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Experiences with
Mouth ulcers
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First Rheumatologist appointment
On Thursday I went to my first rheumatologist appointment and I was so scared and nervous at one point they were 7doctors around my looking In my
mouth
at my
ulcers
looking at my joints my hands feet and knees they said my ana is positive so they a pretty certain I do have lupus they said I have rheumatoid
On Thursday I went to my first rheumatologist appointment and I was so scared and nervous at one point they were 7doctors around my looking In my
mouth
at my
ulcers
looking at my joints my hands feet and knees they said my ana is positive so they a pretty certain I do have lupus they said I have rheumatoid
Elishaannxx
in
LUPUS UK
5 years ago
Constant lower gut pain.
I had a flare of
mouth
ulcers
and around the same time every time I eat, even something as bland as split pea soup, my gut burns. Even after some time there is always a dull ache. Have to see a gastroenterologist real soon. Anyone else suffer from this and are you on any meds for it?
I had a flare of
mouth
ulcers
and around the same time every time I eat, even something as bland as split pea soup, my gut burns. Even after some time there is always a dull ache. Have to see a gastroenterologist real soon. Anyone else suffer from this and are you on any meds for it?
Brichel
in
Behçet's UK
6 years ago
Mouth ulcers
However, this week I have come down with a nasty cold (don’t usually get colds) which has knocked me for a six and I seem to be getting
mouth
ulcers
. I’m on the methotrexate injection once a week and folic acid three times a week.
However, this week I have come down with a nasty cold (don’t usually get colds) which has knocked me for a six and I seem to be getting
mouth
ulcers
. I’m on the methotrexate injection once a week and folic acid three times a week.
Damamy
in
NRAS
6 years ago
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Inflamed and sore gums
Has anyone else had an issue with the above? I have Graves and possible hashis. Was underactive when last tested and am on just 25mcg levo. The inflammation however started in June/July with some redness around my front right hand tooth. At this point I felt very well and assume my thyroid levels were
Has anyone else had an issue with the above? I have Graves and possible hashis. Was underactive when last tested and am on just 25mcg levo. The inflammation however started in June/July with some redness around my front right hand tooth. At this point I felt very well and assume my thyroid levels were
MiniMum97
in
Thyroid UK
5 years ago
Mouth ulcers
Has anybody suffered from red patches and ulcers inside lips? Have been off of all medication for 6 months now as RA seems to be in remission. My GP seems to think something to do with being on RA drugs for 7 years and the immune system. I have had a biopsy and still waiting for results although consultant
Has anybody suffered from red patches and ulcers inside lips? Have been off of all medication for 6 months now as RA seems to be in remission. My GP seems to think something to do with being on RA drugs for 7 years and the immune system. I have had a biopsy and still waiting for results although consultant
Susanbet
in
NRAS
6 years ago
Mouth/Tongue Ulcers
I have PV JAK2+ dx three & a half years. Been on Hydroxycarbamide for a year & a half - 2 x 500mg daily. Since August, every three/four weeks I’ve been getting a very sore tongue which makes eating unpleasant. Anyone else had this?
I have PV JAK2+ dx three & a half years. Been on Hydroxycarbamide for a year & a half - 2 x 500mg daily. Since August, every three/four weeks I’ve been getting a very sore tongue which makes eating unpleasant. Anyone else had this?
Albt4z
in
MPN Voice
6 years ago
Anyone tried baking soda mouth rinse to relieve pain from BD mouth ulcer flares?
I've heard of rinsing with baking soda before but never used it. I get particularly sore ulcers on the very tip of the tongue, which impacts my ability to eat, drink, and speak. Appreciate any tips from people who've used a baking soda mixture, or indeed anything else they've found to work!
I've heard of rinsing with baking soda before but never used it. I get particularly sore ulcers on the very tip of the tongue, which impacts my ability to eat, drink, and speak. Appreciate any tips from people who've used a baking soda mixture, or indeed anything else they've found to work!
Dub123
in
Behçet's UK
6 years ago
Back to that place again
Cannot really remember much about today but have severe
ulcers
in my
mouth
and tongue. Pretty shit. Not only that my neuro pain is flaring and I just want to sleep. Aaggghhh!!!!!!! C
Cannot really remember much about today but have severe
ulcers
in my
mouth
and tongue. Pretty shit. Not only that my neuro pain is flaring and I just want to sleep. Aaggghhh!!!!!!! C
Papapickle
in
Behçet's UK
5 years ago
Glandular fever
Hi i wrote about my daughter having loading injections for two weeks but been exhausted and throat worse she has
ulcers
in
mouth
been docs after tryin get in for a week her temp was 102 and said its glandular fever and a rash come out now im worried if ther will be no effect from b12 shes had as she
Hi i wrote about my daughter having loading injections for two weeks but been exhausted and throat worse she has
ulcers
in
mouth
been docs after tryin get in for a week her temp was 102 and said its glandular fever and a rash come out now im worried if ther will be no effect from b12 shes had as she
Leigh6873
in
Pernicious Anaemia Society
5 years ago
Immune system / mouth ulcers
Hello, i read wondering if anyone experiences feeling generally unwell like a viral infection, swollen glands and
mouth
ulcers
towards the end of their period? I swear it is connected and my consultant thinks it may be when the oestrogen dips but he doesn't know for sure.
Hello, i read wondering if anyone experiences feeling generally unwell like a viral infection, swollen glands and
mouth
ulcers
towards the end of their period? I swear it is connected and my consultant thinks it may be when the oestrogen dips but he doesn't know for sure.
Fedupchuck
in
Endometriosis UK
6 years ago
Mouth Sores and Neuropathy
After four years on Ibrutinib I have developed mouth sores and neuropathy. I tried many lip creams, finally went to a dermatologist and got a steroid cream. Still having problems. Has anyone else had these problems?
After four years on Ibrutinib I have developed mouth sores and neuropathy. I tried many lip creams, finally went to a dermatologist and got a steroid cream. Still having problems. Has anyone else had these problems?
Bjhayes14
in
CLL Support
5 years ago
My anxiety from 0-100!! 😢
Have
mouth
ulcers
on the top of
mouth
convinced myself it’s oral cancer 😢 now from my mouth to my brain not even thought about my painful mouth 😢 don’t know why I’ve spent my Friday night googling brain aneurism.
Have
mouth
ulcers
on the top of
mouth
convinced myself it’s oral cancer 😢 now from my mouth to my brain not even thought about my painful mouth 😢 don’t know why I’ve spent my Friday night googling brain aneurism.
Layla321
in
Anxiety Support
6 years ago
Mouth pain..ulcers.. cracked tongue.. 😣😔
Past 6 months I have had severe
mouth
ulcers
a cracked and sore tongue.. sringing nettle sensation. GP has treated me for oral thrush for months and they finally.. after I insisted referred me to ENT. However I think it is more autoimmune. Folate level was low and I'm now on folic acid.
Past 6 months I have had severe
mouth
ulcers
a cracked and sore tongue.. sringing nettle sensation. GP has treated me for oral thrush for months and they finally.. after I insisted referred me to ENT. However I think it is more autoimmune. Folate level was low and I'm now on folic acid.
linw_123
in
Pernicious Anaemia Society
6 years ago
Ca125 level & pap test and tooth extraction
I was wondering if anyone has experince of increasing Ca125 after pap test or tooth extraction( with its complications like
ulcers
in
mouth
)?? My mom just finished her treatment in June 2018 with Ca125 9. Her last blood test in early sep was also 9.
I was wondering if anyone has experince of increasing Ca125 after pap test or tooth extraction( with its complications like
ulcers
in
mouth
)?? My mom just finished her treatment in June 2018 with Ca125 9. Her last blood test in early sep was also 9.
sara_mamani96
in
My Ovacome
6 years ago
At the end of my tether 😢
Also does anyone else suffer with constant
mouth
ulcers
? I’ve had them constantly for 2.5 years now, again is this anything to do with RA? Sorry to winge on, but I really am reaching the end of my tether, as I suspect my boss and colleagues are too 😢
Also does anyone else suffer with constant
mouth
ulcers
? I’ve had them constantly for 2.5 years now, again is this anything to do with RA? Sorry to winge on, but I really am reaching the end of my tether, as I suspect my boss and colleagues are too 😢
Lauranorder
in
NRAS
6 years ago
Lethargic but all normal results
At first I thought it might be a B12 deficiency, since I had a series of
mouth
ulcers
that lasted about a month in total. I also get lightheaded periodically. My mom had Graves, but these readings seem to suggest I lean towards the opposite.
At first I thought it might be a B12 deficiency, since I had a series of
mouth
ulcers
that lasted about a month in total. I also get lightheaded periodically. My mom had Graves, but these readings seem to suggest I lean towards the opposite.
fishii
in
Thyroid UK
6 years ago
Second Opinion Request
I’m still not diagnosed, but got what I believe is the malar rash (below), Raynauds, depression,fatigue,painful joints, headaches, occasional
mouth
ulcers
, brain fog...but negative bloods.
I’m still not diagnosed, but got what I believe is the malar rash (below), Raynauds, depression,fatigue,painful joints, headaches, occasional
mouth
ulcers
, brain fog...but negative bloods.
LLH76
in
LUPUS UK
6 years ago
The curse of the mouth ulcer!
Nevermind after 20 years of
mouth
ulcers
I suppose you get used to them! Keep smiling and enjoy the good days 😎
Nevermind after 20 years of
mouth
ulcers
I suppose you get used to them! Keep smiling and enjoy the good days 😎
AGE1965
in
Behçet's UK
6 years ago
controlling diet might help
I had uveitis , joint pain, and severe
mouth
ulcers
. My sympyoms improved a lot after I tried gluten free, and salicylate free diet. By any chance i eat any nuts or undercooked veges or fruits i get
mouth
ulcers
immediately even now .but by controlling diet I am ok .
I had uveitis , joint pain, and severe
mouth
ulcers
. My sympyoms improved a lot after I tried gluten free, and salicylate free diet. By any chance i eat any nuts or undercooked veges or fruits i get
mouth
ulcers
immediately even now .but by controlling diet I am ok .
Chamanti
in
Behçet's UK
6 years ago
Teeth
Slightly random question but has anyone found that the condition of their teeth has deteriorated with psoriatic arthritis. Waiting to start medication but the dentist has noticed a difference in my teeth.
Slightly random question but has anyone found that the condition of their teeth has deteriorated with psoriatic arthritis. Waiting to start medication but the dentist has noticed a difference in my teeth.
cba84
in
NRAS
5 years ago
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