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Leg Cramping, Ankle Neuropathy...Help!
Hello all! When I last posted 2 months ago, I had questions regarding the possibility that my daily 1,000 mcg sublingual might no longer be adequate to address PA, even though all of my test results were adequate (MMA, Homocysteine, MCV). Since then, however, I've developed left ankle numbness/pain.
Hello all! When I last posted 2 months ago, I had questions regarding the possibility that my daily 1,000 mcg sublingual might no longer be adequate to address PA, even though all of my test results were adequate (MMA, Homocysteine, MCV). Since then, however, I've developed left ankle numbness/pain.
Greeneyecolor
in
Pernicious Anaemia Society
11 months ago
Evaluating Success
See profile for current understanding of my life long B12 deficiency and self designed supplementation regiment. [u]July 2023[/u] Over time I changed by supplementation starting 90 days ago. Before that I was improving to some degree. I used the pain from Peripheral Neuropathy to monitor improvement
See profile for current understanding of my life long B12 deficiency and self designed supplementation regiment. [u]July 2023[/u] Over time I changed by supplementation starting 90 days ago. Before that I was improving to some degree. I used the pain from Peripheral Neuropathy to monitor improvement
WIZARD6787
in
Pernicious Anaemia Society
11 months ago
Oxycodone
Hello everyone & especially Sue & Jules. I have now had 4 blissful months sleep on 10mg of Oxycodone.I have now successfully reduced my gabapentin from 2,100 to 1,500mg. But am now starting to get one breakthrough session of rls a night & am worried it will get worse. Should I stop reducing the gabapentin
Hello everyone & especially Sue & Jules. I have now had 4 blissful months sleep on 10mg of Oxycodone.I have now successfully reduced my gabapentin from 2,100 to 1,500mg. But am now starting to get one breakthrough session of rls a night & am worried it will get worse. Should I stop reducing the gabapentin
Simkin
in
Restless Legs Syndrome
11 months ago
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Sotalol and troubles breathing
I would like to reach out to see if anybody has ever had similar experience as I do at present.After 7 cardioversions and 2 ablations I was eventually and surprisingly converted to sinus 7months ago with Sotalol(amiodarone and flecainide failed to do so) and remained in sinus since. I am very active
I would like to reach out to see if anybody has ever had similar experience as I do at present.After 7 cardioversions and 2 ablations I was eventually and surprisingly converted to sinus 7months ago with Sotalol(amiodarone and flecainide failed to do so) and remained in sinus since. I am very active
55zuzanka61
in
AF Association
11 months ago
Neuropathy with PD
Has anyone had "neuropathy," in hands/legs? Over the last few weeks I have noticed numbness and tingling. Here we go....another "thing" to deal with. Good ol' PD.
Has anyone had "neuropathy," in hands/legs? Over the last few weeks I have noticed numbness and tingling. Here we go....another "thing" to deal with. Good ol' PD.
cjCardio53
in
Cure Parkinson's
11 months ago
Private Rheumatologist Consultation
Would anyone have recommendation on private rheumatologist close to Falmouth? My next NHS rheumatologist appointment is in Aug. I need to see rheumatologist for my painful feet, hands and jaw. I went to see the local GP about my pain, but they're unable to prescribe medication to relieve the swelling
Would anyone have recommendation on private rheumatologist close to Falmouth? My next NHS rheumatologist appointment is in Aug. I need to see rheumatologist for my painful feet, hands and jaw. I went to see the local GP about my pain, but they're unable to prescribe medication to relieve the swelling
Mikiki
in
LUPUS UK
11 months ago
Horizant
After pregabalin and gabapentin both made me nervous (I successfully tolerated the pregabalin for years, with daytime sedation however). Codeine also seems to be waking me up instead of sedating me. Doctor is suggesting trying Horizant. I know it is for people who experience symptoms all day, but
After pregabalin and gabapentin both made me nervous (I successfully tolerated the pregabalin for years, with daytime sedation however). Codeine also seems to be waking me up instead of sedating me. Doctor is suggesting trying Horizant. I know it is for people who experience symptoms all day, but
wantokporo
in
Restless Legs Syndrome
1 year ago
EMG test
Hello all I hope you are doing the best you can. I have received a letter from Sheffield Hallam today and I’m being booked in for an EMG has anyone had this and do the results reflect your symptoms and how you feel with your type of ataxia. It’s a long waiting list so I have to be a good patient 🤨.
Hello all I hope you are doing the best you can. I have received a letter from Sheffield Hallam today and I’m being booked in for an EMG has anyone had this and do the results reflect your symptoms and how you feel with your type of ataxia. It’s a long waiting list so I have to be a good patient 🤨.
Guardsman68
in
Ataxia UK
1 year ago
Desperate for help
next Friday I will have a PSMA PTscan , which I failed because lie straight on the table due to pain. Lately, with the doctor it has been decided to cut the pain meds. Removed patches, pills down. Ok! Tried to lie down straight and I couldn’t do it!? What can be done in order to get me ready for the
next Friday I will have a PSMA PTscan , which I failed because lie straight on the table due to pain. Lately, with the doctor it has been decided to cut the pain meds. Removed patches, pills down. Ok! Tried to lie down straight and I couldn’t do it!? What can be done in order to get me ready for the
p1411887
in
Advanced Prostate Cancer
1 year ago
Neuropathic Foot Pain
Hello Warriors: I've just finished my second pluvicto injection and everything seems to be going fine. PSA is going down and I do have mild bouts of diarrhea but that is totally manageable. My 20 year battle with this disease continues. I will never give up . I continue to have neuropathic foot
Hello Warriors: I've just finished my second pluvicto injection and everything seems to be going fine. PSA is going down and I do have mild bouts of diarrhea but that is totally manageable. My 20 year battle with this disease continues. I will never give up . I continue to have neuropathic foot
Hidden
in
Advanced Prostate Cancer
1 year ago
Starting pregabalin
I have received a letter from Leicester hospital following my consultation with a neurology Registrar. I am on 1100mg of Gabapentin suggested dose of Pregabalin is 75mg at 6.00pm and 75mg 30 minutes before bedtime, can be uptitrated as required. Does this sound right? I have zero confidence in registrar
I have received a letter from Leicester hospital following my consultation with a neurology Registrar. I am on 1100mg of Gabapentin suggested dose of Pregabalin is 75mg at 6.00pm and 75mg 30 minutes before bedtime, can be uptitrated as required. Does this sound right? I have zero confidence in registrar
Elsie77
in
Restless Legs Syndrome
1 year ago
neuropathy, pins, and needles in the face!! Has anyone else had this?
I have been experiencing this randomly and faintly over the past 7 months. Now I have been receiving b12 shots for 8 weeks, along with hot aching pins and needles in my feet and hands I woke this morning to way more intense pins and needles on my face. Both sides of my face and across my jaw. From what
I have been experiencing this randomly and faintly over the past 7 months. Now I have been receiving b12 shots for 8 weeks, along with hot aching pins and needles in my feet and hands I woke this morning to way more intense pins and needles on my face. Both sides of my face and across my jaw. From what
brenanddave
in
Pernicious Anaemia Society
1 year ago
sacral implant site pain for pelvic floor dysfuntion
I am on second site sacral medtronic implant after one year I have severe stabbing pain in back and front of thigh,have had si injection but made it worse,did pt, made it worse are there any thoughts out there that may help
I am on second site sacral medtronic implant after one year I have severe stabbing pain in back and front of thigh,have had si injection but made it worse,did pt, made it worse are there any thoughts out there that may help
razzle51
in
Pelvic Pain Support Network
1 year ago
HDR BT Salvage Therapy
Hello All I just completed the second BT procedure at MSK. Pain level was maybe 3 but mostly gone the next morning with some soreness. My next step I’m told is bloodwork in 3 months which I’m not concerned about. I am concerned about the 6 month MRI which could show if any cancer still remains. When
Hello All I just completed the second BT procedure at MSK. Pain level was maybe 3 but mostly gone the next morning with some soreness. My next step I’m told is bloodwork in 3 months which I’m not concerned about. I am concerned about the 6 month MRI which could show if any cancer still remains. When
Trying-Times
in
Advanced Prostate Cancer
1 year ago
Pelvic Muscle Spasms
Ive been just diagnosed and my VJ is constantly throbbing. Using suppositories and AZO products but I dont know how to relax these muscles. Anyone else? HELP it HURTS
Ive been just diagnosed and my VJ is constantly throbbing. Using suppositories and AZO products but I dont know how to relax these muscles. Anyone else? HELP it HURTS
QueenVic1952
in
Pelvic Pain Support Network
1 year ago
Head pins and needles
Hi all, I hope you're all hanging on in there. I am newly diagnose and wanted to ask if anyone has pins and needles, especially in the head. I am having these weird sensations all over my body, difficulty walking with balance issues, plus vision problems too. Any advice greatly appreciated. Thank
Hi all, I hope you're all hanging on in there. I am newly diagnose and wanted to ask if anyone has pins and needles, especially in the head. I am having these weird sensations all over my body, difficulty walking with balance issues, plus vision problems too. Any advice greatly appreciated. Thank
bubbatetley
in
LUPUS UK
1 year ago
I’m thinking about Benfotiamine.
Hello all of you HU people ~ I am the wife of a PwP, dx 12/29/2020. Our history ( very briefly) ~ left sides tremors and anxiety, mostly. We tried B1 HCL ~ didn’t work. Tried Thiamine mononitrate and that seemed to work for a while Recently I took hubby off all B1. None of them seemed to work
Hello all of you HU people ~ I am the wife of a PwP, dx 12/29/2020. Our history ( very briefly) ~ left sides tremors and anxiety, mostly. We tried B1 HCL ~ didn’t work. Tried Thiamine mononitrate and that seemed to work for a while Recently I took hubby off all B1. None of them seemed to work
Lizzy9
in
Cure Parkinson's
1 year ago
Homeopathic treatment
I've lived with ataxia for around ten years and its grown progressively worse. Contemporary straightforward here's your prescription' medicine seems to have no place in its treatment. What about homeopathic medicine? Has anyone out there found a homeopathic treatment which has any effect on this debilitating
I've lived with ataxia for around ten years and its grown progressively worse. Contemporary straightforward here's your prescription' medicine seems to have no place in its treatment. What about homeopathic medicine? Has anyone out there found a homeopathic treatment which has any effect on this debilitating
Piero
in
Ataxia UK
1 year ago
Pycnogenol® supplementation alleviates symptoms of Parkinson's disease with mild cognitive impairment
Recent article 2022. Not sure if it was posted. I was going to take it to lower my BP which has started to creep up. I worried because I had read [i]Their pharmacodynamic action primarily consists of antioxidant properties and possible anti-inflammatory effects. Pycnogenol may also influence the release
Recent article 2022. Not sure if it was posted. I was going to take it to lower my BP which has started to creep up. I worried because I had read [i]Their pharmacodynamic action primarily consists of antioxidant properties and possible anti-inflammatory effects. Pycnogenol may also influence the release
Sydney75
in
Cure Parkinson's
1 year ago
Auto injector advice please
I SI B12, but my daughter is needle phobic so I have to do her injections regularly for her. She would like to try an auto injector... Where do I begin? Any advice welcome as to where to purchase and tips on how to use (especially if you are needle phobic). How did you find it? Did it help? is it painless
I SI B12, but my daughter is needle phobic so I have to do her injections regularly for her. She would like to try an auto injector... Where do I begin? Any advice welcome as to where to purchase and tips on how to use (especially if you are needle phobic). How did you find it? Did it help? is it painless
Hidden
in
Pernicious Anaemia Society
1 year ago
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