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Non-small-cell lung carcinoma
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Big week, big challenges
Next weekend I'm walking from Camber Sands to Margate as I look to take on the Big 100. 65+ miles over two days isn't going to be easy but I'm really looking forward to the challenge which will also be a good test for my lungs. It'll also be really good for me, mentally. The pneumothorax really hit
Next weekend I'm walking from Camber Sands to Margate as I look to take on the Big 100. 65+ miles over two days isn't going to be easy but I'm really looking forward to the challenge which will also be a good test for my lungs. It'll also be really good for me, mentally. The pneumothorax really hit
dodgylungrunner
British Lung Foundation
in
Lung Conditions Community Forum
6 years ago
To Those with Experience with Immunotherapy
Would you please take just a few minutes of your time to complete the Lung Cancer Registry's Immunotherapy Survey? It provides very important information to researchers and oncologists - information that can only come from those of us who are being treated or have been treated with one of the immunotherapy
Would you please take just a few minutes of your time to complete the Lung Cancer Registry's Immunotherapy Survey? It provides very important information to researchers and oncologists - information that can only come from those of us who are being treated or have been treated with one of the immunotherapy
Surviventhrive
in
Lung Cancer Support
6 years ago
Immunotherapy could be less effective for women with cancer than for men
Am not a betting person AT all but in this article WELL this only one bad boy/girl I can think of AND that’s that ******* estrogen.
Is great Immunotherapy is opening up more ways discussion’s on pathology treatment of cancers.
But a pioneering cancer treatment that has been hailed as
Am not a betting person AT all but in this article WELL this only one bad boy/girl I can think of AND that’s that ******* estrogen.
Is great Immunotherapy is opening up more ways discussion’s on pathology treatment of cancers.
But a pioneering cancer treatment that has been hailed as
Hidden
in
Lung Conditions Community Forum
6 years ago
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COPD query
Hello I am just wondering whether anyone could help me out. I have had asthma from a young age so my breathing has never been the best as it is. My nan had COPD and both my dad and grandad have Emphysema. My grandad is still alive and doing okay despite only having one and a half lungs. My dad passed
Hello I am just wondering whether anyone could help me out. I have had asthma from a young age so my breathing has never been the best as it is. My nan had COPD and both my dad and grandad have Emphysema. My grandad is still alive and doing okay despite only having one and a half lungs. My dad passed
Meganwilshaw
in
Lung Conditions Community Forum
6 years ago
I feel sad and alone
Hello, It has been about a year since I posted here for the first time and this is the second time. I have COPD from the complication called GVHD from my stem cell transplant for my lukimia. It has been getting worse and I was in hospital a few times last year and twice already this year. Last year I
Hello, It has been about a year since I posted here for the first time and this is the second time. I have COPD from the complication called GVHD from my stem cell transplant for my lukimia. It has been getting worse and I was in hospital a few times last year and twice already this year. Last year I
mnonchan
in
Lung Conditions Community Forum
6 years ago
Dovetailing
Wow getting red hair to warn bad news to stay away is certainly working. Saw osteo surgeon again today regarding the initial hip pain and looked at all scan and MRI results. Seeing as I had a bone marrow transplant and radiation 27 years ago, which made me post menopausal, I have really good bones for
Wow getting red hair to warn bad news to stay away is certainly working. Saw osteo surgeon again today regarding the initial hip pain and looked at all scan and MRI results. Seeing as I had a bone marrow transplant and radiation 27 years ago, which made me post menopausal, I have really good bones for
Angiejnz
in
PMRGCAuk
6 years ago
Breakthrough therapy saves Mike's life - reports of innovative precision medicines for cancers from ASCO in Daily Mail
One man to have already benefited from the advances in precision medicine is leukaemia sufferer Mike Brandon. The 34-year-old from Bristol was desperately ill when he underwent pioneering CAR T therapy in the US city of Philadelphia in 2016. Mike was suffering from chronic lymphocytic leukaemia (
One man to have already benefited from the advances in precision medicine is leukaemia sufferer Mike Brandon. The 34-year-old from Bristol was desperately ill when he underwent pioneering CAR T therapy in the US city of Philadelphia in 2016. Mike was suffering from chronic lymphocytic leukaemia (
HAIRBEAR_UK
Administrator
in
Leukaemia CARE
6 years ago
Yay good bones
Because I had a bone marrow transplant in the 90's I have a density scan every 5 years and just had the latest done after being diagnosed with pmr. My back with compressed vertebrae and failed fusions has improved, with t score going from .7 to .8 and z score going from -0.1to 0.2, forearm score going
Because I had a bone marrow transplant in the 90's I have a density scan every 5 years and just had the latest done after being diagnosed with pmr. My back with compressed vertebrae and failed fusions has improved, with t score going from .7 to .8 and z score going from -0.1to 0.2, forearm score going
Angiejnz
in
PMRGCAuk
6 years ago
Mum's stage 4 diagnosis
Last Monday my mum was diagnosed with a non-specific stage 4 lung cancer. I say non-specific as the consultant does not want to put her through a bronchoscopy as he has suggested that whilst it will reveal the type of cancer she has, it won't ultimately change anything in terms of treatment. We've been
Last Monday my mum was diagnosed with a non-specific stage 4 lung cancer. I say non-specific as the consultant does not want to put her through a bronchoscopy as he has suggested that whilst it will reveal the type of cancer she has, it won't ultimately change anything in terms of treatment. We've been
Polly2018
in
The Roy Castle Lung Cancer Foundation
6 years ago
Pred tapering starts tomorrow
I was diagnosed with GCA/PMR May 7th and started on 60mg of prednisone. I will be lowering that dose to 50mg tomorrow. The doctor wants me to consider Tocilizumab weekly infusions. I have read the study and understand the side effects, but I would like to hear some of your thoughts and/or experiences
I was diagnosed with GCA/PMR May 7th and started on 60mg of prednisone. I will be lowering that dose to 50mg tomorrow. The doctor wants me to consider Tocilizumab weekly infusions. I have read the study and understand the side effects, but I would like to hear some of your thoughts and/or experiences
kay7954
in
PMRGCAuk
6 years ago
UK Lung Transplant List
Good afternoon everyone, does anyone know or can anyone help? Is there such a thing as the waiting list and the active waiting lis? That you are put on if you are fortunate enough to be given the chance? If anyone knows please let me know. Kind regards Joe
Good afternoon everyone, does anyone know or can anyone help? Is there such a thing as the waiting list and the active waiting lis? That you are put on if you are fortunate enough to be given the chance? If anyone knows please let me know. Kind regards Joe
Joseph260268
in
Lung Conditions Community Forum
6 years ago
Foods to eat to support the fight with lung cancer and brain mets, which is also suitable during chemotherapy
Hi All My lovely step dad has suddenly become unwell and diagnosed with squamous cell lung cancer and brain mets. We are devastated. My dad dies 3 years ago of lung cancer and I have just ran the London marathon for Roy Castle. this has shaken us. We want to do all we can. can you recommend and foods
Hi All My lovely step dad has suddenly become unwell and diagnosed with squamous cell lung cancer and brain mets. We are devastated. My dad dies 3 years ago of lung cancer and I have just ran the London marathon for Roy Castle. this has shaken us. We want to do all we can. can you recommend and foods
sarah_budden
in
The Roy Castle Lung Cancer Foundation
6 years ago
Eejit!!!!
Well, I guess there's a first time for everything... but feel I like a right idiot!!! It was 1:30 this afternoon, before I realised, I had forgotten to take my Prednisolone! I wondered why I felt weird and sluggish, just off... it was like I was going in slow motion and couldn't get going. Not
Well, I guess there's a first time for everything... but feel I like a right idiot!!! It was 1:30 this afternoon, before I realised, I had forgotten to take my Prednisolone! I wondered why I felt weird and sluggish, just off... it was like I was going in slow motion and couldn't get going. Not
Hidden
in
PMRGCAuk
6 years ago
What if venetoclax and/or ibritinib stops working?
Hi all, I am a 33 year old dutch male. I have had CLL since i am 24 and have been dealing with CLL for 9 years. I have mutated genes wich put me into a poor prognossis. I have had FCR when i was arround 26/27. I gave me 2 years of no threatment. Then it came back and i was place in a studie group
Hi all, I am a 33 year old dutch male. I have had CLL since i am 24 and have been dealing with CLL for 9 years. I have mutated genes wich put me into a poor prognossis. I have had FCR when i was arround 26/27. I gave me 2 years of no threatment. Then it came back and i was place in a studie group
JanAmsterdam
in
CLL Support
6 years ago
Pulmonary hypertension
Good afternoon all, After my last visit to Wythenshawe Hospital in Manchester UK. I found out that I am also suffering with pulmonary hypertension on the right side of my heart, I am currently trying to get on the Lung Transplant List. This was found as part of my 3 day assessment. I currently have
Good afternoon all, After my last visit to Wythenshawe Hospital in Manchester UK. I found out that I am also suffering with pulmonary hypertension on the right side of my heart, I am currently trying to get on the Lung Transplant List. This was found as part of my 3 day assessment. I currently have
Joseph260268
in
Lung Conditions Community Forum
6 years ago
Lumber puncture
So today a neurologist came in at 11:00. Did a lumber puncture right in the room. Now it’s a waiting game. Which I hate. Gave me gababapentin. For headache. I only had 2 doses and I can’t tell if it’s working. Or how long it takes to kick in. I’m hoping to go home tomorrow. But my right leg is bothering
So today a neurologist came in at 11:00. Did a lumber puncture right in the room. Now it’s a waiting game. Which I hate. Gave me gababapentin. For headache. I only had 2 doses and I can’t tell if it’s working. Or how long it takes to kick in. I’m hoping to go home tomorrow. But my right leg is bothering
Hali12
in
PMRGCAuk
6 years ago
Just Because
Well seen doctor AND been for X-ray re cubital tunnel syndrome I surspect am suffering from. Doc did few test and is organising some electric conductive nerves test. But did say if I suffer prolonged numbness I need to go AE as mater of emergency 🚨 But I can’t understand how can make you feel unwell
Well seen doctor AND been for X-ray re cubital tunnel syndrome I surspect am suffering from. Doc did few test and is organising some electric conductive nerves test. But did say if I suffer prolonged numbness I need to go AE as mater of emergency 🚨 But I can’t understand how can make you feel unwell
Hidden
in
Lung Conditions Community Forum
6 years ago
So confusing continued
Long talk with GP today and getting a better understanding of his reasoning I have pmr...... amongst other things. I had a large shwanoma removed from my spine as well as a second attempt at a 3 level fusion, which still isn't fused. I get two different pain collections from these. Layer over leukemia
Long talk with GP today and getting a better understanding of his reasoning I have pmr...... amongst other things. I had a large shwanoma removed from my spine as well as a second attempt at a 3 level fusion, which still isn't fused. I get two different pain collections from these. Layer over leukemia
Angiejnz
in
PMRGCAuk
6 years ago
Who the Hell is Ali ibn Isa?
He may be the guy who documented the very first written account of a TAB (Temporal Artery Biopsy) procedure; sometime between 940 to 1010 A.D!!! Go Ali! Another very technical (and to me, the layperson) mind boggling editorial about recent advances in giant cell arteritis and impacts to how the disease
He may be the guy who documented the very first written account of a TAB (Temporal Artery Biopsy) procedure; sometime between 940 to 1010 A.D!!! Go Ali! Another very technical (and to me, the layperson) mind boggling editorial about recent advances in giant cell arteritis and impacts to how the disease
Hidden
in
PMRGCAuk
6 years ago
Managing the Complications of Chronic Lymphocytic Leukemia (CLL) Online Program by The CancerCare Education Department (USA)
We appreciate your participation in Managing the Complications of Chronic Lymphocytic Leukemia (CLL), which took place on May 17. We hope you found this workshop informative and look forward to your feedback. If you were not able to attend this workshop, it is available on telephone replay 24 hours a
We appreciate your participation in Managing the Complications of Chronic Lymphocytic Leukemia (CLL), which took place on May 17. We hope you found this workshop informative and look forward to your feedback. If you were not able to attend this workshop, it is available on telephone replay 24 hours a
lankisterguy
Volunteer
in
CLL Support
6 years ago
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