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Can’t sleep
I was diagnosed in May of this year.. Started with double vision. I also have seizures, mostly controlled. I can’t sleep hardly at all. Tried several meds, nothing. Very frustrating. I get maybe 3, maybe 4 hours if lucky. There have been some nights I haven’t slept at all? Anyone else have
I was diagnosed in May of this year.. Started with double vision. I also have seizures, mostly controlled. I can’t sleep hardly at all. Tried several meds, nothing. Very frustrating. I get maybe 3, maybe 4 hours if lucky. There have been some nights I haven’t slept at all? Anyone else have
Cinjav
in
PSP Association
5 months ago
Laxido and acid reflux
I swear every time I take this stuff I end up with really bad regurgitation and heartburn. Coincidence? I am on other medications.
I swear every time I take this stuff I end up with really bad regurgitation and heartburn. Coincidence? I am on other medications.
Spaceboy_60
in
IBS Network
5 months ago
How Coeliac, Non-Coeliac Gluten Sensitivity (NCGS) and Wheat Sensitivity can impact ONE person on a PsychoSocial Scale !!
It says it all really. Today, I spoke to someone else who is gluten sensitive. They told me about the difficulties of having to explain themselves to others. I quipped, ‘I don’t like your cooking,’ as a cheeky answer. They chuckled. All of the above are very difficult and poorly understood illnesses
It says it all really. Today, I spoke to someone else who is gluten sensitive. They told me about the difficulties of having to explain themselves to others. I quipped, ‘I don’t like your cooking,’ as a cheeky answer. They chuckled. All of the above are very difficult and poorly understood illnesses
Narwhal10
in
Gluten Free Guerrillas
10 months ago
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Diverticulitis struggle to recover
So moving on from my original post and I thank everyone who was kind enough to reply or offer support/suggestions. I’ve spoken with a Dr this morning and have a face to face apt this afternoon. I started to try and eat small amounts of sloppy food yesterday. Scrambled egg and later a little mash in
So moving on from my original post and I thank everyone who was kind enough to reply or offer support/suggestions. I’ve spoken with a Dr this morning and have a face to face apt this afternoon. I started to try and eat small amounts of sloppy food yesterday. Scrambled egg and later a little mash in
sickandsore
in
IBS Network
10 months ago
Low FODMAP diet trial
I've been trying to stick to low FODMAP foods for just over a week now. I am still getting some bloating and pain so I wonder if some foods I've eaten are not actually low in FODMAPs: different sources of information provide different ratings for certain foods and I'm confused. Can anyone recommend
I've been trying to stick to low FODMAP foods for just over a week now. I am still getting some bloating and pain so I wonder if some foods I've eaten are not actually low in FODMAPs: different sources of information provide different ratings for certain foods and I'm confused. Can anyone recommend
Washface
in
IBS Network
10 months ago
still in the same boat I was 3 months ago
hi everyone I had my fit test result back all clear but I only got the stool after wiping from my tissue would this matter? I’m still getting fleshy looking bits in my poo and I’ve had an all clear ultrasound and I now have a colonoscopy in 6 weeks time, do I now need to get cancer out my head as I’
hi everyone I had my fit test result back all clear but I only got the stool after wiping from my tissue would this matter? I’m still getting fleshy looking bits in my poo and I’ve had an all clear ultrasound and I now have a colonoscopy in 6 weeks time, do I now need to get cancer out my head as I’
danielstandish
in
Colon Cancer Connected
7 months ago
IAM having a moan,so I'm sorry.
My sister who has very bad arthritis, and was on methotrexate for years was taken off it, has had such a bad time having had sepsis and deep vein thrombosis and always in pain, hate to say even with my PMR I feel lucky I know what a comment to make as we all hate this illness. She had to fight to see
My sister who has very bad arthritis, and was on methotrexate for years was taken off it, has had such a bad time having had sepsis and deep vein thrombosis and always in pain, hate to say even with my PMR I feel lucky I know what a comment to make as we all hate this illness. She had to fight to see
Harrywogan
in
PMRGCAuk
5 months ago
piles and edoxoban
My poor hubby doesn’t seem to be able to catch a break at the moment, if you’ve read some of my previous posts concerning his stroke and AF. For the last five days he has bled after every bowel movement , he has had piles in the past but has not bled as much , I would say as much as a nosebleed ,
My poor hubby doesn’t seem to be able to catch a break at the moment, if you’ve read some of my previous posts concerning his stroke and AF. For the last five days he has bled after every bowel movement , he has had piles in the past but has not bled as much , I would say as much as a nosebleed ,
Jackiesmith7777
in
AF Association
5 months ago
Post op sleeping position
Hi everyone my husband is nearly 9 months post oesophagectomy with 2/3 of his stomach removed. He was diagnosed T4aN1M0 in September last year, had the op in March and is overall recovering really well. We’re so grateful that generally he’s sleeping well but currently using an OPA wedge but slipping
Hi everyone my husband is nearly 9 months post oesophagectomy with 2/3 of his stomach removed. He was diagnosed T4aN1M0 in September last year, had the op in March and is overall recovering really well. We’re so grateful that generally he’s sleeping well but currently using an OPA wedge but slipping
Tighan
in
Oesophageal & Gastric Cancer
5 months ago
Biologic therapies
I am interested to know if anyone found the injection painful? My first was in the thigh and I am wondering if next time to try the arm or stomach area? Or am I just being a big baby?! 🫣
I am interested to know if anyone found the injection painful? My first was in the thigh and I am wondering if next time to try the arm or stomach area? Or am I just being a big baby?! 🫣
Headoverheels
in
Asthma Community Forum
10 months ago
on the IC and running vicariously
well I am officially no exercise for at least 6 weeks and only gentle for the following 6. I have finally had my liver cyst done ( a fenestration - basically a large window cut in it so it doesn’t refill this times) and I am home now recovering. the op itself was fine but you do not realise how much
well I am officially no exercise for at least 6 weeks and only gentle for the following 6. I have finally had my liver cyst done ( a fenestration - basically a large window cut in it so it doesn’t refill this times) and I am home now recovering. the op itself was fine but you do not realise how much
limberlou
Graduate
in
Couch to 5K
10 months ago
Stopping Actemra
Good day all: Well, I called and canceled my Actemra infusion for today. I was recently diagnosed with something called MGRS (Monoclonal Gammopathy of renal Significance), It is related to Multiple Myeloma. I start chemotherapy for the MGRS next week, which is the same as the chemo for full
Good day all: Well, I called and canceled my Actemra infusion for today. I was recently diagnosed with something called MGRS (Monoclonal Gammopathy of renal Significance), It is related to Multiple Myeloma. I start chemotherapy for the MGRS next week, which is the same as the chemo for full
phebamom
in
PMRGCAuk
5 months ago
Very noisy ears and pressure
Hi - I have been diagnosed with TMJD - I have Tinnitus mostly in the right ear, but every so often I have ghastly whooshing in both ears very noisy and a feeling of pressure , is this possibly stress anxiety related? Or the TMJD effecting the ETs - I know it's a highly complex area, I have had this T
Hi - I have been diagnosed with TMJD - I have Tinnitus mostly in the right ear, but every so often I have ghastly whooshing in both ears very noisy and a feeling of pressure , is this possibly stress anxiety related? Or the TMJD effecting the ETs - I know it's a highly complex area, I have had this T
Seabob
in
Tinnitus UK
5 months ago
Waiting PMR Diagnosis
Started in September 2023 with stiff hips and buttocks, just woke up like that. Don't know if it was coincidence but this was 3 day's after a flu jab! Gradually over the next few weeks, hip's became stiffer, burning type pain at times down to the knees. Putting on lower half clothes and shoes became
Started in September 2023 with stiff hips and buttocks, just woke up like that. Don't know if it was coincidence but this was 3 day's after a flu jab! Gradually over the next few weeks, hip's became stiffer, burning type pain at times down to the knees. Putting on lower half clothes and shoes became
Grandmaziggy
in
PMRGCAuk
5 months ago
Sacroiliac joint fusion
After many painful years I'm on the NHS list for sacroiliac joint fusion. Of course there is a 12 month waiting list. Has any one had this operation done privately? Struggling to find a private consultant in Yorkshire.
After many painful years I'm on the NHS list for sacroiliac joint fusion. Of course there is a 12 month waiting list. Has any one had this operation done privately? Struggling to find a private consultant in Yorkshire.
eeeee
in
Pelvic Pain Support Network
5 months ago
Blepharitis
hi I have rheumatoid arthritis, herpes simplex in my right eye and acute glaucoma caused by the treatment for my eye. I’ve now got blepharitis in both my eyes which has just started on Monday after my infusion for my arthritis. I went to the doctor and they said just use baby shampoo but my eyes are
hi I have rheumatoid arthritis, herpes simplex in my right eye and acute glaucoma caused by the treatment for my eye. I’ve now got blepharitis in both my eyes which has just started on Monday after my infusion for my arthritis. I went to the doctor and they said just use baby shampoo but my eyes are
Golden87
in
Glaucoma UK
5 months ago
coccyx pain
hello, I’m having issues with coccyx pain and am wondering whether it’s another exciting (😒) symptom of FA. I’m still ambulatory so not a wheelchair user but am having the problem when sitting on an upright chair- so I’m avoiding doing that as much as I can but it’s not always possible. I bought a
hello, I’m having issues with coccyx pain and am wondering whether it’s another exciting (😒) symptom of FA. I’m still ambulatory so not a wheelchair user but am having the problem when sitting on an upright chair- so I’m avoiding doing that as much as I can but it’s not always possible. I bought a
dansybelle
in
Ataxia UK
6 months ago
GCA flares and eyesight
Thank you to everybody on this site – I have found it very helpful. I was diagnosed with GCA in September. I have to say my GP and Bath Hospital were excellent though it was a shock. My sight tested OK in the Eye Clinic. I started on 60 prednisolone reducing, and I am coping quite well, but I am paranoid
Thank you to everybody on this site – I have found it very helpful. I was diagnosed with GCA in September. I have to say my GP and Bath Hospital were excellent though it was a shock. My sight tested OK in the Eye Clinic. I started on 60 prednisolone reducing, and I am coping quite well, but I am paranoid
Gladys911
in
PMRGCAuk
5 months ago
New to IBS struggling to find a pattern
Hi All,I have recently joined this community after I have spent the last 10 days in pain and after my doctor suggested that it could be IBS and as far as I can tell I tick all the boxes for IBS-C. I have gone to the hospital where all checks were negative but haven't done a colonoscopy because they said
Hi All,I have recently joined this community after I have spent the last 10 days in pain and after my doctor suggested that it could be IBS and as far as I can tell I tick all the boxes for IBS-C. I have gone to the hospital where all checks were negative but haven't done a colonoscopy because they said
Liquido
in
IBS Network
10 months ago
Anyone opted for private Cataract surgery?
Hi, I have seronegative RA and am on Benepali. Have just had a routine eye test and been told I need cataract surgery. I thought I needed new glasses but it turns out it's cataracts! Anyway my optician has referred me on the NHS via my GP but I'm wondering about going private as I have no idea how long
Hi, I have seronegative RA and am on Benepali. Have just had a routine eye test and been told I need cataract surgery. I thought I needed new glasses but it turns out it's cataracts! Anyway my optician has referred me on the NHS via my GP but I'm wondering about going private as I have no idea how long
Chann
in
NRAS
5 months ago
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