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Pneumonia vaccine
Has anyone over 65 received the Pneumonia vaccine-Prevnar 20? I have ET Jak2+ and it was suggested by my GP. I read somewhere that we have to be careful with vaccines. Thank you,
Has anyone over 65 received the Pneumonia vaccine-Prevnar 20? I have ET Jak2+ and it was suggested by my GP. I read somewhere that we have to be careful with vaccines. Thank you,
mbr8076
in
MPN Voice
5 months ago
Peg and Ear infection
Hi all! New to the forum, what a great community and resource. I was diagnosed with PV recently at age 53 and started a Pegasys a month ago, only 45 mcg every two weeks for a slow start. No initial side effects, but 10 days ago got a sudden ear infection that hasn’t responded to antibiotics. Fullness
Hi all! New to the forum, what a great community and resource. I was diagnosed with PV recently at age 53 and started a Pegasys a month ago, only 45 mcg every two weeks for a slow start. No initial side effects, but 10 days ago got a sudden ear infection that hasn’t responded to antibiotics. Fullness
Fabfam5
in
MPN Voice
5 months ago
Steroid injection worn off?
Hope everyone is having the best day they can.I am newly diagnosed with inflammatory arthritis, already having osteoarthritis and recently diagnosed with fibromyalgia, so have a lot going on right now. After an initial consultation with the rheumatologist, I was given a steroid injection to tied me
Hope everyone is having the best day they can.I am newly diagnosed with inflammatory arthritis, already having osteoarthritis and recently diagnosed with fibromyalgia, so have a lot going on right now. After an initial consultation with the rheumatologist, I was given a steroid injection to tied me
hazelcats
in
NRAS
4 hours ago
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Steroid Injection
Hi All, I'm feeling very confused after my last Rheumatology appointment. I first saw the Rheumatologist in February and was diagnosed Sjorgen's and possible PMR. I was put on 15mg prednisolone and had managed to taper to 13mg. I saw a different rheumatologist at my appt this week who threw me a complete
Hi All, I'm feeling very confused after my last Rheumatology appointment. I first saw the Rheumatologist in February and was diagnosed Sjorgen's and possible PMR. I was put on 15mg prednisolone and had managed to taper to 13mg. I saw a different rheumatologist at my appt this week who threw me a complete
Soinoi
in
PMRGCAuk
1 day ago
Change in inhalers
I'm currently on sertide and being switched over to symbicort. I'm not sure of the dosage etc as need to discuss further with gp. I'm a little concerned as been on seretide for years. When I get switched it triggers flares and I've already had loads of time of work. I work part time. I also think I'm
I'm currently on sertide and being switched over to symbicort. I'm not sure of the dosage etc as need to discuss further with gp. I'm a little concerned as been on seretide for years. When I get switched it triggers flares and I've already had loads of time of work. I work part time. I also think I'm
spookylou
in
Asthma Community Forum
2 months ago
MSK Community Care
Hello All Just had my latest check up at the Hospital. After a terrible flare about a year and a half ago, which took ages to get under control, Sulfa was finally added to my Mthx and has really been a game changer. I have also been lucky enough to have an absolutely amazing Rheumatologist and I have
Hello All Just had my latest check up at the Hospital. After a terrible flare about a year and a half ago, which took ages to get under control, Sulfa was finally added to my Mthx and has really been a game changer. I have also been lucky enough to have an absolutely amazing Rheumatologist and I have
Chockyuk
in
NRAS
6 days ago
Maybe not PMR update 5 years on
Good morning after 5 years next month on steroids with a PMR diagnosis I am headed down a different treatment path. I spoke to a musculoskeletal specialist in UK who questioned if I had ever had PMR due to my original diagnosis blood test showing a CRP result of 6 and an ESR of 1, whilst acknowledging
Good morning after 5 years next month on steroids with a PMR diagnosis I am headed down a different treatment path. I spoke to a musculoskeletal specialist in UK who questioned if I had ever had PMR due to my original diagnosis blood test showing a CRP result of 6 and an ESR of 1, whilst acknowledging
Pawscat11
in
PMRGCAuk
11 days ago
Follow up to initial appt
Hi all, I had my initial appt with rheumatologist 19th April, who diagnosed seronegative inflammatory arthritis. He gave me a steroid injection, which does seem to have lessened the swelling a bit, but still stiff and in pain. But I have yet to receive a follow up letter summarising the appt and findings
Hi all, I had my initial appt with rheumatologist 19th April, who diagnosed seronegative inflammatory arthritis. He gave me a steroid injection, which does seem to have lessened the swelling a bit, but still stiff and in pain. But I have yet to receive a follow up letter summarising the appt and findings
hazelcats
in
NRAS
12 days ago
Pain Relief
I have posted before regarding Scleroderma and Raynauds and the problems which relate to this. I have osteoarthritis in my knees and they are so very painful. I was coping with the help of steroid injections, paracetamol and Ibuprofen however steroid injections are now limited with less relief and
I have posted before regarding Scleroderma and Raynauds and the problems which relate to this. I have osteoarthritis in my knees and they are so very painful. I was coping with the help of steroid injections, paracetamol and Ibuprofen however steroid injections are now limited with less relief and
creditcrunchie
in
Scleroderma & Raynaud's UK (SRUK)
12 days ago
Is it back? 🙈
Hi Everyone, Tapered off Pred in Jan24 after being diagnosed with PMR May 18. . I had my routine Rheumie appointment 2 weeks ago which was with a Registrar for the first time. I told him I had increasing neck, shoulders and wrist, hand pain for the past few weeks especially bad upon waking. He told
Hi Everyone, Tapered off Pred in Jan24 after being diagnosed with PMR May 18. . I had my routine Rheumie appointment 2 weeks ago which was with a Registrar for the first time. I told him I had increasing neck, shoulders and wrist, hand pain for the past few weeks especially bad upon waking. He told
Croft9232
in
PMRGCAuk
13 days ago
Angina and arthritis pain.
I have had for many years ischeamic heart disease (7 stents) damaged area of heart muscle due to two heart attacks back in 2014 plus AF. I also suffer with osteoarthritis in various joints the latest most recent in my right hip. This is constantly giving me severe pain that pain killers won't touch.
I have had for many years ischeamic heart disease (7 stents) damaged area of heart muscle due to two heart attacks back in 2014 plus AF. I also suffer with osteoarthritis in various joints the latest most recent in my right hip. This is constantly giving me severe pain that pain killers won't touch.
graemeparsons
in
British Heart Foundation
15 days ago
Severe pain in Hips
Hello all, I haven’t been on this section for a long time, due to my many other conditions like Rheumatoid Arthritis & newish one, Smouldering Myeloma affecting me. But I would be glad of any advice/contact on the Osteoarthritis. I started with Fibromyalgia in my mid-late 40’s, now aged 62 & as
Hello all, I haven’t been on this section for a long time, due to my many other conditions like Rheumatoid Arthritis & newish one, Smouldering Myeloma affecting me. But I would be glad of any advice/contact on the Osteoarthritis. I started with Fibromyalgia in my mid-late 40’s, now aged 62 & as
Shamrockgirl
in
NRAS
15 days ago
vita health group physio? & Simponi question
Hi I have ankylosing spondylitis and inject 100ml of Simponi every 4 weeks, I just had MOHs surgery for skin cancer on my nose. I got an infection so this messed up my injections, did my injection then injected again 3 weeks later as pain was horrific. I have knee problems and went to rheumatology
Hi I have ankylosing spondylitis and inject 100ml of Simponi every 4 weeks, I just had MOHs surgery for skin cancer on my nose. I got an infection so this messed up my injections, did my injection then injected again 3 weeks later as pain was horrific. I have knee problems and went to rheumatology
Km27
in
NRAS
16 days ago
Quinoric side effects
Hi all, I hope you’re keeping tip top as best you can. So, I have been on hydroxychloquine for 5 years this year. I’ve mostly been given the brand Quinoric which is increasingly upsetting my tummy. I already have gastrointestinal issues from endometriosis and the Lupus meds aggravate it. I understand
Hi all, I hope you’re keeping tip top as best you can. So, I have been on hydroxychloquine for 5 years this year. I’ve mostly been given the brand Quinoric which is increasingly upsetting my tummy. I already have gastrointestinal issues from endometriosis and the Lupus meds aggravate it. I understand
BloominUterus
in
LUPUS UK
5 months ago
angular cheilitis
I’ve suffer a lot from this I get it around 3/4 times a year but usually lasts about a week. I’m on my third week struggling with this and can’t find a lip balm or treatment. I heard Daktarin oral gel but it’s sold out everywhere and the pharmacy said they even finding it hard to get it in for people
I’ve suffer a lot from this I get it around 3/4 times a year but usually lasts about a week. I’m on my third week struggling with this and can’t find a lip balm or treatment. I heard Daktarin oral gel but it’s sold out everywhere and the pharmacy said they even finding it hard to get it in for people
Ladybitsandbobs
in
NRAS
5 months ago
Steroid injection and surgery
Hi all , I'm just wondering if anyone knows how long you have to wait after steroid injection in the bottom before having gallbladder removal I've been told operation will be in 2 to 3 mths unless a cancellation comes in. But a friend said I'll have to wait 3mths now
Hi all , I'm just wondering if anyone knows how long you have to wait after steroid injection in the bottom before having gallbladder removal I've been told operation will be in 2 to 3 mths unless a cancellation comes in. But a friend said I'll have to wait 3mths now
Trishfrog1
in
NRAS
24 days ago
Puzzled
I went for a Rheumatology appointment yesterday as I’d had to stop Etanercept for the 2nd time due to tonsillitis, itchy rash sore eyes, blurred vision etc. I saw a nurse practitioner who said I didn’t need a steroid injection and because and I have another appointment with my new Consultant in November
I went for a Rheumatology appointment yesterday as I’d had to stop Etanercept for the 2nd time due to tonsillitis, itchy rash sore eyes, blurred vision etc. I saw a nurse practitioner who said I didn’t need a steroid injection and because and I have another appointment with my new Consultant in November
Blackwitch
in
NRAS
24 days ago
MRI's
Hi all, I will post this elsewhere later but I thought ( just for a start ) many of you AF'ers have other medical conditions beyond AF and many have joint issues. Mine is a left shoulder issue, I have been prescribed rest, prescribed pain killers, have had a steroid injection ......... and there is
Hi all, I will post this elsewhere later but I thought ( just for a start ) many of you AF'ers have other medical conditions beyond AF and many have joint issues. Mine is a left shoulder issue, I have been prescribed rest, prescribed pain killers, have had a steroid injection ......... and there is
BenHall1
in
Atrial Fibrillation Support
24 days ago
is this a flare
I was diagnosed with GCA in Dec 2022, put on 30mg prednisolone, ultra sound delayed by 10 days and had negative result, within a few days of the prednisolone the headaches neck pain and scalp pain all gone, I gradually tapered to 12 and half mg last September, have had many side effects, weight gain,
I was diagnosed with GCA in Dec 2022, put on 30mg prednisolone, ultra sound delayed by 10 days and had negative result, within a few days of the prednisolone the headaches neck pain and scalp pain all gone, I gradually tapered to 12 and half mg last September, have had many side effects, weight gain,
Mumdadlove
in
PMRGCAuk
26 days ago
Pegasys for MF transitioning from hydroxycarbamide
My darling wife, had her appointment today, and her blood is well below par her Hgb is 82 hematocrit 0.27, platelets 213 which is good, white cells 45. The hematologist was talking about introducing pegasys interferon injections, after her 3 bags of red cells and a ferinject. She is worried about losing
My darling wife, had her appointment today, and her blood is well below par her Hgb is 82 hematocrit 0.27, platelets 213 which is good, white cells 45. The hematologist was talking about introducing pegasys interferon injections, after her 3 bags of red cells and a ferinject. She is worried about losing
jointpain
in
MPN Voice
5 months ago
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