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Avastin
Hi Has anyone been prescribed Avastin on the NHS? I'm paying 30000 a year for it and I don't understand why I have to pay I was diagnosed with peritoneal / tube cancer in 2021 stage 3c
Hi Has anyone been prescribed Avastin on the NHS? I'm paying 30000 a year for it and I don't understand why I have to pay I was diagnosed with peritoneal / tube cancer in 2021 stage 3c
Rosehannah7
in
My Ovacome
5 months ago
Is it just me !
So I had a viral infection in March and pneumonia that sent me into a really bad flare up of symptoms and I'm currently still in this flare up . Whenever I get any sort of infection it sends me into a flare of symptoms. I also had COVID in September which may be contributing to why my flare up is lasting
So I had a viral infection in March and pneumonia that sent me into a really bad flare up of symptoms and I'm currently still in this flare up . Whenever I get any sort of infection it sends me into a flare of symptoms. I also had COVID in September which may be contributing to why my flare up is lasting
Jillgib
in
Fibromyalgia Action UK
6 months ago
Seeking advise
Hi all, I have been diagnosed with MBC HER2 negative (mets to bones and lymph nodes). I am awaiting a brain CT scan and also another lymph node biopsy. Can anyone advise if they have heard of the below treatments or have had these treatments ( Chemoembolization and Dendritic cell therapy LANEX-DC
Hi all, I have been diagnosed with MBC HER2 negative (mets to bones and lymph nodes). I am awaiting a brain CT scan and also another lymph node biopsy. Can anyone advise if they have heard of the below treatments or have had these treatments ( Chemoembolization and Dendritic cell therapy LANEX-DC
Amk31
in
SHARE Metastatic Breast Cancer
5 months ago
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Is Cold Water Therapy (cold plunge) for metastasis to bones or lymph nodes beneficial or harmful?? Slow progression?
Any insight would be greatly appreciated. TA??
Any insight would be greatly appreciated. TA??
Longterm101
in
Advanced Prostate Cancer
4 months ago
Has prevnar13( pneumonia vaccine ) caused a trigger for people with existing inflammatory conditions?
I’m an autoimmune vasucliits patient . My inflammation in the eye was relatively managed well with immunosuppressants. But since having the Prevnar 13 , my inflammation is back in full swing . Has anyone experienced this ? If so, how have you resolved it ? Please advise .
I’m an autoimmune vasucliits patient . My inflammation in the eye was relatively managed well with immunosuppressants. But since having the Prevnar 13 , my inflammation is back in full swing . Has anyone experienced this ? If so, how have you resolved it ? Please advise .
Udupik
in
PMRGCAuk
6 months ago
Covid booster
I'm really anxious about having my booster this time due to some reactions Was really ill last Christmas into the New Year not with Covid but a pneumonia that I couldn't shift despite numerous antibiotics. I now have bronchiectasis along with my asthma! I have booked it as I'm a front line worker but
I'm really anxious about having my booster this time due to some reactions Was really ill last Christmas into the New Year not with Covid but a pneumonia that I couldn't shift despite numerous antibiotics. I now have bronchiectasis along with my asthma! I have booked it as I'm a front line worker but
Janny1
in
Asthma Community Forum
8 months ago
MacGrumphy
I developed infantile eczema in 1942 when my mother was unable to breast feed me anymore and I was transferred to a powdered milk. The eczema plagued me into my early twenties before almost disappearing. In December 2022 I was diagnosed with Covid. A few days later I was aware of two itchy red spots
I developed infantile eczema in 1942 when my mother was unable to breast feed me anymore and I was transferred to a powdered milk. The eczema plagued me into my early twenties before almost disappearing. In December 2022 I was diagnosed with Covid. A few days later I was aware of two itchy red spots
MacGrumphy
in
MY SKIN
7 months ago
Feeling Anxious
I have Metastatic Breast Cancer (MBC) I am feeling very anxious and lonely this holiday season. I live alone in Los Angeles. My family is all back East in New York. My fiancé died and 2 BFF's friends died. My "so called" friends are not there for me. I really need more support.
I have Metastatic Breast Cancer (MBC) I am feeling very anxious and lonely this holiday season. I live alone in Los Angeles. My family is all back East in New York. My fiancé died and 2 BFF's friends died. My "so called" friends are not there for me. I really need more support.
Meditator110
in
SHARE Breast Cancer Support
5 months ago
brain mets
My mom had a 13 mm brain met in July . She had the single beam one day radiation treatment and it continues to shrink. She started on evermolimus I know that’s misspelled . It didn’t work so she started xeloda. But only one cycle so not long enough to tell if it’s working . Today she a had a repeat
My mom had a 13 mm brain met in July . She had the single beam one day radiation treatment and it continues to shrink. She started on evermolimus I know that’s misspelled . It didn’t work so she started xeloda. But only one cycle so not long enough to tell if it’s working . Today she a had a repeat
Flower1513
in
SHARE Metastatic Breast Cancer
5 months ago
a amazing news!!
Well today I was back in the Oncology Department after my last treatment 6 years ago. I had been having some concerning symptoms so contacted the Oncology Team. I had an amazing response and was seen promptly with blood tests and a full body CT scan being carried out within 2 weeks. Today I receveived
Well today I was back in the Oncology Department after my last treatment 6 years ago. I had been having some concerning symptoms so contacted the Oncology Team. I had an amazing response and was seen promptly with blood tests and a full body CT scan being carried out within 2 weeks. Today I receveived
Eriksendi
in
My Ovacome
5 months ago
Second opinion on Biopsy
I am scheduled for a second Biopsy and plan to get a second opinion. I read Dr. Epstein with John Hopkins is on indefinite leave. Should I just submit it to John Hopkins, or does anyone have any suggestions for a good place for a second opinion. Previously my biopsy was 7, 3+4, but recent MRI shows
I am scheduled for a second Biopsy and plan to get a second opinion. I read Dr. Epstein with John Hopkins is on indefinite leave. Should I just submit it to John Hopkins, or does anyone have any suggestions for a good place for a second opinion. Previously my biopsy was 7, 3+4, but recent MRI shows
carlsbadjack
in
Prostate Cancer Network
5 months ago
Body jerking/spasms
Since finishing radiotherapy in August for lung cancer, I have these uncontrollable body jerking throughout the night, arms, legs, head etc. Also, twice now, I've fallen to the floor jerking on and off for nearly 30 minutes. I'm conscious, can hear things, but cannot stop the body movements. Has anyone
Since finishing radiotherapy in August for lung cancer, I have these uncontrollable body jerking throughout the night, arms, legs, head etc. Also, twice now, I've fallen to the floor jerking on and off for nearly 30 minutes. I'm conscious, can hear things, but cannot stop the body movements. Has anyone
olwman
in
The Roy Castle Lung Cancer Foundation
5 months ago
Sufficient Investigation?
My brother is a bit of an ostrich, over his prostate problems. He ignored his poor urinary flow for years, and despite my repeated advice which he ignored, he subsequently had to be admitted to the emergency department due to significant obstruction. His GFR had fallen dangerously to 10. He was in
My brother is a bit of an ostrich, over his prostate problems. He ignored his poor urinary flow for years, and despite my repeated advice which he ignored, he subsequently had to be admitted to the emergency department due to significant obstruction. His GFR had fallen dangerously to 10. He was in
Nordman
in
Advanced Prostate Cancer
5 months ago
Feeling very cold
Can anyone tell me if it's normal to feel very cold with CLL. It seems to be a new symptom, I have been like it for last 2 to 3 weeks. I'm wearing 2 jumpers and trousers and still feeling the cold. So am just wondering if it's normal lol. Donnax
Can anyone tell me if it's normal to feel very cold with CLL. It seems to be a new symptom, I have been like it for last 2 to 3 weeks. I'm wearing 2 jumpers and trousers and still feeling the cold. So am just wondering if it's normal lol. Donnax
PusscatsGoodies
in
CLL Support
6 months ago
Ebus failure
Hi everyone, well I had my Ebus done yesterday, but unfortunately the scope just wouldn't reach the mass, although I knew it was 50/50 chance I'm so upset and dissapointed. I feel my only option now is to re live the nightmare needle ct but my anxiety is sooo bad at the thoughts of it.We are two months
Hi everyone, well I had my Ebus done yesterday, but unfortunately the scope just wouldn't reach the mass, although I knew it was 50/50 chance I'm so upset and dissapointed. I feel my only option now is to re live the nightmare needle ct but my anxiety is sooo bad at the thoughts of it.We are two months
Mindini1964
in
The Roy Castle Lung Cancer Foundation
5 months ago
heart palpitation from suboxome
Lately due to frequent cold I have to increase Buprenorphine and Naloxone to 1.5 mg sublingually (3 quarters of film (2 mg), then I have experienced horrendous heart palpitation and my heart rate goes down to 42 to 44 /minute. Even when I return to my previous dosage which is 1 mg (half film) sublingually
Lately due to frequent cold I have to increase Buprenorphine and Naloxone to 1.5 mg sublingually (3 quarters of film (2 mg), then I have experienced horrendous heart palpitation and my heart rate goes down to 42 to 44 /minute. Even when I return to my previous dosage which is 1 mg (half film) sublingually
halperinchen
in
Restless Legs Syndrome
1 month ago
Radiation therapy or Turp first?
Guys, I posted last week on this issue but looking for additional feedback. Appears my cancer is spreading after 5 years but also experiencing urination issues at same time. I met with urologist and he suggests Turp procedure. I meet with radiation oncologist next week. My question is has anyone experienced
Guys, I posted last week on this issue but looking for additional feedback. Appears my cancer is spreading after 5 years but also experiencing urination issues at same time. I met with urologist and he suggests Turp procedure. I meet with radiation oncologist next week. My question is has anyone experienced
3putt
in
Advanced Prostate Cancer
5 months ago
shingles
hi all just wondering if anyone has any tips for managing shingles? So sore and uncomfortable 🥴
hi all just wondering if anyone has any tips for managing shingles? So sore and uncomfortable 🥴
UCTD
in
Scleroderma & Raynaud's UK (SRUK)
10 months ago
polycystic liver disease
I wanted to find out if anyone else had experienced severe Polycystic Liver Disease. I had resection 12 years ago which was successful but my cysts have grown back more aggressively. I have been advised by specialist that they cannot de-roof as would space simply be filled by other cysts, resection
I wanted to find out if anyone else had experienced severe Polycystic Liver Disease. I had resection 12 years ago which was successful but my cysts have grown back more aggressively. I have been advised by specialist that they cannot de-roof as would space simply be filled by other cysts, resection
Sing2011
in
British Liver Trust
5 months ago
Not sure what to do next
Hello. I suddenly developed loud tinnitus in my left ear 3 months ago and went to the doctors. It's a very high pitched ringing and varies between loud and very loud and sometimes has different pitches all at once like an orchestra. It's constant, 24/7. I'd had a very slight ringing for several months
Hello. I suddenly developed loud tinnitus in my left ear 3 months ago and went to the doctors. It's a very high pitched ringing and varies between loud and very loud and sometimes has different pitches all at once like an orchestra. It's constant, 24/7. I'd had a very slight ringing for several months
Sootymouse
in
Acoustic Neuroma Support
5 months ago
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