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Hi there , could anyone tell me where to buy methylcobalamine or hydroxocobalamine for self injection. Thank you
I was diagnosed with PA 11 years ago and started to SI just a year ago. My GP will only give me a prescription for 6 vials of hyhydroxocobalamine a year. Could anyone advice me where I can purchase more . Thanks
I was diagnosed with PA 11 years ago and started to SI just a year ago. My GP will only give me a prescription for 6 vials of hyhydroxocobalamine a year. Could anyone advice me where I can purchase more . Thanks
Helliborous
in
Pernicious Anaemia Society
10 months ago
Sadly Pluvicto did not work ...
After receiving the results from my PSMA PET scan at the Mayo Clinic in Jacksonville, I am sad to say my disease is progressing. I had four Pluvicto infusions with no SE's what so ever.. I felt that they mirrored my Docetaxel treatments again other than my hair falling out I had no other SE's. which
After receiving the results from my PSMA PET scan at the Mayo Clinic in Jacksonville, I am sad to say my disease is progressing. I had four Pluvicto infusions with no SE's what so ever.. I felt that they mirrored my Docetaxel treatments again other than my hair falling out I had no other SE's. which
TheWizardofWesley
in
Advanced Prostate Cancer
10 months ago
Foot pain
Since the recent temperature change I've began having serious pain in my feet. Feels like I've been walking all day. Night times are bad as feet feel like they are on fire so have to keep them out of the bed sheets. It all started after a recent holiday and since being back and the increase in temp back
Since the recent temperature change I've began having serious pain in my feet. Feels like I've been walking all day. Night times are bad as feet feel like they are on fire so have to keep them out of the bed sheets. It all started after a recent holiday and since being back and the increase in temp back
Aka-Ice
in
Fibromyalgia Action UK
10 months ago
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HELP! Firmagon reaction?
Hi - yesterday I had my 3rd monthly (80mg) injection of Firmagon. For all my previous injections, including the 2 initial loading doses, I did not have any major side effects, just some minimal soreness at the injection site which resolved in less than 2 days. Yesterday's injection was a little bit
Hi - yesterday I had my 3rd monthly (80mg) injection of Firmagon. For all my previous injections, including the 2 initial loading doses, I did not have any major side effects, just some minimal soreness at the injection site which resolved in less than 2 days. Yesterday's injection was a little bit
LongevityAT
in
Advanced Prostate Cancer
10 months ago
Leg Cramping, Ankle Neuropathy...Help!
Hello all! When I last posted 2 months ago, I had questions regarding the possibility that my daily 1,000 mcg sublingual might no longer be adequate to address PA, even though all of my test results were adequate (MMA, Homocysteine, MCV). Since then, however, I've developed left ankle numbness/pain.
Hello all! When I last posted 2 months ago, I had questions regarding the possibility that my daily 1,000 mcg sublingual might no longer be adequate to address PA, even though all of my test results were adequate (MMA, Homocysteine, MCV). Since then, however, I've developed left ankle numbness/pain.
Greeneyecolor
in
Pernicious Anaemia Society
10 months ago
Evaluating Success
See profile for current understanding of my life long B12 deficiency and self designed supplementation regiment. [u]July 2023[/u] Over time I changed by supplementation starting 90 days ago. Before that I was improving to some degree. I used the pain from Peripheral Neuropathy to monitor improvement
See profile for current understanding of my life long B12 deficiency and self designed supplementation regiment. [u]July 2023[/u] Over time I changed by supplementation starting 90 days ago. Before that I was improving to some degree. I used the pain from Peripheral Neuropathy to monitor improvement
WIZARD6787
in
Pernicious Anaemia Society
10 months ago
Oxycodone
Hello everyone & especially Sue & Jules. I have now had 4 blissful months sleep on 10mg of Oxycodone.I have now successfully reduced my gabapentin from 2,100 to 1,500mg. But am now starting to get one breakthrough session of rls a night & am worried it will get worse. Should I stop reducing the gabapentin
Hello everyone & especially Sue & Jules. I have now had 4 blissful months sleep on 10mg of Oxycodone.I have now successfully reduced my gabapentin from 2,100 to 1,500mg. But am now starting to get one breakthrough session of rls a night & am worried it will get worse. Should I stop reducing the gabapentin
Simkin
in
Restless Legs Syndrome
10 months ago
Sotalol and troubles breathing
I would like to reach out to see if anybody has ever had similar experience as I do at present.After 7 cardioversions and 2 ablations I was eventually and surprisingly converted to sinus 7months ago with Sotalol(amiodarone and flecainide failed to do so) and remained in sinus since. I am very active
I would like to reach out to see if anybody has ever had similar experience as I do at present.After 7 cardioversions and 2 ablations I was eventually and surprisingly converted to sinus 7months ago with Sotalol(amiodarone and flecainide failed to do so) and remained in sinus since. I am very active
55zuzanka61
in
AF Association
10 months ago
Neuropathy with PD
Has anyone had "neuropathy," in hands/legs? Over the last few weeks I have noticed numbness and tingling. Here we go....another "thing" to deal with. Good ol' PD.
Has anyone had "neuropathy," in hands/legs? Over the last few weeks I have noticed numbness and tingling. Here we go....another "thing" to deal with. Good ol' PD.
cjCardio53
in
Cure Parkinson's
10 months ago
Private Rheumatologist Consultation
Would anyone have recommendation on private rheumatologist close to Falmouth? My next NHS rheumatologist appointment is in Aug. I need to see rheumatologist for my painful feet, hands and jaw. I went to see the local GP about my pain, but they're unable to prescribe medication to relieve the swelling
Would anyone have recommendation on private rheumatologist close to Falmouth? My next NHS rheumatologist appointment is in Aug. I need to see rheumatologist for my painful feet, hands and jaw. I went to see the local GP about my pain, but they're unable to prescribe medication to relieve the swelling
Mikiki
in
LUPUS UK
10 months ago
Horizant
After pregabalin and gabapentin both made me nervous (I successfully tolerated the pregabalin for years, with daytime sedation however). Codeine also seems to be waking me up instead of sedating me. Doctor is suggesting trying Horizant. I know it is for people who experience symptoms all day, but
After pregabalin and gabapentin both made me nervous (I successfully tolerated the pregabalin for years, with daytime sedation however). Codeine also seems to be waking me up instead of sedating me. Doctor is suggesting trying Horizant. I know it is for people who experience symptoms all day, but
wantokporo
in
Restless Legs Syndrome
11 months ago
EMG test
Hello all I hope you are doing the best you can. I have received a letter from Sheffield Hallam today and I’m being booked in for an EMG has anyone had this and do the results reflect your symptoms and how you feel with your type of ataxia. It’s a long waiting list so I have to be a good patient 🤨.
Hello all I hope you are doing the best you can. I have received a letter from Sheffield Hallam today and I’m being booked in for an EMG has anyone had this and do the results reflect your symptoms and how you feel with your type of ataxia. It’s a long waiting list so I have to be a good patient 🤨.
Guardsman68
in
Ataxia UK
11 months ago
Desperate for help
next Friday I will have a PSMA PTscan , which I failed because lie straight on the table due to pain. Lately, with the doctor it has been decided to cut the pain meds. Removed patches, pills down. Ok! Tried to lie down straight and I couldn’t do it!? What can be done in order to get me ready for the
next Friday I will have a PSMA PTscan , which I failed because lie straight on the table due to pain. Lately, with the doctor it has been decided to cut the pain meds. Removed patches, pills down. Ok! Tried to lie down straight and I couldn’t do it!? What can be done in order to get me ready for the
p1411887
in
Advanced Prostate Cancer
11 months ago
Neuropathic Foot Pain
Hello Warriors: I've just finished my second pluvicto injection and everything seems to be going fine. PSA is going down and I do have mild bouts of diarrhea but that is totally manageable. My 20 year battle with this disease continues. I will never give up . I continue to have neuropathic foot
Hello Warriors: I've just finished my second pluvicto injection and everything seems to be going fine. PSA is going down and I do have mild bouts of diarrhea but that is totally manageable. My 20 year battle with this disease continues. I will never give up . I continue to have neuropathic foot
Hidden
in
Advanced Prostate Cancer
11 months ago
Starting pregabalin
I have received a letter from Leicester hospital following my consultation with a neurology Registrar. I am on 1100mg of Gabapentin suggested dose of Pregabalin is 75mg at 6.00pm and 75mg 30 minutes before bedtime, can be uptitrated as required. Does this sound right? I have zero confidence in registrar
I have received a letter from Leicester hospital following my consultation with a neurology Registrar. I am on 1100mg of Gabapentin suggested dose of Pregabalin is 75mg at 6.00pm and 75mg 30 minutes before bedtime, can be uptitrated as required. Does this sound right? I have zero confidence in registrar
Elsie77
in
Restless Legs Syndrome
11 months ago
neuropathy, pins, and needles in the face!! Has anyone else had this?
I have been experiencing this randomly and faintly over the past 7 months. Now I have been receiving b12 shots for 8 weeks, along with hot aching pins and needles in my feet and hands I woke this morning to way more intense pins and needles on my face. Both sides of my face and across my jaw. From what
I have been experiencing this randomly and faintly over the past 7 months. Now I have been receiving b12 shots for 8 weeks, along with hot aching pins and needles in my feet and hands I woke this morning to way more intense pins and needles on my face. Both sides of my face and across my jaw. From what
brenanddave
in
Pernicious Anaemia Society
11 months ago
sacral implant site pain for pelvic floor dysfuntion
I am on second site sacral medtronic implant after one year I have severe stabbing pain in back and front of thigh,have had si injection but made it worse,did pt, made it worse are there any thoughts out there that may help
I am on second site sacral medtronic implant after one year I have severe stabbing pain in back and front of thigh,have had si injection but made it worse,did pt, made it worse are there any thoughts out there that may help
razzle51
in
Pelvic Pain Support Network
1 year ago
HDR BT Salvage Therapy
Hello All I just completed the second BT procedure at MSK. Pain level was maybe 3 but mostly gone the next morning with some soreness. My next step I’m told is bloodwork in 3 months which I’m not concerned about. I am concerned about the 6 month MRI which could show if any cancer still remains. When
Hello All I just completed the second BT procedure at MSK. Pain level was maybe 3 but mostly gone the next morning with some soreness. My next step I’m told is bloodwork in 3 months which I’m not concerned about. I am concerned about the 6 month MRI which could show if any cancer still remains. When
Trying-Times
in
Advanced Prostate Cancer
1 year ago
Pelvic Muscle Spasms
Ive been just diagnosed and my VJ is constantly throbbing. Using suppositories and AZO products but I dont know how to relax these muscles. Anyone else? HELP it HURTS
Ive been just diagnosed and my VJ is constantly throbbing. Using suppositories and AZO products but I dont know how to relax these muscles. Anyone else? HELP it HURTS
QueenVic1952
in
Pelvic Pain Support Network
1 year ago
Head pins and needles
Hi all, I hope you're all hanging on in there. I am newly diagnose and wanted to ask if anyone has pins and needles, especially in the head. I am having these weird sensations all over my body, difficulty walking with balance issues, plus vision problems too. Any advice greatly appreciated. Thank
Hi all, I hope you're all hanging on in there. I am newly diagnose and wanted to ask if anyone has pins and needles, especially in the head. I am having these weird sensations all over my body, difficulty walking with balance issues, plus vision problems too. Any advice greatly appreciated. Thank
bubbatetley
in
LUPUS UK
1 year ago
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