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Mycophenolate
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Many thanks for all your good wishes, got home tired but still in one piece!
Had loads of tests, will be going on
Mycophenolate
when they've sorted things out. Any advice, knowledge on the above would be appreciated. Keep safe everyone Penny xxxxx
Had loads of tests, will be going on
Mycophenolate
when they've sorted things out. Any advice, knowledge on the above would be appreciated. Keep safe everyone Penny xxxxx
Kimlu
in
Lung Conditions Community Forum
3 years ago
Mycophenolate mofetil and needle pains
Hi All, I have just changed my tablets from injection Methotrexate to
Mycophenolate
Mofetil, since then I have small needle stabbing pains in my hands and feet, has anyone else had this?
Hi All, I have just changed my tablets from injection Methotrexate to
Mycophenolate
Mofetil, since then I have small needle stabbing pains in my hands and feet, has anyone else had this?
Teanau22
in
LUPUS UK
3 years ago
Sulfasalzine and extreme fatigue...anyone have any experience please..
I'm on methotrexate injections and I've also tried azathioprine and
mycophenolate
before so I don't want to stop this one if its going to get better.
I'm on methotrexate injections and I've also tried azathioprine and
mycophenolate
before so I don't want to stop this one if its going to get better.
Sara_A
in
LUPUS UK
3 years ago
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Raised ALT now have low WBC high CRP and ESR could all but the ALT be from cellulitis?
Also consultant had expected ALT to drop abit when came off
mycophenolate
- but they went higher.
Also consultant had expected ALT to drop abit when came off
mycophenolate
- but they went higher.
Kelbol1
in
LUPUS UK
3 years ago
Joint Committee on Vaccination and Immunisation (JCVI) advice on third primary dose vaccination
month long-term moderate dose corticosteroids (equivalent to ≥10mg prednisolone per day for more than 4 weeks) in the previous 3 months non-biological oral immune modulating drugs, such as methotrexate >20mg per week (oral and subcutaneous), azathioprine >3.0mg/kg/day, 6-mercaptopurine >1.5mg/kg/day,
mycophenolate
month long-term moderate dose corticosteroids (equivalent to ≥10mg prednisolone per day for more than 4 weeks) in the previous 3 months non-biological oral immune modulating drugs, such as methotrexate >20mg per week (oral and subcutaneous), azathioprine >3.0mg/kg/day, 6-mercaptopurine >1.5mg/kg/day,
mycophenolate
crashdoll
in
Lung Conditions Community Forum
3 years ago
Antibodies and Covid19 with EGPA
Covid Antibodies after Covid vaccine....I have EGPA and on
Mycophenolate
and Benralizumab. Had first Covid jab and was subsequently asked to do a Covid antibody test. Unfortunately the test was negative so I haven’t generated any antibodies to Covid19. I haven’t previously had Covid....
Covid Antibodies after Covid vaccine....I have EGPA and on
Mycophenolate
and Benralizumab. Had first Covid jab and was subsequently asked to do a Covid antibody test. Unfortunately the test was negative so I haven’t generated any antibodies to Covid19. I haven’t previously had Covid....
ElaineRH
in
Vasculitis UK
3 years ago
Mood changes from medication reduction
She’s recently reduced her
Mycophenolate
to 250mg a day (from 500mg which she’s been on for 2 months, which was down from the 1000mg she was on at the start of the year).
She’s recently reduced her
Mycophenolate
to 250mg a day (from 500mg which she’s been on for 2 months, which was down from the 1000mg she was on at the start of the year).
BlueDandruff
in
LUPUS UK
3 years ago
Mycophenolate mofetil- CellCept
I just been prescribed
Mycophenolate
Mofetil on an increasing dose for next month and never taken this before. What is the best way to take this medication to fully work 💊- empty /full stomach? Many thanks 🙏
I just been prescribed
Mycophenolate
Mofetil on an increasing dose for next month and never taken this before. What is the best way to take this medication to fully work 💊- empty /full stomach? Many thanks 🙏
MadT
in
LUPUS UK
3 years ago
Second Dose of Pfizer
I don't know if it makes a difference to how people react, but for comparison I take 2g
Mycophenolate
and 400mg hydroxychloroquine and have longstanding SLE with class IV nephritis.
I don't know if it makes a difference to how people react, but for comparison I take 2g
Mycophenolate
and 400mg hydroxychloroquine and have longstanding SLE with class IV nephritis.
WinterSwimmer
in
LUPUS UK
3 years ago
Mepacrine for Lupus Joint Pain?
I’ve just been given a prescription for mepacrine to add to my drug cocktail of hydroxycloriquine,
mycophenolate
, prednisolone and flecainide. The goal is to get a joint pain flare under control. Anyone have any success with this?
I’ve just been given a prescription for mepacrine to add to my drug cocktail of hydroxycloriquine,
mycophenolate
, prednisolone and flecainide. The goal is to get a joint pain flare under control. Anyone have any success with this?
ShannonB
in
LUPUS UK
3 years ago
Primary Autoimmune Cerebellar Ataxia (PACA)
They treated 22 PACA patients with an immunosuppressive drug called
Mycophenolate
, which reduces the immune response that causes the ataxia. This treatment is expected to prevent further damage to the cerebellum and salvage any sick cells.
They treated 22 PACA patients with an immunosuppressive drug called
Mycophenolate
, which reduces the immune response that causes the ataxia. This treatment is expected to prevent further damage to the cerebellum and salvage any sick cells.
wobblybee
in
Ataxia UK
3 years ago
Utter exhaustion ..........
Having had all the treatments listed ( started on
mycophenolate
which damaged my lungs and kidneys posing more problems)and in nov 2020 completed 2 infusions of Rituximab..... I am in less pain in joints than I was .....but am a exhausted every day sleeping much of it as I feel Completely drained.
Having had all the treatments listed ( started on
mycophenolate
which damaged my lungs and kidneys posing more problems)and in nov 2020 completed 2 infusions of Rituximab..... I am in less pain in joints than I was .....but am a exhausted every day sleeping much of it as I feel Completely drained.
guineapignot
in
Vasculitis UK
3 years ago
Lupus nephritis - fluid retention?
Hello I'm on 3000mg
Mycophenolate
daily (along with other medication for SLE) and have an appointment with Nephrology towards the end of April.
Hello I'm on 3000mg
Mycophenolate
daily (along with other medication for SLE) and have an appointment with Nephrology towards the end of April.
Laurajoy
in
LUPUS UK
3 years ago
Antibody Testing After Getting the COVID-19 Vaccine: What to Know If You’re Immunocompromised
Even if you’re taking a drug that affects immune system function — like methotrexate, rituximab, or
mycophenolate
— and an antibody test shows a low level of antibodies, it’s not possible to know exactly what that means yet.
Even if you’re taking a drug that affects immune system function — like methotrexate, rituximab, or
mycophenolate
— and an antibody test shows a low level of antibodies, it’s not possible to know exactly what that means yet.
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
3 years ago
Why do some people have to be so b***** horrible?
I need some steroids (Prednisolone) and my new med (
Mycophenolate
), plus I was promised on Friday by one of the GPs that I would be emailed my latest blood tests as I have a phone consultation with Papworth tomorrow and they need the results.
I need some steroids (Prednisolone) and my new med (
Mycophenolate
), plus I was promised on Friday by one of the GPs that I would be emailed my latest blood tests as I have a phone consultation with Papworth tomorrow and they need the results.
Kimlu
in
Lung Conditions Community Forum
3 years ago
Swelling
I’m on
mycophenolate
, hydroxychlorquine, prednisolone and others at the moment Thanks
I’m on
mycophenolate
, hydroxychlorquine, prednisolone and others at the moment Thanks
Nessa173
in
LUPUS UK
3 years ago
Should You Get the COVID-19 Vaccine During a Disease Flare-Up?
You should keep taking the following medications as prescribed: Hydroxychloroquine (Plaquenil) IVIG Low-dose glucocorticoids (ex: prednisone, daily dose < 20 mg) Sulfasalazine (Azulfidine) Leflunomide (Arava)
Mycophenolate
(CellCept) Azathioprine (Imuran) Cyclophosphamide (Cytoxan) (oral) TNF biologics
You should keep taking the following medications as prescribed: Hydroxychloroquine (Plaquenil) IVIG Low-dose glucocorticoids (ex: prednisone, daily dose < 20 mg) Sulfasalazine (Azulfidine) Leflunomide (Arava)
Mycophenolate
(CellCept) Azathioprine (Imuran) Cyclophosphamide (Cytoxan) (oral) TNF biologics
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
3 years ago
7 Questions to Ask Your Rheumatologist If You’re Nervous About Getting the COVID-19 Vaccine
The ACR guidance states that you should keep taking the following medications as prescribed: Hydroxychloroquine (Plaquenil) IVIG Low-dose glucocorticoids (ex: prednisone, daily dose < 20 mg) Sulfasalazine (Azulfidine) Leflunomide (Arava)
Mycophenolate
(CellCept) Azathioprine (Imuran) Cyclophosphamide
The ACR guidance states that you should keep taking the following medications as prescribed: Hydroxychloroquine (Plaquenil) IVIG Low-dose glucocorticoids (ex: prednisone, daily dose < 20 mg) Sulfasalazine (Azulfidine) Leflunomide (Arava)
Mycophenolate
(CellCept) Azathioprine (Imuran) Cyclophosphamide
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
3 years ago
Itching skin
I take
mycophenolate
& adaport .
I take
mycophenolate
& adaport .
chicago17
in
Kidney Transplant Patient Support
3 years ago
Covid vaccine with active EGPA
I am in benralizumab and newly introduced
mycophenolate
. The former takes out the eosinophils and the latter the T cells. I have just finished IV steroids I wonder if anyone else had any post Covid vaccine reaction?
I am in benralizumab and newly introduced
mycophenolate
. The former takes out the eosinophils and the latter the T cells. I have just finished IV steroids I wonder if anyone else had any post Covid vaccine reaction?
ElaineRH
in
Vasculitis UK
3 years ago
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