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advice
Hello! I havnt posted before but was looking on the lupus Uk website and wanted some advice if possible. I have been struggling with weird symptoms for a while since my son was born 4 years ago- ( then cot covid and was really unwell so was all put down to long covid) I have positive APS antibodies
Hello! I havnt posted before but was looking on the lupus Uk website and wanted some advice if possible. I have been struggling with weird symptoms for a while since my son was born 4 years ago- ( then cot covid and was really unwell so was all put down to long covid) I have positive APS antibodies
Ell5
in
LUPUS UK
6 months ago
Advice needed please
I've had GPA for 25 years with 2 relapses. I last had Rituximab in June 21, I then in November had Covid with 2 hospital admissions. I now have long Covid. I cannot have RTmab because my Immune system is so low, Igg 3.4IgA 0.48 IgM 0.42p Yesterday I was walking around and felt extreme fatigue,
I've had GPA for 25 years with 2 relapses. I last had Rituximab in June 21, I then in November had Covid with 2 hospital admissions. I now have long Covid. I cannot have RTmab because my Immune system is so low, Igg 3.4IgA 0.48 IgM 0.42p Yesterday I was walking around and felt extreme fatigue,
Fleen
in
Vasculitis UK
6 months ago
Mouth ulcers
Hello does anyone else or us there any link between hashimotos and mouth ulcers and cold sores. I suffer terribly from both. Particularly if I've drank too much alcohol or run down or have pmt. My mouth ulcers can be terrible and struggle to eat/drink. It normally happens after damaging my mouth
Hello does anyone else or us there any link between hashimotos and mouth ulcers and cold sores. I suffer terribly from both. Particularly if I've drank too much alcohol or run down or have pmt. My mouth ulcers can be terrible and struggle to eat/drink. It normally happens after damaging my mouth
Billy2023
in
Thyroid UK
1 year ago
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Long covid
Im struggling to get over covid and im on day 13. I have symptoms of long covidfever, diarrhea, loss of smell and taste. I have hashimotos and taking levothyroxine 100mcg alongside t3 15mcg. Any advice on how to deal with this will be very welcome
Im struggling to get over covid and im on day 13. I have symptoms of long covidfever, diarrhea, loss of smell and taste. I have hashimotos and taking levothyroxine 100mcg alongside t3 15mcg. Any advice on how to deal with this will be very welcome
Geegee777
in
Thyroid UK
6 months ago
Covid question
I’ve avoided Covid up until now. My partner and I picked it up in Cuba. Started with what we thought was food poisoning, the dreaded diarrhea. It’s now been 14 days. We’ve had chills, fevers, fatigue and daily diarrhea. I’m at the final three months of V treatment so was advised to start the antiviral
I’ve avoided Covid up until now. My partner and I picked it up in Cuba. Started with what we thought was food poisoning, the dreaded diarrhea. It’s now been 14 days. We’ve had chills, fevers, fatigue and daily diarrhea. I’m at the final three months of V treatment so was advised to start the antiviral
Cottager1989
in
CLL Support
6 months ago
Hi all I'm newbie. Anyone here have lung damage due to Amiodarone treatment?
Rather than going into too much detail I will keep it brief. Was prescribed Amiodarone for AFib and took it for a total of four months six days. After being on it for 3 months I started coughing mostly while asleep. Also started to get really bad pain in left lung lobe that was much worse if I lay on
Rather than going into too much detail I will keep it brief. Was prescribed Amiodarone for AFib and took it for a total of four months six days. After being on it for 3 months I started coughing mostly while asleep. Also started to get really bad pain in left lung lobe that was much worse if I lay on
DizzyD
in
Lung Conditions Community Forum
6 months ago
Update on steroid guided injection
Hi just a wee update I have to get my guided steroid injection on the 15th of December!!! Its not coming quick enough ad this piriformis pain escalated starting to affect my right side too. 🤞🤞🤞🤞 it works for me
Hi just a wee update I have to get my guided steroid injection on the 15th of December!!! Its not coming quick enough ad this piriformis pain escalated starting to affect my right side too. 🤞🤞🤞🤞 it works for me
Betsy50
in
Pain Concern
6 months ago
BFP last week but now ill with suspected COVID.
Tested positive after my FET but ever since I’ve been feeling poorly with covid symptoms. Persistent cough, fever, headaches etc. I’m worried that this will impact the pregnancy because it’s so early on - any advice? My viability scan isn’t until 22/12 and I feel like I’m going to be an absolute mess
Tested positive after my FET but ever since I’ve been feeling poorly with covid symptoms. Persistent cough, fever, headaches etc. I’m worried that this will impact the pregnancy because it’s so early on - any advice? My viability scan isn’t until 22/12 and I feel like I’m going to be an absolute mess
RedFox23
in
Fertility Network UK
6 months ago
Sugar Alcohols Ruined My Health: Learn from My Mistakes
Given the number of members who are intolerant to Teva levothyroxine, this video might be of some interest. Many suspect it is the mannitol content of Teva levothyroxine that lies behind the intolerance. After all, there were also many complaints around the world as Merck have slowly move from lactose
Given the number of members who are intolerant to Teva levothyroxine, this video might be of some interest. Many suspect it is the mannitol content of Teva levothyroxine that lies behind the intolerance. After all, there were also many complaints around the world as Merck have slowly move from lactose
helvella
Thyroid UK
in
Thyroid UK
4 months ago
Year wait on 6 week follow up of heart attack.
Hiya everyone I'm on for a bit of a rant..been waiting a year now for app with cardiologist after a minoca HA had mri scan which shows no significant heart muscle damage 😃😃. I still get chest pains/arm/shoulder and stomach haven't been able to get dental treatment for a year as she keeps referring
Hiya everyone I'm on for a bit of a rant..been waiting a year now for app with cardiologist after a minoca HA had mri scan which shows no significant heart muscle damage 😃😃. I still get chest pains/arm/shoulder and stomach haven't been able to get dental treatment for a year as she keeps referring
Bran_flow
in
British Heart Foundation
1 year ago
late diagnosis-too old?
hi. I have RA but this is a post about my dad. He is 73 and suddenly developed lots of swelling in his hand, pain in shoulders, pain in groin and just pain! His bloods showed RF greater than 200, inflammatory markers over 100 on each and he had a wrist ultrasound which lit up like a Christmas tree with
hi. I have RA but this is a post about my dad. He is 73 and suddenly developed lots of swelling in his hand, pain in shoulders, pain in groin and just pain! His bloods showed RF greater than 200, inflammatory markers over 100 on each and he had a wrist ultrasound which lit up like a Christmas tree with
Elmo333
in
NRAS
6 months ago
Drug rash
I am three months on Acalabrutinib an take aciclovir (antiviral) Have developed rash on ankles any oneelse experienced this.
I am three months on Acalabrutinib an take aciclovir (antiviral) Have developed rash on ankles any oneelse experienced this.
Simpomo
in
CLL Support
1 year ago
Dizziness / Vertigo whilst on Pred
I’ve been suffering with nausea and dizziness whilst on Pred, whilst this has been awful it’s not as bad as the PMR pain I was experiencing. My GP and an a nurse have suggested this could be to do with the inner ear. I do suffer from travel sickness and avoid roller coasters / waltzers because they
I’ve been suffering with nausea and dizziness whilst on Pred, whilst this has been awful it’s not as bad as the PMR pain I was experiencing. My GP and an a nurse have suggested this could be to do with the inner ear. I do suffer from travel sickness and avoid roller coasters / waltzers because they
SpaghettiWestern99
in
PMRGCAuk
7 months ago
PA COVID vaccine and atherosclerosis
hi sweet people. I had pa diagnosis 3 month ago and severe atherosclerosis in legs and abdominal vessels. Probably also cardiac vessels All of that started a year ago with 4th COVID vaccine. Had stent surgery in femoral arteries and mesenteric artery. But my abdominal pains don’t improve. Can all
hi sweet people. I had pa diagnosis 3 month ago and severe atherosclerosis in legs and abdominal vessels. Probably also cardiac vessels All of that started a year ago with 4th COVID vaccine. Had stent surgery in femoral arteries and mesenteric artery. But my abdominal pains don’t improve. Can all
Sissiotto
in
Pernicious Anaemia Society
6 months ago
Advice request - going in circles with doctors
Hi all, I've been suffering with endometriosis for years but I'm really struggling to get proper help with it, and the doctors seem to be thinking now it might be something else. I've had surgery to remove endometriosis twice (and the second time I also had an ovarian cyst removed which was larger than
Hi all, I've been suffering with endometriosis for years but I'm really struggling to get proper help with it, and the doctors seem to be thinking now it might be something else. I've had surgery to remove endometriosis twice (and the second time I also had an ovarian cyst removed which was larger than
Bookworm321123
in
Endometriosis UK
3 months ago
New to deaf
Hi, I had a virus (according to my doctor), told my instant deafness would return...... 6 months later, course of steroids and steroid injections into my eardrum, almost no hearing in 1 ear and tinnitus that goes from slightly annoying at the start of the day to OK you've beat me by the end of the day
Hi, I had a virus (according to my doctor), told my instant deafness would return...... 6 months later, course of steroids and steroid injections into my eardrum, almost no hearing in 1 ear and tinnitus that goes from slightly annoying at the start of the day to OK you've beat me by the end of the day
Molbel
in
Tinnitus UK
6 months ago
Mind and Body Syndrome
I have suffered RLS for more than 20 years and currently take Gabapentin. I have also had long covid since March 22- chronic fatigue type symptoms (14 different symptoms in all) which waxed and waned but hadn’t improved. So debilitating that I took early retirement and rarely left the house. I have
I have suffered RLS for more than 20 years and currently take Gabapentin. I have also had long covid since March 22- chronic fatigue type symptoms (14 different symptoms in all) which waxed and waned but hadn’t improved. So debilitating that I took early retirement and rarely left the house. I have
Edengirl58
in
Restless Legs Syndrome
6 months ago
Covid treatment
Hi all. Has anyone had treatment for Covid recently (since guidelines changed and you don’t automatically get referred). I am Covid positive and really struggling with symptoms. Have recently had treatment for a PE. The called 111 to arrange Covid treatment and they are sending a non urgent ambulance
Hi all. Has anyone had treatment for Covid recently (since guidelines changed and you don’t automatically get referred). I am Covid positive and really struggling with symptoms. Have recently had treatment for a PE. The called 111 to arrange Covid treatment and they are sending a non urgent ambulance
Pink75928
in
NRAS
6 months ago
New valve- but now afib and thinner
female, 49yrs old (almost 50) Ive had an aortic valve, root and ascending aorta replacement 9 months ago. Bovine valve to avoid thinners for a better life. Im still recovering, a was symptomatic too long i think ( 3 years really struggling but a known lifelong long valve leak) … and since the
female, 49yrs old (almost 50) Ive had an aortic valve, root and ascending aorta replacement 9 months ago. Bovine valve to avoid thinners for a better life. Im still recovering, a was symptomatic too long i think ( 3 years really struggling but a known lifelong long valve leak) … and since the
Bebop2023
in
Heart Valve Voice
6 months ago
Very fast onset of Pneumonia! It’s a long story; are you comfortable…
My husband is on W&W for CLL, though he may start treatment soon. Well, he had a heavy cold (as did I) and though it lingered abit we weren’t too concerned. Was still coughing up green mucus abit but he wasn’t concerned (I was and told him but … well, he felt better he said) Day before Christmas Eve
My husband is on W&W for CLL, though he may start treatment soon. Well, he had a heavy cold (as did I) and though it lingered abit we weren’t too concerned. Was still coughing up green mucus abit but he wasn’t concerned (I was and told him but … well, he felt better he said) Day before Christmas Eve
Tpdnotts
in
CLL Support
5 months ago
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