatectomy 1/2019 with no major complications or side effects. Gleason 4+3, negative margins and no positive lymph nodes. There was cribiform invasion of a nerve but all margins of the prostate and 0/13 LN were negative after surgery. His post surgical PSA was
shihtzu124
in
Advanced Prostate Cancer
7 months ago
Big decisions regarding SRT and ADT for BCR
My husband was had a robotic radical prostatectomy 1/2019 with no major complications or side effects. Gleason 4+3, negative margins and no positive lymph nodes. There was cribiform invasion of a nerve but all margins of the prostate and 0/13 LN were negative after surgery. His post surgical PSA was
My husband was had a robotic radical prostatectomy 1/2019 with no major complications or side effects. Gleason 4+3, negative margins and no positive lymph nodes. There was cribiform invasion of a nerve but all margins of the prostate and 0/13 LN were negative after surgery. His post surgical PSA was
shihtzu124
in
Prostate Cancer Network
7 months ago
Dig the low, low, low, low, lowdown! PSA Update 💙
https://youtu.be/CWW6DRscQIc?si=61otmpzO3ugAJB0D 1.7 Woo Hoo😂🤙 The lowest PSA since 01/2018 @1.3 (552.2, 633, 840.2 in 2014) 39 chemos & 28 IMRT radiation sessions What a crazy 9 yr Rollercoaster Long Strange trip it's been 🤣 I ain't complaining Ain't Misbehavin, Stormy Weather on the
https://youtu.be/CWW6DRscQIc?si=61otmpzO3ugAJB0D 1.7 Woo Hoo😂🤙 The lowest PSA since 01/2018 @1.3 (552.2, 633, 840.2 in 2014) 39 chemos & 28 IMRT radiation sessions What a crazy 9 yr Rollercoaster Long Strange trip it's been 🤣 I ain't complaining Ain't Misbehavin, Stormy Weather on the
dockam
in
Advanced Prostate Cancer
4 months ago
PSA Doubled in 2 Months
PSA end of August was 0.12 now 0.24. I met with 2 ROs to discuss treatment when my PSA was 0.20 a week ago . One suggested ADT 18-24 months and prostate bed radiation. Second RO says we can avoid ADT for now as he sees 0.70 as the value he believes requires ADT. I'm scheduled for F18 PSMA scan in early
PSA end of August was 0.12 now 0.24. I met with 2 ROs to discuss treatment when my PSA was 0.20 a week ago . One suggested ADT 18-24 months and prostate bed radiation. Second RO says we can avoid ADT for now as he sees 0.70 as the value he believes requires ADT. I'm scheduled for F18 PSMA scan in early
NJWarrior
in
Advanced Prostate Cancer
7 months ago
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