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Mepolizumab - Child
My soon to be 6 year old may be going onto
mepolizumab
injections every month starting in the autumn. He has severe eosinophilic asthma and his very good respiratory consultant has exhausted all other avenues for treatment. My son has very high Ige and very high eosinophil count.
My soon to be 6 year old may be going onto
mepolizumab
injections every month starting in the autumn. He has severe eosinophilic asthma and his very good respiratory consultant has exhausted all other avenues for treatment. My son has very high Ige and very high eosinophil count.
SazSeb
in
Asthma Community Forum
5 years ago
Alternatives to Immunosuppresents
Hello All can anyone help me with advise on how to control my Crohns without using any form of immunosuppresents. I have had a bad year with very bad side effects from Vedolizumab, eventually led to having Throat Cancer not sure if related or not. However cancer has been surgically removed and now
Hello All can anyone help me with advise on how to control my Crohns without using any form of immunosuppresents. I have had a bad year with very bad side effects from Vedolizumab, eventually led to having Throat Cancer not sure if related or not. However cancer has been surgically removed and now
HJ10HMO
in
Crohn's and Colitis Support
5 years ago
IgE mediated allergies now non-IgE mediated.
THey want it down to 15 to repeat the eosinophil sputum induction and hope to get levels for reslizumab or
mepolizumab
. I guess I haven't really asked a question yet and if you've got this far thanks.
THey want it down to 15 to repeat the eosinophil sputum induction and hope to get levels for reslizumab or
mepolizumab
. I guess I haven't really asked a question yet and if you've got this far thanks.
NickyNoo24
in
Asthma Community Forum
5 years ago
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Mepolizumab
Anyway, anything you can tell me about the
mepolizumab
, side effects experienced would be fab. I was also wondering after the 6 month trial of having the injections monthy at the hospital would there be an option for me to self inject rather than having to keep going to have it done?
Anyway, anything you can tell me about the
mepolizumab
, side effects experienced would be fab. I was also wondering after the 6 month trial of having the injections monthy at the hospital would there be an option for me to self inject rather than having to keep going to have it done?
Gemfli
in
Asthma Community Forum
5 years ago
Vedolizumab and diahorrea !!anyone else?
Hi, all so started vedolizumab had 4 infusions first of constipated me,but know pouring out me diahorrea!!anyone else?
Hi, all so started vedolizumab had 4 infusions first of constipated me,but know pouring out me diahorrea!!anyone else?
feisty-girl
in
Crohn's and Colitis Support
5 years ago
Xolair vs. Nucala (Omalizumab vs. Mepolizumab)
My last pulmonologist had wanted to start me on Nucala (
Mepolizumab
) even though my Eosinophil count isn't that high (200).
My last pulmonologist had wanted to start me on Nucala (
Mepolizumab
) even though my Eosinophil count isn't that high (200).
hilary39
in
Living with Asthma
5 years ago
Xolair vs. Nucala for asthma (Omalizumab vs Mepolizumab)
My last pulmonologist had wanted to start me on Nucala (
Mepolizumab
) even though my Eosinophil count isn't that high (200).
My last pulmonologist had wanted to start me on Nucala (
Mepolizumab
) even though my Eosinophil count isn't that high (200).
hilary39
in
USAllergies
5 years ago
Biologicals vs wheeze
Tried
mepolizumab
and my wheeze completely disappeared! I would go from ‘normal’ to silent chest in an attack with only SoB and tightness as a sign (I’m not a typical cougher). Here my eosinophil count was 0.01 and I had to get used to the ‘no I don’t wheeze’ argument in attacks.
Tried
mepolizumab
and my wheeze completely disappeared! I would go from ‘normal’ to silent chest in an attack with only SoB and tightness as a sign (I’m not a typical cougher). Here my eosinophil count was 0.01 and I had to get used to the ‘no I don’t wheeze’ argument in attacks.
EmmaF91
Community Ambassador
in
Asthma Community Forum
5 years ago
Anyone have experience of mepolizumab injections ?
Mepolizumab
Mepolizumab
Jeecamgunn
in
Lung Conditions Community Forum
5 years ago
Mepolizumab
I’m on my 18th
mepolizumab
injection and I am delighted to say that there has been a significant improvement in my asthma condition however I've come up with spots and acne on my face. My GP thought it could possibly be caused by the effect on the immune system as a result of the mepo.
I’m on my 18th
mepolizumab
injection and I am delighted to say that there has been a significant improvement in my asthma condition however I've come up with spots and acne on my face. My GP thought it could possibly be caused by the effect on the immune system as a result of the mepo.
Josephone
in
Asthma Community Forum
5 years ago
MEPOLIZUMAB x 300mg HI DOSE ANYONE IN USA
I’ve been on
MEPOLIZUMAB
injections for 23 months now for severe difficult asthma/EPGA/Churg Strauss Syndrome with limited effect. I’m deteriorating considerably now & Consultant must act.
I’ve been on
MEPOLIZUMAB
injections for 23 months now for severe difficult asthma/EPGA/Churg Strauss Syndrome with limited effect. I’m deteriorating considerably now & Consultant must act.
Sparkimoore
in
Vasculitis UK
5 years ago
Mepolizumab - thoughts?
I have been on mepo now for 12 months - my pred has reduced significantly, from 50mg a day to 10mg. However it does not seem to have the effect of a high dose of pred - if I need to exercise I need some pred as well. I am not sure I will ever completely come off the steroids.
I have been on mepo now for 12 months - my pred has reduced significantly, from 50mg a day to 10mg. However it does not seem to have the effect of a high dose of pred - if I need to exercise I need some pred as well. I am not sure I will ever completely come off the steroids.
Brenviking
in
Asthma Community Forum
5 years ago
Eosinophils
My eosinophil are back up to 0.9 since stopping
Mepolizumab
, stopped due to side affects . I wasn’t sure it was helping but the way I feel now is much worse. Just wonder if it’s just a winter thing.
My eosinophil are back up to 0.9 since stopping
Mepolizumab
, stopped due to side affects . I wasn’t sure it was helping but the way I feel now is much worse. Just wonder if it’s just a winter thing.
Shellc
in
Asthma Community Forum
5 years ago
Confused is my symptoms from IBS or Crohns Disease?
For 7 years having problems with severe slow transit, been on liquid diet for 5 years. Problem is when I try to eat i can feel the food struggling to travel up my right side!! With severe pain. Doesn't help that my crohns has not responded to all treatment s.&Have ulcers and immflamation they are trying
For 7 years having problems with severe slow transit, been on liquid diet for 5 years. Problem is when I try to eat i can feel the food struggling to travel up my right side!! With severe pain. Doesn't help that my crohns has not responded to all treatment s.&Have ulcers and immflamation they are trying
feisty-girl
in
IBS Network
5 years ago
mepolizumab
Anyone on here started
mepolizumab
? I’m on the waiting list for funding and hopefully will start this next year
Anyone on here started
mepolizumab
? I’m on the waiting list for funding and hopefully will start this next year
Wheezer2018
in
Asthma Community Forum
6 years ago
SARA day - Royal Brompton
eosinophilic asthma - going to be starting
Mepolizumab
( nucala) injections monthly in about 8 weeks once the funding application has gone through. Anyone here got this diagnosis or had / having this treatment ?
eosinophilic asthma - going to be starting
Mepolizumab
( nucala) injections monthly in about 8 weeks once the funding application has gone through. Anyone here got this diagnosis or had / having this treatment ?
Wheezer2018
in
Asthma Community Forum
6 years ago
IBD INFORMATION PLEASE!!!
Hi all, UPDATE Has anyone had any experience with taking VEDOLIZUMAB. my daughter is about to start taking this new drug by infusion. Fingers crossed it helps her. Love to hear about anybody else’s use of this biologic style drug. Many thanks
Hi all, UPDATE Has anyone had any experience with taking VEDOLIZUMAB. my daughter is about to start taking this new drug by infusion. Fingers crossed it helps her. Love to hear about anybody else’s use of this biologic style drug. Many thanks
Diamond12345
in
Crohn's and Colitis Support
5 years ago
Xolair or Mepolizumab
Hi is there anyone on Xolair or
Mepolizumab
or has recently had it but stopped for any reason. I took part in a medical research questionnaire on it and got paid 80 pounds for it . It’s all above board .
Hi is there anyone on Xolair or
Mepolizumab
or has recently had it but stopped for any reason. I took part in a medical research questionnaire on it and got paid 80 pounds for it . It’s all above board .
Shellc
in
Asthma Community Forum
6 years ago
Anybody on Xolair or Mepolizumab interested in answering some market research questions and paid 80 pounds
On Monday I went to lo London to answer some questions about being
Mepolizumab
(nucAla). It was for a company called Exafield . I did about an hour of homework before hand which consisted answering a few questions and showing a picture as examples , there are no right or wrong answers .
On Monday I went to lo London to answer some questions about being
Mepolizumab
(nucAla). It was for a company called Exafield . I did about an hour of homework before hand which consisted answering a few questions and showing a picture as examples , there are no right or wrong answers .
Shellc
in
Asthma Community Forum
6 years ago
Exafield
Anybody know anything about a medical research company called Exafield , been asked to give my opinion on
Mepolizumab
Anybody know anything about a medical research company called Exafield , been asked to give my opinion on
Mepolizumab
Shellc
in
Asthma Community Forum
6 years ago
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