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Changing the name of cancer...would speed up research
I thought it wasn't something that had an impact, but thanks to the patience of an acquaintance of mine who works in clinical research, I finally understood the significance of what some newspapers (Italian and European, but maybe in the USA as well) are saying about the need to change the names of various
I thought it wasn't something that had an impact, but thanks to the patience of an acquaintance of mine who works in clinical research, I finally understood the significance of what some newspapers (Italian and European, but maybe in the USA as well) are saying about the need to change the names of various
Maxone73
in
Advanced Prostate Cancer
4 months ago
How can one person be so Lucky?
Diagnosed in December 2022 with Stage 4 metastatic PC Gleason 4 + 3, due to a PSMA Pet Scan. Highest my PSA got was 7.4, Pet Scan discovered a small spot on my T2 vertebrae that the MRI and bone scan did not find. I subsequently started on a regimen of Lupron and Erleada, adjusted to the SE and
Diagnosed in December 2022 with Stage 4 metastatic PC Gleason 4 + 3, due to a PSMA Pet Scan. Highest my PSA got was 7.4, Pet Scan discovered a small spot on my T2 vertebrae that the MRI and bone scan did not find. I subsequently started on a regimen of Lupron and Erleada, adjusted to the SE and
Condor77
in
Advanced Prostate Cancer
4 months ago
anyone opted for Watch and Wait with indeterminate nodules thy3f? Looking for people with similar previous experience to make up my mind
hi everyone just wondering if anyone ever had the courage to opt for wait and see tactic with indeterminate nodules? How often did manage it? How did you feel in the end? What made you make that decision? my situation is that I have two indeterminate nodules on either side. Doctors recommended total
hi everyone just wondering if anyone ever had the courage to opt for wait and see tactic with indeterminate nodules? How often did manage it? How did you feel in the end? What made you make that decision? my situation is that I have two indeterminate nodules on either side. Doctors recommended total
Indianyellow
in
Thyroid UK
4 months ago
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Patricia
Hi I'm a 3rd timer with BC. This time diagnosed June with stage 3 HER2+. Had surgery and chemo now on 3 weekly injections of Herceptin & 6monthly bone infusions and letrozole daily. Side effects fluctuate from day to day, fatigue, achey fluey, fuzzy head, indigestion, dizziness. In between I'm fine,
Hi I'm a 3rd timer with BC. This time diagnosed June with stage 3 HER2+. Had surgery and chemo now on 3 weekly injections of Herceptin & 6monthly bone infusions and letrozole daily. Side effects fluctuate from day to day, fatigue, achey fluey, fuzzy head, indigestion, dizziness. In between I'm fine,
ruskin10
in
My Breast Cancer Community
4 months ago
Timings of meds.
Can anyone advise me on taking Levo .I take statins at night.Levo and lansoperazol before breakfast.Apixaban 12 hours apart 8.30 am and pm .with the 8.30 Apixaban in the morning I take blood pressure meds.Its just impossible to have 4 hour gaps with this lot of meds ,I'm so confused.I have had this regime
Can anyone advise me on taking Levo .I take statins at night.Levo and lansoperazol before breakfast.Apixaban 12 hours apart 8.30 am and pm .with the 8.30 Apixaban in the morning I take blood pressure meds.Its just impossible to have 4 hour gaps with this lot of meds ,I'm so confused.I have had this regime
ETHEL103
in
Thyroid UK
1 year ago
update on sore Nipple!
so did go to see the Dr who agreed my breasts were quite tricky to diagnose due to the amount of scar tissue from previous mammoplasty - initially felt the tenderness was maybe due to simple fibroadinoma but wasn’t certain - so I was fast tracked to Derriford and my appointment is this afternoon. Interestingly
so did go to see the Dr who agreed my breasts were quite tricky to diagnose due to the amount of scar tissue from previous mammoplasty - initially felt the tenderness was maybe due to simple fibroadinoma but wasn’t certain - so I was fast tracked to Derriford and my appointment is this afternoon. Interestingly
Sungolfer
in
PMRGCAuk
4 months ago
Heavy news today
Hi Everyone, I am feeling really bummed tonight…over the past 5 months I was on Enhertu, I qualified because of the destiny trials. Long story short it was a disaster, not only did I have infection after infection but I ended up with extensive uptake in bone Mets and spread to my liver again (originally
Hi Everyone, I am feeling really bummed tonight…over the past 5 months I was on Enhertu, I qualified because of the destiny trials. Long story short it was a disaster, not only did I have infection after infection but I ended up with extensive uptake in bone Mets and spread to my liver again (originally
SoulJourney
in
SHARE Metastatic Breast Cancer
4 months ago
Steroids and Covid Vaccination
Covid vaccination is now due, am not sure whether to book or not. is it ok to have this whilst on steroids ?
Covid vaccination is now due, am not sure whether to book or not. is it ok to have this whilst on steroids ?
gillsky8
in
PMRGCAuk
8 months ago
Need help with results
Hi there! I have a sad story to tell about the last 6 months. I had a severe kidney stone infection (and UTI) in the spring. I was slowly doing better on my new thyroid medication (Erfa), but the infection caused bacteremia/urosepsis and I developed severe confusion. I had started taking my thyroid
Hi there! I have a sad story to tell about the last 6 months. I had a severe kidney stone infection (and UTI) in the spring. I was slowly doing better on my new thyroid medication (Erfa), but the infection caused bacteremia/urosepsis and I developed severe confusion. I had started taking my thyroid
The-Wasp
in
Thyroid UK
8 months ago
Covid-19 jab - book now or wait
In the UK, the Government is rolling out its autumn Covid-19 vaccination programme and encouraging those eligible to book their appointment as soon as possible. However, there is some concern that the current vaccines being used may not offer protection against new Covid variants such as Pirola, and
In the UK, the Government is rolling out its autumn Covid-19 vaccination programme and encouraging those eligible to book their appointment as soon as possible. However, there is some concern that the current vaccines being used may not offer protection against new Covid variants such as Pirola, and
Beatirce
in
CLL Support
8 months ago
Cardiac open heart surgery
Hi to all Has anyone with metastatic breast cancer had open heart cardiac surgery and might you share your experience with me please? I only saw my surgeon yesterday and am now scheduled for Monday. How amazing is that but I'm just a bit scared. It's one of those 'be careful what you wish for' situations
Hi to all Has anyone with metastatic breast cancer had open heart cardiac surgery and might you share your experience with me please? I only saw my surgeon yesterday and am now scheduled for Monday. How amazing is that but I'm just a bit scared. It's one of those 'be careful what you wish for' situations
bikebabe
in
SHARE Metastatic Breast Cancer
4 months ago
Calf Muscle Pain
Hi everybody I have a question re calf muscle pain My history - diagnosed with PMR & RA in April 23 - started 30 mg pred - tapered to 10.5 in August - experienced pain in buttocks, extreme fatigue and pain in left calf muscle - Rhumetologist put me back to 12.5 pred for 3 months as I’m travelling
Hi everybody I have a question re calf muscle pain My history - diagnosed with PMR & RA in April 23 - started 30 mg pred - tapered to 10.5 in August - experienced pain in buttocks, extreme fatigue and pain in left calf muscle - Rhumetologist put me back to 12.5 pred for 3 months as I’m travelling
MegfromOz
in
PMRGCAuk
8 months ago
Advice please
Due to my dads low red blood cell count his treament has been stopped his been off all meds except pain killler, now since september 2023. He was due to start radium 223 january 24 but its been postponed until his better, but how can he get better when his PSA is increasing weekly and his red bloods
Due to my dads low red blood cell count his treament has been stopped his been off all meds except pain killler, now since september 2023. He was due to start radium 223 january 24 but its been postponed until his better, but how can he get better when his PSA is increasing weekly and his red bloods
Hidden
in
Advanced Prostate Cancer
4 months ago
Polite request to not post or comment on Covid vaccine unless it's specific to PMR or GCA
Dear forum members, please avoid comments or debates about the covid vaccine unless it's very specifically related to a PMR or GCA question. Comments that fall outside of this will be removed. If you want to discuss vaccines in general, covid or otherwise, please do so on another site. We don't have
Dear forum members, please avoid comments or debates about the covid vaccine unless it's very specifically related to a PMR or GCA question. Comments that fall outside of this will be removed. If you want to discuss vaccines in general, covid or otherwise, please do so on another site. We don't have
Fran_Benson
Partner
in
PMRGCAuk
8 months ago
cross road
At a crossroad! My liver biopsy last November came back that my cancer mutated from HER2 low to HER2+. I have started THP because of it. I saw my MO yesterday who told me that my molecular study is not showing the HER2. So I have 2 contradictory tests! She also said she presented my case to the
At a crossroad! My liver biopsy last November came back that my cancer mutated from HER2 low to HER2+. I have started THP because of it. I saw my MO yesterday who told me that my molecular study is not showing the HER2. So I have 2 contradictory tests! She also said she presented my case to the
Kcap430
in
SHARE Metastatic Breast Cancer
4 months ago
Hip pain - related to radiotherapy?
I had chemo/radiotherapy for anal cancer in 2015 and was given the all-clear in 2021. There have been a number of side effects since but 12 weeks ago I developed pain in my right hip at the end of a walk (keen walker). GP doesn't know what the cause is (no surprise there!), but arranged an X-ray, which
I had chemo/radiotherapy for anal cancer in 2015 and was given the all-clear in 2021. There have been a number of side effects since but 12 weeks ago I developed pain in my right hip at the end of a walk (keen walker). GP doesn't know what the cause is (no surprise there!), but arranged an X-ray, which
BlueDun
in
Pelvic Pain Support Network
4 months ago
Fuervesant shots
Hi everyone! I’m new to this stream. I have stage 4 medistatic breast cancer in the bones. I’m on Ibrance and Letrozole but will be getting Fuervsant on Friday 2-2-24. So I won’t be taking the Letrozole. My oncologist is changing the medicine because my cancer markers are climbing. Has anyone done the
Hi everyone! I’m new to this stream. I have stage 4 medistatic breast cancer in the bones. I’m on Ibrance and Letrozole but will be getting Fuervsant on Friday 2-2-24. So I won’t be taking the Letrozole. My oncologist is changing the medicine because my cancer markers are climbing. Has anyone done the
Barreds
in
SHARE Metastatic Breast Cancer
4 months ago
enlarged lymp node
I had a ct scan yesterday and got the results today. I have enlarged left axillary lymph nodes, largest measuring 19x14 mm, previously subcentimeter and measured 10x8.5. Enlarged left subpectoral lymph nodes are identified. Nothing on the right side. I had a covid vacine about 2-3 weeks ago. The
I had a ct scan yesterday and got the results today. I have enlarged left axillary lymph nodes, largest measuring 19x14 mm, previously subcentimeter and measured 10x8.5. Enlarged left subpectoral lymph nodes are identified. Nothing on the right side. I had a covid vacine about 2-3 weeks ago. The
DianeSH
in
CLL Support
6 months ago
Hip pain from faslodex?
I did post this on a reply to another post but I’m not sure if anyone will see it……..does anyone have hip pain after faslodex. . I have been on this for a handful of years and the hip pain just started within the last 4 months. No problems at the injection site. This is specially my hip. Initially it
I did post this on a reply to another post but I’m not sure if anyone will see it……..does anyone have hip pain after faslodex. . I have been on this for a handful of years and the hip pain just started within the last 4 months. No problems at the injection site. This is specially my hip. Initially it
Fight2016
in
SHARE Metastatic Breast Cancer
4 months ago
confused about treatment options
I keep going back and forth between various treatment options. In the next week or so, I’m having appointments with a surgeon (tomorrow) and a radiation oncologist (February 6). Basic story: cancer on left side of prostate and in my pelvic lymph nodes (“hyper avid lymph node in the left external iliac
I keep going back and forth between various treatment options. In the next week or so, I’m having appointments with a surgeon (tomorrow) and a radiation oncologist (February 6). Basic story: cancer on left side of prostate and in my pelvic lymph nodes (“hyper avid lymph node in the left external iliac
Jpburns
in
Advanced Prostate Cancer
4 months ago
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