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Mycophenolate
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Mycophenolate
However, I have a new consultant who will no longer give me Rituximab and put me on
Mycophenolate
in October 2014. I have not felt well since taking it. Severe headaches, dizziness, bloating, depression. He insists I persevere but I am very unhappy after feeling so well on Rituximab.
However, I have a new consultant who will no longer give me Rituximab and put me on
Mycophenolate
in October 2014. I have not felt well since taking it. Severe headaches, dizziness, bloating, depression. He insists I persevere but I am very unhappy after feeling so well on Rituximab.
phayes14
in
Vasculitis UK
9 years ago
PIP
Just feeling pretty fed up.Have s.l.e and sjogrens.Have had for almost 20 yrs and have worked full time for 30 yrs since 18yrs old.My condition deteriorating over past few years on lots of meds like all you guys out there (prednisolone,
mycophenolate
, hydroxy,naproxen and so on...) meaning most of the
Just feeling pretty fed up.Have s.l.e and sjogrens.Have had for almost 20 yrs and have worked full time for 30 yrs since 18yrs old.My condition deteriorating over past few years on lots of meds like all you guys out there (prednisolone,
mycophenolate
, hydroxy,naproxen and so on...) meaning most of the
pixie66
in
LUPUS UK
9 years ago
REDUCING STERIODS
I am currently working my way upto 2000 mg of
mycophenolate
as well - just gone upto 1500 mg (I have WG/GPA). Does the fatigue ever go away? - I am desperate to go back to work but I seem to take one step forward and two backwards!
I am currently working my way upto 2000 mg of
mycophenolate
as well - just gone upto 1500 mg (I have WG/GPA). Does the fatigue ever go away? - I am desperate to go back to work but I seem to take one step forward and two backwards!
A_14
in
Vasculitis UK
9 years ago
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Lupus
standing up and have to put weight on them I end up crying with the ache and pain, And I am so mixed up one nurse says who you do not have lupus then when I ask the Doctor he says yes you do have lupus, I do not know if I am coming or going, hope to get some answers next week , I have been taking
mycophenolate
standing up and have to put weight on them I end up crying with the ache and pain, And I am so mixed up one nurse says who you do not have lupus then when I ask the Doctor he says yes you do have lupus, I do not know if I am coming or going, hope to get some answers next week , I have been taking
mycophenolate
anne442
in
LUPUS UK
9 years ago
Summer time
I'm now taking anti rejection drugs,
Mycophenolate
mofetil 2000mg per day....so along with the underlying sun allergy, these drugs can make you even more sun sensitive ! So..... I always used Books sensitive 50spf.... But was wondering if there is better out there....
I'm now taking anti rejection drugs,
Mycophenolate
mofetil 2000mg per day....so along with the underlying sun allergy, these drugs can make you even more sun sensitive ! So..... I always used Books sensitive 50spf.... But was wondering if there is better out there....
Sempafidelis1970
in
LUpus Patients Understanding and Support
9 years ago
Mycophenolate withdrawal
Is this side effects from coming of
Mycophenolate
? I feel worn out!
Is this side effects from coming of
Mycophenolate
? I feel worn out!
smudge1980
in
LUPUS UK
9 years ago
Hi, I have scleroderma among other things. The most concerning of which is lung fibrosis.
After consultations between my 2 consultants, (chest and rheumatology), they have decided to prescribe me
Mycophenolate
Mofetil (CellCept). I have 100% trust in my medical advisors, however, I read with trepidation the 8 page accompanying document about possible side effects.
After consultations between my 2 consultants, (chest and rheumatology), they have decided to prescribe me
Mycophenolate
Mofetil (CellCept). I have 100% trust in my medical advisors, however, I read with trepidation the 8 page accompanying document about possible side effects.
titanicus
in
Lung Conditions Community Forum
9 years ago
Infliximab or Humira
Since then I've taken advice from my Rheumatologist and, since last April, have tried a series of other immunosuppressants - azathioprine, which I couldn't tolerate and
mycophenolate
together with colchicine which has made no difference.
Since then I've taken advice from my Rheumatologist and, since last April, have tried a series of other immunosuppressants - azathioprine, which I couldn't tolerate and
mycophenolate
together with colchicine which has made no difference.
Meggy7791
in
Behçet's UK
9 years ago
Weakness
I am on week three of
mycophenolate
. I have been experiencing the feeling of my legs being weaker and my hands shaking. Anyone else experience this?
I am on week three of
mycophenolate
. I have been experiencing the feeling of my legs being weaker and my hands shaking. Anyone else experience this?
adrienneioannou
in
LUPUS UK
9 years ago
my dr says sjogrens can predispose me to infections: comments anyone?
I'm responding well to a treatment plan of daily hydroxychloroquine 400mg +
Mycophenolate
mofetil 1000mg, with low dose 4 week pred tapers during neuro cerebral flares.
I'm responding well to a treatment plan of daily hydroxychloroquine 400mg +
Mycophenolate
mofetil 1000mg, with low dose 4 week pred tapers during neuro cerebral flares.
Barnclown
in
The Australian Sjögren's Syndrome Association
9 years ago
Rheumatologist says sjogrens can predispose me to infections: comments anyone?
I'm responding well to a treatment plan of daily hydroxychloroquine 400mg +
Mycophenolate
mofetil 1000mg, with low dose 4 week pred tapers during neuro cerebral flares.
I'm responding well to a treatment plan of daily hydroxychloroquine 400mg +
Mycophenolate
mofetil 1000mg, with low dose 4 week pred tapers during neuro cerebral flares.
Barnclown
in
LUPUS UK
9 years ago
Mychophenalate 509 mg Drug side effects
I have TAK and I have just been started on
Mycophenolate
mofetil 500mg tablet per day with a view to increasing every week until I hit the necessary dosage. I am having awful side effects nausea, bad stomach, severe headache, generalised aches and pains and diahorrea.
I have TAK and I have just been started on
Mycophenolate
mofetil 500mg tablet per day with a view to increasing every week until I hit the necessary dosage. I am having awful side effects nausea, bad stomach, severe headache, generalised aches and pains and diahorrea.
Coffeebixuk
in
Vasculitis UK
9 years ago
Effective emollient moisturisers: tips please?
Am on daily hydroxychloroquine +
mycophenolate
with other repeat prescription meds - mainly topical steroids & antibiotics I've had enough years learning to manage all this, and trying various over the counter moisturising products.
Am on daily hydroxychloroquine +
mycophenolate
with other repeat prescription meds - mainly topical steroids & antibiotics I've had enough years learning to manage all this, and trying various over the counter moisturising products.
Barnclown
in
Scleroderma & Raynaud's UK (SRUK)
9 years ago
Appointment with Rheumatology cancelled again!
Now I'm currently reducing my Prednisolone with a view to stopping it in March and I wanted to talk about tapering off the
Mycophenolate
(MMF) as we are now at the two year period when it could be considered.
Now I'm currently reducing my Prednisolone with a view to stopping it in March and I wanted to talk about tapering off the
Mycophenolate
(MMF) as we are now at the two year period when it could be considered.
Albasain
in
Vasculitis UK
9 years ago
Diaphragm question
I am 47 year old, fairly fit female with longstanding mildish lupus for which I take low dose prednisolone, Hydroxychloroquine and
Mycophenolate
. I also have Eklira and Flutiform inhalers for narrowing of the small airways.
I am 47 year old, fairly fit female with longstanding mildish lupus for which I take low dose prednisolone, Hydroxychloroquine and
Mycophenolate
. I also have Eklira and Flutiform inhalers for narrowing of the small airways.
Fennella02
in
Lung Conditions Community Forum
9 years ago
Anyone here with experience of pilocarpine (salagen)?
none of my sicca type conditions are dramatically benefitting from my lupus meds (but my chronic joint pain & neuro cerebral symptoms are damped down well by daily hydroxychloroquine 400mg + amitriptyline 20mg +
mycophenolate
1000mg with 3 x 10 mg oral Prednisolone tapers per year as required).
none of my sicca type conditions are dramatically benefitting from my lupus meds (but my chronic joint pain & neuro cerebral symptoms are damped down well by daily hydroxychloroquine 400mg + amitriptyline 20mg +
mycophenolate
1000mg with 3 x 10 mg oral Prednisolone tapers per year as required).
Barnclown
in
The Australian Sjögren's Syndrome Association
9 years ago
Can Kidney Function fluctuate in the early stages of Lupus Nephritis treatment with Mycophenolate?
Is it normal for eGFR values to fluctuate whilst in the early stages of taking
Mycophenolate
sodium or MMF ? How long does it take for kidney function to stabilise if ever with
Mycophenolate
?
Is it normal for eGFR values to fluctuate whilst in the early stages of taking
Mycophenolate
sodium or MMF ? How long does it take for kidney function to stabilise if ever with
Mycophenolate
?
marni04
in
LUPUS UK
9 years ago
Leflunomide Not Working
Any information about
Mycophenolate
would be gratefully received and any other words of hope or comfort while I am feeling a bit hopeless about ever making progress with either the drugs or with the PMR reducing or dying away.
Any information about
Mycophenolate
would be gratefully received and any other words of hope or comfort while I am feeling a bit hopeless about ever making progress with either the drugs or with the PMR reducing or dying away.
suzy1959
in
PMRGCAuk
9 years ago
Mycophenolateand flu like symptoms
I was building up to a full dose of
mycophenolate
. As the dose was increasing I started getting pain like I have the flu. This is then making me not sleep. My nurse has had me stop my medication to see if pain stops. Any one else experienced this?
I was building up to a full dose of
mycophenolate
. As the dose was increasing I started getting pain like I have the flu. This is then making me not sleep. My nurse has had me stop my medication to see if pain stops. Any one else experienced this?
adrienneioannou
in
LUPUS UK
9 years ago
Thank you xx
I am now on
mycophenolate
prednisolone hydroxchloaquin and have to see a renal and lupus specialist after every two weeks A new problem is sleep. Last week in total i had around 20 hours of sleep and felt wide awake all week.
I am now on
mycophenolate
prednisolone hydroxchloaquin and have to see a renal and lupus specialist after every two weeks A new problem is sleep. Last week in total i had around 20 hours of sleep and felt wide awake all week.
pearl123
in
LUPUS UK
9 years ago
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