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Modopar
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Progression of PD.
Hi all I was wondering how you guys have progressed in terms of PD I was diagnosed 5 years ago age 34 am now 39. My first symptom was dystonia in my right hand which I call it the claw... Roll on 5 years when meds are off a cant get off the sofa,bed unassisted can barely walk unassisted feeks like both
Hi all I was wondering how you guys have progressed in terms of PD I was diagnosed 5 years ago age 34 am now 39. My first symptom was dystonia in my right hand which I call it the claw... Roll on 5 years when meds are off a cant get off the sofa,bed unassisted can barely walk unassisted feeks like both
stanny7
in
Cure Parkinson's
5 years ago
Madopar
Has anybody ever vomited after taking madopar? My husband started taking a low dosage for 5 days now and this morning he vomited twice. We aren’t sure if ts the drug or the food. But what happens if its the drug? Does it show up only after 5 days ? Does one stop taking it?
Has anybody ever vomited after taking madopar? My husband started taking a low dosage for 5 days now and this morning he vomited twice. We aren’t sure if ts the drug or the food. But what happens if its the drug? Does it show up only after 5 days ? Does one stop taking it?
Jumex2017
in
Cure Parkinson's
5 years ago
MMS DMSO for treatment of Parkinson's
My father has been diagnosed with Parkinson's in september 2017. He is 74 years old and took Madopar (Levodopa/carbidopa) for 6 month. Before the diagnose we saw that he might have Parkinson because he walked slowly with small steps(around10cm and close to the ground( around 10cm) -in contrast with
My father has been diagnosed with Parkinson's in september 2017. He is 74 years old and took Madopar (Levodopa/carbidopa) for 6 month. Before the diagnose we saw that he might have Parkinson because he walked slowly with small steps(around10cm and close to the ground( around 10cm) -in contrast with
Parkinsonfight
in
Cure Parkinson's
5 years ago
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Pramipexole brand differences UK
I take a 1.05 dose of pramipexole CR as well as Madopar. For several years the NHS brand of choice has been Pipexus. There was a supply problem to my dispensary when I picked up my most recent prescription and I have been taking the Teva brand for two weeks now. I am finding that my symptoms are
I take a 1.05 dose of pramipexole CR as well as Madopar. For several years the NHS brand of choice has been Pipexus. There was a supply problem to my dispensary when I picked up my most recent prescription and I have been taking the Teva brand for two weeks now. I am finding that my symptoms are
Sarahlil
in
Cure Parkinson's
5 years ago
Parkinsons Medication
Hi I have had Parkinson's for over 20 years and am on high dose of 'Madopar' with xado. I have had such bad dyskinesia that I am trying Mucuna with xado. Does anyone else take this medcation and can you tell me how you are getting on with it. Many Thanks Lady Chatterley
Hi I have had Parkinson's for over 20 years and am on high dose of 'Madopar' with xado. I have had such bad dyskinesia that I am trying Mucuna with xado. Does anyone else take this medcation and can you tell me how you are getting on with it. Many Thanks Lady Chatterley
LadyChatterley
in
Cure Parkinson's
5 years ago
I’m new here and to off times
I was taking
Modopar
(4x125) and Sifrol in the daytime only until my last appointment in October. I mentioned I had started to have neck pains when I woke up and he prescribed an extra half
Modopar
for the early morning.
I was taking
Modopar
(4x125) and Sifrol in the daytime only until my last appointment in October. I mentioned I had started to have neck pains when I woke up and he prescribed an extra half
Modopar
for the early morning.
Arre
in
Cure Parkinson's
5 years ago
A dignified journey
Hi all, I just wanted to pop on here to express my sincere appreciation for this site. I haven't really participated here, but have found it to be a wealth of information while transitioning through the different stages of my dad's PSP journey. Alongside that, it has been really remarkable to know there
Hi all, I just wanted to pop on here to express my sincere appreciation for this site. I haven't really participated here, but have found it to be a wealth of information while transitioning through the different stages of my dad's PSP journey. Alongside that, it has been really remarkable to know there
Lulumacmac231
in
PSP Association
5 years ago
PROOF THAT MADOPAR ACTUALLY WORKS .... (for me).
Over the past several months, I have begun to notice that my legs are starting to ache after I have been walking for a considerable amount of time. This afternoon it became much worse, to the point of actual quite serious pain. (And I can't for the life of me, believe how I could have been so astoundingly
Over the past several months, I have begun to notice that my legs are starting to ache after I have been walking for a considerable amount of time. This afternoon it became much worse, to the point of actual quite serious pain. (And I can't for the life of me, believe how I could have been so astoundingly
TEAH35
in
Restless Legs Syndrome
5 years ago
Transdermal patches
I have been a member of HealthUnlocked for at lease 4 years!! I was diagnosed with Parkinson’s 2012! My current medications are Madopar 100 and Mucuna Pruriens!! My Movement Disorder Specialist has suggested I trial transdermal patches (Neupro-rotigotine -2mg/24h)!! I would appreciate feedback from
I have been a member of HealthUnlocked for at lease 4 years!! I was diagnosed with Parkinson’s 2012! My current medications are Madopar 100 and Mucuna Pruriens!! My Movement Disorder Specialist has suggested I trial transdermal patches (Neupro-rotigotine -2mg/24h)!! I would appreciate feedback from
Mondoug
in
Cure Parkinson's
5 years ago
Madopar - does anyone take it?
I was on Pergolide for 18 years. Wonderful. Cured my restless legs until they took it off the market. Now my neurosurgeon has given me Madopar which doesn’t touch the problem. Help!
I was on Pergolide for 18 years. Wonderful. Cured my restless legs until they took it off the market. Now my neurosurgeon has given me Madopar which doesn’t touch the problem. Help!
Jeverleybane
in
Restless Legs Syndrome
5 years ago
parkinsons
HI I am a student Nurse , in my second year now writing an essay on medications safety and management. I have chosen Parkinsons disease and the medication Madopar. Can anyone give me any comments at all about it i would be very grateful. especially on the time critical issues with taking the medication
HI I am a student Nurse , in my second year now writing an essay on medications safety and management. I have chosen Parkinsons disease and the medication Madopar. Can anyone give me any comments at all about it i would be very grateful. especially on the time critical issues with taking the medication
Hidden
in
Cure Parkinson's
5 years ago
Gabapentin causing itch?
Hi all again, I have been on Gabapentin twice a day from my skin over--sensitization issues and half a madopar at night for the hypnic jerks and everything else. After a week or so, the doctor advised me to use three gabapentin of 400/day to attack the skin sensitivity issue even more. However, after
Hi all again, I have been on Gabapentin twice a day from my skin over--sensitization issues and half a madopar at night for the hypnic jerks and everything else. After a week or so, the doctor advised me to use three gabapentin of 400/day to attack the skin sensitivity issue even more. However, after
dimpep
in
Restless Legs Syndrome
5 years ago
Madopar shortage
Boots in the UK tell me they cannot supply Madopar 100/25 capsules at the moment because of a problem at the manufacturers. They do not know when it will be available again. Anyone else been told this?
Boots in the UK tell me they cannot supply Madopar 100/25 capsules at the moment because of a problem at the manufacturers. They do not know when it will be available again. Anyone else been told this?
Buckholt
in
Cure Parkinson's
5 years ago
Madopar Advice
Need advice on those taking Madopar (or similar). My main symptoms rigidity in back and legs - with a continuous cramp in my feet. I take 125mg x 3 times per day. I really only feel "off" after I take the Madopar. About 20-40 mins after taking the tablet I get serious cramps in back/legs/feet for a period
Need advice on those taking Madopar (or similar). My main symptoms rigidity in back and legs - with a continuous cramp in my feet. I take 125mg x 3 times per day. I really only feel "off" after I take the Madopar. About 20-40 mins after taking the tablet I get serious cramps in back/legs/feet for a period
Dingler
in
Cure Parkinson's
5 years ago
Sifrol
Has anyone been on Sifrol long term without augmentation? Also, if I augmented on Madopar would I definitely have the same reaction to Sifrol? Thanks all - your posts are all so helpful! Thank goodness I found this forum!!
Has anyone been on Sifrol long term without augmentation? Also, if I augmented on Madopar would I definitely have the same reaction to Sifrol? Thanks all - your posts are all so helpful! Thank goodness I found this forum!!
Eponine53
in
Restless Legs Syndrome
5 years ago
B1 experience so far!
Hello all. I have been tuning in to everyone's experiences since I joined in March 2018. At that time my husband was diagnosed with PD and as I am the more able one with computers I have been reading listening to your experiences and researching your valuable advice. We have had quite the roller coaster
Hello all. I have been tuning in to everyone's experiences since I joined in March 2018. At that time my husband was diagnosed with PD and as I am the more able one with computers I have been reading listening to your experiences and researching your valuable advice. We have had quite the roller coaster
Fnjb
in
Cure Parkinson's
5 years ago
Getting off Madopar
I really want to get off Madopar and it’s augmentation, and try to treat my legs with diet alone. Any suggestions? Have you successfully broken the crazy cycle of taking Madopar for rls then having to take it for the rebound effect of the medication? TIA!!
I really want to get off Madopar and it’s augmentation, and try to treat my legs with diet alone. Any suggestions? Have you successfully broken the crazy cycle of taking Madopar for rls then having to take it for the rebound effect of the medication? TIA!!
Eponine53
in
Restless Legs Syndrome
5 years ago
Madopar CR
Has anyone had any experience with this? How does it compare with normal Madopar and would it be useful for bedtime?
Has anyone had any experience with this? How does it compare with normal Madopar and would it be useful for bedtime?
JeanieBeanie
in
Cure Parkinson's
5 years ago
Apo morphine - no effect
My consultant recently recommended I use apo-morphine via the Apo-go self injection pen . (I 've been dx 15 years and have v unpredictable and severe off periods) i had the tests to see how well i tolerated it lsdt week. I was in hospital fir a dsy with a dedicated apo nurse . We tried doses from 1 to
My consultant recently recommended I use apo-morphine via the Apo-go self injection pen . (I 've been dx 15 years and have v unpredictable and severe off periods) i had the tests to see how well i tolerated it lsdt week. I was in hospital fir a dsy with a dedicated apo nurse . We tried doses from 1 to
pen1
in
Cure Parkinson's
5 years ago
Size of apo pump
Hi I was dx with young onset PD in 2003 aged 46. I'm now 62 and have kept on top of it by gradually upping the madopar . In the last few months madopar's effectiveness has dropped right off and my consultant says there is ni more room to tweak my medication or increase the madopar. To my distress
Hi I was dx with young onset PD in 2003 aged 46. I'm now 62 and have kept on top of it by gradually upping the madopar . In the last few months madopar's effectiveness has dropped right off and my consultant says there is ni more room to tweak my medication or increase the madopar. To my distress
pen1
in
Cure Parkinson's
6 years ago
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