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Medium chain acyl dehydrogenase deficiency
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Help with Sodium Pico sulphate and movicol to help with soiling
I’m looking for some help. My daughter (will be 5 in September)followed a disimpaction regime about 6/7 weeks ago. This was her first disimpaction. It worked well and has lessened her soiling greatly but we are now in a cycle of 5/6 days with no accidents and then about 4 days running of constant accidents
I’m looking for some help. My daughter (will be 5 in September)followed a disimpaction regime about 6/7 weeks ago. This was her first disimpaction. It worked well and has lessened her soiling greatly but we are now in a cycle of 5/6 days with no accidents and then about 4 days running of constant accidents
tedd881
in
ERIC
5 years ago
New supplement
I have just started taking C8 MCT oil. It has lots of good reviews but as yet have not seen improvement in my energy or Fibromyalgia. Does anyone on here take this ?
I have just started taking C8 MCT oil. It has lots of good reviews but as yet have not seen improvement in my energy or Fibromyalgia. Does anyone on here take this ?
Sylvia22
in
Thyroid UK
5 years ago
ORS Hydration Tablets and cirrhosis
Evening all. Feeling a little dehydrated I’ve used ORS Hydration Tablets. However I’ve just seen in big bold letters DO NOT USE if you have problems with liver or kidney. It’s done now so hopefully I’ve not done any more damage but I assume the risk is high sodium to aid the fizz? So need education
Evening all. Feeling a little dehydrated I’ve used ORS Hydration Tablets. However I’ve just seen in big bold letters DO NOT USE if you have problems with liver or kidney. It’s done now so hopefully I’ve not done any more damage but I assume the risk is high sodium to aid the fizz? So need education
Xenom0rph
in
British Liver Trust
5 years ago
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Extreme fatigue
Hi I may have questioned this before at an earlier time but it is still a big concern. My partner has post ET myelofibrosis. (ET for 5 years, diagnosed with myelofibrosis in April this year) He was taking hydroxycarbamide (not sure if I have spelt this right) for his ET and was started on Rux for
Hi I may have questioned this before at an earlier time but it is still a big concern. My partner has post ET myelofibrosis. (ET for 5 years, diagnosed with myelofibrosis in April this year) He was taking hydroxycarbamide (not sure if I have spelt this right) for his ET and was started on Rux for
Goldfish212
in
MPN Voice
5 years ago
TBG, Reverse T3 & SHBG Issues - What Does This Mean?
Greetings and happy July all. I have Hashi's confirmed by ultrasound and blood antibodies. I am not being treated as my family doctor and encrinologist say my blood work does not justify it. I have every symptom of hypo, I mean every symptom, and I also believe I have fatigued adrenals big time. But,
Greetings and happy July all. I have Hashi's confirmed by ultrasound and blood antibodies. I am not being treated as my family doctor and encrinologist say my blood work does not justify it. I have every symptom of hypo, I mean every symptom, and I also believe I have fatigued adrenals big time. But,
ASkepticalConsumer
in
Thyroid UK
5 years ago
Low ferritin and high transferrin saturation
Hi all, sorry if this is a bit off topic but I know there are some experts in vitamins and minerals out there. I haven’t been diagnosed with a thyroid condition but, with the help of this lovely group, I discovered my thyroid is sluggish (TSH hovers between 2.5 & 3 and FT3 has been at the lower end of
Hi all, sorry if this is a bit off topic but I know there are some experts in vitamins and minerals out there. I haven’t been diagnosed with a thyroid condition but, with the help of this lovely group, I discovered my thyroid is sluggish (TSH hovers between 2.5 & 3 and FT3 has been at the lower end of
Julesboz
in
Thyroid UK
5 years ago
NHS website states
The NHS website states " PA is the most common cause of b12 deficiency in the UK". So why do NHS doctors not read that? It goes on to say "Some people can experience problems related to a vitamin B12 deficiency, despite appearing to have normal levels of vitamin B12 in their blood. This can happen as
The NHS website states " PA is the most common cause of b12 deficiency in the UK". So why do NHS doctors not read that? It goes on to say "Some people can experience problems related to a vitamin B12 deficiency, despite appearing to have normal levels of vitamin B12 in their blood. This can happen as
lesbud1
in
Pernicious Anaemia Society
5 years ago
Next Step
Good morning, I enjoy reading and learning from everyone on this board! My dad (76) has been on this journey with stage 4 metastasized prostate cancer for a little over a year now. He has exhausted the majority of treatments. He has castration-resistant prostate cancer with progression despite abiraterone
Good morning, I enjoy reading and learning from everyone on this board! My dad (76) has been on this journey with stage 4 metastasized prostate cancer for a little over a year now. He has exhausted the majority of treatments. He has castration-resistant prostate cancer with progression despite abiraterone
Amandaslp78
in
Advanced Prostate Cancer
5 years ago
Low ferritin, normal hb , has anyone had infusions
Hi I currently have a ferritin level of 8 and feel terrible. I have a history of low ferritin and it hasn’t been higher than 25 for 4 years. I’m no longer able to take iron tablets because of side effects. My gp Has recommended iron infusions and from the research I’ve done could greatly improve my quality
Hi I currently have a ferritin level of 8 and feel terrible. I have a history of low ferritin and it hasn’t been higher than 25 for 4 years. I’m no longer able to take iron tablets because of side effects. My gp Has recommended iron infusions and from the research I’ve done could greatly improve my quality
Tootsie2468
in
Thyroid UK
5 years ago
B12 and iron deficiency link?
Just found this article. It suggests a link between B12 and iron deficiency. I thought it may be interesting. (I had B12 deficiency and iron deficiency at the same time, the iron deficiency corrected itself mysteriously after 2 weeks of B12 loading doses) Extracted quote to save you reading the whole
Just found this article. It suggests a link between B12 and iron deficiency. I thought it may be interesting. (I had B12 deficiency and iron deficiency at the same time, the iron deficiency corrected itself mysteriously after 2 weeks of B12 loading doses) Extracted quote to save you reading the whole
GastritisB12
in
Pernicious Anaemia Society
5 years ago
Blood results
Would be grateful it you could double check my results for me. Doctor who commented said everything is ‘normal’ except iron was a little high, but that could be because of the spinach I eat as I don’t take any iron supplements. I’m on 175mcg levothyroxine. Thank you
Would be grateful it you could double check my results for me. Doctor who commented said everything is ‘normal’ except iron was a little high, but that could be because of the spinach I eat as I don’t take any iron supplements. I’m on 175mcg levothyroxine. Thank you
Neverending63
in
Thyroid UK
5 years ago
Lobectomy 2 days ago
Wow! This has been rough. Right after operation everything seemed very positive, pain under control and good breathing. Then that evening my blood pressure started dropping, so they've had to do alternate pain meds to epidural. Now my sodium is low. Yesterday was an especially rough day, between the
Wow! This has been rough. Right after operation everything seemed very positive, pain under control and good breathing. Then that evening my blood pressure started dropping, so they've had to do alternate pain meds to epidural. Now my sodium is low. Yesterday was an especially rough day, between the
VerdeAzul
in
Lung Cancer Support
5 years ago
overmedicated adrenals causing very high BP?
hi, just had a nurse out and she took my BP and it is very high - 172/116. i've been medicating my adrenals for almost 2 years and increased my dose about a year ago of adrenavive. i'm currently taking 300mg and 5 mgs prednisone. i'm waiting on test results for my adrenals but for all this time i've
hi, just had a nurse out and she took my BP and it is very high - 172/116. i've been medicating my adrenals for almost 2 years and increased my dose about a year ago of adrenavive. i'm currently taking 300mg and 5 mgs prednisone. i'm waiting on test results for my adrenals but for all this time i've
Nico101
in
Thyroid UK
5 years ago
More or less T4 with T3?
These are some bloods from a test a week ago. This is on 75 mcg of T4 & 30 mcg of T3. It looks to me like I'm converting the T4 into T3 pretty well. Feel good except for an occasional cold and a stiff neck that cracks like a knee popping sometimes. My endo doesn't want to prescribe any higher T4 without
These are some bloods from a test a week ago. This is on 75 mcg of T4 & 30 mcg of T3. It looks to me like I'm converting the T4 into T3 pretty well. Feel good except for an occasional cold and a stiff neck that cracks like a knee popping sometimes. My endo doesn't want to prescribe any higher T4 without
GKeith
in
Thyroid UK
5 years ago
Advice on confusing results
I would really appreciate one of you lovely forumites giving me feed back on these blood results please? After waiting 4.5 weeks to see a GP and going armed with an ammo of facts and figures all gleaned from previous posts, advice, suggested links and personal research I was bowled over to finally find
I would really appreciate one of you lovely forumites giving me feed back on these blood results please? After waiting 4.5 weeks to see a GP and going armed with an ammo of facts and figures all gleaned from previous posts, advice, suggested links and personal research I was bowled over to finally find
ILR2019
in
Thyroid UK
5 years ago
It's OK to put sugar in your iced tea
This is from one of the largest food diary panels - using 101,257 people in the French NutriNet-Santé cohort with 5 years of follow-up so far. While there was an association for some cancers, there was [i]no significant association[/i] between amount of sugary drink intake and incidence of prostate
This is from one of the largest food diary panels - using 101,257 people in the French NutriNet-Santé cohort with 5 years of follow-up so far. While there was an association for some cancers, there was [i]no significant association[/i] between amount of sugary drink intake and incidence of prostate
Tall_Allen
in
Advanced Prostate Cancer
5 years ago
Starting Radium 223 (Xofigo) next week
Having just finished a trial of carboplatin + docetaxel, I'll be starting Xofigo next week as a bridge to a pembro+ trial early next year. My latest PSA is 940, with no visible soft tissue involvement. I have a single-strand CDK12 defect. Hoping that the suggestion of this paper is true for me: Efficacy
Having just finished a trial of carboplatin + docetaxel, I'll be starting Xofigo next week as a bridge to a pembro+ trial early next year. My latest PSA is 940, with no visible soft tissue involvement. I have a single-strand CDK12 defect. Hoping that the suggestion of this paper is true for me: Efficacy
johngwilk
in
Advanced Prostate Cancer
5 years ago
Efficacy of Radium-223 in Bone-Metastatic Castration-Resistant Prostate Cancer With and Without Homologous Repair Gene Defects
TAKE-HOME MESSAGE Somatic tumor and germline DNA testing are becoming more meaningful in the management of patients with advanced prostate cancer. This study evaluated the potential impact of germline or somatic homologous recombination deficiency (HRD) mutations on radium-223 efficacy in metastatic
TAKE-HOME MESSAGE Somatic tumor and germline DNA testing are becoming more meaningful in the management of patients with advanced prostate cancer. This study evaluated the potential impact of germline or somatic homologous recombination deficiency (HRD) mutations on radium-223 efficacy in metastatic
snoraste
in
Advanced Prostate Cancer
5 years ago
BMJ Oral Vitamin B12 can change our Practice
Is this article why some of us are being put on oral b12? what do we say to this? This is what is says This study confirms that oral 1000 μg cyanocobalamin provides effective maintenance therapy for vitamin B12 deficiency of all causes. General practitioners can be confident that this alternative treatment
Is this article why some of us are being put on oral b12? what do we say to this? This is what is says This study confirms that oral 1000 μg cyanocobalamin provides effective maintenance therapy for vitamin B12 deficiency of all causes. General practitioners can be confident that this alternative treatment
lesbud1
in
Pernicious Anaemia Society
5 years ago
Cinnamon brings new hope for Parkinson’s Disease
"According to many studies cinnamon helps prevent cellular damage to the area of the brain that causes Parkinson’s." My friend has been using cinnamon and I'd begun to believe that his success was due to properties of Sodium benzoate and how they acted in the gut. I thought that the antibacterial activities
"According to many studies cinnamon helps prevent cellular damage to the area of the brain that causes Parkinson’s." My friend has been using cinnamon and I'd begun to believe that his success was due to properties of Sodium benzoate and how they acted in the gut. I thought that the antibacterial activities
yeramian
in
Cure Parkinson's
5 years ago
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