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Trying to make the most of being chronically ill and unemployed 💕
✨ Just some ideas on how to make the most of something that sucks and can be very isolating and lonely ✨ *depending on what you can do that day x • Quality time with loved ones • Getting a new pet or spending more quality time with yours. • Developing a self care routine • Free adult learning courses
✨ Just some ideas on how to make the most of something that sucks and can be very isolating and lonely ✨ *depending on what you can do that day x • Quality time with loved ones • Getting a new pet or spending more quality time with yours. • Developing a self care routine • Free adult learning courses
x_emily_x
in
Endometriosis UK
5 months ago
Recommendations for a rheumatologist in Merseyside area please.
I was 65 in August, about six to eight weeks ago I started having really painful hips, fatigued, night sweats, eye and temple pains. I have mild lupus (remission) so was discharged by my rheumatologist in January 21 My GP recently did some bloods. ESR 10 He told me to contact rheumatology department
I was 65 in August, about six to eight weeks ago I started having really painful hips, fatigued, night sweats, eye and temple pains. I have mild lupus (remission) so was discharged by my rheumatologist in January 21 My GP recently did some bloods. ESR 10 He told me to contact rheumatology department
Pennypip
in
PMRGCAuk
5 months ago
I'm back....!
Bricking it now....thoracoscopy due on Thursday morning and I'm terrified....has anyone here had it done? I just hate pain of any sort even though I know I'll have sedation - Fentanyl and Midazolam -I'm still really, really panicking....😒🙄
Bricking it now....thoracoscopy due on Thursday morning and I'm terrified....has anyone here had it done? I just hate pain of any sort even though I know I'll have sedation - Fentanyl and Midazolam -I'm still really, really panicking....😒🙄
sue32
in
Lung Conditions Community Forum
5 months ago
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Problems following microsuction
Hi everyone. After many issues with my ears over the years including tinnitus I finally got my appointment for the ENT and went in last week. I had a hearing test and it shows some hearing loss in both ears and alsoa pressure test that showed the pressure wasn't right in both ears as well, all the doctor
Hi everyone. After many issues with my ears over the years including tinnitus I finally got my appointment for the ENT and went in last week. I had a hearing test and it shows some hearing loss in both ears and alsoa pressure test that showed the pressure wasn't right in both ears as well, all the doctor
andy614
in
Tinnitus UK
5 months ago
Dry scalp
I have recently noticed increasingly dry scalp. Can anyone recommend any shampoo/ conditioner to help? No expense (at this scale) spared. I have very fine hair, and dont want this to have further effects. I've looked at all the commercially available ones, dont have any way to judge which work and are
I have recently noticed increasingly dry scalp. Can anyone recommend any shampoo/ conditioner to help? No expense (at this scale) spared. I have very fine hair, and dont want this to have further effects. I've looked at all the commercially available ones, dont have any way to judge which work and are
cathie
in
NRAS
5 months ago
recommendations for high cholesterol med please
I stopped taking my cholesterol meds in November, just tested again and it's now 371. For RLS I'm now on gabapentin (100mg) and .5mg requip (need to transition off). My RLS is the best it's been in years! However, my doc wants me to continue to take the pravastatin (80mg) for the high cholesterol
I stopped taking my cholesterol meds in November, just tested again and it's now 371. For RLS I'm now on gabapentin (100mg) and .5mg requip (need to transition off). My RLS is the best it's been in years! However, my doc wants me to continue to take the pravastatin (80mg) for the high cholesterol
RLSNona
in
Restless Legs Syndrome
1 year ago
Busy, busy, busy!
Hello,, everyone! Just thought I'd pop in and say 'Hello!' as i've been really busy lately and not getting much chance to look in at the Forum. I sometimes get chance to read but not much time to respond - only to very few! I had COVID again a few weeks ago which has left me with an aversion to certain
Hello,, everyone! Just thought I'd pop in and say 'Hello!' as i've been really busy lately and not getting much chance to look in at the Forum. I sometimes get chance to read but not much time to respond - only to very few! I had COVID again a few weeks ago which has left me with an aversion to certain
MoyB
in
Lung Conditions Community Forum
5 months ago
The continuing saga of the purple toe
Surprise, surprise, after having a MRI scan of my legs, an echocardiogram, an ECG and a twenty four hour heart monitor, no trace of blockages except what the consultant called a 'pinch' in a leg artery, suspected of causing a blood clot and the purple toe. But, on my last appointment with the consultant
Surprise, surprise, after having a MRI scan of my legs, an echocardiogram, an ECG and a twenty four hour heart monitor, no trace of blockages except what the consultant called a 'pinch' in a leg artery, suspected of causing a blood clot and the purple toe. But, on my last appointment with the consultant
KatyB
in
Cholesterol Support
5 months ago
Beta Alanine, okay or not okay?
Many pre workout supplements include beta Alanine. I used it in my pre PCA days because I felt it did help with the workout intensity, particularly those exercises that are short...I.e. weight lifting. Anyway, I liked the additional energy release and the slight tingly feeling when using this supplement
Many pre workout supplements include beta Alanine. I used it in my pre PCA days because I felt it did help with the workout intensity, particularly those exercises that are short...I.e. weight lifting. Anyway, I liked the additional energy release and the slight tingly feeling when using this supplement
MoonRocket
in
Advanced Prostate Cancer
5 months ago
Achille, fingers and now eye Inflammation need hope it will stop.
Hi. I'm counting the days to see the rhumathologist. I'm starting to get really discourage. The list of problem can't stop getting longer. I got 5 day only of prednisone for my achille tendonitis. It's was the best days of my last two years. But as soon as it stop the pain and stiffness come back and
Hi. I'm counting the days to see the rhumathologist. I'm starting to get really discourage. The list of problem can't stop getting longer. I got 5 day only of prednisone for my achille tendonitis. It's was the best days of my last two years. But as soon as it stop the pain and stiffness come back and
Shadow35
in
NRAS
5 months ago
GCA and hair loss
Have been on pred now since end of July 2023 - originally 60mg now tapered to 20mg. (stay on 20mg for 2 weeks). Feel fine on that dose. Will taper to 18 mg in a week Mon. and stay on it for 2 weeks, etc. then down by l0% every 2 weeks if all holds. I am losing my hair. Will taking folic acid help?
Have been on pred now since end of July 2023 - originally 60mg now tapered to 20mg. (stay on 20mg for 2 weeks). Feel fine on that dose. Will taper to 18 mg in a week Mon. and stay on it for 2 weeks, etc. then down by l0% every 2 weeks if all holds. I am losing my hair. Will taking folic acid help?
Groda
in
PMRGCAuk
5 months ago
PMR/Hiatus hernia and PPIs
I’m not sure what to do now. I was diagnosed in February with PMR and prescribed Omeprazole and 15mg pred (now down to 10mg). Hiatus hernia was discovered during a scan a couple of months ago. No particular problems with Omeprazole but asked for a different PPI after reading negative reports about a
I’m not sure what to do now. I was diagnosed in February with PMR and prescribed Omeprazole and 15mg pred (now down to 10mg). Hiatus hernia was discovered during a scan a couple of months ago. No particular problems with Omeprazole but asked for a different PPI after reading negative reports about a
Lclmlbls
in
PMRGCAuk
5 months ago
Mouth dryness no saliva
Hi all,Spoke to the Rheumatology nurse today ,was suggesting sprays a d pastilles for saliva replacement. But I want to know what any of you has use or have actually come across that is beneficial as a saliva replacement in day time and at night. Problem has is I have already have problems with my
Hi all,Spoke to the Rheumatology nurse today ,was suggesting sprays a d pastilles for saliva replacement. But I want to know what any of you has use or have actually come across that is beneficial as a saliva replacement in day time and at night. Problem has is I have already have problems with my
KnitSewPurl
in
LUPUS UK
5 months ago
Abdominal ultrasound
Hiya,Would just like people's views/experiences on if endo will be picked up on an ultrasound or the abdomen. I've had pelvic mri before which picked up endo everywhere and I'm awaiting surgery (endo,hysterectomy and bowel). I've not got abdomen pains so they've got me down for an ultrasound. I feel
Hiya,Would just like people's views/experiences on if endo will be picked up on an ultrasound or the abdomen. I've had pelvic mri before which picked up endo everywhere and I'm awaiting surgery (endo,hysterectomy and bowel). I've not got abdomen pains so they've got me down for an ultrasound. I feel
Loveneige
in
Endometriosis UK
5 months ago
Mitoxantrone
Has anyone used this for chemo? What is the likelihood of it helping where Docetaxel and Cabazitaxel did not work at all? Thank you
Has anyone used this for chemo? What is the likelihood of it helping where Docetaxel and Cabazitaxel did not work at all? Thank you
spw1
in
Advanced Prostate Cancer
1 year ago
Please help 🙏 Im trying to find HOPE. Has anyone had successful surgical treatments following very long standing AF due to Cardiomyopathy.
Hello everyone. I'm new to this ..and im desperately looking for any help anyone can offer on theor experience of positive outcomes following surgical treatments when you've had the condition for 30 years but has become life limiting in the last 9 years. I'm on Riveroxiban and Betablockers at 7.5 per
Hello everyone. I'm new to this ..and im desperately looking for any help anyone can offer on theor experience of positive outcomes following surgical treatments when you've had the condition for 30 years but has become life limiting in the last 9 years. I'm on Riveroxiban and Betablockers at 7.5 per
Yellowmango99
in
AF Association
5 months ago
Hair issues
hi I forgot to ask my rheum nurse about my hair. I’m on methotrexate and seems to be ok with no abnormal hair loss but since taking it I haven’t had my hair highlighted . Anybody advice with this ? I have left message on advice line but wondering others people’s experience. Thanks
hi I forgot to ask my rheum nurse about my hair. I’m on methotrexate and seems to be ok with no abnormal hair loss but since taking it I haven’t had my hair highlighted . Anybody advice with this ? I have left message on advice line but wondering others people’s experience. Thanks
Teddyboy17
in
NRAS
5 months ago
Bladder Cancer Update,
A most will know. Besides my COPD and heart problems I have Bladder Cancer which is Hight Grade, Six weeks ago I had a Rigid cystoscopy to see how my last ditch treatment on BCG would go and told, would be the last time I could have that. I had heard nothing and was 6 weeks ago Sunday. I phoned
A most will know. Besides my COPD and heart problems I have Bladder Cancer which is Hight Grade, Six weeks ago I had a Rigid cystoscopy to see how my last ditch treatment on BCG would go and told, would be the last time I could have that. I had heard nothing and was 6 weeks ago Sunday. I phoned
Ern007
in
Lung Conditions Community Forum
6 months ago
Feeling a bit like a train wreck !!
Hi everyone, so just a quick one. Wonder if anyone else feels a bit like me ?? I'm really struggling to get motivated at the moment. It's not helping when it's dark, cold and wet in the evenings. I love running, but time with everything (work, homelife, general everything life) is just flying by
Hi everyone, so just a quick one. Wonder if anyone else feels a bit like me ?? I'm really struggling to get motivated at the moment. It's not helping when it's dark, cold and wet in the evenings. I love running, but time with everything (work, homelife, general everything life) is just flying by
adnewg73
Graduate
in
Couch to 5K
6 months ago
Biotin and ESR/CRP Testing
Good evening. I have been taking supplements - AdCalD3 (of course!), Vit K2, VitB complex magnesium glycerine/malate and fish oil - fairly religiously since starting on pred. To help with hair/skin/bone thinning, I have also taken collagen and biotin. I was alarmed to discover tonight that biotin can
Good evening. I have been taking supplements - AdCalD3 (of course!), Vit K2, VitB complex magnesium glycerine/malate and fish oil - fairly religiously since starting on pred. To help with hair/skin/bone thinning, I have also taken collagen and biotin. I was alarmed to discover tonight that biotin can
Burroughs123
in
PMRGCAuk
6 months ago
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