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Nasu-Hakola disease
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Behcets + Personal Independence Payment (UK)
I have relatively mild behcets syndrome (frequent mouth ulcers, joint swelling are the main symptoms but there have been periods where i have been unable to walk) Has anyone UK based living with the disease been able to claim
Personal Independence Payment? I'm quite tired of having to pay for my
I have relatively mild behcets syndrome (frequent mouth ulcers, joint swelling are the main symptoms but there have been periods where i have been unable to walk) Has anyone UK based living with the disease been able to claim
Personal Independence Payment? I'm quite tired of having to pay for my
jaquarius
in
Behçet's UK
7 months ago
GCA-Lyme Disease Connection?
Hi all, My wife is a long-time Lyme Disease sufferer, and has recently had a consultation with a biologist/pathologist. This person takes a blood sample and then looks at it under the microscope while the patient is present -- and then comments on what has been seen. My wife had the classic signs
Hi all, My wife is a long-time Lyme Disease sufferer, and has recently had a consultation with a biologist/pathologist. This person takes a blood sample and then looks at it under the microscope while the patient is present -- and then comments on what has been seen. My wife had the classic signs
montebello
in
PMRGCAuk
7 months ago
Do you know your pulse?
Your heartbeat is the most fundamental rhythm in your life, signalling the regular pumping of your heart as it propels blood carrying oxygen and nutrients to the rest of your body. We take the regular beating completely for granted, never giving it a second thought until the elegant control process
Your heartbeat is the most fundamental rhythm in your life, signalling the regular pumping of your heart as it propels blood carrying oxygen and nutrients to the rest of your body. We take the regular beating completely for granted, never giving it a second thought until the elegant control process
TracyAdmin
Partner
in
Sudden Cardiac Arrest & Heart Attack
3 months ago
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vitamin d advice please
I’m sub clinic apparently. I plan to start V D but my first look at what’s available is confusing. Is there more than one V D as I see some are called D3? Is the RDA amount available or do you just take lots to make it up. I’m 61 female with AI rheumatoid conditions and veggie.
I’m sub clinic apparently. I plan to start V D but my first look at what’s available is confusing. Is there more than one V D as I see some are called D3? Is the RDA amount available or do you just take lots to make it up. I’m 61 female with AI rheumatoid conditions and veggie.
Stills
in
Thyroid UK
4 months ago
change of medication to Atenolol from Bisoprolol
I have been on Bisoprolol for a couple of weeks but I haven’t felt great. I felt tired and foggy most of the time, struggled to get my breath and my feet were freezing. I have spoken to the pharmacist at our surgery and he has changed my medication to Atenolol even though he said Bisoprolol was the preferred
I have been on Bisoprolol for a couple of weeks but I haven’t felt great. I felt tired and foggy most of the time, struggled to get my breath and my feet were freezing. I have spoken to the pharmacist at our surgery and he has changed my medication to Atenolol even though he said Bisoprolol was the preferred
Wilky57
in
Atrial Fibrillation Support
3 months ago
PSA Rising Dx 06/2022 PSA 864.42 to 01/2023 <0.06 now no longer undetectable, I won’t see DR until next month, What will the Dr do?
Diagnosed 07/01/2022 PSA 942.40 Gleason 8 ductal without large cribform gland / Gleason 9 4+5 after Davinci RP w/ LNR cT3b CN0 cM1b Gleason 8/9 Stage 4 Grade 5 : 4+5=9 Low Volume High Grade ypT3a YPT3a 3 lytic lesions resolved to 1 mild avid lesion Biopsy 15 samples 4 adenocarcinoma
Diagnosed 07/01/2022 PSA 942.40 Gleason 8 ductal without large cribform gland / Gleason 9 4+5 after Davinci RP w/ LNR cT3b CN0 cM1b Gleason 8/9 Stage 4 Grade 5 : 4+5=9 Low Volume High Grade ypT3a YPT3a 3 lytic lesions resolved to 1 mild avid lesion Biopsy 15 samples 4 adenocarcinoma
Shorehousejam
in
Advanced Prostate Cancer
7 months ago
Persistent AF
Hello, for the past couple of years I have had paroxysmal AF which has taken increasingly long times to convert to NSR. The last few have been 22 hours and usually every couple of weeks or so. This time I was quite pleased as I went 22 days without, the longest interval for 18 months. However it's now
Hello, for the past couple of years I have had paroxysmal AF which has taken increasingly long times to convert to NSR. The last few have been 22 hours and usually every couple of weeks or so. This time I was quite pleased as I went 22 days without, the longest interval for 18 months. However it's now
Spj57
in
Atrial Fibrillation Support
3 months ago
is this a lupus rash?
Just wanted to add: I’m not taking anything anyone says as a diagnosis or medical advice I promise. I was just curious what people thought it looked like, and just gave info for context. I promise I’m not thinking if someone says it does look like the lupus rash that I’m not taking it as a diagnosis
Just wanted to add: I’m not taking anything anyone says as a diagnosis or medical advice I promise. I was just curious what people thought it looked like, and just gave info for context. I promise I’m not thinking if someone says it does look like the lupus rash that I’m not taking it as a diagnosis
Lostnthought00
in
LUPUS UK
4 months ago
Endo gave me private prescription
so, good news! The private Endo appointment went as I’d hoped and he was happy to let me try T3. I’m now trying to source it. I’ve had a no back from a couple of places on the list from Thyroid UK. Thing is, I just wanted to check as on the prescription it says triiodothyronine rather than liothyronine
so, good news! The private Endo appointment went as I’d hoped and he was happy to let me try T3. I’m now trying to source it. I’ve had a no back from a couple of places on the list from Thyroid UK. Thing is, I just wanted to check as on the prescription it says triiodothyronine rather than liothyronine
Loopnova
in
Thyroid UK
3 months ago
Clarity Pharmaceuticals achieves recruitment target for phase II SAR-Bombesin prostate cancer trial
https://themarketherald.com.au/clarity-pharmaceuticals-achieves-recruitment-target-for-phase-ii-sar-bombesin-prostate-cancer-trial-2023-11-07/ for cancer expressing low PSA levels
https://themarketherald.com.au/clarity-pharmaceuticals-achieves-recruitment-target-for-phase-ii-sar-bombesin-prostate-cancer-trial-2023-11-07/ for cancer expressing low PSA levels
Maxone73
in
Advanced Prostate Cancer
7 months ago
Selbourn
Two weeks ago I was given, what the Rummy called a maintenance dose, of Rituximab and of course 125mg of prednisone first. All good apart from little sleep after the Pred! But now OK but very tired all the time could be the ANCA or the meds who knows. I am also having very vivid bad dreams, is anyone
Two weeks ago I was given, what the Rummy called a maintenance dose, of Rituximab and of course 125mg of prednisone first. All good apart from little sleep after the Pred! But now OK but very tired all the time could be the ANCA or the meds who knows. I am also having very vivid bad dreams, is anyone
Selbourn
in
Vasculitis UK
3 months ago
Forum Updates from 29 February 2024
Hello I would like to share the news with you all that our Charity Forums have recently been rebranded and renamed to reflect the condition to which each Forum provides information and support with. The Health Unlocked Team have assured us that all existing members will be unaffected by these changes
Hello I would like to share the news with you all that our Charity Forums have recently been rebranded and renamed to reflect the condition to which each Forum provides information and support with. The Health Unlocked Team have assured us that all existing members will be unaffected by these changes
TracyAdmin
ArrhythmiaAlliance
in
Heart Rhythm Disorders Support
3 months ago
GENERALLY! Is there a correct sleeping position, right recovery position, left recovery position, back, high back support, v pillow, etc?
On an ordinary mattress, sleeping on one side, especially if overweight [now slightly👌], night after night, could it cause damage to internal organs, liver, stomach, heart, lungs etc. I have had back surgery [25 years ago], broken [fragile] clavicle right shoulder, broken skull, broken rib cage structure
On an ordinary mattress, sleeping on one side, especially if overweight [now slightly👌], night after night, could it cause damage to internal organs, liver, stomach, heart, lungs etc. I have had back surgery [25 years ago], broken [fragile] clavicle right shoulder, broken skull, broken rib cage structure
Adlon57
in
Healthy Evidence
7 months ago
Moderate Calcification
Good morning all, I was recently invited for a lung check and have been recalled as the scan showed moderate Calcification. As I like to be proactive and believe this is due to fatty diet, are there any recommendations for menus that will halt (improve?) This condition. My brother dies with this condition
Good morning all, I was recently invited for a lung check and have been recalled as the scan showed moderate Calcification. As I like to be proactive and believe this is due to fatty diet, are there any recommendations for menus that will halt (improve?) This condition. My brother dies with this condition
1AnneMcC
in
Healthy Eating
3 months ago
Thinking of taking an ADT vacation
Hi, just got my latest PSA result yesterday...it was 0.07 ug/l down from 0.14 ug/l one month ago. I'm almost at the 6 month mark of my ADT journey. Six months ago, my PSA was 14.9 ug/l. I'm thinking of taking a break from the ADT because of the side effects. Is it too risky? Would the PSA start
Hi, just got my latest PSA result yesterday...it was 0.07 ug/l down from 0.14 ug/l one month ago. I'm almost at the 6 month mark of my ADT journey. Six months ago, my PSA was 14.9 ug/l. I'm thinking of taking a break from the ADT because of the side effects. Is it too risky? Would the PSA start
John347
in
Advanced Prostate Cancer
7 months ago
Post Amiodarone and waiting for ablation
I was on Amiodarone for 12 months after diagnosis of persistent AF post Covid and stopped taking it in October '23. I had a cardioversion in June and as far as I'm aware I'm still in sinus rhythm. I'm on the list for an ablation at the John Radcliffe in Oxford. I had a couple of blood tests, at my
I was on Amiodarone for 12 months after diagnosis of persistent AF post Covid and stopped taking it in October '23. I had a cardioversion in June and as far as I'm aware I'm still in sinus rhythm. I'm on the list for an ablation at the John Radcliffe in Oxford. I had a couple of blood tests, at my
JoDogBlue
in
Atrial Fibrillation Support
3 months ago
Pressure onback causing AF
I lay on my left side today and nasty afib came on within a couple minutes same on back. I then tried lying on right side and i felt ok with my EMAY ecg saying bradycardia. I qent to GP and she will book me in for xray back and front.Colin
I lay on my left side today and nasty afib came on within a couple minutes same on back. I then tried lying on right side and i felt ok with my EMAY ecg saying bradycardia. I qent to GP and she will book me in for xray back and front.Colin
Alphakiwi
in
Atrial Fibrillation Support
3 months ago
multaq and increased heart beat
Hi everyone haven’t posted for a while,but reading the site daily. Had my third ablation in October 2023 mostly for atypical flutter,procedure wasn’t long but quite extensive judging from post procedure troponin elevations over 20,000.Placed on Multaq afterwards as I already failed all other meds and
Hi everyone haven’t posted for a while,but reading the site daily. Had my third ablation in October 2023 mostly for atypical flutter,procedure wasn’t long but quite extensive judging from post procedure troponin elevations over 20,000.Placed on Multaq afterwards as I already failed all other meds and
55zuzanka61
in
AF Association
3 months ago
relief from arthritis while taking apaxiban
reccomendations to relieve arthritis in lower back and hips - I’m taking apaxiban and have been advised against ibuprofen - many thanks Michael John
reccomendations to relieve arthritis in lower back and hips - I’m taking apaxiban and have been advised against ibuprofen - many thanks Michael John
Spinbiker
in
Arthritis Action
4 months ago
Nose sores
Good morning, Can anyone tell me what you do for nose sores. I've had one at the inside tip for weeks. They come and go but when they come they last for weeks. They've been coming more frequently too. I'm at a loss of how to heal this. I was diagnosed with Lupus SLE, Sjogren's and MCTD. Is it
Good morning, Can anyone tell me what you do for nose sores. I've had one at the inside tip for weeks. They come and go but when they come they last for weeks. They've been coming more frequently too. I'm at a loss of how to heal this. I was diagnosed with Lupus SLE, Sjogren's and MCTD. Is it
Tessie62
in
NRAS
4 months ago
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