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Having b-pll
a few times i and a couple others have been questioned about posting here because b-pll is so rare. However i happened across something on the Leukemia and Lymphoma site. If you go a third of the way down on the page under available funding they consider b-pll a subtype of cll. https://www.lls.org/
a few times i and a couple others have been questioned about posting here because b-pll is so rare. However i happened across something on the Leukemia and Lymphoma site. If you go a third of the way down on the page under available funding they consider b-pll a subtype of cll. https://www.lls.org/
Hidden
in
CLL Support
5 years ago
Polycythemia jak2 possitive and mouth ulcers :-(
Hi everyone, just found this site. I have been on hydroxycarbomide for about 2 years, and the last year I have been suffering with mouth ulcers, almost every week, and the one I have now for over a week is horrible, the over the counter remedies don’t touch.it. They are always under my tongue or at the
Hi everyone, just found this site. I have been on hydroxycarbomide for about 2 years, and the last year I have been suffering with mouth ulcers, almost every week, and the one I have now for over a week is horrible, the over the counter remedies don’t touch.it. They are always under my tongue or at the
Yvette49
in
MPN Voice
5 years ago
Week 9, Run 3. I did it!! What a wonderful feeling! I’m a graduate.
I started to get a
sore
throat, so covered my
mouth
with my scarf. Then it was hard to breathe. I really thought it wasn’t in the cards today, but just kept chugging along. When I turned at the half way point, the wind was now at my back and just let it push me home.
I started to get a
sore
throat, so covered my
mouth
with my scarf. Then it was hard to breathe. I really thought it wasn’t in the cards today, but just kept chugging along. When I turned at the half way point, the wind was now at my back and just let it push me home.
Charliemom
Graduate
in
Couch to 5K
5 years ago
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Burning mouth syndrome
Has anyone suffered with burning
mouth
?
Has anyone suffered with burning
mouth
?
Katej48
in
Anxiety and Depression Support
5 years ago
Contast tingling around mouth. no other symptoms. Causes?
Before
mouth
tingling started one morning my
mouth
was felt swollen,
sore
and EXTREMELY dry lips. After that day my
mouth
area has been experiencing tingling.Anybody know what this may be ?
Before
mouth
tingling started one morning my
mouth
was felt swollen,
sore
and EXTREMELY dry lips. After that day my
mouth
area has been experiencing tingling.Anybody know what this may be ?
tedjr18
in
BASHH
5 years ago
T-PLL or AITL - looking for treatment advice please
Hi there, I am new here but looking for treatment advice. My mother is diagnosed with either T-PLL or AITL, FISH showing p17 in 2/3 of cells. She has undergone 3 x Campath treatment with good results but now struggling with higher wbc and very swollen lymphs, mostly in legs/feet. It s causing pain and
Hi there, I am new here but looking for treatment advice. My mother is diagnosed with either T-PLL or AITL, FISH showing p17 in 2/3 of cells. She has undergone 3 x Campath treatment with good results but now struggling with higher wbc and very swollen lymphs, mostly in legs/feet. It s causing pain and
ingeanette
in
CLL Support
5 years ago
Irritated mouth and throat is it Methotrexate
Hi ,Does any one have a mouth and throat irritation with Methotrexate ,I have the feeling of a
sore
throat and
mouth
my tongue is
sore
too tiny little cuts or scratches on my upper pallet ,lips are irritated and teeth although I know it must be gums ,but it does feel like teeth ;-).I don't actually
Hi ,Does any one have a mouth and throat irritation with Methotrexate ,I have the feeling of a
sore
throat and
mouth
my tongue is
sore
too tiny little cuts or scratches on my upper pallet ,lips are irritated and teeth although I know it must be gums ,but it does feel like teeth ;-).I don't actually
patriciawhite
in
PMRGCAuk
5 years ago
Confused.com
My main symptoms are : Tinnitus, constant
sore
and burning tongue, recurring
mouth
ulcers, no sense of taste or smell, lack of energy, lump in back of throat, recurrent sharp earache of short duration in either ear, any clue what’s going on?
My main symptoms are : Tinnitus, constant
sore
and burning tongue, recurring
mouth
ulcers, no sense of taste or smell, lack of energy, lump in back of throat, recurrent sharp earache of short duration in either ear, any clue what’s going on?
Hidden
in
Pernicious Anaemia Society
5 years ago
Mouth ulcers
Morning people. Hope you are all feeling positive today. I'm suffering with ulcers in my mouth due to methotrexate I think, any ideas how to soothe the pain in the them and possibly prevent them? X
Morning people. Hope you are all feeling positive today. I'm suffering with ulcers in my mouth due to methotrexate I think, any ideas how to soothe the pain in the them and possibly prevent them? X
FionaVanDieken
in
NRAS
5 years ago
Immune system
Hey Girls Since having my endometriosis removed 5 weeks ago my immune system has been really low. My Surgery didn’t go as planned and I was in theatre for nearly 5 hours due to them finding endometriosis in places they wasn’t aware of as they didn’t see it in the first surgery last July and it not showing
Hey Girls Since having my endometriosis removed 5 weeks ago my immune system has been really low. My Surgery didn’t go as planned and I was in theatre for nearly 5 hours due to them finding endometriosis in places they wasn’t aware of as they didn’t see it in the first surgery last July and it not showing
jelleytots10
in
Endometriosis UK
5 years ago
My grandmother's disfigured teeth
Hi everyone, I could use your advice on this. My 55 yr old aunt slipped in the bathroom and fell on the floor landing on her face. Her jaw was hurting when she gained consciousness. When we tried keeping ice packs to numb the pain in the jaw she opened her mouth and we could see the front teeth completely
Hi everyone, I could use your advice on this. My 55 yr old aunt slipped in the bathroom and fell on the floor landing on her face. Her jaw was hurting when she gained consciousness. When we tried keeping ice packs to numb the pain in the jaw she opened her mouth and we could see the front teeth completely
undefeatedlove
in
Dentistry Health Support
5 years ago
Mouth and lip sores
I have one cold
sore
(herpes) and the occasional raw spot in my
mouth
. I haven't had a cold
sore
since I was a kid so I imagine this is meds related?
I have one cold
sore
(herpes) and the occasional raw spot in my
mouth
. I haven't had a cold
sore
since I was a kid so I imagine this is meds related?
Nanna71
in
NRAS
5 years ago
Do I have Behcet's?
I have been trying for over 2 years (It will be 3 years in May) to figure out what my diagnosis should be. I don't fit any specific category but many of my symptoms do seem to fit Behcets. I don't however fit the profile. I'm 62 years old and mostly European descent. My first symptoms 3 years ago started
I have been trying for over 2 years (It will be 3 years in May) to figure out what my diagnosis should be. I don't fit any specific category but many of my symptoms do seem to fit Behcets. I don't however fit the profile. I'm 62 years old and mostly European descent. My first symptoms 3 years ago started
Dustydander
in
Behçet's UK
5 years ago
Loosing weight
Does anyone have problem with there weight I've lost a lot lately and I'm not actually the not the biggest person so my DR is keeping eye on it I'm eating lots.I'm on injection at moment every 4wks energy level are slowly going back up but still have
sore
toes,
mouth
ulcer,nails keep breaking and
sore
Does anyone have problem with there weight I've lost a lot lately and I'm not actually the not the biggest person so my DR is keeping eye on it I'm eating lots.I'm on injection at moment every 4wks energy level are slowly going back up but still have
sore
toes,
mouth
ulcer,nails keep breaking and
sore
Budsha
in
Pernicious Anaemia Society
5 years ago
Update on neuro appointment
feeling in fingers and toes, on two occasions lost all sensation down right side for a day, tinnitus, insomnia, deep aching all over body; poor concentration; feeling muddled; Very stiff feet in the mornings, plantar fasciitis, very dizzy, slurred speech (intermittent); tongue swollen, tingly and
sore
feeling in fingers and toes, on two occasions lost all sensation down right side for a day, tinnitus, insomnia, deep aching all over body; poor concentration; feeling muddled; Very stiff feet in the mornings, plantar fasciitis, very dizzy, slurred speech (intermittent); tongue swollen, tingly and
sore
Numbsew
in
Pernicious Anaemia Society
5 years ago
Inflamed and sore gums
At the moment my
mouth
is
sore
generally and it hurts around the offending tooth and that tooth also is sore and feels a bit numb. But it changes all the time. Prior to the redness starting in June for a long time (few years) I would periodically get a generally
sore
mouth
.
At the moment my
mouth
is
sore
generally and it hurts around the offending tooth and that tooth also is sore and feels a bit numb. But it changes all the time. Prior to the redness starting in June for a long time (few years) I would periodically get a generally
sore
mouth
.
MiniMum97
in
Thyroid UK
5 years ago
Throat pain anyone?
Has anyone experienced weird throat pain, like your throat is shrinking and there’s something in it? Don’t know how to explain the feeling properly, but it really bothers and scares me.
Has anyone experienced weird throat pain, like your throat is shrinking and there’s something in it? Don’t know how to explain the feeling properly, but it really bothers and scares me.
masa2333
in
Anxiety Support
5 years ago
Would this indicate B12 deficiency?
In January I had a complete blood count and:- MCV 108.1fl (80-96) MCH 34.9 pg (27-32) This blood count was taken due to being diagnosed with Hashimotos and my Endocrinologist suggested B12 injections, I was presenting symptoms, tingling,
sore
mouth
and tongue, fatigue as he believed this to be the
In January I had a complete blood count and:- MCV 108.1fl (80-96) MCH 34.9 pg (27-32) This blood count was taken due to being diagnosed with Hashimotos and my Endocrinologist suggested B12 injections, I was presenting symptoms, tingling,
sore
mouth
and tongue, fatigue as he believed this to be the
RUBYT1976
in
Pernicious Anaemia Society
5 years ago
On day 8!
Hi all, I've quit again but seem to be getting an awful taste in my mouth and smelly breath, any ideas how to combat this? Am brushing my teeth 4/5 times a day atm
Hi all, I've quit again but seem to be getting an awful taste in my mouth and smelly breath, any ideas how to combat this? Am brushing my teeth 4/5 times a day atm
thorpey11
in
No Smoking Day
5 years ago
Ulcer
When I went to see my rumathologist yesterday she asked me have I any ulcers ,cold sore I said yes I have a ulcer on the roof of my mouth first since I was a child why would she ask this ?
When I went to see my rumathologist yesterday she asked me have I any ulcers ,cold sore I said yes I have a ulcer on the roof of my mouth first since I was a child why would she ask this ?
Dion3844o1
in
Lung Conditions Community Forum
5 years ago
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