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Breathlessness while on Ibrance Letrozole combination
I was diagnosed Stage 1V Metastatic Breast cancer nets to the lungs , lymph nodes in base of neck and spot on spine in July 2019 after 7 years cancer free from original Mastectomy . I have been on Ribociclib /Letrozole combo for 11 months but developed fluid in my lungs and a really bad rash on my
I was diagnosed Stage 1V Metastatic Breast cancer nets to the lungs , lymph nodes in base of neck and spot on spine in July 2019 after 7 years cancer free from original Mastectomy . I have been on Ribociclib /Letrozole combo for 11 months but developed fluid in my lungs and a really bad rash on my
7982
in
My Ovacome
4 years ago
Latest appointment - possible genetic sequencing
I had my latest oncology telephone appointment on Tuesday. Letrozole, which had kept me stable for 2 years, stopped working earlier this year, & I've been taking Megace since August. There's little change on my latest scan, so I'm continuing to take it for now. After some discussion on my future,
I had my latest oncology telephone appointment on Tuesday. Letrozole, which had kept me stable for 2 years, stopped working earlier this year, & I've been taking Megace since August. There's little change on my latest scan, so I'm continuing to take it for now. After some discussion on my future,
Di16
in
My Ovacome
4 years ago
FRER tests..how accurate are they?
Morning everyone, I’m currently on day 31, I took letrozole this cycle and I think I ovulated around day 18/19. I took a test this morning and a faint pink line can up straight away. It probably doesn’t look that pink on the photo but it is although it’s very light. I’ve read mixed reviews of the
Morning everyone, I’m currently on day 31, I took letrozole this cycle and I think I ovulated around day 18/19. I took a test this morning and a faint pink line can up straight away. It probably doesn’t look that pink on the photo but it is although it’s very light. I’ve read mixed reviews of the
Steadman80
in
Fertility Network UK
4 years ago
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Bright yellow urine
Good morning, I’ve noticed the last three or four days that my urine is bright yellow what concerns me is that I just started on the Ibrance pill. I used to take the capsule. Has anyone else noticed a difference in their urine color after switching from the capsule to the pill? One more thing, I do
Good morning, I’ve noticed the last three or four days that my urine is bright yellow what concerns me is that I just started on the Ibrance pill. I used to take the capsule. Has anyone else noticed a difference in their urine color after switching from the capsule to the pill? One more thing, I do
Canchondo
in
SHARE Metastatic Breast Cancer
4 years ago
Itchy eyes
Anyone have really itchy eyes on ibrance and letrozole? My eyes are really bothering me - can’t stop rubbing them.
Anyone have really itchy eyes on ibrance and letrozole? My eyes are really bothering me - can’t stop rubbing them.
Kaydub
in
SHARE Metastatic Breast Cancer
4 years ago
Has anyone had a delayed period after letrozole ?
I have started letrozole this month and I’ve not had the visit from AF. I am now 35 days into my cycle. On day 31-33 I had light brown spotting when wiping and only a little on a pad. Don’t want to get my hopes up but could I be pregnant ? Anyone had a similar experience ?
I have started letrozole this month and I’ve not had the visit from AF. I am now 35 days into my cycle. On day 31-33 I had light brown spotting when wiping and only a little on a pad. Don’t want to get my hopes up but could I be pregnant ? Anyone had a similar experience ?
Shazzyb25
in
Fertility Network UK
4 years ago
Hair thinning or Hair loss
Hello Everyone, I am new to the group and I am so thankful I found it! I was diagnosed on May 13 2019 with stage 4 bc with bone mets. For 8 months after my diagnosis my treatment was a high alkaline diet and Hoxsey. It worked in shrinking tumors in my breast which they did not want to remove however
Hello Everyone, I am new to the group and I am so thankful I found it! I was diagnosed on May 13 2019 with stage 4 bc with bone mets. For 8 months after my diagnosis my treatment was a high alkaline diet and Hoxsey. It worked in shrinking tumors in my breast which they did not want to remove however
Thedex259
in
SHARE Metastatic Breast Cancer
4 years ago
Has anyone had SBRT?
Hi everyone - so my mom was diagnosed with Stage IV metastatic breast cancer with 2 tumors in her bone - T2 & L4 regions. She is considering doing radiation - an oncologist said today she has 2 approaches - a conservative approach and then SBRT. Risks of SBRT are nerve damage, paralysis, and bone damage
Hi everyone - so my mom was diagnosed with Stage IV metastatic breast cancer with 2 tumors in her bone - T2 & L4 regions. She is considering doing radiation - an oncologist said today she has 2 approaches - a conservative approach and then SBRT. Risks of SBRT are nerve damage, paralysis, and bone damage
Jac-genova
in
SHARE Metastatic Breast Cancer
4 years ago
Small spot in lung?
Hi - I just heard that while my bone tumors are stable the 3 mil spot in my lung has grown to 7mil. It is too small to biopsy so they are just going to continue treatment and keep an eye on it. They said it is concerning and yet it may not be cancer. Has anyone had anything like this? For those who
Hi - I just heard that while my bone tumors are stable the 3 mil spot in my lung has grown to 7mil. It is too small to biopsy so they are just going to continue treatment and keep an eye on it. They said it is concerning and yet it may not be cancer. Has anyone had anything like this? For those who
HopefulB
in
SHARE Metastatic Breast Cancer
4 years ago
Taste and Smell
Lost taste and smell on Ibrance and Letrozole has anyone else had this problem?
Lost taste and smell on Ibrance and Letrozole has anyone else had this problem?
Ksfitz
in
SHARE Metastatic Breast Cancer
4 years ago
Scan results stable
I have just had the results call from last weeks CT scan, just as a refresh I was sent for another scan only 2 months after the one that showed chemo hadn't really worked as a few of the lesions on liver had progression whilst on it so I'd been put on letrozole asap and have continued with H&P infusions
I have just had the results call from last weeks CT scan, just as a refresh I was sent for another scan only 2 months after the one that showed chemo hadn't really worked as a few of the lesions on liver had progression whilst on it so I'd been put on letrozole asap and have continued with H&P infusions
Hidden
in
SHARE Metastatic Breast Cancer
4 years ago
UPDATE on Friday 20th November .......Brain mets or stroke
Further to my recent post below, I had a follow up consultation yesterday and it wasnt what I was expecting at all. Having been told during my time in hospital that the MRI scan showed a small anomly on the right side, yesterday I was told that when the neuro oncology team examined the scan more closely
Further to my recent post below, I had a follow up consultation yesterday and it wasnt what I was expecting at all. Having been told during my time in hospital that the MRI scan showed a small anomly on the right side, yesterday I was told that when the neuro oncology team examined the scan more closely
Mindysooty
in
SHARE Metastatic Breast Cancer
4 years ago
Anyone out there taking Letrozole for ovarian cancer?
I was diagnosed with clear cell ovarian cancer late stage 1 as of last year. Went through chemo and had a recurrence this last sept for a tumor found on my abdominal wall. I am now being treated with Letrozole to keep tumors at bay , Has anyone out there taken this drug if so what did you think?
I was diagnosed with clear cell ovarian cancer late stage 1 as of last year. Went through chemo and had a recurrence this last sept for a tumor found on my abdominal wall. I am now being treated with Letrozole to keep tumors at bay , Has anyone out there taken this drug if so what did you think?
HappyGoLucky66
in
SHARE Ovarian Cancer Support
4 years ago
Oestradiol after Letrozole
Hi! I have done 3 rounds of unsuccessful Letrozole fertility treatment. Starting a 4th cycle and my oestradiol on day 3 was LOW even tho I have not been taking Letrozole for two weeks now. Previous my levels were normal. Anybody else have their levels drop like this? Will they rise to normal with time
Hi! I have done 3 rounds of unsuccessful Letrozole fertility treatment. Starting a 4th cycle and my oestradiol on day 3 was LOW even tho I have not been taking Letrozole for two weeks now. Previous my levels were normal. Anybody else have their levels drop like this? Will they rise to normal with time
Ababyforcarrie
in
Fertility Network UK
4 years ago
Pulse rate in neck very frightening in the evening
Every evening my pulse in my neck goes a bit wild! Bumping and throbbing, impossible to try and count beats during 60 seconds. I feel fine and try to take my pulse on my wrist and all seems normal! I feel fine just very conscious of this disco beat in my neck. I’m a newbie to PAF-Fb. I’m on Apixiban
Every evening my pulse in my neck goes a bit wild! Bumping and throbbing, impossible to try and count beats during 60 seconds. I feel fine and try to take my pulse on my wrist and all seems normal! I feel fine just very conscious of this disco beat in my neck. I’m a newbie to PAF-Fb. I’m on Apixiban
HelenClare
in
AF Association
4 years ago
Info on clinical trial with "Oral Faslodex/Fulvestrant"?
Hi everyone, After 3.5 years of positive response on Ibrance/Letrozole, my wife has seen some progression--so yesterday, she began a new clinical trial (ACT16105) which is a Phase II trial of SAR439859, a Sanofi compound. From my (limited!) understanding, this is an attempt to develop an oral Selective
Hi everyone, After 3.5 years of positive response on Ibrance/Letrozole, my wife has seen some progression--so yesterday, she began a new clinical trial (ACT16105) which is a Phase II trial of SAR439859, a Sanofi compound. From my (limited!) understanding, this is an attempt to develop an oral Selective
friesianfan
in
SHARE Metastatic Breast Cancer
4 years ago
Ibrance and CFS
I'm on my second cycle of Ibrance with Letrozole. 125 mg the first cycle, now down to 100 mg because my neutrophils were at 0.9 at the end of the week off. Took another 10 days before starting second cycle. But the fatigue is getting debilitating. I walk for about 40 min every day and am normally active
I'm on my second cycle of Ibrance with Letrozole. 125 mg the first cycle, now down to 100 mg because my neutrophils were at 0.9 at the end of the week off. Took another 10 days before starting second cycle. But the fatigue is getting debilitating. I walk for about 40 min every day and am normally active
SunsetSeeker
in
SHARE Metastatic Breast Cancer
4 years ago
Surgery after Ibrance
Afternoon ladies, I have been building up courage to talk to you since I joined your wonderful forum and here I am !! I had a mammogram April 2019 which was clear, feb 2020 find lump under arm and 1St April ( what a sick April fool) was diagnosed with a 4cm and 2 cm Tumor in breast and ducts disease
Afternoon ladies, I have been building up courage to talk to you since I joined your wonderful forum and here I am !! I had a mammogram April 2019 which was clear, feb 2020 find lump under arm and 1St April ( what a sick April fool) was diagnosed with a 4cm and 2 cm Tumor in breast and ducts disease
Archiedog
in
SHARE Metastatic Breast Cancer
4 years ago
My dr appt today
Just letting you all know my dr not worried about the new lesion on my left femur -moderate fog activity and left breast mild fdg but scar tissue there. He says I’m stable and will see me in 4 months to continue on Ibrance and letrozole. Everyone be safe and live life-we are strong!🙏❤️🌹✝️
Just letting you all know my dr not worried about the new lesion on my left femur -moderate fog activity and left breast mild fdg but scar tissue there. He says I’m stable and will see me in 4 months to continue on Ibrance and letrozole. Everyone be safe and live life-we are strong!🙏❤️🌹✝️
Eliactida1955
in
SHARE Metastatic Breast Cancer
4 years ago
Having a low day... are my eggs just bad?
I am having a low day, I feel so disappointed, once again. I needed to start my second cycle of Clomid this month with double dosage of 100mg, since 50mg did absolutely nothing last month (no ovulation). After few days of spotting when wiping (and nothing on the pad) my period arrived yesterday with
I am having a low day, I feel so disappointed, once again. I needed to start my second cycle of Clomid this month with double dosage of 100mg, since 50mg did absolutely nothing last month (no ovulation). After few days of spotting when wiping (and nothing on the pad) my period arrived yesterday with
FrancyItaly
in
Fertility Network UK
4 years ago
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