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X ray results
So I finally got a letter from the rheumatologist consultant today with my xray results. He said my lumbar spine was OK but both my hips are showing signs of osteoarthritis especially the left one and hip impingement again especially the left one. He said before he refers me to orthopaedic surgery he
So I finally got a letter from the rheumatologist consultant today with my xray results. He said my lumbar spine was OK but both my hips are showing signs of osteoarthritis especially the left one and hip impingement again especially the left one. He said before he refers me to orthopaedic surgery he
Brian1977
in
NRAS
1 year ago
bacterial infections
hello everyone. First i m happy to join this forum full on nice and precous persons. Im doing hyrimoz 40 mg every two weeks. The PSa is under control. My back that i s my problem its more flexible and no big pain. Lets arrive to the sides effects. Unfortunatly im going every month in problems with
hello everyone. First i m happy to join this forum full on nice and precous persons. Im doing hyrimoz 40 mg every two weeks. The PSa is under control. My back that i s my problem its more flexible and no big pain. Lets arrive to the sides effects. Unfortunatly im going every month in problems with
Jack72
in
NRAS
11 months ago
Darolutimide as monotherapy
I know there has been a phase 2 trial (EORTC-GUCG 1532 trial) testing the efficacy of Darolutimide as monotherapy and was wondering if anyone outside of the trial has done this. The phase 2 triall seemed to show that it could be very effective in lowering PSA. Since it doesn't actually stop testosterone
I know there has been a phase 2 trial (EORTC-GUCG 1532 trial) testing the efficacy of Darolutimide as monotherapy and was wondering if anyone outside of the trial has done this. The phase 2 triall seemed to show that it could be very effective in lowering PSA. Since it doesn't actually stop testosterone
RugbyVLS
in
Advanced Prostate Cancer
11 months ago
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On vacation!
Didn't think I would ever go on an ADT vacation. My new urologist thinks it would be a good idea since I have several SE from my MDS-RS with the worst being fatigue added to my ADT fatigue. Have been on Eligard after radiation for 3 yrs. with PSA undetectable. Am sure in my mind that the radiation
Didn't think I would ever go on an ADT vacation. My new urologist thinks it would be a good idea since I have several SE from my MDS-RS with the worst being fatigue added to my ADT fatigue. Have been on Eligard after radiation for 3 yrs. with PSA undetectable. Am sure in my mind that the radiation
SpencerBoy11
in
Advanced Prostate Cancer
11 months ago
Anomaly PSA jump of more than 25%?
Have any of you had a PSA jump (NOT 'bounce' following treatment) that was NOT a sign of recurrence after later having a PSMA-PET to verify? I am not happy with husband's doctor as I pushed to have PSMA-PET done after this jump (before this last PSA there was 6 years of stable PSA following RT w/o ADT
Have any of you had a PSA jump (NOT 'bounce' following treatment) that was NOT a sign of recurrence after later having a PSMA-PET to verify? I am not happy with husband's doctor as I pushed to have PSMA-PET done after this jump (before this last PSA there was 6 years of stable PSA following RT w/o ADT
Researcher50
in
Prostate Cancer Network
11 months ago
Alive at Five
Dx Stage IV metastatic PCa with distant metastices to bones and para-aortic lymph node string on July 2, 2018. Still HS and on a year + medication holiday, PSA undetectable. Initially told I had 18 months to live! ๐
Dx Stage IV metastatic PCa with distant metastices to bones and para-aortic lymph node string on July 2, 2018. Still HS and on a year + medication holiday, PSA undetectable. Initially told I had 18 months to live! ๐
6357axbz
in
Advanced Prostate Cancer
11 months ago
Pain and rheumatoid arthritis
Has anyone had a stiff neck wih rheumatoid arthritis for the last week my neck has been stiff at the moment I have a flare in my hands and shoulders,
Has anyone had a stiff neck wih rheumatoid arthritis for the last week my neck has been stiff at the moment I have a flare in my hands and shoulders,
Indersisive71
in
NRAS
1 year ago
Docetaxel Update
Hi Gents, I assume this is SOC. I always have a blood draw one day prior to my chemo infusion. Prior to starting Docetaxel, my PSA was 23.6; after 3 rounds, my PSA is 10.7; a decline of 12.9! Yes, the SE are BAD. I have lost all of my hair. My fingernails are discolored, lifting off and sore. I have
Hi Gents, I assume this is SOC. I always have a blood draw one day prior to my chemo infusion. Prior to starting Docetaxel, my PSA was 23.6; after 3 rounds, my PSA is 10.7; a decline of 12.9! Yes, the SE are BAD. I have lost all of my hair. My fingernails are discolored, lifting off and sore. I have
MJCA
in
Advanced Prostate Cancer
11 months ago
Dose titration for CRPC
Hi For those of us who question why we should recieve the Maximum Tolerated Dose as opposed to a Minimum Effective Dose, the work of the Moffitt among others is of great interest. In the following paper upward dose titration is of particular interest to me as I try to workout how to navigate my CRPC
Hi For those of us who question why we should recieve the Maximum Tolerated Dose as opposed to a Minimum Effective Dose, the work of the Moffitt among others is of great interest. In the following paper upward dose titration is of particular interest to me as I try to workout how to navigate my CRPC
Rickytarr
in
Fight Prostate Cancer
11 months ago
Lupron only after 4.5+ years
I was diagnosed with multiple Mets in August 2018. Started Lupron Nov. 2018. Over the years PSA has bounced up and down from low of 0.5 in March 2021 to high of 1.4 in June 2020. Mostly stayed 0.6 to 0.9. Ended 2022 at .67, but last two readings were 1.01 in March and .98 two days ago. Never had RP,
I was diagnosed with multiple Mets in August 2018. Started Lupron Nov. 2018. Over the years PSA has bounced up and down from low of 0.5 in March 2021 to high of 1.4 in June 2020. Mostly stayed 0.6 to 0.9. Ended 2022 at .67, but last two readings were 1.01 in March and .98 two days ago. Never had RP,
dhccpa
in
Advanced Prostate Cancer
11 months ago
Appetite and taste
Red meat......I cannot stand the taste of red meat/mince since \i was taking methotrexate for RA which I now do not have I have oesteo arthritis and shouldnt have been sent to RA clinic! It really annoys me that I was taking all those meds/blood tests etc to be told I didnt need them!!!I must
Red meat......I cannot stand the taste of red meat/mince since \i was taking methotrexate for RA which I now do not have I have oesteo arthritis and shouldnt have been sent to RA clinic! It really annoys me that I was taking all those meds/blood tests etc to be told I didnt need them!!!I must
mogs231
in
NRAS
1 year ago
Oncologist and prostate surgeon conflicting treatment
Dad 73yrs has recurrent PC. 5 pelvic lymph nodes with hormone sensitive PC detected via rising PSA after 1.5yrs at undetectable then psma scan confirmed it was now in pelvic lymph nodes. He had his prostate removed a few years before, negative margins and just unlucky. In September last year Oncologist
Dad 73yrs has recurrent PC. 5 pelvic lymph nodes with hormone sensitive PC detected via rising PSA after 1.5yrs at undetectable then psma scan confirmed it was now in pelvic lymph nodes. He had his prostate removed a few years before, negative margins and just unlucky. In September last year Oncologist
Jbooopin
in
Advanced Prostate Cancer
11 months ago
Very sore and swollen hands. Is it possible I now have rheumatoid arthritis?
Hello ๐ ๐ I have really sore hands. Particularly thumb/wrist joint on both hands and swollen little finger on right hand. Three or four finger joint too. My GP has done blood tests over several years and said it Osteoarthritis, not rheumatoid. Over the past 3 months I have had a couple of episodes
Hello ๐ ๐ I have really sore hands. Particularly thumb/wrist joint on both hands and swollen little finger on right hand. Three or four finger joint too. My GP has done blood tests over several years and said it Osteoarthritis, not rheumatoid. Over the past 3 months I have had a couple of episodes
W3ndy2159
in
NRAS
1 year ago
Clopidogrel - Joint Pain
Clopidogrel. Would love to hear of people's experiences with Clopidogrel. I've been on it since September 2019 when I had my stroke (along with Atorvastatin and blood pressure tablets). My bloods were fine when checked, but I was put on the tablets just in case. Stroke was caused by an infarction
Clopidogrel. Would love to hear of people's experiences with Clopidogrel. I've been on it since September 2019 when I had my stroke (along with Atorvastatin and blood pressure tablets). My bloods were fine when checked, but I was put on the tablets just in case. Stroke was caused by an infarction
Lulu_Lollipop
in
Arthritis Action
1 year ago
Are PSMA negative mets usually castrate resistant?
I had 2 clear PSMA-PETs (at a PSA of 2 & then 4) so Dr. Scholz recommended I get an FDG PET. Low and behold 3 decent sized mets showed up. In my subsequent research it seems like all the published articles describe the PSMA negative mets as being castrate resistant. Zytiga/Lupron was effective before
I had 2 clear PSMA-PETs (at a PSA of 2 & then 4) so Dr. Scholz recommended I get an FDG PET. Low and behold 3 decent sized mets showed up. In my subsequent research it seems like all the published articles describe the PSMA negative mets as being castrate resistant. Zytiga/Lupron was effective before
V10fanatic
in
Advanced Prostate Cancer
11 months ago
Value of LDH
I've been dealing with PCA 11 years and I've seen a number of doctors along the way but never have discussed or had my LDH tested. A young oncologist where I had my PSMA scan requested PSA, testosterone and LDH tests to go along with the scan. My LDH was at the low end of the "range" (but we still didn't
I've been dealing with PCA 11 years and I've seen a number of doctors along the way but never have discussed or had my LDH tested. A young oncologist where I had my PSMA scan requested PSA, testosterone and LDH tests to go along with the scan. My LDH was at the low end of the "range" (but we still didn't
fourputt
in
Advanced Prostate Cancer
11 months ago
Tear in Tendon
hi Has anybody with Psa had any problems with tears in their tendons ? I have just had an ultrasound and found to have a torn tendon in the rotator cuff/bursa area of my shoulder, I have had a pain with trouble sleeping in that area for quite a while so my rheumy decided to send me for the ultrasound
hi Has anybody with Psa had any problems with tears in their tendons ? I have just had an ultrasound and found to have a torn tendon in the rotator cuff/bursa area of my shoulder, I have had a pain with trouble sleeping in that area for quite a while so my rheumy decided to send me for the ultrasound
Shanim
in
NRAS
11 months ago
3 years Post-VRMAT-RT & ADT
After 3 years my PSA went from
20.3 ฮผg/L
down to <
0.01 ฮผg/L
and Testosterone from
438.04ng/dL
down to
60.52 ng/dL
๐๐๐. As of July 07, 2023. How much longer do I have to wait for a more normal Testosterone Totale. I like my PSA that low but a little bit higher. Recently
After 3 years my PSA went from
20.3 ฮผg/L
down to <
0.01 ฮผg/L
and Testosterone from
438.04ng/dL
down to
60.52 ng/dL
๐๐๐. As of July 07, 2023. How much longer do I have to wait for a more normal Testosterone Totale. I like my PSA that low but a little bit higher. Recently
doc1947g
in
Advanced Prostate Cancer
11 months ago
Usa62
I have or had stage four prostate cancer in my lungs. PSA at 6.0. Started taking Taxomere and Lupron treatments.. my PSA levels went from 6 to 1 to 0.2. I still have three more treatments to go.. Hope this gives hope to people. The taxomere seems to work fairly well.
I have or had stage four prostate cancer in my lungs. PSA at 6.0. Started taking Taxomere and Lupron treatments.. my PSA levels went from 6 to 1 to 0.2. I still have three more treatments to go.. Hope this gives hope to people. The taxomere seems to work fairly well.
Shabear
in
Advanced Prostate Cancer
11 months ago
Tear in Tendon
hi Has anybody with Psa had any problems with torn tendons ? I have just had an ultrasound and found to have a tear in tendon in the rotator cuff/bursa area of my shoulder, I have had a pain with trouble sleeping in that area for quite a while so my rheumy decided to send me for the ultrasound, I
hi Has anybody with Psa had any problems with torn tendons ? I have just had an ultrasound and found to have a tear in tendon in the rotator cuff/bursa area of my shoulder, I have had a pain with trouble sleeping in that area for quite a while so my rheumy decided to send me for the ultrasound, I
Shanim
in
Beyond Psoriasis
11 months ago
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