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Switching from Lupron to Ogovyx
Has anyone here switched to Orgovyx (relugolix) pills from Lupron shots? Is it advisable to do so? Is there a huge cost differential?
Has anyone here switched to Orgovyx (relugolix) pills from Lupron shots? Is it advisable to do so? Is there a huge cost differential?
roboocme
in
Advanced Prostate Cancer
8 months ago
My story of my 23 year battle with Pca.
I have decided to share this with the group because yesterday a guy shared his fear. In no way should you take any of this as a suggestion for treatment or refusal of treatment. I was diagnosed with Pca Gleason 3+3 July 13 2000 ar the age of 49. When the Dr. gave me the results I started sweating profusely
I have decided to share this with the group because yesterday a guy shared his fear. In no way should you take any of this as a suggestion for treatment or refusal of treatment. I was diagnosed with Pca Gleason 3+3 July 13 2000 ar the age of 49. When the Dr. gave me the results I started sweating profusely
Professorgary
in
Advanced Prostate Cancer
8 months ago
ADT (Lupron) and creatine?
57 yo Swede here. Diagnosed nine months ago 4+3. I am on Lupron after RALP (unclear margins) and 35 times ERBT. I do serious weight training and supplement with Whey protein. I am curious about creatine supplement. intake. Is it safe? I have not read anything against, but nothing that makes me feel totally
57 yo Swede here. Diagnosed nine months ago 4+3. I am on Lupron after RALP (unclear margins) and 35 times ERBT. I do serious weight training and supplement with Whey protein. I am curious about creatine supplement. intake. Is it safe? I have not read anything against, but nothing that makes me feel totally
Gs-rider
in
Advanced Prostate Cancer
8 months ago
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Hypofractionated SBRT for Prostate,local and distant nodes
Hi all I am happy with my MO and treatment at Kaiser, 3 months on Lupron then added abiraterone 1 month ago. Responsive PSA, started at 300, after 1 month 33 after 3 months 1. I’m oligometastatic with local and retropineal lymph nodes. 2nd opinion from UCSF Medical oncologist suggested I do prostate
Hi all I am happy with my MO and treatment at Kaiser, 3 months on Lupron then added abiraterone 1 month ago. Responsive PSA, started at 300, after 1 month 33 after 3 months 1. I’m oligometastatic with local and retropineal lymph nodes. 2nd opinion from UCSF Medical oncologist suggested I do prostate
pj1121
in
Advanced Prostate Cancer
8 months ago
degarelix v/s eligard "lupron"
my baseline psa was1316 with a elevated alkaline phosphatase of 270 12/2021 , on 01/13/2021 my psa had risen to 1665 to avoid a further psa spike I was given a loading dose of 240 mg of degarelix followed by 80 mg every 28 days for 18months then for 3 mouths this last summer a three month dose of
my baseline psa was1316 with a elevated alkaline phosphatase of 270 12/2021 , on 01/13/2021 my psa had risen to 1665 to avoid a further psa spike I was given a loading dose of 240 mg of degarelix followed by 80 mg every 28 days for 18months then for 3 mouths this last summer a three month dose of
yardsailor
in
Advanced Prostate Cancer
8 months ago
Asking for best guess info
As I've written, my husband stopped all treatment this past July after Lupron/Xtandi were causing worsening SEs while PSA was doubling/tripling from undetectable. He's now receiving palliative care and just had his first comprehensive bloodwork since the MO's on June 30. At that time his PSA registered
As I've written, my husband stopped all treatment this past July after Lupron/Xtandi were causing worsening SEs while PSA was doubling/tripling from undetectable. He's now receiving palliative care and just had his first comprehensive bloodwork since the MO's on June 30. At that time his PSA registered
Shamrock46
in
Advanced Prostate Cancer
8 months ago
beta sitosterol
Just ordered some beta sitosterol and fenbendazole. Coupling these with Ivermectin, melatonin , Lupron and abiraterone. Anyone with any success with these?
Just ordered some beta sitosterol and fenbendazole. Coupling these with Ivermectin, melatonin , Lupron and abiraterone. Anyone with any success with these?
Nowhereman9
in
Advanced Prostate Cancer
8 months ago
Update on PSA
Aug 4 - diagnosed PCa, gleason 9 Aug 5 - started casodex Aug 17 - started lupron 3 mth Had my first blood work done yesterday (Oct 5) and PSA is now at 0.56. Was over 9 in June. So, I kind of feel good in knowing that as expected the meds are working and lowering PSA. Meaning I can move forward
Aug 4 - diagnosed PCa, gleason 9 Aug 5 - started casodex Aug 17 - started lupron 3 mth Had my first blood work done yesterday (Oct 5) and PSA is now at 0.56. Was over 9 in June. So, I kind of feel good in knowing that as expected the meds are working and lowering PSA. Meaning I can move forward
Yzinger
in
Advanced Prostate Cancer
8 months ago
Castration resistant in just a year? Normal or not? Provenge in my future.
I'm already "mildly symptomatic castration resistant." PSA tripled in the last 30 days (but still extremely low), after doubling in the prior 3 months. I was diagnosed with stage 4b (mets in multiple bones and nodes) ductal and started ADT 13 months ago. Nubeqa and Docetaxel (Triplet therapy) started
I'm already "mildly symptomatic castration resistant." PSA tripled in the last 30 days (but still extremely low), after doubling in the prior 3 months. I was diagnosed with stage 4b (mets in multiple bones and nodes) ductal and started ADT 13 months ago. Nubeqa and Docetaxel (Triplet therapy) started
Gl448
in
Advanced Prostate Cancer
9 months ago
Lynparza/ Olaparib
Hi everyone- after my dad met with his oncologist regarding the mild progression he had- he will be switching to Lynparza/ Olaparib for the BRCA2 gene. He was on Ibrance, Letrozole, and Lupron for 15/16 months started in June of 2022, but she feels it is time for a switch. Anyone that has words of
Hi everyone- after my dad met with his oncologist regarding the mild progression he had- he will be switching to Lynparza/ Olaparib for the BRCA2 gene. He was on Ibrance, Letrozole, and Lupron for 15/16 months started in June of 2022, but she feels it is time for a switch. Anyone that has words of
Jenniferp2122
in
SHARE Metastatic Breast Cancer
9 months ago
Possible Cure
Hi, I was diagnosed initially 2 years ago as Stage 4 with mets to the bones. Low volume. Gleason 8-9, PSA less than 2 from the onset. I had radiation to the prostate only. After 2 years of Lupron/Zytiga, everything has shrunk or disappeared via PSMA PET. Everything has been good,(but with med
Hi, I was diagnosed initially 2 years ago as Stage 4 with mets to the bones. Low volume. Gleason 8-9, PSA less than 2 from the onset. I had radiation to the prostate only. After 2 years of Lupron/Zytiga, everything has shrunk or disappeared via PSMA PET. Everything has been good,(but with med
groth12345
in
Advanced Prostate Cancer
9 months ago
Lupron
My daughter is going to be put on this drug for uterine fibroids and potential endometriosis for a period of 7 months and then we'll have surgery for hysterectomy. She is very concerned about the side effects of this medication and I'm wondering if anyone on here has had experience using this medication
My daughter is going to be put on this drug for uterine fibroids and potential endometriosis for a period of 7 months and then we'll have surgery for hysterectomy. She is very concerned about the side effects of this medication and I'm wondering if anyone on here has had experience using this medication
Nature4Me
in
Endometriosis UK
9 months ago
Feeling very hopeless at this point.
My husband was diagnosed in 2011 at age 52, gleason 8, 11 of 12 cores positive. We went for many many 2nd opinions, surgery or radiation? finally chose radiation as all doctors said it had spread already and would need radiation anyway after surgery. Treated with Snuffy Myers in Virginia until his
My husband was diagnosed in 2011 at age 52, gleason 8, 11 of 12 cores positive. We went for many many 2nd opinions, surgery or radiation? finally chose radiation as all doctors said it had spread already and would need radiation anyway after surgery. Treated with Snuffy Myers in Virginia until his
Judymin
in
Advanced Prostate Cancer
9 months ago
right knee replacement
It’s been a slow trip fighting arthritis on top of recurring PCA. Still on a Lupron vacation. Osteopenia cleared up after 21 months with only bicalutamide, T rose to 226, and PSA has stayed less than 0.1. I finally have a new knee! It‘s painful but every night is a bit better than the night before
It’s been a slow trip fighting arthritis on top of recurring PCA. Still on a Lupron vacation. Osteopenia cleared up after 21 months with only bicalutamide, T rose to 226, and PSA has stayed less than 0.1. I finally have a new knee! It‘s painful but every night is a bit better than the night before
kreg001
in
Advanced Prostate Cancer
9 months ago
4 Consecutive Rises in PSA. Still low but perhaps time to move on? HELP, I'm only 59
DX 4 1/2 years ago. Been on Lupron and Deraludimide for 4 1/2 years. PSA has risen from .014 to .037 in 4 months. 4 consecutive rises. I test every 30 days. I had bone mets and lymph node involvement. Any thoughts on next treatment? Try Xandi? Move to Pluvicto? Help i have 3 young kids.
DX 4 1/2 years ago. Been on Lupron and Deraludimide for 4 1/2 years. PSA has risen from .014 to .037 in 4 months. 4 consecutive rises. I test every 30 days. I had bone mets and lymph node involvement. Any thoughts on next treatment? Try Xandi? Move to Pluvicto? Help i have 3 young kids.
Longterm101
in
Advanced Prostate Cancer
9 months ago
BCR May Not Be a Strong Surrogate End Point for Prostate Cancer Survival
A new study, below [1] & [2]. In 2004 I came across old studies that showed that ADT promotes changes to the androgen receptor [AR] environment. At diagnosis, the AR is invariably "wild type". When ADT failed, AR gene amplification was common. True mutations were rare. {This was sufficient for
A new study, below [1] & [2]. In 2004 I came across old studies that showed that ADT promotes changes to the androgen receptor [AR] environment. At diagnosis, the AR is invariably "wild type". When ADT failed, AR gene amplification was common. True mutations were rare. {This was sufficient for
pca2004
in
Fight Prostate Cancer
9 months ago
thoughts 🙏
hi everyone, my dad has had MBC since June of 2022. He has been on Ibrance, letrozole, lupron, and xjeva. His Mets were to bone and then he was NED for a year from June 2022 to June 2023. In July he took a PET scan and it showed a slight uptake of activity to his chest wall. Plan was to keep him on
hi everyone, my dad has had MBC since June of 2022. He has been on Ibrance, letrozole, lupron, and xjeva. His Mets were to bone and then he was NED for a year from June 2022 to June 2023. In July he took a PET scan and it showed a slight uptake of activity to his chest wall. Plan was to keep him on
Jenniferp2122
in
SHARE Metastatic Breast Cancer
9 months ago
from undetectable to 0.02
I have been undetectable for 3.25 years and today it came back at 0.02. My bio is up to date. We ran the test at the exact same lab as always and in 2 days I am flying back to my Sarasota home from Milwaukee and was wondering which lab is recommended for 2 digit accuracy? I know Labcorp only does 1
I have been undetectable for 3.25 years and today it came back at 0.02. My bio is up to date. We ran the test at the exact same lab as always and in 2 days I am flying back to my Sarasota home from Milwaukee and was wondering which lab is recommended for 2 digit accuracy? I know Labcorp only does 1
Peppertree602
in
Advanced Prostate Cancer
9 months ago
Visceral fat
how do you get rid of it? I’m almost 4 months! Is it my fault I’m predjudiced against the appearance of non exercise? where is it coming from, Lupron or abiraterone?
how do you get rid of it? I’m almost 4 months! Is it my fault I’m predjudiced against the appearance of non exercise? where is it coming from, Lupron or abiraterone?
TuffNuttoCrack
in
Advanced Prostate Cancer
9 months ago
Abiraterone SE when added to Lupron?
I am a PSA =2, low volume, oligometastic HSPC. I got my first Lupron shot 4 weeks ago. I started to get a couple hot flashes per day in the last week from the Lupron and of course I expect fatigue to kick in over the next six weeks. What additional side effects might I expect by adding the abiraterone
I am a PSA =2, low volume, oligometastic HSPC. I got my first Lupron shot 4 weeks ago. I started to get a couple hot flashes per day in the last week from the Lupron and of course I expect fatigue to kick in over the next six weeks. What additional side effects might I expect by adding the abiraterone
jackwfrench
in
Advanced Prostate Cancer
9 months ago
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