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Diagnosed march 2021. Debunking surgery 12 rounds chemo. Then onto Zedula . All good until November 2022 more chemo for recurrence then Avastin . My Ca125 stable but just crept up to 36 so need scan and if any signs perhaps more chemo.I have coped really well no real side effects just inally lost
Diagnosed march 2021. Debunking surgery 12 rounds chemo. Then onto Zedula . All good until November 2022 more chemo for recurrence then Avastin . My Ca125 stable but just crept up to 36 so need scan and if any signs perhaps more chemo.I have coped really well no real side effects just inally lost
Guenivere
in
My Ovacome
5 months ago
Eligibility for autumn 2023 COVID-19 booster jabs
We have updated our page on COVID-19 vaccinations to include information about who will be eligible for the autumn 2023 boosters. This will be a wider group than those who were eligible for the spring boosters. Read more here: https://www.lupusuk.org.uk/covid19-vaccination/
We have updated our page on COVID-19 vaccinations to include information about who will be eligible for the autumn 2023 boosters. This will be a wider group than those who were eligible for the spring boosters. Read more here: https://www.lupusuk.org.uk/covid19-vaccination/
Debbie_kinsey
Administrator
in
LUPUS UK
9 months ago
Positive stories please-I am training to play masters level field hockey - want to hear some positive stories (46yo,mildbronchiec, low lobes
teacher, not much going on until covid, 2 x pneumonia, 3 x covid, 3 weeks ago pneumonia, got diagnosis after......mild bronchiectasis both lower lungs "mildly dilated bronchi of the lower lobes are suggestive of mild bronchiectasis." Have been exercising and playing hockey for years, lung function
teacher, not much going on until covid, 2 x pneumonia, 3 x covid, 3 weeks ago pneumonia, got diagnosis after......mild bronchiectasis both lower lungs "mildly dilated bronchi of the lower lobes are suggestive of mild bronchiectasis." Have been exercising and playing hockey for years, lung function
PETeacherSGblue
in
Lung Conditions Community Forum
8 months ago
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Advice for Ongoing Condition?
Have been on the forum for a while, and has been a great help but asking for advice. About 2 years ago I had problems walking, was constantly tired and generally felt absolutely awful. I was forgetting names, and even falling off my bike when riding. Couldn't eat, couldn't sleep. Painful peripheral
Have been on the forum for a while, and has been a great help but asking for advice. About 2 years ago I had problems walking, was constantly tired and generally felt absolutely awful. I was forgetting names, and even falling off my bike when riding. Couldn't eat, couldn't sleep. Painful peripheral
TomatoTomato
in
Pernicious Anaemia Society
9 months ago
Any issues having PMR, taking pred and having pneumonia and shingles jab?
Has anyone had any issues having these jabs and PMR? My main concern relates to having the jabs in my achy shoulders and just want to hear what you have experienced. Thank you
Has anyone had any issues having these jabs and PMR? My main concern relates to having the jabs in my achy shoulders and just want to hear what you have experienced. Thank you
Markandevie
in
PMRGCAuk
6 months ago
HGSC 3B
Ive been on Lynparza for 2years after finishing chemo taxol/carbo and Avastin and now my ca125 has been low right through now its increased from. 12 to 24 and now 60 and im waiting on scan but im worried. Has anyone else been in similar position?
Ive been on Lynparza for 2years after finishing chemo taxol/carbo and Avastin and now my ca125 has been low right through now its increased from. 12 to 24 and now 60 and im waiting on scan but im worried. Has anyone else been in similar position?
0151tmac69
in
My Ovacome
4 months ago
Consulting on next steps
As I am 10 months PSA undetectable and clear on basic bone scans I have started the process of consultation re staying on ADT (zoladex) and Apalutamide continuously or moving to intermittent (and what would that involve) or getting more treatment (J591 for example aimed at micromets). Following consult
As I am 10 months PSA undetectable and clear on basic bone scans I have started the process of consultation re staying on ADT (zoladex) and Apalutamide continuously or moving to intermittent (and what would that involve) or getting more treatment (J591 for example aimed at micromets). Following consult
Brysonal
in
Fight Prostate Cancer
1 year ago
BCG - intravesical immunotherapy - Update.
Got a letter this morning giving me dates for this treatment. 7th December - 14th December and 21st December. While I am pleased to finally have got my dates, I remain uneasy as normally the outcome of biopsies are in the letter. For the first time since my diagnosis, i do not know the findings of
Got a letter this morning giving me dates for this treatment. 7th December - 14th December and 21st December. While I am pleased to finally have got my dates, I remain uneasy as normally the outcome of biopsies are in the letter. For the first time since my diagnosis, i do not know the findings of
Ern007
in
Lung Conditions Community Forum
5 months ago
worried and anxious
My lung cancer growth is small and operable. I just feel so worried and anxious it’s spread. As well as the operation to remove the growth with lower lung they are going to take lymph node sampling. I wondered if this is usual and would love to hear from anyone who has had this done. I’m planning to
My lung cancer growth is small and operable. I just feel so worried and anxious it’s spread. As well as the operation to remove the growth with lower lung they are going to take lymph node sampling. I wondered if this is usual and would love to hear from anyone who has had this done. I’m planning to
Sally789
in
The Roy Castle Lung Cancer Foundation
5 months ago
Have you been misdiagnosed? I might have been.
I was diagnosed with Parkinson’s approximately four years ago by two different neurologists. I noticed the first symptoms two years before that. So I am into my sixth year with Parkinson’s. I have managed to treat my symptoms through natural solutions, including: - An intense focus on finding a diet
I was diagnosed with Parkinson’s approximately four years ago by two different neurologists. I noticed the first symptoms two years before that. So I am into my sixth year with Parkinson’s. I have managed to treat my symptoms through natural solutions, including: - An intense focus on finding a diet
Vt11
in
Cure Parkinson's
10 months ago
🤖 ChatGPT on Cancer-Fighting Exercise💪 vs PCa
ChatGPT, the free AI research tool provided by OpenAI, is surprisingly good at summarizing some topic of interest that one might be interested in. I submitted a long question this evening on "
exercise against metastatic prostate cancer progression
". My goal is understanding exercise in an environment
ChatGPT, the free AI research tool provided by OpenAI, is surprisingly good at summarizing some topic of interest that one might be interested in. I submitted a long question this evening on "
exercise against metastatic prostate cancer progression
". My goal is understanding exercise in an environment
JohnInTheMiddle
in
Advanced Prostate Cancer
5 months ago
Study: Stress affects the effectiveness of vaccines
[i]Dr. Natalia Freund in her lab. Photo courtesy of Tel Aviv University[/i] While stress improves antibody production after Covid-19 vaccination by 70%, it significantly reduces antibody diversity to protect against variants. A significant link between behavioral stress and the effectiveness of vaccines
[i]Dr. Natalia Freund in her lab. Photo courtesy of Tel Aviv University[/i] While stress improves antibody production after Covid-19 vaccination by 70%, it significantly reduces antibody diversity to protect against variants. A significant link between behavioral stress and the effectiveness of vaccines
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
9 months ago
Boron
Hi AllHas anyone heard of taking boron supplements instead of alendronic acid? (I have some osteopenia and am on prednisolone for PMR.) Many thanks
Hi AllHas anyone heard of taking boron supplements instead of alendronic acid? (I have some osteopenia and am on prednisolone for PMR.) Many thanks
CaraDee
in
PMRGCAuk
8 months ago
Afinitor +ESR1 mutation for the hive mind.
Hi I am starting Afinitor on Wednesday after a mixed scan a few weeks ago after 6 months on Orserdu. It suddenly dawned on me that Afinitor is combined with estrogen therapy, likely an AI. But doesn't the ESR1 mutation cause AI resistance? In which case does that make Afinitor less effective? I will
Hi I am starting Afinitor on Wednesday after a mixed scan a few weeks ago after 6 months on Orserdu. It suddenly dawned on me that Afinitor is combined with estrogen therapy, likely an AI. But doesn't the ESR1 mutation cause AI resistance? In which case does that make Afinitor less effective? I will
Pbsoup
in
SHARE Metastatic Breast Cancer
5 months ago
Night sweats after steroid injection?
Hi I eventually got steroid injections in my knees and fluid drained off on Thursday. Even after starting Hyrimoz my CRP had gone from 41 in May to 78 a week ago. Since the injection, I’ve woken up soaked in sweat around my shoulders, neck and back of my head, when I lookin the mirror my cheeks are
Hi I eventually got steroid injections in my knees and fluid drained off on Thursday. Even after starting Hyrimoz my CRP had gone from 41 in May to 78 a week ago. Since the injection, I’ve woken up soaked in sweat around my shoulders, neck and back of my head, when I lookin the mirror my cheeks are
Akaka
in
NRAS
9 months ago
Post Rheumatology Appointment
Thank you to everyone who gave me advice for my Rheumatologist appointment yesterday......it was my first one and I thought I'd give an update on my experience at Benenden Hospital. I have posted this as a response in my original thread too but thought I'd start a new post to see if people found it useful
Thank you to everyone who gave me advice for my Rheumatologist appointment yesterday......it was my first one and I thought I'd give an update on my experience at Benenden Hospital. I have posted this as a response in my original thread too but thought I'd start a new post to see if people found it useful
Paulx222
in
PMRGCAuk
5 months ago
Covid booster before or after!
- My son gets married on 20th Oct...just 4wks away. - My flu jab has been booked for several weeks now and is for the 26th Sept. - I'd planned to have my covid booster after the wedding just in case I experienced any adverse effects. However, I'm aware that incidences of a new strain of covid are
- My son gets married on 20th Oct...just 4wks away. - My flu jab has been booked for several weeks now and is for the 26th Sept. - I'd planned to have my covid booster after the wedding just in case I experienced any adverse effects. However, I'm aware that incidences of a new strain of covid are
Kendrew
in
PMRGCAuk
8 months ago
new MBC drug for PIK3CA mutation in Hr+HER- breast cancer survivors
On Nov 16, 2023, the FDA approved another drug for those who have developed the PIK3CA. Mutation after first line treatment for the HR+HER- type. It’s another drug in the same vein as PIQRAY which also has to be used with Fulvestrant. This one is from AstraZeneca but it seems to have all the same side
On Nov 16, 2023, the FDA approved another drug for those who have developed the PIK3CA. Mutation after first line treatment for the HR+HER- type. It’s another drug in the same vein as PIQRAY which also has to be used with Fulvestrant. This one is from AstraZeneca but it seems to have all the same side
Dragonfly2
in
SHARE Metastatic Breast Cancer
5 months ago
Taurine supplements New Scientist Page 18, 17 June 2023
There is a research article in the news article section of the New Scientist that week saying that Taurine supplements may extend lifespan and health as we get older. 12,000 60 year olds were analysed and higher taurine levels correlated with better health and lower incidence of type 2 diabetes and reduced
There is a research article in the news article section of the New Scientist that week saying that Taurine supplements may extend lifespan and health as we get older. 12,000 60 year olds were analysed and higher taurine levels correlated with better health and lower incidence of type 2 diabetes and reduced
RoyMacDonald
in
AF Association
10 months ago
Does anyone have CtDna blood test added In their monitoring routine?
Hi! Kim 43 MBC since 3/2021. I do alot of reading of clinical trials and medical journals. I found this CtDna blood test that SUPPOSEDLY detects cancer cells in the blood up to 10 months sooner than a Petscan. My Oncologist didn't know about this testing so after fielding out all the companies that do
Hi! Kim 43 MBC since 3/2021. I do alot of reading of clinical trials and medical journals. I found this CtDna blood test that SUPPOSEDLY detects cancer cells in the blood up to 10 months sooner than a Petscan. My Oncologist didn't know about this testing so after fielding out all the companies that do
KimberlyB40
in
SHARE Metastatic Breast Cancer
5 months ago
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