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Non-small-cell lung carcinoma
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Do you want to have a friendly chat with a researcher about your experiences?
[We're still recruiting to this study in case there are any new members or people who still wanted to take part] Were you diagnosed with lung cancer within the last 12 months? Have your say about your experiences in the PEARL study - a research programme led by UCL and funded by Cancer Research UK.
[We're still recruiting to this study in case there are any new members or people who still wanted to take part] Were you diagnosed with lung cancer within the last 12 months? Have your say about your experiences in the PEARL study - a research programme led by UCL and funded by Cancer Research UK.
georgiabellblack
in
The Roy Castle Lung Cancer Foundation
3 years ago
Exercise post lung transplant
Hi all ! I'm 5 years post single lung transplant. I only have one lung as other was completely removed. My question is how I exercise without getting extremely breathless. Over the past 2 years I have gained 3 stone in weight and with me being on steroids and handfuls of other medication I'm finding
Hi all ! I'm 5 years post single lung transplant. I only have one lung as other was completely removed. My question is how I exercise without getting extremely breathless. Over the past 2 years I have gained 3 stone in weight and with me being on steroids and handfuls of other medication I'm finding
Hidden
in
Lung Conditions Community Forum
3 years ago
Continuation of Tocilizumab treatment in UK needed- Help or advice needed please.
I know not many people with LVV/ GCA in the UK are being treated with Tocilizumab ( only 250 according to NICE literature) but in the absence of any advice or help from my Rheumatology consultant, I am hoping someone on this forum could advise me. NICE still hasn’t rethought it’s advice
I know not many people with LVV/ GCA in the UK are being treated with Tocilizumab ( only 250 according to NICE literature) but in the absence of any advice or help from my Rheumatology consultant, I am hoping someone on this forum could advise me. NICE still hasn’t rethought it’s advice
Suzita76
in
PMRGCAuk
3 years ago
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Lung cancer
Hello my mum has been diagnosed with non small cell lung cancer and as anyone can imaging it’s a big shock to the family ,it’s on her right lung 3 cm she has been offered radiotherapy I’m not sure the difference between chemotherapy and radiotherapy and will it shrink the tumour or take it away I’m
Hello my mum has been diagnosed with non small cell lung cancer and as anyone can imaging it’s a big shock to the family ,it’s on her right lung 3 cm she has been offered radiotherapy I’m not sure the difference between chemotherapy and radiotherapy and will it shrink the tumour or take it away I’m
Elsy12345
in
Lung Conditions Community Forum
3 years ago
Recently diagnosed with MF
Hi Recently been diagnosed with MF at the age of 53, and the consultant at Guy's has proposed stem cell transplant later this year, has anyone had this treatment and if so any suggestions? I have a potential sibling match which is currently being investigated. Given the recent diagnosis still taking
Hi Recently been diagnosed with MF at the age of 53, and the consultant at Guy's has proposed stem cell transplant later this year, has anyone had this treatment and if so any suggestions? I have a potential sibling match which is currently being investigated. Given the recent diagnosis still taking
67Red
in
MPN Voice
3 years ago
Tocilizumab
If, as I understand it, NHS England only funds this drug for one year per individual then I will reach the end of my allocation in late July. It has taken months on this drug to cover the reduction in Prednisolone and I am now down to my lowest level ever. My Ophthalmologist is also discussing reducing
If, as I understand it, NHS England only funds this drug for one year per individual then I will reach the end of my allocation in late July. It has taken months on this drug to cover the reduction in Prednisolone and I am now down to my lowest level ever. My Ophthalmologist is also discussing reducing
AncientMariner
in
PMRGCAuk
3 years ago
A further update on the old taper journey ...
Hello again friends on this long and treacherous journey, I am reporting back with some good news, yay! While I have remained on the three weekly (rather than weekly or fortnightly) tocilizumab routine, my inflammation has remained under control, so far. I have just moved to 1.75mgs pred on my cautious
Hello again friends on this long and treacherous journey, I am reporting back with some good news, yay! While I have remained on the three weekly (rather than weekly or fortnightly) tocilizumab routine, my inflammation has remained under control, so far. I have just moved to 1.75mgs pred on my cautious
LemonZest11
in
PMRGCAuk
3 years ago
mpal leukaemia
Hi Would really love to hear from anyone who has experience with this rare type of leukaemia. My son was diagnosed in December 2020 and is about to undergo a bone marrow transplant
Hi Would really love to hear from anyone who has experience with this rare type of leukaemia. My son was diagnosed in December 2020 and is about to undergo a bone marrow transplant
su0906
in
Leukaemia CARE
3 years ago
Multi-drug resistant infection spreading globally among cystic fibrosis patients.
A multi-drug resistant infection that can cause life-threatening illness in people with cystic fibrosis (CF) and can spread from patient to patient has spread globally and is becoming increasingly virulent, according to new research published today in the journal Science. The study, led by the University
A multi-drug resistant infection that can cause life-threatening illness in people with cystic fibrosis (CF) and can spread from patient to patient has spread globally and is becoming increasingly virulent, according to new research published today in the journal Science. The study, led by the University
2greys
in
Lung Conditions Community Forum
3 years ago
“I think we’ll cure leukemia in my lifetime”
“Is there anything else you’d like to share about leukemia treatment? I'm very excited because I think we’ll cure leukemia in my lifetime. We’ve already come so far. For example, before 2000, patients with Philadelphia chromosome-positive acute lymphoblastic leukemia had a survival rate of 10%. Targeted
“Is there anything else you’d like to share about leukemia treatment? I'm very excited because I think we’ll cure leukemia in my lifetime. We’ve already come so far. For example, before 2000, patients with Philadelphia chromosome-positive acute lymphoblastic leukemia had a survival rate of 10%. Targeted
Manouche
in
MPN Voice
3 years ago
Can someone give me an advice...Am I needing for an lung operation?
THORACIC CT EXAMINATION In the examination performed by giving intravenous contrast material; Tracing and calibration of mediastinal vascular structures are normal. Calcified-non-calcified plaques with irregular surfaces were observed in the aorta. Heart chambers are within normal limits. The trachea
THORACIC CT EXAMINATION In the examination performed by giving intravenous contrast material; Tracing and calibration of mediastinal vascular structures are normal. Calcified-non-calcified plaques with irregular surfaces were observed in the aorta. Heart chambers are within normal limits. The trachea
Adnan60
in
Lung Conditions Community Forum
3 years ago
Age-related muscle loss and walking abilities predict outcomes after lung cancer surgery.
Lung cancer is a major global cause of mortality, reportedly accounting for 1.7 million deaths each year. The most common form of lung cancer is non-small-cell lung cancer (NSCLC), and early-stage NSCLCs can often be surgically resected. Unfortunately, some patients still experience poor outcomes after
Lung cancer is a major global cause of mortality, reportedly accounting for 1.7 million deaths each year. The most common form of lung cancer is non-small-cell lung cancer (NSCLC), and early-stage NSCLCs can often be surgically resected. Unfortunately, some patients still experience poor outcomes after
2greys
in
Lung Conditions Community Forum
3 years ago
Probably the greatest dilemma of my life.
Currently going through double lung transplant assessments due to IPF.One strict no go which strikes you off the list is cancer as , quite rightly, donated healthy lungs should go to those who have a longer chance of survival . Now the dilemma... discovered a great lump in my neck which may or may not
Currently going through double lung transplant assessments due to IPF.One strict no go which strikes you off the list is cancer as , quite rightly, donated healthy lungs should go to those who have a longer chance of survival . Now the dilemma... discovered a great lump in my neck which may or may not
Mrbojangles
in
Lung Conditions Community Forum
3 years ago
Had anyone had the Covid antibody test?
Saw a webinar in which it was suggested that a fairly small study showed people taking tocilizumab, mycophenelate, predisilone or methatrixate might only be covered 35-55% for the Covid vaccine. I am taking three of these. It recommended an antibody test - it was the SARS COVID anti spike test I think
Saw a webinar in which it was suggested that a fairly small study showed people taking tocilizumab, mycophenelate, predisilone or methatrixate might only be covered 35-55% for the Covid vaccine. I am taking three of these. It recommended an antibody test - it was the SARS COVID anti spike test I think
christine2715
in
PMRGCAuk
3 years ago
Post Lobectomy
It was found to be
non
-
small
-
cell
lung
cancer – squamous cell
carcinoma
. I have since had several scans due to chest infections and a cough which does not go completely, all is clear and my 6 month check was all ok.
It was found to be
non
-
small
-
cell
lung
cancer – squamous cell
carcinoma
. I have since had several scans due to chest infections and a cough which does not go completely, all is clear and my 6 month check was all ok.
GillBo
in
The Roy Castle Lung Cancer Foundation
3 years ago
Harefield Lung Transplant
Hi, I am on the lung transplant list at QE Hospital Birmingham, but surgery there is still suspended and will be until June at the earliest. I am therefore going to be seen at Harefield in the hope I can go on their list. I’ve been on Birmingham’s list since July, but with no transplants since January
Hi, I am on the lung transplant list at QE Hospital Birmingham, but surgery there is still suspended and will be until June at the earliest. I am therefore going to be seen at Harefield in the hope I can go on their list. I’ve been on Birmingham’s list since July, but with no transplants since January
mary1956
in
Lung Conditions Community Forum
3 years ago
Scientists identify protein that could serve as a therapeutic target in lung cancer.
Scientists at VCU Massey Cancer Center have identified a protein that operates in tandem with a specific genetic mutation to spur lung cancer growth and could serve as a therapeutic target to treat the disease. Mutations in the p53 gene are found in more than half of all cancers, but it remains difficult
Scientists at VCU Massey Cancer Center have identified a protein that operates in tandem with a specific genetic mutation to spur lung cancer growth and could serve as a therapeutic target to treat the disease. Mutations in the p53 gene are found in more than half of all cancers, but it remains difficult
2greys
in
Lung Conditions Community Forum
3 years ago
Keytruda and Guillain Barre Syndrome
After various false starts, it has been confirmed that the Immunotherapy treatment with Keytruda has been the cause of my GBS event in January. I'm off immunotherapy forever now. Just learned today that my lung tumor has grown and is getting close to my airway. Looking at possible radiation treatment
After various false starts, it has been confirmed that the Immunotherapy treatment with Keytruda has been the cause of my GBS event in January. I'm off immunotherapy forever now. Just learned today that my lung tumor has grown and is getting close to my airway. Looking at possible radiation treatment
Ay1e5bury
in
Lung Cancer Support
3 years ago
Lung transplant list
So today I learned my lung transplant journey has come to an end. My body has failed me whilst my mind is still breakdancing. An osteoporotic fracture in my spine is one risk too many for me to receive the gift of new lungs - it was going to be an already high risk operation due to my many complications
So today I learned my lung transplant journey has come to an end. My body has failed me whilst my mind is still breakdancing. An osteoporotic fracture in my spine is one risk too many for me to receive the gift of new lungs - it was going to be an already high risk operation due to my many complications
Joseph260268
in
Lung Conditions Community Forum
3 years ago
Butterfingers! Feeling frustrated and poor.
I am dyspraxic, which means that I have always been extremely clumsy and have terrible executive functioning. With advancing age, my dyspraxia has also meant that I have also experienced increasing aphasia - I can often see/hear the word in my brain, it just doesn't make it to my mouth. Since being on
I am dyspraxic, which means that I have always been extremely clumsy and have terrible executive functioning. With advancing age, my dyspraxia has also meant that I have also experienced increasing aphasia - I can often see/hear the word in my brain, it just doesn't make it to my mouth. Since being on
Hidden
in
PMRGCAuk
3 years ago
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