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update: Zanabrutinib vs Obenven (O&V)
We are praying for Gods wisdom (James1:5), and we’re leaning toward the Zanabrutinib. The infusions and time and distance will be impactful to my husbands work and he’s prefer to go the simpler route. We learned he’s still 13Q and TP53 negative and his lymph nodes are reduced (we have used ALT for
We are praying for Gods wisdom (James1:5), and we’re leaning toward the Zanabrutinib. The infusions and time and distance will be impactful to my husbands work and he’s prefer to go the simpler route. We learned he’s still 13Q and TP53 negative and his lymph nodes are reduced (we have used ALT for
Cb1391
in
CLL Support
7 months ago
Bad urgency with little result
Hi all, I have Proctitis and IBS.My IBS has severely flared up this week,I have not been for a poo for 5 days. ive been experiencing really bad urgency but only the size of my little finger watery poo comes out and causing pain in my bum. Im on Biscopyl and Pentasa suppositories for inflammation. Can
Hi all, I have Proctitis and IBS.My IBS has severely flared up this week,I have not been for a poo for 5 days. ive been experiencing really bad urgency but only the size of my little finger watery poo comes out and causing pain in my bum. Im on Biscopyl and Pentasa suppositories for inflammation. Can
AGB111
in
IBS Network
3 months ago
Surgery and immuno suppressants
Hi everyone. I am due to have minor surgery on my wrist and have been asked by my surgeon to cease taking mycophenolate for a week before and a week after my operation (I presumed because of possible risk of infection?). I spoke to my rheumatologist about this and she considered it unnecessary to stop
Hi everyone. I am due to have minor surgery on my wrist and have been asked by my surgeon to cease taking mycophenolate for a week before and a week after my operation (I presumed because of possible risk of infection?). I spoke to my rheumatologist about this and she considered it unnecessary to stop
cheeselover342
in
Scleroderma & Raynaud's UK (SRUK)
7 months ago
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Cimetidine
Hi, my doctor prescribed Cimetidine for my painful bladder, I have the impression that it exacerbates restless leg syndrome. I'd like to know your opinion before taking this medication. Thanks in advance.
Hi, my doctor prescribed Cimetidine for my painful bladder, I have the impression that it exacerbates restless leg syndrome. I'd like to know your opinion before taking this medication. Thanks in advance.
halperinchen
in
Restless Legs Syndrome
7 months ago
Using ChatGPT to help us understand tinnitus. Thoughts? Here's an AI Assistant I've created for understanding Tinnitus
Just a topic for debate but I'm interested in your thoughts and maybe your direct experiences with AI to understand tinnitus. I'm assuming everyone has heard about AI and ChatGPT and other Generative AI tools. GPT is short for Generative Predictive Text. It is what it states (a convincing) prediction
Just a topic for debate but I'm interested in your thoughts and maybe your direct experiences with AI to understand tinnitus. I'm assuming everyone has heard about AI and ChatGPT and other Generative AI tools. GPT is short for Generative Predictive Text. It is what it states (a convincing) prediction
daverussell
in
Tinnitus UK
7 months ago
Lipoid pneumonia
Earlier this year I had serious nose bleeds resulting in hospital admissions and cautery. Subsequently seen by ENT consultant who advised daily insertion of Vaseline into nostrils to prevent them drying out and possible further bleeds. Since then I found on the internet (various reputable sites)
Earlier this year I had serious nose bleeds resulting in hospital admissions and cautery. Subsequently seen by ENT consultant who advised daily insertion of Vaseline into nostrils to prevent them drying out and possible further bleeds. Since then I found on the internet (various reputable sites)
FormerT
in
Lung Conditions Community Forum
7 months ago
My journey
I wanted to share some things that have helped me over the years since my weight loss surgery in 2017. When I started this journey I had ballooned to 312 pounds on my 5'7" Frame. I was, and still am, an emotional eater...struggle with it every day.....what I've found that has helped me the most is
I wanted to share some things that have helped me over the years since my weight loss surgery in 2017. When I started this journey I had ballooned to 312 pounds on my 5'7" Frame. I was, and still am, an emotional eater...struggle with it every day.....what I've found that has helped me the most is
mizzou7016
Visitor
in
Weight Loss Support
7 months ago
oh dear oh dear
Okay so everyone, After getting so much help from here from you lovely people I have been on a good 3 to 4 week routine of upping my vitamins and supplements. It took me a good amount of time and advise off here to make sure of what vitamins to get and take etc etc. So I was happy and hopeful. Believe
Okay so everyone, After getting so much help from here from you lovely people I have been on a good 3 to 4 week routine of upping my vitamins and supplements. It took me a good amount of time and advise off here to make sure of what vitamins to get and take etc etc. So I was happy and hopeful. Believe
Demitria
in
Thyroid UK
7 months ago
shift work
Hi all, so glad I found this group.Diagnosed 10 years ago and have always worked night shifts, I’m now being told I must work 12 hour days (7-7.30)as well even though occupational health advise nights only, stiffness and pain in the mornings make it impossible to be anywhere for 7am in the morning, nevermind
Hi all, so glad I found this group.Diagnosed 10 years ago and have always worked night shifts, I’m now being told I must work 12 hour days (7-7.30)as well even though occupational health advise nights only, stiffness and pain in the mornings make it impossible to be anywhere for 7am in the morning, nevermind
Nitenurse63
in
NRAS
3 months ago
Drugs.com FDA Investigating Serious Risk of T-cell Malignancy Following BCMA-Directed (CAR) T cell Immunotherapies
https://newsletters.drugs.com/l/HXdBAPWpNu8924jmwPHb3VvA/LQCEtlvhvlnyLNQoIP4Gfw/jLVV3dtGc2BI8hLRqrMq892g [i]"Although the overall benefits of these products continue to outweigh their potential risks for their approved uses, FDA is investigating the identified risk of T cell malignancy with serious
https://newsletters.drugs.com/l/HXdBAPWpNu8924jmwPHb3VvA/LQCEtlvhvlnyLNQoIP4Gfw/jLVV3dtGc2BI8hLRqrMq892g [i]"Although the overall benefits of these products continue to outweigh their potential risks for their approved uses, FDA is investigating the identified risk of T cell malignancy with serious
JerrysGirl3
in
CLL Support
7 months ago
Next instalment
Before I start my next task, either proofreading or, dread the thought, cleaning the car, here`s the next instalment. Chris. One of mum's best friends from childhood was, without a doubt, Lydia, a confident who in later life became Aunty Lyds to all of us. Their friendship through their teenage years
Before I start my next task, either proofreading or, dread the thought, cleaning the car, here`s the next instalment. Chris. One of mum's best friends from childhood was, without a doubt, Lydia, a confident who in later life became Aunty Lyds to all of us. Their friendship through their teenage years
LissacFrance
in
Lung Conditions Community Forum
2 months ago
Webinar: What causes photopsia and photophobia in patients with Stargardt and what impact does it have on their lives?
Flashing lights in vision (photopsia) or discomfort due to bright light or glare (photophobia) is often experienced by patients with Stargardt. However, little is understood about what causes these symptoms, their prevalence or the impact they can have on people’s lives. Omar Mahroo, consultant ophthalmologist
Flashing lights in vision (photopsia) or discomfort due to bright light or glare (photophobia) is often experienced by patients with Stargardt. However, little is understood about what causes these symptoms, their prevalence or the impact they can have on people’s lives. Omar Mahroo, consultant ophthalmologist
Carol_MacularSociety
Partner
in
Macular Society
7 months ago
Genetic therapy: for solid malignancy hopefully soon
ok, I post them also because they are fellow Italians! But the platform is very promising even if clinical use has been approved only for glioma and glioblastoma at the moment. But there are clinical trials going on for solid tumors, prostate included. https://www.genenta.com/wp-content/uploads/2021
ok, I post them also because they are fellow Italians! But the platform is very promising even if clinical use has been approved only for glioma and glioblastoma at the moment. But there are clinical trials going on for solid tumors, prostate included. https://www.genenta.com/wp-content/uploads/2021
Maxone73
in
Advanced Prostate Cancer
7 months ago
Rectal prolapse - Constipation. Laxido
Hello. I have a rectal prolapse - like a tomato which comes outside my body. I get constipated and been given laxido. It was working well, but I am now getting liquid which bypasses my prolapse. I took the last one six days ago. I have soft motions and now this liquid. I also have a leaking bladder so
Hello. I have a rectal prolapse - like a tomato which comes outside my body. I get constipated and been given laxido. It was working well, but I am now getting liquid which bypasses my prolapse. I took the last one six days ago. I have soft motions and now this liquid. I also have a leaking bladder so
briarhillcat
in
IBS Network
4 months ago
4 months post TT
hi everyone! I am writing because I wanted to see if anybody had similar experiences. I am four months post total thyroidectomy, and in the first month or so I didn’t really feel many or any symptoms. Now in the past two months, I feel like I am feeling more symptoms of hypothyroidism than I did, in
hi everyone! I am writing because I wanted to see if anybody had similar experiences. I am four months post total thyroidectomy, and in the first month or so I didn’t really feel many or any symptoms. Now in the past two months, I feel like I am feeling more symptoms of hypothyroidism than I did, in
Rfranzoni
in
Thyroid UK
7 months ago
Ruminating.
Age piles the years on one by one Yet we try to do as we've always done The body gets weak but the mind stays strong Maybe that's where we all went wrong We should perhaps throw caution out And rid ourselves of those fears and doubt Unshield ourselves and put it about Get really drunk and rage
Age piles the years on one by one Yet we try to do as we've always done The body gets weak but the mind stays strong Maybe that's where we all went wrong We should perhaps throw caution out And rid ourselves of those fears and doubt Unshield ourselves and put it about Get really drunk and rage
Donald_1931
in
Lung Conditions Community Forum
7 months ago
had uraine sample no infection had my bladder checked with gyno no prolase, just weak mussles ,
hi , in september 2022 i had a prolase bladder op felt fine after 6 to 8 weeks . then in september this year i had my gallbladder removed and i felt fine only noticed that i felt like a feeling of urgent to go toilet and bladder felt full all of a sudden . so i went doctors ask to do a water sample
hi , in september 2022 i had a prolase bladder op felt fine after 6 to 8 weeks . then in september this year i had my gallbladder removed and i felt fine only noticed that i felt like a feeling of urgent to go toilet and bladder felt full all of a sudden . so i went doctors ask to do a water sample
Mrshappyme
in
Pelvic Pain Support Network
7 months ago
Impact of brief CBT on chronic pain and anxiety
Hello, My name is Audrey and I am a student at Pepperdine University. I am doing a research study about the impact of brief Cognitive Behavioral Therapy on people with chronic pain and anxiety. I would appreciate it if you could take a few minutes to complete both parts. It will also expose you to a
Hello, My name is Audrey and I am a student at Pepperdine University. I am doing a research study about the impact of brief Cognitive Behavioral Therapy on people with chronic pain and anxiety. I would appreciate it if you could take a few minutes to complete both parts. It will also expose you to a
audreycosta
in
Pain Concern
2 months ago
Diagnostic Imaging Not Yet Enough for Biopsy-Free Radical Prostatectomy - MedPage Today, November 27, 2023
Biopsy-free PCa diagnostics would be welcomed by anyone who has had one or more needle biopsies. This article in MedPage Today summarizes the current status for the several methodologies being studied as alternatives. Good info for those currently on AS or just watching a rising PSA. From the lead-in
Biopsy-free PCa diagnostics would be welcomed by anyone who has had one or more needle biopsies. This article in MedPage Today summarizes the current status for the several methodologies being studied as alternatives. Good info for those currently on AS or just watching a rising PSA. From the lead-in
cujoe
in
Fight Prostate Cancer
7 months ago
New to deaf
Hi, I had a virus (according to my doctor), told my instant deafness would return...... 6 months later, course of steroids and steroid injections into my eardrum, almost no hearing in 1 ear and tinnitus that goes from slightly annoying at the start of the day to OK you've beat me by the end of the day
Hi, I had a virus (according to my doctor), told my instant deafness would return...... 6 months later, course of steroids and steroid injections into my eardrum, almost no hearing in 1 ear and tinnitus that goes from slightly annoying at the start of the day to OK you've beat me by the end of the day
Molbel
in
Tinnitus UK
7 months ago
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