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Experiences with
Mycophenolate
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The time has come - to AC or not AC
All AF drugs stopped May 2014, started drug treatment for autoimmune disease - Sept 2014 a currently taking
Mycophenolate
- immune suppressant developed for kidney transplant patients & Pyridostigomine - Acetycholineeterase (a neurotransmitter).
All AF drugs stopped May 2014, started drug treatment for autoimmune disease - Sept 2014 a currently taking
Mycophenolate
- immune suppressant developed for kidney transplant patients & Pyridostigomine - Acetycholineeterase (a neurotransmitter).
CDreamer
in
AF Association
8 years ago
Foot Pain advice
They do a great booklet of
mycophenolate
), I wondered if this Foot Pain booklet could be equally helpful...some of you may remember that one of my specialist subjects (😉😝) is Lupus Feet...over the decades, I've had to get clued up because of my wonderful "complex persistent pattern" 😏 feet probs.
They do a great booklet of
mycophenolate
), I wondered if this Foot Pain booklet could be equally helpful...some of you may remember that one of my specialist subjects (😉😝) is Lupus Feet...over the decades, I've had to get clued up because of my wonderful "complex persistent pattern" 😏 feet probs.
Barnclown
in
LUPUS UK
8 years ago
Medication
Good morning 😊 all I have been taking
Mycophenolate
for about 6 months now, and I was led to believe that once on this drug my prednisone would be reduced as I take 45mg a day and have taken this dose for well over a year and sometimes up to 60mg.
Good morning 😊 all I have been taking
Mycophenolate
for about 6 months now, and I was led to believe that once on this drug my prednisone would be reduced as I take 45mg a day and have taken this dose for well over a year and sometimes up to 60mg.
craftyone
in
Lung Conditions Community Forum
8 years ago
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Steriods
Hi all, I had GPA for 11 years now and have been on
Mycophenolate
and 5mg of Prednisolone for some years now. At clinic yesterday they want to stop my Prednisolone . I am to have a blood test to see if my body is producing its own. If so it will just be stopped without reducing it.
Hi all, I had GPA for 11 years now and have been on
Mycophenolate
and 5mg of Prednisolone for some years now. At clinic yesterday they want to stop my Prednisolone . I am to have a blood test to see if my body is producing its own. If so it will just be stopped without reducing it.
ludo
in
Vasculitis UK
8 years ago
MMF
I just started taking
Mycophenolate
500mg twice a day very scare to start taking it because all the side effect. I want to know should u wear a mask when u are out in the public? how long do it take to get in your system? Thank You....
I just started taking
Mycophenolate
500mg twice a day very scare to start taking it because all the side effect. I want to know should u wear a mask when u are out in the public? how long do it take to get in your system? Thank You....
Babygirl1955
in
Functional Neurological Disorder - FND Hope
8 years ago
Reduction of Mycophenolate
I saw my consultant yesterday and she has recommended that I reduce the daily dose of
mycophenolate
that I take. She is worried about long term side effects of this drug. I take 2 x 500mg in the morning and 1 x 500mg in the evening. I have been on this drug since 12.07.12.
I saw my consultant yesterday and she has recommended that I reduce the daily dose of
mycophenolate
that I take. She is worried about long term side effects of this drug. I take 2 x 500mg in the morning and 1 x 500mg in the evening. I have been on this drug since 12.07.12.
NickyD
in
ITP Support Association
8 years ago
PMR mycophenolate and steroids
i have had PMR for over 4 years last march i was put on 1grm x 2 daily i got my steroids down to 9 as was doing ok the drop to 8 in steroids and back to all the pain somedays better than others .i tried to hold out for 4 weeks now as i know your body needs to adjust to the lower steroids ,is anyone using
i have had PMR for over 4 years last march i was put on 1grm x 2 daily i got my steroids down to 9 as was doing ok the drop to 8 in steroids and back to all the pain somedays better than others .i tried to hold out for 4 weeks now as i know your body needs to adjust to the lower steroids ,is anyone using
bri21
in
LUPUS UK
8 years ago
Methotrexate vs Mycophenolate?
Hi all, would anyone be able to tell me the difference between
Mycophenolate
and Methotrexate as they seem very similar apart from the Jaundice from Methotrexate.
Hi all, would anyone be able to tell me the difference between
Mycophenolate
and Methotrexate as they seem very similar apart from the Jaundice from Methotrexate.
PositivelyLupus
in
LUpus Patients Understanding and Support
8 years ago
Methotrexate vs Mycophenolate
Hi all, would anyone be able to tell me the difference between
Mycophenolate
and Methotrexate as they seem very similar apart from the Jaundice from Methotrexate.
Hi all, would anyone be able to tell me the difference between
Mycophenolate
and Methotrexate as they seem very similar apart from the Jaundice from Methotrexate.
PositivelyLupus
in
LUPUS UK
8 years ago
Some important information regarding Mycophenolate Mofetil and Pregnancy.
https://www.gov.uk/drug-safety-update/
mycophenolate
-mofetil-mycophenolic-acid-new-pregnancy-prevention-advice-for-women-and-men
https://www.gov.uk/drug-safety-update/
mycophenolate
-mofetil-mycophenolic-acid-new-pregnancy-prevention-advice-for-women-and-men
Suzym2u
Vasculitis UK
in
Vasculitis UK
8 years ago
Seen the Rheumy nurse
I'm back on meds a short course of prednisone back taking hydroxychloroquineand straight after Christmas
mycophenolate
have any of you been on this drug like all of them got to have regular blood tests x
I'm back on meds a short course of prednisone back taking hydroxychloroquineand straight after Christmas
mycophenolate
have any of you been on this drug like all of them got to have regular blood tests x
Jaadee
in
NRAS
8 years ago
Can being on steroids alter thyroid test results?
I am about to have a trial of
Mycophenolate
in two weeks with the hope of reducing my steroids further. Would blood results for thyroid tests be changed by being on Prednisalone? I do worry that taking steroids all the time might mask other things that could have similar symptoms.
I am about to have a trial of
Mycophenolate
in two weeks with the hope of reducing my steroids further. Would blood results for thyroid tests be changed by being on Prednisalone? I do worry that taking steroids all the time might mask other things that could have similar symptoms.
cuttysark
in
Thyroid UK
9 years ago
Mycophenolate
does anyone else here have Neuro BD? I am newly diagnosed and getting used to the immunosuppressants and steroids not to mention everything else that goes with it. My story is similar to everyone else's, misdiagnosis after misdiagnosis. Hospitals, consultants just a nightmare. I need someone to
does anyone else here have Neuro BD? I am newly diagnosed and getting used to the immunosuppressants and steroids not to mention everything else that goes with it. My story is similar to everyone else's, misdiagnosis after misdiagnosis. Hospitals, consultants just a nightmare. I need someone to
Papapickle
in
Behçet's UK
9 years ago
Mycophenolate Withdrawal
Its hard to work out sometimes what is causing my symptoms but I have definitely been feeling worse after stopping
mycophenolate
. My specialist thinks my vasculitis is under control but has left me on 5mg prednisolone and hydroxichloroquine as a safeguard but wanted me off
mycophenolate
.
Its hard to work out sometimes what is causing my symptoms but I have definitely been feeling worse after stopping
mycophenolate
. My specialist thinks my vasculitis is under control but has left me on 5mg prednisolone and hydroxichloroquine as a safeguard but wanted me off
mycophenolate
.
Galaxy2
in
Vasculitis UK
9 years ago
Mycophenolate
I've been on this 9 days had a blood test, told to come off it as my liver count was low (my bloods do do this on occasion and I told the nurse this!). have bloods taken this Tues call them (Rheumy helpline) wed (yesterday) as instructed, to be told that the would have to get a doctor to look at my
I've been on this 9 days had a blood test, told to come off it as my liver count was low (my bloods do do this on occasion and I told the nurse this!). have bloods taken this Tues call them (Rheumy helpline) wed (yesterday) as instructed, to be told that the would have to get a doctor to look at my
kazp
in
LUPUS UK
9 years ago
Flares
Do you still have 'flares' even when you are taking something like
Mycophenolate
? I ha been feeling so much better taking it but the past few days I have been exhausted with aching joints again. It's so disappointing. I also take Hydroxychloroquine.
Do you still have 'flares' even when you are taking something like
Mycophenolate
? I ha been feeling so much better taking it but the past few days I have been exhausted with aching joints again. It's so disappointing. I also take Hydroxychloroquine.
bones-bones
in
LUPUS UK
9 years ago
Mycophenolate
As i have a strong history of macular degeneration i have been advised to stop hydroxychloroquine and try
Mycophenolate
. Anybody else use it and do the side effects balance out with improvement in condition? Xx
As i have a strong history of macular degeneration i have been advised to stop hydroxychloroquine and try
Mycophenolate
. Anybody else use it and do the side effects balance out with improvement in condition? Xx
chandlermandy
in
LUPUS UK
9 years ago
Not diagnosed
At present I am not on Pred - treating the Mg with immunosuppressant
Mycophenolate
mofetil. I know autoimmune diseases come in clutches and as I was a competitive dinghy sailor in another life, sort of expected arthritis to appear in some form, at some time - fingers and knees fit.
At present I am not on Pred - treating the Mg with immunosuppressant
Mycophenolate
mofetil. I know autoimmune diseases come in clutches and as I was a competitive dinghy sailor in another life, sort of expected arthritis to appear in some form, at some time - fingers and knees fit.
CDreamer
in
NRAS
9 years ago
Drop in platelet count
She had lived quite safely on a very good count due to taking
mycophenolate
and eltrombopag. Unfortunately over the last couple of weeks her count has been dropping significantly and she has now been re-admitted to hospital for immunoglobulin infusions as her count is now at 19.
She had lived quite safely on a very good count due to taking
mycophenolate
and eltrombopag. Unfortunately over the last couple of weeks her count has been dropping significantly and she has now been re-admitted to hospital for immunoglobulin infusions as her count is now at 19.
Lindylou86
in
ITP Support Association
9 years ago
Maybe remission
I absolutely understand that this could be short lived but I am so hopeful that the MF (
Mycophenolate
Mofetil) has suppressed this disease.
I absolutely understand that this could be short lived but I am so hopeful that the MF (
Mycophenolate
Mofetil) has suppressed this disease.
SABG
in
Vasculitis UK
9 years ago
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