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Worsening Raynaud’s
Hi everyone, I haven’t posted here in about a year, but have since been diagnosed with UCTD, secondary Raynaud’s and Sjogren’s. I’m currently in a flare up, my first since I’ve been on Methotrexate and my Raynaud’s has gotten so bad. I’m just looking for a bit of advice on how other people manage it
Hi everyone, I haven’t posted here in about a year, but have since been diagnosed with UCTD, secondary Raynaud’s and Sjogren’s. I’m currently in a flare up, my first since I’ve been on Methotrexate and my Raynaud’s has gotten so bad. I’m just looking for a bit of advice on how other people manage it
emmamonica360
in
Scleroderma & Raynaud's UK (SRUK)
2 years ago
Does anyone have speech problems after taking horizant?
I’ve been taking Horizant since 2017. I had tried straight gabby and lyrica before switching to Horizant. The reason my doctor tried me on horizant is because the straight gabby would make me feel like I was going crazy. My mind would be thinking one thing but I would say something completely different
I’ve been taking Horizant since 2017. I had tried straight gabby and lyrica before switching to Horizant. The reason my doctor tried me on horizant is because the straight gabby would make me feel like I was going crazy. My mind would be thinking one thing but I would say something completely different
EYESWIDEOPEN17
in
Restless Legs Syndrome
2 years ago
Experience with giving oneself a shot? Exenatide shot leaking - medicine being lost - please help
I take 2 mg of Exenatide a week for my PD. (There are many other threads explaining why) About 1/2 the time the shot leaks some liquid on to my skin surrounding the shot site. I’m concerned that I’m therefore not getting a complete dose. Please, if you have experience with this, help me. My husband
I take 2 mg of Exenatide a week for my PD. (There are many other threads explaining why) About 1/2 the time the shot leaks some liquid on to my skin surrounding the shot site. I’m concerned that I’m therefore not getting a complete dose. Please, if you have experience with this, help me. My husband
Hidden
in
Cure Parkinson's
2 years ago
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Pain relief for Pernicious Anemia numbness etc.
Hello everyone, this is my 2nd question on this most helpful site! My question is as follows, I’am self-injecting B12, subcutaneous, weekly, I still get the numbness in my hands and tingling, it is improving I’ am just very impatient (been injecting since Nov. 8, 2020. Is there any pain medication
Hello everyone, this is my 2nd question on this most helpful site! My question is as follows, I’am self-injecting B12, subcutaneous, weekly, I still get the numbness in my hands and tingling, it is improving I’ am just very impatient (been injecting since Nov. 8, 2020. Is there any pain medication
RisingOne
in
Pernicious Anaemia Society
2 years ago
Gabapentin recommendation?
I have been dealing with pudendal neuralgia for 2 years now with no relief. I have had MRIs taken that show no causes. I have tried pelvic floor therapy with no progress. So, now I am starting gabapentin. Has anyone had success with this medication for tingling in the pelvic area? I am up to 600 mg
I have been dealing with pudendal neuralgia for 2 years now with no relief. I have had MRIs taken that show no causes. I have tried pelvic floor therapy with no progress. So, now I am starting gabapentin. Has anyone had success with this medication for tingling in the pelvic area? I am up to 600 mg
Roxy000
in
Pelvic Pain Support Network
2 years ago
UM-Palmitoylethanolamide can slow down Parkinson's disease 2017
I know, it is only 19 days since I posted on this topic: https://healthunlocked.com/cure-parkinsons/posts/147737298/palmitoylethanolamide-luteolin-kind-of-interesting But sometimes I bury the lead. I normally stay away from eurekalert.org (I'm not sure why. I guess I thought it was some advertising site
I know, it is only 19 days since I posted on this topic: https://healthunlocked.com/cure-parkinsons/posts/147737298/palmitoylethanolamide-luteolin-kind-of-interesting But sometimes I bury the lead. I normally stay away from eurekalert.org (I'm not sure why. I guess I thought it was some advertising site
Bolt_Upright
in
Cure Parkinson's
2 years ago
Nifedipine side effects
My daughter is taking nifedipine and is struggling with the side effects. It’s early days as it’s only about a week but she is fatigued, has headaches and neck pain and I’m wondering if this is common and when these may subside. Her appetite has dropped as well. Any advice would be very welcome.
My daughter is taking nifedipine and is struggling with the side effects. It’s early days as it’s only about a week but she is fatigued, has headaches and neck pain and I’m wondering if this is common and when these may subside. Her appetite has dropped as well. Any advice would be very welcome.
lulubookworm
in
Scleroderma & Raynaud's UK (SRUK)
2 years ago
Inflammaging, Kynurenine pathway , tryptophan
How does the Kynurenine pathway effect our neurological homeostasis and lack of homeostasis? https://scienceofparkinsons.com/2021/03/05/tdo/#more-63617 Rescuema pointed me towards this SOP and I’m reposting bc as she always does, she pointed me towards some great info to increase my understanding of
How does the Kynurenine pathway effect our neurological homeostasis and lack of homeostasis? https://scienceofparkinsons.com/2021/03/05/tdo/#more-63617 Rescuema pointed me towards this SOP and I’m reposting bc as she always does, she pointed me towards some great info to increase my understanding of
Hidden
in
Cure Parkinson's
2 years ago
Fibro and stabbing foot pain?
I've been recently diagnosed with fibro and also have inflammatory arthritis. Once in a while and out of the blue, I get these terrible stabbing pains on the outer side of my foot - it's excruciating, like being electrocuted or someone actually stabbing my foot with a knife. Sometimes it comes in two
I've been recently diagnosed with fibro and also have inflammatory arthritis. Once in a while and out of the blue, I get these terrible stabbing pains on the outer side of my foot - it's excruciating, like being electrocuted or someone actually stabbing my foot with a knife. Sometimes it comes in two
mjrminor
in
Fibromyalgia Action UK
2 years ago
Gralise/ gabapentin will cause augmentation?
I have had RLS since I was a child and is has periodically made my life unbearable. After having been through augmentation many times, I was assured this was a good option. I am on 1800 mg daily and it works fairly well (RLS 75% improved) though I was successfully on Neurontin, also gabapentin, for
I have had RLS since I was a child and is has periodically made my life unbearable. After having been through augmentation many times, I was assured this was a good option. I am on 1800 mg daily and it works fairly well (RLS 75% improved) though I was successfully on Neurontin, also gabapentin, for
Camry2020
in
Restless Legs Syndrome
2 years ago
Dexmedetomidine attenuates motor deficits via restoring the function of neurons in the nigrostriatal circuit in Parkinson's disease - mice
Dexmedetomidine attenuates motor deficits via restoring the function of neurons in the nigrostriatal circuit in Parkinson's disease model mice https://pubmed.ncbi.nlm.nih.gov/35150656/ Dexmedetomidine (DEX) is a sedative and analgesic drug.
Dexmedetomidine attenuates motor deficits via restoring the function of neurons in the nigrostriatal circuit in Parkinson's disease model mice https://pubmed.ncbi.nlm.nih.gov/35150656/ Dexmedetomidine (DEX) is a sedative and analgesic drug.
Hidden
in
Cure Parkinson's
2 years ago
Polyneuromyopathy & Eye Toxicity
Hello first post so be kind Looking for anyone who has had Toxicity of Eyes, muscles & pheriphal Neuropathy damage from Hydrochloriquine? Any treatment to combat symptoms of muscle wastage, nerve damage, loss of central & peripheral sight, tinnitus and hearing loss? Plus how long before the damage stopped
Hello first post so be kind Looking for anyone who has had Toxicity of Eyes, muscles & pheriphal Neuropathy damage from Hydrochloriquine? Any treatment to combat symptoms of muscle wastage, nerve damage, loss of central & peripheral sight, tinnitus and hearing loss? Plus how long before the damage stopped
ToxicTina
in
LUPUS UK
2 years ago
Palmitoylethanolamide - Luteolin: Kind of Interesting
So I was bouncing around and found this article: Palmitoylethanolamide/Luteolin as Adjuvant Therapy to Improve an Unusual Case of Camptocormia in a Patient with Parkinson’s Disease: A Case Report 2021 https://www.ncbi.nlm.nih.gov/labs/pmc/articles/PMC8794485/ This is a single case report about a fairly
So I was bouncing around and found this article: Palmitoylethanolamide/Luteolin as Adjuvant Therapy to Improve an Unusual Case of Camptocormia in a Patient with Parkinson’s Disease: A Case Report 2021 https://www.ncbi.nlm.nih.gov/labs/pmc/articles/PMC8794485/ This is a single case report about a fairly
Bolt_Upright
in
Cure Parkinson's
2 years ago
Quercetin attenuates neurotoxicity induced by iron oxide nanoparticles 2021
Quercetin attenuates neurotoxicity induced by iron oxide nanoparticles https://jnanobiotechnology.biomedcentral.com/articles/10.1186/s12951-021-01059-0 "Abstract Iron oxide nanoparticles (IONPs) have been proposed as targeted carriers to deliver therapeutic molecules in the central nervous system (CNS
Quercetin attenuates neurotoxicity induced by iron oxide nanoparticles https://jnanobiotechnology.biomedcentral.com/articles/10.1186/s12951-021-01059-0 "Abstract Iron oxide nanoparticles (IONPs) have been proposed as targeted carriers to deliver therapeutic molecules in the central nervous system (CNS
Bolt_Upright
in
Cure Parkinson's
2 years ago
Balancing our intricate nervous system...inhale...exhale...
Nurturing the nervous system. How well do you know and sense and feel from your inner world. Your sacred interiority. Breath is the pillar of life. And the pillar of our yoga practise. We all breathe. Nothing is more universal. Today, as I map out a new podcast series on the nervous system, wanted to
Nurturing the nervous system. How well do you know and sense and feel from your inner world. Your sacred interiority. Breath is the pillar of life. And the pillar of our yoga practise. We all breathe. Nothing is more universal. Today, as I map out a new podcast series on the nervous system, wanted to
WhollyAligned
Administrator
in
Nutrition and Yoga for Health
2 years ago
The 'right' kind of Magnesium supplement?
For the past couple of years I've been taking Magnesium L Threonate, for night cramps and it's worked extremely well but a couple of weeks ago, I had to switch to Magnesium Oxide as I couldn't get my usual. In any case, since I switched, my tummy has not been right (diarrhoea). Could the Magnesium Oxide
For the past couple of years I've been taking Magnesium L Threonate, for night cramps and it's worked extremely well but a couple of weeks ago, I had to switch to Magnesium Oxide as I couldn't get my usual. In any case, since I switched, my tummy has not been right (diarrhoea). Could the Magnesium Oxide
Mlinde
in
Thyroid UK
2 years ago
Sotalol and swollen ankles and feet
Hi all, I was put on sotalol about 2 months ago, I started noticing my feet swelling a little bit about 4 weeks ago, the last week they have swollen up a lot more it’s saying on the medicine notes that swelling is a common side affect. Was just wondering how many others have this side affect. I do have
Hi all, I was put on sotalol about 2 months ago, I started noticing my feet swelling a little bit about 4 weeks ago, the last week they have swollen up a lot more it’s saying on the medicine notes that swelling is a common side affect. Was just wondering how many others have this side affect. I do have
spaghetti12
in
AF Association
2 years ago
First reoccurrence chemotherapy not worked
Hi, so my sister had a reoccurrence after a month and went onto have six weekly one hour sessions of chemotherapy. After five sessions CT has been done. CA125 markers are up. Chemotherapy hasn’t worked so that has been stopped. I will be seeing her consultant tomorrow with her. I have put to him that
Hi, so my sister had a reoccurrence after a month and went onto have six weekly one hour sessions of chemotherapy. After five sessions CT has been done. CA125 markers are up. Chemotherapy hasn’t worked so that has been stopped. I will be seeing her consultant tomorrow with her. I have put to him that
nettiebobs
in
My Ovacome
2 years ago
Weather & Neuropathy
Hi fellow PA/B12d friends! I have been doing weekly injections since October and will most likely be doing them twice a week as soon as I see my neurologist. My neuropathy is so much better but just can’t quite get it out of my feet. My question is this…do you experience worsening neuropathy with big
Hi fellow PA/B12d friends! I have been doing weekly injections since October and will most likely be doing them twice a week as soon as I see my neurologist. My neuropathy is so much better but just can’t quite get it out of my feet. My question is this…do you experience worsening neuropathy with big
lambuth_eagle
in
Pernicious Anaemia Society
2 years ago
HYPERHOMOCYSTEINEMIA AND ITS TREATMENT IN PATIENTS WITH PARKINSON’S DISEASE 2016 (Treat it with folic acid?)
HYPERHOMOCYSTEINEMIA AND ITS TREATMENT IN PATIENTS WITH PARKINSON’S DISEASE 2016 https://www.ncbi.nlm.nih.gov/labs/pmc/articles/PMC5034996/ Long story short: About 20% of PwP have abnormally high homocysteine. And even when it is not abnormally high, it is still higher than non PwP. There does not seem
HYPERHOMOCYSTEINEMIA AND ITS TREATMENT IN PATIENTS WITH PARKINSON’S DISEASE 2016 https://www.ncbi.nlm.nih.gov/labs/pmc/articles/PMC5034996/ Long story short: About 20% of PwP have abnormally high homocysteine. And even when it is not abnormally high, it is still higher than non PwP. There does not seem
Bolt_Upright
in
Cure Parkinson's
2 years ago
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