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Experiences with
Mouth ulcers
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Diagnosis
I still have many symptoms even with a level of 206 - smooth tongue that feels swollen,
mouth
ulcers
, short term memory problems, pins & needles around my
mouth
& cheeks & difficulty walking In 2013 I had two blood tests that showed B12 171 & 179 normal range at that time was 246 - 911 folate was 4.2
I still have many symptoms even with a level of 206 - smooth tongue that feels swollen,
mouth
ulcers
, short term memory problems, pins & needles around my
mouth
& cheeks & difficulty walking In 2013 I had two blood tests that showed B12 171 & 179 normal range at that time was 246 - 911 folate was 4.2
Sinclair12
in
Pernicious Anaemia Society
5 years ago
Burning mouth
Does anyone know if burning mouth is related to thyroid. I have under active thyroid. It feels like I have scalded my mouth.
Does anyone know if burning mouth is related to thyroid. I have under active thyroid. It feels like I have scalded my mouth.
Manbri
in
Thyroid UK
4 years ago
Update - PV + NF1-Brain Tumor + Even more excitement!
A few months later I started showing signs of toxicity (
mouth
ulcers
, constipation) from the HU. The toxicity grew steadily worse over the next several months (thrush, leukoplakia) despite dropping the dosage steadily back to sub-therapeutic levels.
A few months later I started showing signs of toxicity (
mouth
ulcers
, constipation) from the HU. The toxicity grew steadily worse over the next several months (thrush, leukoplakia) despite dropping the dosage steadily back to sub-therapeutic levels.
hunter5582
in
MPN Voice
4 years ago
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Pembrolizumab/Keytruda severe side effect
I have NSCLC - I'd felt very optimistic after my first treatment in September ....10 days later, I noticed that where I'd had a rasping noise in my throat for a few months, it had gone, and the following week, noticed that my breathing was improved and needed less ventolin etc to keep the airways open
I have NSCLC - I'd felt very optimistic after my first treatment in September ....10 days later, I noticed that where I'd had a rasping noise in my throat for a few months, it had gone, and the following week, noticed that my breathing was improved and needed less ventolin etc to keep the airways open
MacColl
in
Lung Conditions Community Forum
5 years ago
Ibrutinib Update
I have had a few very minor side effects, couple of
mouth
ulcers
occasionally, random joint or muscle aches, but nothing major. I have not suffered fatigue and live a new normal life appreciating every day and am thankful for Ibrutinib.
I have had a few very minor side effects, couple of
mouth
ulcers
occasionally, random joint or muscle aches, but nothing major. I have not suffered fatigue and live a new normal life appreciating every day and am thankful for Ibrutinib.
retired46
in
CLL Support
5 years ago
Is this looking bad?
For the last 2 months I've been getting terrible
mouth
and tongue
ulcers
and achey bones. But apart from that been fine, I went to docs who took blood test on Wednesday for vitamin deficiency.
For the last 2 months I've been getting terrible
mouth
and tongue
ulcers
and achey bones. But apart from that been fine, I went to docs who took blood test on Wednesday for vitamin deficiency.
Hidden
in
Leukaemia CARE
4 years ago
In focus: managing the effects of chemotherapy - mouth care
#161074 https://www.nhs.uk/conditions/
mouth
-
ulcers
/ If you have any questions about
mouth
care, please do get in touch with us.
#161074 https://www.nhs.uk/conditions/
mouth
-
ulcers
/ If you have any questions about
mouth
care, please do get in touch with us.
OvacomeSupport
Administrator
in
My Ovacome
5 years ago
Methotrexate advice please
👏👏👏 My question is to anyone who has had experiences of methotrexate..I understand that it can cause
mouth
ulcers
which I haven't had as one of my lupie symptoms..n my dermy said that it can take a while to build up in my system.
👏👏👏 My question is to anyone who has had experiences of methotrexate..I understand that it can cause
mouth
ulcers
which I haven't had as one of my lupie symptoms..n my dermy said that it can take a while to build up in my system.
Krazykat26
in
LUPUS UK
4 years ago
B-PLL Lymphoma
Hi I have B-PLL lymphoma and because it is very similar to CLL I’m going to start Ibrutinib. Just wondering if anyone with lymphoma has been prescribed this drug?
Hi I have B-PLL lymphoma and because it is very similar to CLL I’m going to start Ibrutinib. Just wondering if anyone with lymphoma has been prescribed this drug?
Hidden
in
CLL Support
5 years ago
Metronidazole
My tongue swelled and burned and came out in
mouth
ulcers
and thrush. Only had 9tablets 4 days after taking last tablet still in a lot of pain so unable to talk and eat solids. Doctor said my tongue is burnt and just have to rest and drink fluids.
My tongue swelled and burned and came out in
mouth
ulcers
and thrush. Only had 9tablets 4 days after taking last tablet still in a lot of pain so unable to talk and eat solids. Doctor said my tongue is burnt and just have to rest and drink fluids.
Liverpool4
in
Dentistry Health Support
5 years ago
Lets do this!
Week 5 run 3 here I come. Pray for me ha ha :)
Week 5 run 3 here I come. Pray for me ha ha :)
rosemel64
in
Couch to 5K
5 years ago
Help! Does anyone have information about Taste Alteration?
I am on Taxotere - 3 weeks on, 1 off. I just finished my second round of three infusions last week. About 4 days ago I started having serious mouth issues. I am familiar with mouth sores and sensitivity and even slight changes in taste, but this is on a whole different level. I can't taste food anymore
I am on Taxotere - 3 weeks on, 1 off. I just finished my second round of three infusions last week. About 4 days ago I started having serious mouth issues. I am familiar with mouth sores and sensitivity and even slight changes in taste, but this is on a whole different level. I can't taste food anymore
Superkim
in
My Ovacome
5 years ago
4months on - still dizzy - B12 and anemia!
I felt myself getting more run down than I've ever been - fatigued,
mouth
ulcers
for the first time, constant low level nausea, and most notably DIZZINESS/LIGHTHEADEDNESS! I was put on iron supplements and 6x B12 injections.
I felt myself getting more run down than I've ever been - fatigued,
mouth
ulcers
for the first time, constant low level nausea, and most notably DIZZINESS/LIGHTHEADEDNESS! I was put on iron supplements and 6x B12 injections.
TheBee1Sharps
in
Pernicious Anaemia Society
5 years ago
Co supplements to b12 injections
I had horrendous
mouth
ulcers
as a child and teenager and just little energy. My dad had pernicious anaemia and had monthly jags but I was never tested. I’m now 45 and 18 months ago a fabulous doctor tested for celiac and pa. I was exhausted , eyes were so annoying !
I had horrendous
mouth
ulcers
as a child and teenager and just little energy. My dad had pernicious anaemia and had monthly jags but I was never tested. I’m now 45 and 18 months ago a fabulous doctor tested for celiac and pa. I was exhausted , eyes were so annoying !
Adddi
in
Pernicious Anaemia Society
5 years ago
Afinitor 10mg and exemestane 25mg
I've felt really ill, all the pain is back in my hips and back,
mouth
ulcers
made worse by a dental infection, headaches, upset tummy, nausea and horrible fatigue and those are the highlights. I saw the registrar last week (another new one).
I've felt really ill, all the pain is back in my hips and back,
mouth
ulcers
made worse by a dental infection, headaches, upset tummy, nausea and horrible fatigue and those are the highlights. I saw the registrar last week (another new one).
Julie2233
in
SHARE Metastatic Breast Cancer
5 years ago
Afinitor 10mg and exemestane 25mg update
The hip and back pain,
mouth
ulcers
, foul taste and dizziness gone, appetite and energy back. Still feeling a little nauseous but that's improving. The depression has also lifted and hot flushes reduced.
The hip and back pain,
mouth
ulcers
, foul taste and dizziness gone, appetite and energy back. Still feeling a little nauseous but that's improving. The depression has also lifted and hot flushes reduced.
Julie2233
in
SHARE Metastatic Breast Cancer
5 years ago
Messed up oral biome
Anyone else have experience with a noticeable change in their mouth biome, or saliva chemistry? is anyone else having trouble with motility in the gut as well? For example, I have trouble with slow transit/motility and I feel like my whole colon is dried out. Strangely similar is my oral biome - as
Anyone else have experience with a noticeable change in their mouth biome, or saliva chemistry? is anyone else having trouble with motility in the gut as well? For example, I have trouble with slow transit/motility and I feel like my whole colon is dried out. Strangely similar is my oral biome - as
Oceanflow
in
Cure Parkinson's
5 years ago
Is it MS as now having Strange new symptoms and am just wondering if anyone could pinpoint what it could possibly be.
Have come out in cold sores, dry lips and
mouth
ulcers
and a strange headache that’s like pins and needles and buzzing in the top of my head. My eyes are so dry, and gritty and I am constantly thirsty. I have M.E (CFS) and Fibromyalgia could it be that or is my Reynauds.
Have come out in cold sores, dry lips and
mouth
ulcers
and a strange headache that’s like pins and needles and buzzing in the top of my head. My eyes are so dry, and gritty and I am constantly thirsty. I have M.E (CFS) and Fibromyalgia could it be that or is my Reynauds.
Hidden
in
LUPUS UK
5 years ago
Mouth ulcers
Hello good people of BLT.wondering has anybody had any issues with
mouth
ulcers
post transplant as im thinking I’m getting them because of my immunosuppressant medication but could be wrong .paul
Hello good people of BLT.wondering has anybody had any issues with
mouth
ulcers
post transplant as im thinking I’m getting them because of my immunosuppressant medication but could be wrong .paul
Popel
in
British Liver Trust
5 years ago
Mouth Ulcers/Cold Sores
Does anybody get
mouth
ulcers
(cold sores) with their B12D? I was low on b12 (159) for many years and got cold sores frequently. I've been supplementing for 3.5 months heavily now and just got some new ones in my lip area and cheek.
Does anybody get
mouth
ulcers
(cold sores) with their B12D? I was low on b12 (159) for many years and got cold sores frequently. I've been supplementing for 3.5 months heavily now and just got some new ones in my lip area and cheek.
lownskater52
in
Pernicious Anaemia Society
5 years ago
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